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Sacroiliac joint Fusion

Started by rossam on 09/23/2011 12:16pm

After having 2 back surgeries fusions L3- L5 and L5-S1
I am having a lot of pain in my groin, low back and can not lay on my
Left hip and have pain in SI joint. I had 2 injections in my SI joint with
no relief in the first one and great relief the second one for about 15 hrs
on both sides. My back surgeon sent me to a SI Bone doctor and he has
set me up to have SI bone fusion the 29th of sept. We talked about my right hip
and SI pain and told me that when the left joint is fused that my right hip should
calm done. I have had SI problems for around 20 years and with up- slip
It has cause a 12 degree curve in my spine from l3 to t10 I was told if I could
have got the SI fixed at least 10 years ago I would probably not have had to have back
surgery?

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I am 41 years old and have had low back problems for 24 years. I have herniated, bulging and degenerative disc disease from L-3 to S-1. I have yet to come accross a doctor that wants to do surgery and thankfully been able to correct my pain through exercise. I know your fustration. At one point in 2007 I had had a serious bout of pain that raidated down both legs. I had even gone through two epidurals. The first gave me no relief. The second made me worse. I was headed for surgery until I was directed to a physical therapist who personalized my treatment instead of putting me through a "cookie cutter" treatment (I was treated at four other P.T. centers).
I don't understand what an up-slip is (never heard of it). I also don't know that a doctor can tell you what should have been done 10 years ago. I hope that you have taken the time to get several opinions prior to scheduling this surgery. I know how it feels to want to be "fixed" and wish you well on your S1 bone fusion.
Best of luck and hope to hear an update after your surgery.

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I have a long leg length 5/8 inch,that is up-slip. This is my 2nd Doctor i have been to about this sacroiliac joint disorder lately,My neurosurgeon sent me to this SI-bone doctor plus I have failed the patrick test plus two injections into both joints. I can not cross my left leg over my right knee!!!

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HI Rossam:

Did you have the Si-Bone i-Fuse implants done? Please let me know how it went for you. If you had it done on the 29th, you probably are not able to sit up yet. They told me to sit for one hour or less the first few weeks and to use a walker or crutches for the first month.

It's been rough going for me. I had SI-Bone i-Fuse product implanted in my left hip on April 14th and screw fixation with 2 titanium pins on the right side. I've got some lumpy bumpy painful areas in the left hip after almost 6 months and no problems with the right.

I was told that many people with SI problems are misdiagnosed as having L5-S1 problems. I was also told to get both sides done as too much pressure is put on the OTHER side if only one side if fixated. You get immediate SI fixation with i-Fuse and fusion after about a month. If the other side is not done and can move freely then it's still able to twist out of alignment. But I've been told so much about SI problems that it's hard to know who is right and who is not.

You will need to find a good physical therapist and if you don't have one already I'd start searching for one NOW. I was sent to therapy 3x per week for 6 weeks and did great until mid-July then starting having problems with my thoracic area. Many of us with scoliosis and LLD have problems with the thoracic spine twisting post-op after SI surgery.

I'm not trying to steal anyone away from this board but you will find about 25 people who have the i-Fuse done already and others who are considering it in the future. Please check out the group over on Facebook "SACRO-ILIAC JOINT SYNDROME / SI JOINT DYSFUNCTION - SIJD" when you are able to:

https://www.facebook.com/groups/69991252216/

Best of luck to you and wishing you a speedy recovery, SIJD is a real pain in the butt.

Linda Sauer

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HI Rossam:

Did you have the Si-Bone i-Fuse implants done? Please let me know how it went for you. If you had it done on the 29th, you probably are not able to sit up yet. They told me to sit for one hour or less the first few weeks and to use a walker or crutches for the first month.

It's been rough going for me. I had SI-Bone i-Fuse product implanted in my left hip on April 14th and screw fixation with 2 titanium pins on the right side. I've got some lumpy bumpy painful areas in the left hip after almost 6 months and no problems with the right.

I was told that many people with SI problems are misdiagnosed as having L5-S1 problems. I was also told to get both sides done as too much pressure is put on the OTHER side if only one side if fixated. You get immediate SI fixation with i-Fuse and fusion after about a month. If the other side is not done and can move freely then it's still able to twist out of alignment. But I've been told so much about SI problems that it's hard to know who is right and who is not.

You will need to find a good physical therapist and if you don't have one already I'd start searching for one NOW. I was sent to therapy 3x per week for 6 weeks and did great until mid-July then starting having problems with my thoracic area. Many of us with scoliosis and LLD have problems with the thoracic spine twisting post-op after SI surgery.

I'm not trying to steal anyone away from this board but you will find about 25 people who have the i-Fuse done already and others who are considering it in the future. Please check out the group over on Facebook "SACRO-ILIAC JOINT SYNDROME / SI JOINT DYSFUNCTION - SIJD" when you are able to:

https://www.facebook.com/groups/69991252216/

Best of luck to you and wishing you a speedy recovery, SIJD is a real pain in the butt.

Linda Sauer

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I had spinal fusion surgery in 2000 , L3-L5.. I still had back pain with too much activity, for the past three years pain has been increasing in my lower back, medications did not help, only knocked me out and unable to function. I had my surgery in Rhode Island and moved to Florida 3 years later. For some reason, Florida doctors didn't want to treat me or deal with me because I had my surgery in another state. I only saw "Pain Management " doctors. I had finally had enough, so much pain, that I drove myself up to Rhode Island and went to the original doctor who did my fusion. I had just undergone yet another set of injections in Florida with no relief. I was losing my hair, and gaining all kinds of weight from the side effects of the injections.
My doctor in Rhode Island sent me for two more injections to be sure it was the sacroiliac joint causing the pain. I finally had SI joint fusion June 15,2012. I was in Rhode Island from Feb 2012 , till July 7... thats how long the diagnosis and final surgery took to get done. My doctor had not done an SI joint fusion before, but had a Doctor from New Hampshire come in and assist with my surgery. I have to say, pain was minimal as far as the whole procedure went.. stopped pain meds in hospital two days after the surgery. I only took them when I had to. My question is.. How long for all of this to feel better? I was given instructions for 50% weight bearing on that leg and use crutches.. But the crutches hurt more and I am afraid of falling . I have been a hairstylist for 32 yrs. and was expecting to go back to work in another week or so.. but I'll be honest... walking on the leg HURTS>> : ( I can't imagine standing behind a chair doing hair for any lenght of time at this point...

I also want to know what type of physical therapy I should look for? Hopefully someone on this site can give me some advice. Thanks for listening...

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I wish I would've seen this year's ago! I hope you see this & can be the light at the end of my tunnel. I too have suffered with Sacroiliac Joint Dysfunction bilaterally for years! I was scheduled for fusion of the SI Joints, (L first since it's bone on bone) & was DENIED surgery by my insurance company, Blue Cross Blue Shield of SC. They consider it to be "investigational" & "not medically necessary". So, my surgeon & myself provided all documentation & did an appeal & it was DENIED AGAIN! Any insight or suggestions on this? What insurance do you have if you don't mind me asking? Any help would be great. Thank you & be blessed.

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