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Posted in: Spondylolisthesis, and Surgery.

New here and would love some advise for my 11 year old son PLEASE!

Started by Debsben on 07/29/2011 1:56am

Quick history. My son then aged nine was diagnoised with a grade 1 slip of his L5. Emergency surgery at Standmore to insert bone morphogentic protien and screws then braced with a soft corset. Things improved for a while but six months later his back was really bad. He was taken constant high does pain killers, not sleeping and suffering with depression. CT scan showed that one of the screws had snapped showing non union and the BMP had overgrown pressing on his spine. Found another Dr who carried out a second surgery in Dec of 2010 to remove the BMP and broken instrumentation, take a part of Oliver's hip bone and using metal rods at Great Ormond Street. The lastest CT has shown a sucessful fusion. We are now six months post op and Oliver is in pain again, his feet hurt and his knees hust and he is getting stiff again. Some days he is like a normal 11 year old racing around on his bike and really enjoying life and other days he finds it hard to walk? he is like an old man. The surgery is succesfully and I know it has fused this time but why the pain now? what does the future hold? I have been told it will take 18months to recover but why all these syptoms now? would love feedback please Deborah x

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I'm not a Dr. but I do have 4 fusions in my neck and 2 at L4-L5, L5-S1. the first thing you would need to do I think is not let him run around like a 9 or 10 yr old. Put the Bike away for a while and get PT instead. He's going to have to learn to take life easy and don't push it or you will hurt like hell. I would think also that he's growing so everything gets out of alignment. The Bone from the hip is a bad idea from everyone I have talked too because it hurts worse than the fusion. I have cadaber bone's in my neck and some kind of bone with extra metal also on both sides. I think you also need to get some really good advice from the Dr.s on what he can and can't do. That is just a part of the problem but every little thing from now on means be careful, slow down, watch how you bend, twist, lift, everything. Your the parent so you are going to have to keep him in line instead of smiling while he is doing everything he shouldn't.

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I'm not a Dr. but I do have 4 fusions in my neck and 2 at L4-L5, L5-S1. the first thing you would need to do I think is not let him run around like a 9 or 10 yr old. Put the Bike away for a while and get PT instead. He's going to have to learn to take life easy and don't push it or you will hurt like hell. I would think also that he's growing so everything gets out of alignment. The Bone from the hip is a bad idea from everyone I have talked too because it hurts worse than the fusion. I think you also need to get some really good advice from the Dr.s on what he can and can't do. That is just a part of the problem but every little thing from now on means be careful, slow down, watch how you bend, twist, lift, everything. Your the parent so you are going to have to keep him in line instead of smiling while he is doing everything he shouldn't.

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I understand when you say his onset off pain comes so quickly. Thats what happens to me, fine one min or day then BAM out of nowhere comes this unbearable pain, lenght of time varries,sometimes it takes 3 dayds for the pain somewhat dissapate. Its called radiculapathy,when ur sons neves n root endings running through discs and spine n they get inflammed, causing pain. You need to make sure hes also on a good anti-inflammatory, ( as long as theres no allergy) Im an orthopdeic nurse, just thought ud like some input. Its all about taking control of the inflammation, although due to our daily movements and our spinal issues we will always have this radiculapathy pain. Some days r good, some r bad. Keep searching, having docs change his med every 2-3 months( meds take atleast a month to hit a theraputic level to tell if their working) if hes having more bad days than good. Pain pills just mask pain, n yes we need them to survive pain at time, buts its the inflamation. Ive read up on vitamins,search Spinal health vitamin supplements,but always check w ur physician first, I try to controll inflammation at every aspect, I figure cant hurt,just aide,not take away,Ive come to that reality.So I take vitamins,celebrex, n see my shrink and primary. So we go on living and paying co-pays to go see them,home n pain.or possibly able to go out one day. But keep him and yourself strong. fight for correct doc, verbal treatment, and help for him to get some releif.God Bless,,,,RENE

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