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L5-S1 Discectomy in April now experiencing EXTREME pain from my lower back to toes. Help

Started by JeremyWerstler79 on 07/06/2011 2:22pm

Hello everyone I had posted back earlier in the year and went and had a discectomy done on the discs and the surgery went GREAT!! I was totally pain free for about a month and couple weeks, my Dr. and I were both very happy with the results but alas about the middle of May all of a sudden I woke up one morning and was in the worst pain I had EVER felt in my life and was basically paralyzed with it I didn't want to move.

I noticed the area in which I had the surgery done was swollen and tender to the touch and the pain radiated down my leg to my toes. It went away after a few hours and some pain medication and muscle relaxers. It was fine for a week or two then on Fathers Day on the way home from a cook out I was driving and went to shift my weight in the seat and all of a sudden a pain so severe and sharp hit me, it felt like an electrical shock of high voltage ( I am en electrician so I know what it feels like) running from the area all the way down to my toes. It hurt so bad I let go of the steering wheel and gripped the arm rest and the door handle to try and push myself out of the chair to get it to stop hurting, if it weren't for my wife I would have wrecked my car.

Ever since then the pain has been constant and feels like a sharp aching pain that goes from my lower back down my right butt cheek down the outside of my right thigh then around mid shin it goes to the front of my leg to the top of my foot and now my 2nd 3rd and 4th toes go numb every once in a while.

It does not matter if I am laying down, siting, walking, it hurts constantly and nothing is taking the pain away even the pain medications they have prescribed me. I can't get back into see my Surgeon until July 19th and the pain is getting to be unbearable. I am no stranger to pain as before I had the surgery I lived with constant back pain for 10 years from a herniated disc in L5.

I am just wondering if any of you have also had this problem and what did you do for the pain, what was your diagnosis? Oh I am also taking Prednisone and Motrin for anti-inflammatory and as with the pain meds they are not working. I was just wondering if any one else has experienced this. I am sorry for the long post and thank you in advance.

Jeremy Werstler

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Hi Jeremy,

you may have sciatica -so check what are the underlying causes of that kind of situation/symptom.

sciatica symptoms are excruciating-you are not alone. for now, you can follow the treatment directions here on this site, do some research about it and also give your dr a call and report your situation-they will surely give you some advice until your appt.

i keep a journal of spine symptoms, dates, duration of them-etc. so i don't have to recall everything on appt days. then i can cover all the bases w/ my drs.

feel better soon,

gidget

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Hi Jeremy,
yea L5 is a painful subject for me... I've had 3 surgeries so far and 1 procedure.

After my 3 rd surgery I had increased pain and swelling at the incision site. I called my back surgeon and he was of course on vacation... but turns out it didn't matter there was another surgeon involved and it was his responsibilty for that (2 seperate sites).

Anyway it was an infection, I'm positive it was the fault of a nurse from hospital who was moving me in bed and I felt her hand near the bandage.

Bottom line is DON'T WAIT get on phone to Dr. or whoever and get it looked at QUICK !

I did and after antibiotics for a month I was ok, and I didn't wait.. if I had I was told it could have spread and gotten much worse, probably leading back to hospital which if I didn't mention I hate.

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I've had every type of pain you describe and after 3days bed rest with pain meds,anti-inflammatory meds,medrol dosepak for 7 days I was out of the worst,cant move without screaming horrible pain.Lately this has been happening with my neck and lumbar spine.this is what I call a pinched nerve,,,,,the same pain I had the 1st time I hurt myself when I was in my early 20's
So no doctor will help me since I've had so many surgeries with negative results after every one of them.I was finally diagnosed with degenerative disc disease.bulging disc,sciatica,arthritis,ruptured disc,narrowing of foramina.....and I can certainly say my life has been put on hold on many occasions due to the pain. I've been legally disabled for about 15 yrs now. .myain meds consist of ULtram, ultracet and a slew of anti-depressants , muscle relaxants, anti-anxiety meds and side effect from anything stronger isn't worth it . I've become allergic to the harder pain meds and even lidocaine !!!
due to many new things from shoulder to back of neck severe pain I have developed dryness of the mouth, nose and even went through months of vertigo .I truly believe since my sister and my dad both had proble,s that is is hereditary( DDD) and mom had rheumatoid arthritis. . I think she was mis-diagnoses and she had Fibromyalgia ... I've been tested for all conditions they can think of with borderline results. last time I went to to my regular doctor he just shrugs and says failed back syndrome and will prescribe meds. We have finally got a cocktail mix that allows me to sleep. . I never wake up refreshed with or without drugs so I know is got to be fibromyalgia..I've had regular MRi's ., CT scans and they say a lot but doctors won't touch me and I am not seeking another surgery even if they suggested it. I just have to deal with this the best qi know how and plan 1 thing per day,and hope I can move to do it. If I feel good I'll overdo it almost every time and have to rest for a few days .
so there you have it. IM stuck with what this has turned into and I suggest to everyone Not to allow surgery with hardware since is is now causing the most problems now ( Pinched nerves,sciatica and clicking and popping tells me it's shifting) I seem to know my own body well.MY family can't depend on me since it is all I can do to try for a painless day each morning,
always seek more that 1 opinion before having surgery !!!!!!!!!!!!!

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Oh and BTW I have gone to physical therapy on numerous occasions. Temporary relief is only through heat and message.I went to a pain clinic and they gave me -neurotin that made me sleep 22 hours a day,,,,,,not exactly helpful. Then after that they tried me on methadone that made me itch so bad I never could sleep. . so I think pain clinics are for addicts.....even the nurses are prescribing this crap. . It's not what you think when seeking help. They want to get you hooked on something and make a killing off you and your insurance company !!!!!

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Oh and BTW I have gone to physical therapy on numerous occasions. Temporary relief is only through heat and message.I went to a pain clinic and they gave me -neurotin that made me sleep 22 hours a day,,,,,,not exactly helpful. Then after that they tried me on methadone that made me itch so bad I never could sleep. . so I think pain clinics are for addicts.....even the nurses are prescribing this crap. . It's not what you think when seeking help. They want to get you hooked on something and make a killing off you and your insurance company !!!!!

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Oh and BTW I have gone to physical therapy on numerous occasions. Temporary relief is only through heat and message.I went to a pain clinic and they gave me -neurotin that made me sleep 22 hours a day,,,,,,not exactly helpful. Then after that they tried me on methadone that made me itch so bad I never could sleep. . so I think pain clinics are for addicts.....even the nurses are prescribing this crap. . It's not what you think when seeking help. They want to get you hooked on something and make a killing off you and your insurance company !!!!!

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I personally had reherniated my disc about six months later, however, your pain pattern sounds like a different level(s). I have a fusion at L5-S1 and L4-5 is slightly bulged now causing pain on the outside of my lower legs. I think you need to go to the doctor with your new symptoms and get them to do a new MRI as soon as possible.

Cathy,
I went to Germany for my 2nd neck surgery and I would recommend it to anyone. They even take our insurance now. They didn't when I went. I know a guy in Portland that couldn't walk and went to Germany and through a lot of therapy he is now walking and no longer in tremendous pain.

I agree with you most of the pain specialists just want us all drugged. I do take neurontin at night and the higher muscle relaxers and pain meds so I sleep, but I don't like taking them during the day when I'm working.

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I forgot to mention I have ddd in both my neck and low back. Just seems to continually get worse.. I'm going to have a Spinal Cord Stimulater trial in a month or so. Keep your fingers crossed that it works.

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So sorry that you are having pain after surgery! I think you need to call your Surgeon and request an XRAY or even a Cat Scan to see what has happen most recently. What kind of pain pills are you on, because I know that Roxicodone 30's should help with your pain. I take Roxicodone 15mg 2 to 3 times a day for me and they work. I was told not to take anti-infammatory drugs, but I had a spinal fusion. Is this your first surgery? Have you started physical therapy since surgery? I am curious why you did not have a spinal fusion since you have been suffering for 10 years. My husband had his first surgery 2 years ago in the same are you had and he still suffers off and on with back pain in his buttocks and legs. He had a spinal fusion as well. I would call your doctor immediately to see why you are in pain. It is normal for you to have this much pain after few months of surgery!

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Okay, will try this response again. Left arm/hand...not cooperating. Hello. Your surgeon performed a discectomy hoping to save you and your spine..from a fusion, with hardware (or artificial disc placement). Since the discectomy was a success for you, and now, new symptoms suddenly, its very possible you rehernicated more disc into that space on the right...and now have pinched, angry nerve calling out to you. I empathize..completely. Surgeon cant get you in until 7/19, right? I suggest Massage (will probably give you a good few hours to a couple days of less symptoms, if you have a Massage therapist who knows their stuff). I'm a big believer in Accupunture, Chinese medicine (herbs) and Naturopathic Medicine. I've been RN in Seattle WA x 29 yrs and had spine problems after getting rear eneded 20 yrs ago. I have done lots of research for myself in this area and I'm a good comsumer...I always check. If you have the insurance coverage, I'd really recommend alternative therapies while you're waiting for a diasnosis and plan of treatment. I hope you feel better very soon. Take Care.

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Your symptoms sound exactly like radiculopathy which, is truly the name for sciatica that is circular from the back, through the buttocks both inner and outer to the hip, down the thigh, calf, heel, and toes. It sounds to me like your discectomy reherniated either by the annulus rupturing which allows more disc material to escape into the space (foramen) where the nerve exits. It may be in multiple pieces or possibly one larger extrusion or protrusion. A protrusion is when the annulus is not ruptured. An extrusion is when it is ruptured. I had a L5/S1 discectomy and partial laminectomy in 7/08 after a fall in 2/08 that was improperly diagnosed through x-rays until a non-related chiropractor looked them over and 5 minutes later showed myself and wife that there was no or little space at L5/S1 when looking at the x-ray view taken from the right side. Of course, you can't see the herniated disc on an x-ray but in late April 08, 2 months after the initial fall an MRI was ran and wallah, a huge herniated disc pinning my S1 nerve root which joins S2 and one other nerve root to make up the sciatic nerve. Those symptoms you describe sound exactly like the ones I had from 2/08 through 7/08 the fall through surgery date. After surgery, the symptoms got worse. Mine didn't take that long to rupture in fact I've found it did within at least 16 days of the surgery. An ER MRI report shows and states that the disc has ruptured and there is disc material in the nerve root canal. The symptoms before and after included cramping in the right calf, sometimes cramps that lasted for hours. It took getting out of town, 90 miles away to another city in order to find a pain management m.d./surgeon and neurosurgeon who were straight forward with me about my problems as the former ones were all running for cover. It also took until 2/11 to get an L5/S1 fusion and many other matters resolved such as canal and foraminal stenosis, retrolisthesis of L5. I had an ALIF procedure performed by a prominent neurosurgeon who truly cared about my condition. I've been disabled since 2/08 and am attempting to recover through aquatic rehab. I still get symptoms on both sides (in 10/10 my pain moved to bi-lateral radiculpathy) but they are nothing like the original pain. I've been on morphine as a base med, codeine and roxycodone for a 15 month period; previously on fentanyl (hated it just wiped me out) and also on codeine-2, then -3, then -4, to oxycodone 10mgs 5x a day. I use Lyrica 600mg per day, trying to get to 400mg and 40mg of oxycodone for pain at this time. The 3 1/2 year disability period caused both my muscles and heart to atrophy. I'm having SVT events when working out and with the ALIF surgery my abdomen became distended from infected intestines. It took nearly a month out of the hospital to resolve that. The stress of the surgery and infection caused my diabetic sugar #'s to go out of control so I'm back on metformin to control sugar levels. However, I'm grateful that I've been given a chance to recover. I went through holy hell to get what I believe to be fixed. In order to make certain the doctors were doing the right thing for me, I learned about the spinal nerves, cauda equina, sacral nerves, dermatomes, you name it. I had at least 6 discograms to isolate pain generators and a couple EMG tests to determine nerve damage/weakness. I'm glad to be cutting down on pain meds. My suggestion is that you talk to a neurosurgeon. You're going to need a new MRI and likely the folks aren't going to want to run them for you, nor will they consider exploring surgery again until at least a year following your first surgery. You didn't say what pain meds narcotic that you were on and what levels. The buzzing, electrical feeling is what I formerly and sometimes still feel if I work out to hard or try to walk too much at one time. I'm not a doctor, I'm just playing one on the internet! No, I sympathize with you and hope you get treated quickly. In my opinion, you need a pain management m.d. to guide you during this time. I wish you well and could go on with so much information that I'd drive you nuts. I"ve subscribed to this thread in case you want to hear any more of it.

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Thank you everyone and my appologies for taking so long to respond you all have made some great suggestions, brought up some great ideas, and I haven't been able to sit long enough to answer any of my e-mails etc. I went to the ER over the weekend because it got so bad I BEGGED my wife to please take me to be seen. I go in and my blood pressure was through the roof and I have NEVER had high blood pressure problems before and also my heart rate was high, they took my temp and also seen I had a high temp. With all that being said they took some blood and urine samples thinking I may have an infection, they also took a chest X-Ray why I don't know, they also hooked me up to an EKG I guess because of my elevated blood pressure and heart rate all that came back good including the blood and urine tests. They then send me into get an MRI done on the area with and without contrast. After the MRI I go back to the room and wait on the Dr. to come back in and takes about 20 minutes.

Dr. basically tells me the Dr. that WAS treating me had went home for the day =( he then went on to tell me that he didn't see anything wrong on the MRI and basically gave me a shot of something and said see your Nuero. No shit I already told him I had an appointment and the pain meds I was already taking WERE NOT WORKING. Then he said something it may be neuropathy which I have taken medicine for before such as Lyrica, Nuerontin and basically every other nerve pain meds there are and everyone of them have not either worked or have given me such bad side effects I was taken off of them. Last night it was the very worst I have EVER had and believe me that is saying something, I went from my bed, to the couch, the recliner, hot bath tub, floor, back to bed, up walking around the house until I was finally so tired I had no choice BUT to go to sleep. I KNOW there is something wrong it is not in my head.

I do see my neuro tomorrow and I hope we can figure this out. I want to ask him to either switch my pain medicines to something else or possibly try that pain patch I have heard about but I don't know how to approach him with it seeing how strict they are getting on certain pain medicines but when you really need it and not to get high on it I don't see a problem with it. I know plenty of people who sell pain medicines and if I wanted to get high I would just go buy it from them you know, I am trying to do this the legal way so I can get some kind of comfort and relief so any suggestions or advice would be much helpful.

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Sounds like a re-herniation; happens about 5-7% of the time. Hopefully, your surgeon will suggest another discectomy at that level if, in fact, it is a re-herniation. Often times, the surgeon will recommend a fusion at that level instead. That makes the surgery a riskier proposition. Of course, you don't know anything yet, so this is all supposition. Good luck tomorrow.

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Rule 1: Without talking with a doctor, don't do any type of therapies. I have to get everything permitted. Workers Compensation sucks, but if I go outside his recommendations and do massage I might lose my benefit. Acupuncture might help, also getting a new mattress or reclining chair to sit in.

5 months after injury I was prescribed Cymbalta, by my personal doctor, to help with my pain, even though I do not have fibromyalgia(sp?) and it worked wonders. Problem was as a cop, the one side effect I could not deal with was a shaking hand. It takes about a month on any fibromyalgia medicine to take full effect, and side effects generally aren't pleasant for the first two weeks. Might be worth a shot?

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Hello everyone a little update on my condition I went in on the 19th and explained the situation and also had an ER MRI because it got so back i BEGGED my wif eto take me to the ER. When I seen my Dr. he said the MRI looked good with a little scar tissue showing but god damn it guys I am not making this up. And I swore to my Neuro on my mothers spirit and grave i was not bullshitting him. It runs from the sight of the surgery to the top of my foot as I said before.

It is getting worse now to where I can't turn around in the car to back up without it zapping me. It does NO GOOD laying down, sitting, walking, and now I have noticed it feels as if my right leg feels swollen and the whole leg throbs after I walk for a while. I am reaching my end ya'll I am so sick of waking up to pain and going to bed in pain. I just wish I would go to sleep and NOT wake back up. I don't care if this pisses people off or not it is my thoughts. I now walk with a limp because of all this and I am sorry to say it is embarasing and not to mention it REALLY gets in the way of finding a job and what not. I am lost ya'll what the hell can I do to convince this Neuro I am not full of BS and I really am hurting. It has gotten so bad it has driven me to tears in front of total strangers and believe me I don't show emotion that often. If I was seeking pills believe me I have the money and the sources to buy from people I live near so that is no problem at all, I want this legit and on record. Someone please give me some advice because I have reached the end of my rope and I fear I am so close to the edge I will just go ahead and jump and be done with it.

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I have a suggestion for you. My neurosurgeon looked over the MRI's from 2/08, 8/08, 12/08, 5/09, 12/09 and the ordered a bone scan that took over an hour 15 mins. He looked it over and listened to me. He didn't have much to say. The next thing I know he had sent my pain management m.d. who is also a pain management surgeon a letter directing him to perform tests on my individual intervertebral discs to identify which discs were truly pain generators. Over all there were 5 tests, 1 per week on an outpatient basis. I would put under general anesthesia and using moving x-rays, i believe flouroscopes to view, the doctor would have the anesthesiologist bring me to twilight and then poke that disc with a needle in different locations. The point was to attempt to recreate my pain. I remember yelling some nasty words a couple of times because these are painful tests. After that part of the test is over, the doctor would then shoot that disc full of anesthetic. The purpose of that was when the patient awakes in the recovery room, if that disc is a pain generator, your pain for whatever area it causes pain will be gone. For example I remember L4/L5 waking up and the pain in my right side was gone for the first time in over 2 years. It was amazing. Six hours later it was back. When they did L5/S1 all of my sacral pain and some of the right and some of the left leg pain (I had bilateral sciatica) plus horrible sacral pain, was gone. They also did, L3/L4, then combos of L4/L5, L5/S1. One major thing my pain doc discovered was that my L5/S1 disc was ruptured and was leaking its nucleus on the nerves below (this is called "splashing"). The fluid in the nucleus is toxic to the ganglions on the nerve roots of the cauda equina (the portion of your spinal nerves which hang below your spinal cord from around L1/L2 to the bottom of the sacrum). The spinal cord on most people ends at L1/L2 in that area. The end is called the Conus. The fluid being toxic to the nerves is the bodies way of saying "hey neurosurgeon somethings wrong here" . It turned out to be why I could not sit or stand. Whenever I did, it dripped on the nerves and they were swollen not liking it. What you probably aren't aware of (I wasn't until this neuro taught me) not only are their nerves of the spinal cord which exit and then L5, S1, S2 creating the sciatic nerve; but each disc has nerves connecting that disc to the disc below and above. This is a big issue. It is known as discogenic sciatica. The splashing is chemically induced sciatica. Discogenic sciatica can cause referred pain. In other words you can have pain which would appear that it is coming from your L5/S1 disc but it actually is being referred from L4/L5 and that being the problem disc. I do NOT know that these are any of your problems; however, I believe you need to definitely get yourself a pain management doctor. They can prescribe you medications to help control your pain. Don't give up. This is your body, you know it, the pain you're feeling is real, there is a reason for it. Make them find out why. That's what they are supposed to do.

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Jeremy, i have too many questions before i can proffer any suggestions. at the risk of being sorry i offered, you can contact me if you wish, and i'll have questions for you. then, i may be able to make a suggestion about your next step. Dr. Castanet you can contact me throughhttp://www.backstrong.net

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Jeremey, Just checking in on you. Wondering how you are doing, any progress, any new doctors, tests, changes in pain. I re-read your postings again and I want you to know that I understand the feeling of wanting to keep the pills/narcotic meds that cut into the pain coming in the prescription form. I also understand that havoc that continued physical pain can have on your mind, taking you to the point that you can make statements that you'd like not to wake up or jump. I've had those and some pretty recently. I understand how easy it is to get meds on the black market. Excluding the illegality of it, you don't want to get tripped up in a urine test by a prescribing doctor. If that would happen to you, you would definitely lose your doctor(s). I've taken 6 piss tests over the past 15 months, 3 of those however were back to back to back after the company doing the test f'd them up. My pain docs office manager and nurses weren't smart enough or too lazy to read the 1st report (for which I was ordered to be present by one of the nurses by phone the next morning..i live 100 miles away and still don't drive..and had to get my 70 yr old father to drive me and set in on the visit) that report stating that I was 4 to 5x over the acceptable urine levels of the meds I was on at the time. At first a nurse came in and opened each pill container in front of me, counted each pill then wrote them down, She looked at one label. I'm a quick study. I didn't help her identify any errors she could be making. She wrote her #'s down, did her gazenta's and naugts and minusus and then left the room. At this time I was being prescribed 90mg of avinza/morphine as a base med, 600mg of lyrica, 25mg of Roxycodone (slow release oxycontin) and 4 tylenol 4's with codeine per day which is 240mg of codeine. I weighed 200 lbs. The doc comes in a sets down then starts in saying the 4x5 thing. I laughed and said doc you know what I'm taking, if I was 4 to 5x where I should be, I couldn't be speaking to you..I'd be on the floor pissing myself or dead...he then started well you are 48 codeine pills short. I'm like how do you get that? He said well these were prescribed say 8/14 and filled that day, its 8/25, you should have used 44 pills now and thus have 120-44 left or 76 pills left but you have only 28. I asked him for the report, it took me less than 30 seconds perhaps a minute to confirm that the morons from the piss testing co. had entered the Tylenol 4 w/ codeine as Tylenol 4, codeine metabolizes into morphine of some sort. I pointed this out then told him his nursing staff should read each label not just the first one she was counting for the issued date, 3 of them were 8/14, the codeines were 8/2. Why? I over a year hadn't used as many as he'd given me. Rather than taking the 8/14 prescription to be refilled I was waiting until I ran out from the 7/15 one. He was pissed off at his staff at this point and my father let loose on him. He's normally reserved but because of a ridiculous report that neither he or his staff had read or understood that his son who is loaded on narcotic medications..me. could in 30 seconds tell him what was wrong, we had to be jacked around and brought to the office obviously with the intent to terminate me as a patient. And then it went even further with a nurse that wasn't smart enough to read a label, just in a hurry to hang a patient...The doc said why don't we do another test, I said okay no problem. I also quietly just between he and I recommended he be careful to have his malpractice premiums paid, not from me, I wasn't going to bother him; but his staff was truly going to get him in trouble someday. I then went in and sat down with the rep from the piss test company. I witnessed her writing down the drug names and watched the tylenol 4 w/ codeine & saw it wasn't clear. I told her 2x, I told the nurse, I called his office manager. A week later the 2nd test was the same again. His office manager called me to talk to me about it and I told her this is a joke, I told you folks what they did the last time, I spoke with you, your nurses, the doc and on and on. Finally, she wouldn't stop I had to tell her SHUT UP & LISTEN TO ME., I am pissed. I don't talk that way to people. I told her exactly what was wrong. Read the paragraph below the first set of #'s, I had my 1st test copy results, then told he to look at the back where the drugs were listed...read the Tylenol 4 w/ codeine. It should be Codeine 60mg/350 4x, but I'll bet it says Tylenol 4. She came back a few minutes later & started the old "you know we try very hard to get things right, however, sometimes errors occur in the process of.." I stopped her and said knock of the shit. She then called the piss company, had them re-run the test inputting the correct drug and bang I was in line. I then requested that a written note be dictated into my file about the errors, not mine, there's or there agents, and that the test results were incorrect on both tests. At first she refused I then asked her to put the Dr. on the phone as we are about to have a legal problem with each other. That got the letter done. Every test since then has been fine. They however, have gotten better and have an initial test that they pull an external strip to see which is looking for cocaine, marijuana, heroine, other big boys before they hand a prescription. The point of me getting that letter in my file and a copy in my hand is that it isn't hard for anyone in legal or medical circles given the right circumstances to misuse the test against you in the future. Sorry about the long drawn out story but I think you needed to hear it. YOU are up against this system, where the docs are being squeezed to maintain controls over meds and likely their licenses to dispense them in the state they practice require testing, written reports. They can't just write a prescription every month and say see ya. The doc knows that but the people that work for him or her as it filters down aren't necessarily the smartest folks nor do they give a sxxt about your problems. I'm on the other side of my last surgery in February 11. I'm struggling with rehab and sciatica in the left side. Aqua rehab I missed 10 of 24 visits 3x a week. Not because I wanted to. I was having SVT attacks on exertion (atrial heart fib which I'm treated for), migraines, fatigue, in bed around the clock, pain. My cardiologist got involved moving my hbp meds due to edema in my feet, toes, ankles and calves; never had this before. Had to lie in bed 5 to 6 hours per day w/ feet above heart level. My bp was running 150/110 or 145/105. The bottom # was the problem. The next week they bumped the new hbp med from 25mg to 50, still in bed feet up. 3rd week to 75mg, then 100mg on the 4th. Edema gone after week 2 but bp still /95 or /100. Cardiologist had ran blood work fasting. He put me back on diltazem 300mg to go along with the digoxin for SVT and HBP then added the newest hbp med at 50mg. Advised me that after 3 plus years of disability that not only had my leg, and back muscles atrophied but so had my heart. It was not going to be easy & will take time.. Still nothing was changing much. My primary saw me and talked to me for awhile, he looked at the fasting glucose which was 127. It should be 90-110 and truly fasting likely lower than 90. I am type 2 diabetic but have been able in the past to control through diet and exercise. No exercise may have been contributing. He ran a panel and got my a1c test back at 7.0 which should be between 4.0 and 6.0. Its a 90 day look back at average blood sugar which calculates out around 170 way too high. So onto some metformin, then doubled it and wham, things started getting better. My b/p today was 130/80. Meanwhile the pain in my left side at the hip and the buttocks, and heel have been so constant that my ability to sleep went away. After about 2 weeks of no ability to sleep at night, trying but not succeeding, then being worn out all day, having migraines, face down in bed, only to sleep a couple hours, then have calf pain both legs. Pain doc had me wiz in another cup today, told him problem. I imagine they may even get a cut/pct% from the outsourced company. Who knows. Neurosurgeon had okayed me after 6 months to get trigger shots in back or hip or whatever from pain management md. Today he gave me a anesthesia/steroid shot in the left hip, bursae swelled up and gave me a script for some ambien. Told him years ago I was on it for 2 years straight but haven't needed it for 10 years. Just need a few days to get straight. The steroid shot hurts like hell, it shot my blood sugar up in the 300 range but I knew that was coming and am keeping it down as well as I can. I've developed a relationship with this m.d. he's a good one that cares. I'm still on 40mg a day of percocet and 400 of Lyrica but I'm getting there. Another 10 weeks of aqua rehab ordered. Try, try again. I got a testosterone shot yesterday, every 2 weeks now for extremely low T, can't sleep and my hip hurts like hell from the shot, but not sciaticesque. My heel isn't in pain, nor is there pain in my buttocks. I guess what I'm trying to say is if you haven't yet, find a pain management m.d. One that specializes in that field solely. You may have to piss in a jar 4 or 5x a year, but you can't continue in the pain you are in without some resolution. There is help out there. It is difficult to get across to get past the line of nurses or admin folks that tell you one thing, then post different notes into your records. I really would like to hear from you because I know what it is like to have people basically calling you a liar, just trying to procure drugs, faking pain so you can lay around. You and I both know it's b/s you can get pain killer meds if you want to. You shouldn't have to. However, I'd be careful about saying that to a doctor or how to say it especially a new one for you. Don't give up man, keep pushing. I know there are days on days that it just gets worse and you can't get anything done but lay around, and walk to the bathroom and frig. Get a new MRI, bone scan, get a new doctor, request a 2nd opinion. I hope you can get the help you need. You know your body and you know your pain and limitations, make sure your doctors know it and that it is not getting any better, but worse and something needs to be done, you need help. Again sorry about the rambling.

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HELLO EVERYONE, especially JERAMY (I READ YOUR STORY) My name is Rene and had my double discectomy march 25th of this year. Ive been following everyones complaints to also help me with my 24/7 unbearable pain from my waist down to my toes, which didnt start till about two weeks after surgery.I am an experienced NURSE in orthopedics for over 12 years,so Im not use to being the patient,Im the care giver. My final diagnosis after surgery was Degenerative Spinal Disease, Radiculaopathy ( which means compression and inflammation of spinal nerves) , L2-S1 are affected.After months of tolerating the continuous pain,in and out of emergency room for umbearable pain, not being able to work as NURSE (which i was told my h is alsocareer is over) , and not being able to perform my daily routine, and failed Back syndrome ( which means surgery gone bad) , its a term they use when after surgery, they fixed the compression of nerves causing a sciatica pain to right leg, but patient still experiencing continuous pain.. Now that ive explained my story as a devoted NURSE im here to join everyone to HELP. Because I finally found releif by discussing with my working collegues,DR.s and surgeons and anyone I thought who may be able to help me because my own surgeon was not.. After 3 days I found releif, and Im here to share it with you. All the narcotics in the world werent helping so i understand what evryone is complaining about.. I am now on Celebrex 200mg 2x daily, and the use of the EMPI ACTIVE unit 3x daily,and phsychotherapy once month to help with lifestlile change,frustrastion and deppression due to the situation,my Shrink has me on Klonopin 2mg 3x daily,which also helps with relaxing the muscles, and a anti-depresent to help get my smile back. Well guess what folks my smile is back and pain is 80% gone within 3 days of the EMPI ACTIVE unit which u need a script for and get at EMPI.COM .....SO I cant stress enough how good I feel, and that I now have hope in my future, because like all of u in constant pain , u loose all hope, and the pain gets so bad u just want to end it all,(which I would not) but u do think of it,along with loosing faith that your ever going to be pain free. Not to say this will work for everyone but it did for me. So I wish everyone luck, who tries what seems to be working for me. I will visit this site periodically to try and help anyone with questions, because of my nursing experience.May I add Insurance covered the EMPI ACTIVE,and im down to using pain pills , one tab of percocet 10/325 2x daily, from 6 tabs a day with no releif. Good luck to all I hope I can help. RENE :) Id like to add that yes the surgeons treat u like your narc seeking,and your treated like a drug addict, Its very hard to find a DR with compassion and willing to listen and help, Pain Mngmt Docs are of no help also,along with the Percs I was on Ms Conton 15mg 2x daily and it did nothing, id run out of my Percs and no they wont wright another script till 30 days expire due to the laws.Because my neurosurgeon treated me like crap,.I ended up going back to my Primary Physician, who nows me and my personality cause I worked with him at one of the Hospitals I worked at,so he new I wasnt a narc seeker,These kind of physicians are hard to come by so keep looking u will find that Doctor who has compassion and will help you by spending time with u and listen to your complaints and wont make u feel like a drug addict.Because i experienced all that you are complaing of,(and im in the health care field) so i do understand.A good Doc is hard to come by but there out there keep searching..

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Wow, I'm just noticing how old this post is. I
also herniated L5 S1 in July 2009. The disc
blew out at work will reaching to pull a privacy
curtain for my patient and POP! We both heard
it and I was petrified to move. Long story short,
the membrane and fluid cracked vertebra, I
was forced to work like this for 3 weeks before
occupational employee health took me serious
and finally did an MRI and said "oh sorry".
I was out of work for a year, surgery was not
an option and the addiction to pain killers made
it worse. I took matters into my own hands and
researched. My answer? I went to pain management 1 last time, I down graded my oxy
Dosage from 90 40mg to 40 20mg, and moved
to Colorado for a medical marijuana Doctor.
Purchased an inversion table, and after 2 weeks
I had 50% improvement with absolutely no withdrawal symptoms at all!
Unfortunately I'm living back at a state where our govenor would rather eat donuts then do real research and stop making it so hard for us patients.
This past week I experienced the same thing out
Of the blue, I'm right back where I was but worse.
I'm curious to know how your doing and if you
needed another surgery? I'm 53, and I'm really
getting depressed. I don't think I can do this again.

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