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Started by Chinaback on 03/23/2018 12:16pm

I'm not too sure whom to reach out to. Been diagnosed with DDD, Osteoarthritis, scoliosis, herniated discs, have the AD gene, L4 & L5, C3 & C4 blown out. It looks as though I have a spinal tumor, docs are on the fence with Lupus/Fibromyalgia.
Wow, don't I sound like a barrel of laughs!! LOL

Am in so much pain, I think I've got a China back (extremely fragile) - lately I can't sit right, stand right, sleep right, nothing is right...it's all wrong.

Anyone have any advice to get me outta the funk?

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I'm surprised no one has replied to your post. I have no expertise but empathize with what you are going through, not being about to rest properly in any position makes life miserable. When I had my last accident I couldn't snooze for much over a hour, and yes the setting yourself up when trying to lie down routine is all too familiar, haunting your own house isn't a happy pastime. Thankfully following surgery I can sleep for a few hours at a time.
I noted searching round the forum, medical people will respond if action needs to be taken and the person posting hasn't had any previous medical advice. It is a pity that they don't give pointers to posters that are at a blank wall with their current advice. Anything, would be very appreciated by anyone posting here. I think you will agree with me that,anyone experiencing high pain levels, craves two things, relief from it or a means to find relief. That can be anything from an idea where to look for further help or what type of help, to simply a way to help reduce the pain in some way in your current situation. I noticed your post about beds, good on you. I hit gold on that point at the time of my second accident my daughter was working for a bed manufacturer, who used me as to test their bed designs.
Sorry other than the chin up thing I can't help you. There are some medical people out there who truly are experts, in my case it only took 17 years to find him and in the mean time I was told some real whoppers of theories about my back. The only thing I learned from this is go for the top advice no matter what the cost. So best of luck I and other fellow snuffer's who have endured the destruction of their life hope and pray for the best for you.
By the way I love your alias it's so fitting to how it feels, I chose mine because I'm bit of an expert in bad luck with my back.

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Hi, Chinaback--thank you for your post. We are sorry to read about how much back pain you are in. We can't imagine the toll it must take on your quality of life.

Can you tell us a bit more about the treatments you have used to help control your pain? Have your doctors recommended non-surgical treatments, like physical therapy? Have you been able to do gentle exercise, like hydrotherapy ( Hydrotherapy and Aquatic Therapy )? Many people find that gentle exercise gives them relief, as long as your doctor thinks it's OK for you to do.

Another way to help get you out of your funk is local support groups. Being in pain can be such an isolating experience. Our online Community is a great place to come together with others who understand what you're going through, and local support groups may offer additional opportunities to connect with others who "get" your pain.

We hope this information helps you, Chinaback!

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