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Will I be on pain meds for ever?

Started by dillwynia on 01/09/2011 5:55pm

5yrs since I had a discectomy and a laminectomy for herniated disc which caused drop foot permanently. Pain has been worse since surgery to L4/L5. Was on oxycontin but have now been on 90mg daily of msContin. Went through a Course at a pain clinic which didn't help. i have tried most things. I cannot walk very far before my r) buttock goes into such a spasm I have to stand still for sometime before I can move again.I have also been doing hydrotherapy. Unfortunately because of the paralysis to my l) foot and lower leg my gait is very bad and none of the therapists have been able to help. Have tried to get off pain meds from time to time but the pain becomes overwhelming and I can't last more than a day. My pain Specialist is happy for me to stay on morphine but it worries me that I might be causing internal problems with it. I think I need reassurance!

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Hi
Have you tried doing the superman exercise where you start on all fours? This helps the muscles on either side of the spine working.

With regards to pain, I've used a ice cold pack in the past in the painful area to reduce inflammation and then used a heat pack to get the blood circulating again. Not sure if that would help? Let me know.
Good luck.

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I can sympathize.......in Sep 2004 I had a laminectomy/discectomy at L5-S1 and for the past 2 years have had a MAJOR increase in pain. The only thing I found to relieve the pain and get me off the meds for 9 mths to a yr at a time was a procedure called RFA (radio frequency ablation) by my pain specialist. This procedure was a god send for the nerve pain and I felt great. 2 years ago my insurance stopped approving the procedures and sent me for therapy (occupational, vocational, physical, psychological) needless to say.......you take a person with chronic pain and make them endure all these therapies 40 hrs a week (yep a FULLTIME job basically) and see if they get better. I got WORSE, as if I thought that was even possible.

We are now investigating a spinal cord stimulator and I truly hope this is the answer to my prayers. I am 41 yrs old, raised 2 wonderful children and now have a grandson that is almost 2 that I have only seen 3 days of his life because I cannot handle the trip to AZ to see him nor would I be able to keep up with him. I want relief as well and want my life back! We become prisoners to the drugs and pain. I know there are options out there and will not stop til SOMETHING works.

Good luck to you in your quest. As for being on the Morphine......if it is working then I wouldnt change it. If it is not helping then your pain specialist can help you find something that works. My dr is good for that and I actually feel very honored to be with him. Have you tried Lyrica at all? I hear it works.....sadly it made me deathly ill and vomiting with low back pain is not fun.

Anyway.......rambling.........talk to your dr and just be your own advocate. If you are not happy with your treatment or meds then voice it and do not be afraid. I guess I have had an upper hand in this due to working in the medical field for the past 20 years and know that you have to do your research and be your own advocate. I questioned EVERYTHING in the beginning and my dr appreciated that. He now has other patients call me if they are unsure of a procedure or his treatment options.

Good luck and let me know if you need any other info.

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I have been on pain Meds for 3 years . I have 3 discs messed up nerve damage and I can't sit ,stand or lay down for more then an hour. Ms contin is not bad for you . U could stay on for ever if it really helps you . Roxycodone is great for when u need to get rid of pain fast . any Meds that are just morphine not have NSAID or acetamninophen in them like Oxycontin or ms contin will not hurt you it's just u have to take for ever or u have pain or withdrawal . They said I need back and neck surgery but I'm scared , I never here anyone that gets surgery and has no more pain so why not just stay on pain Meds and notget surgery? I don't have insurance and I live in nj and it's hard to get pain Meds in nj. But don't worry about the Meds I know people that have been on for 10 years and their liver is fine good luck

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Greetings Dillwynia,
Morphine causes less damage to your body than tylenol/motrin, and other 'safe' drugs. In fact, it drives me crazy that on House, he is popping vicodin like candy and none of the doctors has said anything about the very real danger of him overdosing on tylenol and killing his liver.
The biggest problem with morphine is the constipation that can cause major problems if not addressed. You don't want to take laxatives all the time, but you should be taking stool softeners regularly. A good rule of thumb is to take a stool softener like colace or senna 1:1 every time you take a narcotic pain medicine, or at least 4 a day...2 in the morning and 2 at night. You can take both colace and senna together if needed and you can take them forever without it being a problem. Miralax is also great if you need something more than colace and/or senna and can be taken long term.
You will probably be on the MS Contin for the rest of your life, and you should not stress over that...it is the same as a diabetic needing insulin or someone with high blood pressure needing to be on medications to remain healthy. You are taking a medication for a chronic medical condition, and that medication is necessary for you to be able to move and have a good quality of life. Work with your pain specialist and trust his judgment and don't be afraid of addiction or tolerance and take the medication you need to take to be as pain free as possible.
Blessings to you and yours.

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I was on pain meds as you are for spinal cord injury , degenerative disc, herniated disc, spondolytis, osteo arthritis. And after a few years , I'm sorry to say the pain meds did have an
effect on my other organs; ie' mostly my digestive and bowel system.
You should look at the book " prescription for nutritional healing" it does help . Every pain med is made from a plant that has been made syntheticaly....Just a Thought. I know that celery does help with inflamation as do many other foods. Try taking a " drug holliday" clean you system of drugs for 30 days and re introduce them as needed. I wish you luck .

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Due to a crushed cervical (c5-c6), had a discectomy and fusion w/bone in (cadaver) and also had a lumbar fused w/insturments and just to add have fibromyalgia, had the some thing you had like a sciatic nerve in the buttocks my Doc refered me to a spcialist who gave me a few shots and most of the pain went away.....all of the pain meds do help some but I found the doctor will probably give you higher doses of pain meds acording to your pain, which I don't like to take too much becuase of stomach aces, i found that if you go to a senior center and do some exercise and stretch the muscles, this has also helped me in my pains around the cervical and lumber, the exercises are very light and when I don't go is when the pain is greater.....hope this will help....it has been my only escape.

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I have been on the meds for over two years now, I walk alot as much as I can anyway that seems to help, tried the physical therapy thing for a while, tens units gallore heating pads ice packs but it always comes back to the pain meds but it does seem like the more moving around I do the less I have to take, my only problem is I can't get a good nights sleep. Light exercise as much as you can and eat a decent diet food is a must with the morphine. My thoughts go out to you and good luck but from my experience it looks like we will all be on pain meds for years to come :(

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