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TO ALL US SPINAL SUFFERERS,MORE POSITIVE THOUGHTS,FIGHTING TO GET BETTER AND FIGHTING THE SYSTEM.THE MIND PLAYS A POWERFUL

Started by rene on 09/06/2011 7:37am

I WOULD LIKE TO READ MORE ABOUT, OR PEOPLE ASKING QUESTIONS OF WHAT ELSE CAN I TRY. MY therapist has been encouraging me to think good toughts and not dwell on the situation at hand,but to keep searching for the solution of compfort not perfection and of how things were planned to be. The conditions and pains are what they are for us,and there is a solution to the pain,(most important) each individual juat has to find it cause that is whats stoppin everyone from becoming who we used to be.But dont give up, FIGHT THE FIGHT. MENTALY, PHYSICALY. AND VERBALY.

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received a -1 score for that comment..................................WE ALL NEED ENCORAGEMENT AND HOPE!!!!!!!!!!!!!!!!!!!!!!!!!!!.Sorry to affend whomever rated that.

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received a -1 score for that comment..................................WE ALL NEED ENCORAGEMENT AND HOPE!!!!!!!!!!!!!!!!!!!!!!!!!!!.Sorry to affend whomever rated that.

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HI,How
ya doing?Got My Bone growth stimulator today!!!!

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hi Deb, I just reopend my account, they booted me off 3 weeks ago for using capitals, (considerd Shouting)....anyway how did it go? tell me what they did n how u feel..Ill check in too find out . feel bettter :)

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Got the Bone growth stimulator on Fri. Can't tell any difference, it is too soon...Thinking of you and sending prayers!!!

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back at ya DEB, we'll play the waiting game together.. :)

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wow is this old was scrolloing back to stumble upon last years ist surgery chats,.......Hope it encourages anyone, for I am actually havn a BLUE day..( MENTALLY ) dont u hate those ...................WOWS ME DAYS... to many of them........GETTING tired.

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This also is going out 2 all sufferers,whether it is spinal,chronic pain or the psycho-somatic symptoms you suffer from,tell your doctor you want the Bu-Trans patch,it really works 4 me!I put on a 10 microgram patch at 10 this morning,& I can move approximately 15 % better than be 4.To me it seems the over all relief it provides is singular,as all the other meds target different areas.Now I can get rid of the Maxran & the Codeine,I hope!Holding on 2 the herb though,as pain clinic is supposed 2 set me up 4 management,2.The buprenorphine in the patch makes my overall mood better 2,as I am able 2 think more clearly,because of the general relief it provides.I cannot wait 2 get up 2 the 3 Hills pool,soak 4 however long I want!Here at the leisure centre in Calgary,it's 10 bucks just 2 swim!We are gonna have 2 find more accessible accommodation as my mobility ciontinues 2 decrease at a rapid rate.Positive attitude,people,goes a heck of a long way in this constant struggle with no winners we must endure!I will echo Rene that the mind is a VERY powerful tool in your fight,we are just beginning 2 understand the power of it & its pain killing potential!My own experience is that I can COMPLETELY eliminate the pain 4 short periods,1/2 to 1 & 1/2 hours.Complete stillness,a relatively noiseless environment,but I am finding low noise like traffic & television is tolerable,even soothing at times 2 achieve the state of quiet & rest.This can be just as beneficial as sleep 4 recovery of energy.My diet is key in my pain management,I know that now as the changes I've made & the regimen are paying off in higher than normal energy levels 4 some 1 in my condition.I will get plenty of sleep after I'm dead!HAHAHAHAMy spirituality continues 2 soar,I just wish these people in authority would see that I have major contributions 2 make 2 the youth,& all others in the congegration,but they have been here longer,so I can shut up & wait!Some people just like 2 hear the sound of their own voice,I guess,& my day will come!spinelessinalbertaJustKeepSmilin' :) JesusSaves P2

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Mornin Spinelessinalberta,, You hav good words of wisdom,,TU :),Can I ask a ?,,,,,,,R U living in a speaciall needs home? youve stated U would be goin home to wife n kids soon,,did u move out cause the family (wife) couldnt handle the situation anymore? Im married 26yrs, struggling to keep us together,,He sais he understands n would never leave,,But Im finding he too is getting tired of me in n out of ER and MRI appointments, and most of all coming home to always finding me in pain layn on couch, or not being able to walk like a lady..instead I hold onto objects and struggle to walk, even my grown daughters stay away cause they cant handle it,,IM NOT SUPER MOM anymore,,,,I use to have a smile a mile long,,and would travel to Dominican Republic (my happy place) at least 2x year, And I miss working,,this whole situation sucks, I thought at our age being kids r grown, Him n I r suppose to b enjoying life and going out....going out is not in my vocabulary anymore,,except to go to doc apt. When is god going to hear our pleas for help,cause the docs aint,,where is there compassion? Im tired of them telling me its in my head as they handed me another script for another MRI, Im gonna start glowing soon , Ive had so many...tell me more about this patch,,is it a phentynal patch? will chat again, thanks again 4 your kind words,,Rene :)

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Rene,
I hear your humor even though you're obviously miserable, I bet you're hoot when not in pain.
I so understand the "going out" part. My 1st question to my hubby when he mentions going somewhere is, "Can I lay down on the drive?" Used to be a time when "laying down" on a date would have been sorta fun! Such is life.
I wonder, are there jobs we could do from a recliner?
Keep postin'
Janet, aka upanddown

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If you can stay in front of the computer & type 4 any length of time there are jobs on the net,editing & proofreading.Rene,I hear you loud & clear on the Faith issue.It seems as if we are being ignored as we suffer through our days & nights,but He is with you all of the time,helping you 2 deal with all the pain.I left home back in March as my wife & I had a falling out,more me than anything,I needed 2 know if I could make a start 4 myself in Calgary.This condition,however,continues 2 degenerate daily now,my mobility slowly but surely slipping out of my grasp.Getting a full time job proved 2 be my downfall as I could no longer deal with the negative reactions I was getting from prospective employers,some finding it amusing,others admiring my courage in the face of such adversity.2 me this was merely a visual problem,I could operate a fork lift as well as any 1 else,but not on all the narcotic medications.Now that I'm home,I'll concentrate on getting disability,I'm not SUPPOSED 2 work anyway! spinelessinalbertaJustKeepSmilin':)JesusSaves! P2

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Hi Paul, I too am slipping into the hands of this disease,,I feel it has beaten me,Im trying everything,I go to physical therapy 3x a week and the days following the therapy I feel like a Mack truck ran me over,,I still cant get past the loss of my nursing career,,I went to collage and became that nurse n now its all gone, not to mention the $$$$.All I pray for is to be able to partake in the preparation of my daughters weddings,as every mother looks forward to that day of dress shopping and etc..But as time goes by my body just is not what it use to be.As everyone else is going through,,the simpliest tasks cannot b performed. My faith is strong,as I know there is a God.....But why,did this happen? I know there r more worse diseases out there (cancer and sick children). Why hasnt Spinal diseases become a part of societies awareness to the public and Pain n suffering we go through daily like so many others. I too have applied for disability, but I still havnt heard if ive been acepted yet, it is a long process.Im sorry to hear of your situation w/your wife and job,you r in my prayers. Thank you for the words of wisdom.Its something how us strangers have learned to lean upon eachother for support,,And yet our own spouses and family have no understanding,,They just get frustrated w/ us. God bless all of us..Stay well,n keeep up the fight as I will try to continue the battle with the rest.Rene :)

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Paul,
How long is "any length of time?"
Proof reading or editing would require more than basic reading and writing skills wouldn't it? Or would it?

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Hey Janet,,ur too funny (the comment U wrote),,,how has things been for U? Rene :)

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Hey Rene,
I broke down and put a Butrans patch on 3 days ago. As soon as I started moving around and doing things around the house that involved using my arms and or tilting my head forward the pain between my shoulder-blades became unbearable. I had a ACDF w/instrumentation C6-7 on Sept 14th. I was doing great, pain free actually (at least in my arm and upper back), until I tried to do normal everyday activities...laundry, dishes etc. Now I'm back to square one, although the pain in my arm has eased up quite a bit.
This was my second work related injury in 6 yrs. The 1st was in 2005 and resulted in having an ALIF of L4-S1 in 2007. So now I'm medicating either low back or upper back, whichever is hurting worse at the time. Either way I (like most everyone here), am never pain free. That damn monkey on my back is more like a gorilla!
One of my daughters told me last night that she thought I was a hypochondriac... Damn, you could have knocked me down with a feather. I'm hardly ever sick...I just HURT!... (I went to bed and felt sorry for myself.) What's the point of explaining this time and time again? Truth is, even my family's getting tired of it.
Just one of the reasons the people here are so important. Who else understands? Sometimes I just can't "suffer in silence" any longer and have to vent. You lucky peeps get to hear me rant. (Sorry.)
Hope everyone has a manageable day today. Thanks again for your support,
Janet.

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Hi Janet,,I too gave up w/family understanding,,my daughters give me hell about the meds, its like they r always spying on me, so I have learned to keep my medicating to myself,,Ive learned to pick N choose my battles,,We have enough to bare,,the only way I vent is also by leaning upon all our friends on this site,,,,,I consider all of us one big family,,and by that we have each other to lean upon,,so vent away,,my ears R always hear to listen. We should all just change our last names to Spinepain,,and w/that we R now one big extended FAMILY,,LUV ALL u GUYS,,,,RENE :) :)

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Rene,
Did you get hurt on the job? I can't remember. (Memory loss, short term memory, is it the meds?)
Janet

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Hi Janet,,,yes the meds will contribute to it, but who cares as long as ur comfortable..Many things contributed to my spinal issues, the most being when I had a 465lb patient fall on top of me,,couldnt claim workers comp because the symtoms didnt start till about 3 mos later and I didnt fill out an accident report w/the Hosp I was working in, Plus I use to weight train,I was up to squatting 160 lbs I Had a personal trainer for years, even continued after accident, so all those weights I was lifting did me in, esspecially after that patient falling on me.How did urs start? I consulted with a new PM doc last week it sounded so promising, he called me today to tell me he wouldny give me meds bcause my surgeon said I dont warrent them,,PM ordered MRIs,so im hoping after he reviews them he will change his mind..I have all these diagnosis and they still wont help me,,so ur 100% right,,,they dont give a crap !!!!! Rene :)

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I wonder, how many people who can't get the meds they need end up in an alley making deals just to get some relief. Just one of the reasons I try never to judge...anyone.

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Hi you guys.Hope your feelling better. Cal.has the board pharmics , there in charge of looking over all pharics in the USA. Ask them what you can do about getting pain help in your area. If any, they will know.
I,m doing alot better here the last 3 days.Take care ..

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this isn,t responding at all?
bigt50.tommy@gmail.com

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