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sponylosis..no operation available

Started by anchor1 on 08/05/2011 5:22pm

I have been to see an orthopedic consultant who showed me my MRI scan results and told me i have three discs that are like flat tires and there was no operation for it..He then went on to say that he would send a letter to my doctor for an apointment at the pain clinic.that was nearly 3 months and havent heard anything yet.So i soldier on with back pain which effects my walking and sitting and standing and of which has gotten more painfull over the last 2 weeks.Is there nothing else that can be done. David

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Forget this so-called consultant! With your level of pain, get yourself to a different physician, preferably one who specializes in the spine. It can be an orthopaedic surgeon or a neurosurgeon. Cervical spondylosis is treatable. First, get a proper diagnosis where dependance is not solely on the results of an MRI but also by listening to your complaints and a complete physical examination. You may need surgery and today there are less invasive/radical approaches than were done with mine, now 3 years past. Then get referred to a quality pain management clinic that works with your surgeon and together they will care for you. Mostly, don't wait!

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Thank you for your reply. I agree with you that surely there is something that can be done and i will be looking into other areas of pain management or surgical proceedures..thank you David

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Hey David and Murfisto,
I sure hate to hear that. I am in the same boat with the pain that is and do have disks in my mid-to lower back that I can't move or I will pay 4 it. THere must be something that can be done. Maybe it is too close to the spinal cord or something to why the doc said that? . I can't seem to get anywhere either.I sure hope you go to another place. FIND A GOOD DOC..Sometimes, you have to search around until you do. I hate it for you, I really do. It is nothing worse than not being able to enjoy LIFE.
I am suffering so much and have been dx'd with Spondylosis and am becoming to think it is turning into something worse like AS or Sponylthesis and pray that I can find some kind of help. I can't turn or twist my back. I have become progressively reliant on my bed to stay in one position. IT is horrible what is going on in my body and they make us wait so long to get help. I have been hurting since I had a neck surgery on my C5-C6(ACD & F spinal diskectomy).
All I want is to be able to move and not hurt just because I move. It is bad enough that I have sore feet and my legs are always in pain. I know, that there is more to what is going on in my body. I just seem to be trying to accept it because no one is doing anything for me and it is going on 6 yrs.
Why, if they know we are suffering do they ridicule us, it seems. Everyone that I have been to just does the basic MRI (I have had 15 or more) and they have found problems( I have T8-T11 that they see some kind of formation and are calling it a herniation), but no resolution.
I don't understand when a Neurologist can look at your MRI and say," I don't know, it is out of my area of expertise"..WHAT? That just doesn't make sense, what would it be? Surely, I could get more than that..like some kind of answer, but just sends me out the door saying that they don't need to see me anymore. I got a letter telling me that he withdrew from it..WHAT? This is not making sense to me. I have or had good Ins. at the time, now I have Medicare...that worries me right there, because there are not many that take it..well, it is a very selecive choice.
I sure hope that you find relief guys. I am right there with you and I will keep you in my prayers.:) Take care and God Bless always.:)))<3 Karen

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Karen, I'm sorry to have to repeat myself but look above to my earlier response. There is not much help that's going to be coming from a Neurologist; he's right, degenerative spines are not his area of expertise. That should be the best clue. You need a NEUROSURGEON!, or an spine-specializing ORTHOPAEDIC surgeon (I understand that there may be few if any ortho's in your area that limit their practice to the spine but search and find one!)to get the correct dx and to start a course of treatment that could involve more surgery and/or rehab medicine. Then get to a legitimate pain management clinic that works with your surgeon to get you out of bed and active once again. Laying around in NO answer; getting pro-active IS!

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Karen, I'm sorry to have to repeat myself but look above to my earlier response. There is not much help that's going to be coming from a Neurologist; he's right, degenerative spines are not his area of expertise. That should be the best clue. You need a NEUROSURGEON!, or an spine-specializing ORTHOPAEDIC surgeon (I understand that there may be few if any ortho's in your area that limit their practice to the spine but search and find one!)to get the correct dx and to start a course of treatment that could involve more surgery and/or rehab medicine. Then get to a legitimate pain management clinic that works with your surgeon to get you out of bed and active once again. Laying around in NO answer; getting pro-active IS!

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Hi Karen..Sorry to hear you are having so much pain and i can relate you and other sufferers.
I am at the stage where walking any distance is unbearable so i tend not to go out much which in itself causes other problems such as chronic depression and along with septal hyperthrapy. well its gets me down to say the least so i will do whatever is needed to at least do something about my back and pursue the avenues i have been described to see if i can get a possitive outcome...David

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Just so you know that i responded NOT as a disinterested bystander but as one, who like you, was totally disables, in pain at a level of 11 on a scale of 1 to 10, unable to leave my wheelchair (except to shove my body onto the toilet), terribly depressed (even suicidal) and on very high doses of opioids. All of my local orthopaedics told me the same thing: "sorry sir but there is nothing more that can be done for you(2 failed lumbar surgeries). just take even larger doses of drugs(that weren't doing much for me anyway)."
By luck, i got referred to a different spinal specialist some 225 miles away from my home who, after seeing my imaging studies, make an appointment to examine me. My DW and I had a very difficult ride to his city but after taking a very close look at me, this MD said that he could and would help me get out of my chair and walk in less than 50% of the pain i was now in. 9 hours of surgery, 6 days of hospitalization(mostly to ween me off the drugs) and 16 days in a rehab hospital, i WALKED out of the hospital, went home to another 2 months of rehab. my pain level dropped 90% and i walk as much as i want! So, keep looking. the surgeon is the key!(plus your own cooperation)

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That is great that you can now walk and it shows pursuing every avenue open to you has worked for you and maybe it can for others to..:)

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That is great that you can now walk and it shows pursuing every avenue open to you has worked for you and maybe it can for others to..:)

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Hi So sorry about your condition. I think every one is correct. you need to find a real good doctor. He should run a complete medical history. Basic on what you mention he will probably send you to Physical Therapy.
I was in a similar situation a few years ago. I have an medical condition that seems very similar to what you describe. I have (DISH)Diffuse idiopathic skeletal hyperostosis which is similar to Ankylosing spondylitis (AS, from Greek ankylos, stiff; spondylos, vertebrae...Complete fusion results in a complete rigidity of the spine, a condition known as "bamboo spine" See Wikipedia for a complete detail. This is only a clue to get to a real Dr. who can help you determine what you have an a correct treatment path.

I have been fighting my problem for well over 10 years. The best plan that help me is going to a Chiropractor for several years, going to Physical Therapy both land and water. At least now my may level is lower. I have medicine to help me deal with the pain. So after you have been diagnosis there are many avenues that are available to you.

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Thanks for replying.I to have had been to physio and did the water classes but neither had any long term effect if any at all.daily life is is much the same and nothing ever changes which is the sad part really and have booked an appointment with my doctor to see if there are any other avenues open to me..sorry to hear of your plight and i can only hope your pain eases in some way.

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There is pnty you can do but as all others have said fire your so called ortho consultant. As for discs looking like flat tires, most do with age. Don't rush into surgery. In fact get it off your mind and focus on things that you can do. But you need a real exam by a spine specialist. As others have stated they can be ortopedists or neurologists.

If the vertebrae are in your cervical spine (neck), then surgery will quit probably do more harm than good. If it's lower back then there are a lot more choices.

I believe that all the people who posted on here have been the surgical route and well over half came out worse than when they went in. That is true nationally. Surgery is ALWAYS the last choice. Never forget that.

Good luck and *never* depend on one doctor's opinion when it comes to the spine. Also never hesitTe in firing a doctor. It's your body and your life. Don't give up that control.

Good luck with your new doctor.

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