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ARACHNOIDITIS

Started by bobby w on 10/19/2010 12:02pm

CAN ANYONE TELL ME IF A SPINAL CORD STIMULATOR WILL HELP WITH ARACHNOIDITIS. I AM HAVING INJECTIONS AT L5,S1,2, AND S3 TO SEE IF THAT HELPS BEFORE IMPLANT. HAVE SEVERE PAIN IN BACK,HIP,LEG AND FOOT.

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Hi
I had a spinal tumor , surgery and radiation. Years later they tell me I have arachnoiditis and damage from the radiation. Symptoms? first twitchy muscles and weakness in legs particularly one leg and ankle. It has progressed aand I have foot drop in left leg but I am still walking. Pain in hip, lower back, legs. Tingling, pins and needles, achey pain. Muscles in my lower back tighten up and don't let go. Knots in butt muscles. Ok so what to do about it.

I have tried ART - Active Release treatment and that helped right off . My chiropractor was trained in it. It isn't bone adjustment, it is working out the muscle, stretching it and it definitely loosened up the scar tissue. My back was hard as a brick wall when I started and it has some give to it now. Next, I work out twice weekly with a trainer and we just concentrate on legs. I took up biking and that seems to help too. If I sit all of my symptoms gets worse. I can go from a 2 on pain scale to a 10 in 2 days if I don't keep moving. I had to find this out myself as the docs and PT's pushed meds and light exercise. I found the harder I get my legs to work the less symptoms I have. If my muscles contract the blood gets to where it needs to go. I stopped taking meds months ago because they made me forgetful. The exercise has kept me vertical for about 3 years now. (The neurosurgeon told me I'd be wheel chair bound in 6 months. ) I don't know what I'll be like ten years from now but for now I am fighting to stay as active as possible everyday.

So not sure if this will even help because maybe you already tried this type of treatment. OH and I am getting prolotherapy too. Just started that. I was told it would take a year to make a difference. Look up Caring Medical, it explains it. Has to do with tendons and cartilage and made sense to me. Also it can't hurt so I am for anything that won't make me worse and might make me better. I will say Dr. Hauser suggested an SI belt (supports your SI joint) and that helped immensely. Back pain went away totally. I could go on about all my discoveries but not knowing what you already tried I'll stop.

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THANKS FOR YOUR INPUT. CAN ANYONE TELL ME IF A SPINAL CORD STIMULATOR HELPS WITH SEVERE BACK,HIP,LEG AND FOOT PAIN. ANY INPUT WILL BE HELPFUL.I HOPE SOMEONE REPLY,S SOON. I HAVE NEXT APOINTMENT 11-4-10

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NEED INPUT ON MY ABOVE QUESTION. ANYONE PLEASE RESPOND TO MY QUESTION.
NEED ADVISE NOW.

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hi...
i just found this old study on the web

Performing your original search, arachnoiditis and spinal cord stimulator, in PubMed will retrieve 4 records.
Spine (Phila Pa 1976). 1983 Sep;8(6):593-603.
Lumbosacral spinal fibrosis (spinal arachnoiditis). Its diagnosis and treatment by spinal cord stimulation.
de la Porte C, Siegfried J.

Abstract
From 1973 to 1981, 94 patients suffering from low-back pain, with or without spread into the lower extremities, were candidates for therapeutic spinal cord stimulation. The etiology of pain in all cases was lumbosacral spinal fibrosis due to multiple myelographies and surgical interventions on the lumbar spine. The long-term results, based on a four-year follow-up, reveal a 60% subjective improvement of pain, a 40% substantial reduction of medication, and a 26% increase in working capacity. The concept of spinal arachnoiditis is reviewed and the term lumbosacral spinal fibrosis proposed. The treatment of this chronic painful and disabling disease is discussed.

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THANKS PETE 81241 FOR YOUR INPUT. WOULD LIKE TO HEAR FROM SOMEONE THAT HAS HAD A SPINAL CORD STIMULATOR INSTALLED AND SEE IF THEY GOT RELIEF FROM THIS PAINFUL CONDITION.
GOD BLESS
BOBBY

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i have symptoms similar to arachnoiditis but i have stenosis, ddd, facet hypertrophy and ligamentum flavum. the SCS do not reduce my pain at all.

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HEY PETE,THANKS. IM NOT SURE ILL GET THE SCS. I HAD DIAGNOISTIC INJECTIONS AT L4,L5,S1,2 AND S3 HELPED IN LOWER LUMBAR A LITTLE. DR. SAYS SCS IS ONLY THING THAT WILL HELP. I WILL PROBABLY HAVE THE RF ABLATION DONE TO SEE IF THAT HELPS. CANT TAKE ANY PAIN MEDS DUE TO NUROGENIC BLADDER.TRIED EVERY PAIN MEDS ON THE MARKET. CANT URINATE WHEN I TAKE THEM.THANKS FOR YOUR INPUT.
BOBBY
ANY INPUT OR ADVISE FROM ANYONE ELSE WILL BE WELCOME

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hi...
the good thing about the SCS is you can get a trial first to see if its going to help.

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I had a Dorsal Column Stimulator implanted about 18 or so years ago. I have Arachnoiditis and I am fused from L3 to S1. a Dr in Houston told me about that same time that I would be in leg braces in about 5 years but I keep praying and so far I can do without them. Anyway on to the Stimulator: I had it implanted in Houston and it helped a little. They found that the wires were out of place so they went back in and moved them (surgery).. After that it helped better than it did before but the problem was that it helped only in the legs but my pain was also in other areas. Eventually I had it removed in another surgery and since then I have relied on Methadone and Soma. I hate meds but the side effects are not so bad with Methadone . I know this answer is way after your request but I hope it helps someone all the same. May God bless!!!

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I have arachonitis and believe.it was caused by epidurals I have received. I received the spinal stimulator over a year ago. One month later after having a seizure I broke my foot and knocked the battery pack for a twisted loop. Yes, it was implanted under my skin. Had to go back in and have it re-attached. Now, excited that this is going to help with the pain I keep expecting each to be better. I want my life back. Imagine my disappointment with no improvement, angry with my body, myself that I spent most of the time in bed. Sitting, standing, walking are getting harder to do. I'm doing what my dr says, so now what? I changed drs. Had wires and battery pack taken out. Went today for MRsI tto see if the wires did any more damage. I'm hoping for the best but also realistic.. I know of a. Dr in alamba that treats only aracohonitis with iv therapy. If anyine is interested I woyld be glad to share name,.address and phone number.

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I commented earlier about getting my spinal stimulator out. That is not what bothers me so much. I'm angry, depressed and sad all the time. Its not as bad as its going to get and I already feel like a burden. Basically I just don't want to do this anymore. I have 9 broken teeth that have to be surgerically removed from falling when I had a seizure. I lost 171lbs and have so much skin that needs to be removed. This is suppose to be my golden years. What happened. I've lived my life without smoking, drugs, or alcohol. What happen? How do I fix this? I help with everyone I can. Give groceries to those in my family.Donate clothes and toys to womens shelter. I'm a people pleaser and I'm exhausted.

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