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This is a roller coaster ride

Started by Oreo on 03/18/2011 10:40pm

First, I apologize for my misspellings in my last post. I am on an I-pad. Ok. I have bad ddd and was told by a very reputable and conservative neurosurgeon I needed surgery on a herniated disc and a decompression for a disc osteophyte complex pressing on nerves." Your nerves are compressed and will cause permanent leg weakness if not operated on. " Then a second opinion said continue water therapy and wait. I have been in pain at an 8 for the last 6 months, with low back pain for two years. Now I have a really good day today(great!) and am doubting if I need surgery. I need to trust the neurosurgeon doctor and not doubt myself and my pain. Tomorrow I will probably hurt because I walked and went to target store! Then I will realize I need surgery! Up and down, surgery and then no surgery-an emotional roller coaster! Advice please.

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Hi Oreo,
Wow ,all i can say is i can relate.I am scheduled for surgery this Friday and i am still trying to convince myself i am okay without surgery.WRONG !Went to my niece's wedding last night,couldn't dance,i was miserable,All i could think about was getting home,lying down on my bed on my nice warm heating pad.I know darn well i need this,as my right leg is progressively weakening.So 5 days and counting down.I will try to update from hospital.
Take Care,
Nurse Nancy in pain

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What a coincidence! I was at my neice's birthday party yesterday and I Couldn't dance either! I was so frustrated,too! I could take your reply as a sign telling me to get on with it and just have the surgery. My issue in dragging my feet is knowing what is to come, as I had c 5/6 discectomy and fusion 6 years ago. I wish you well and bring your dancing shoes with you to the hospital! I will,too!

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I can totally relate to your pain and no pain. I have ddd of L4/5 and siatica. I found this out over a year ago but never realized how bad it was so I continued to work. Then hurt my back working pulling a pallet down. That happend in Nov/2010. I have never felt pain like i am in now. Workman's comp has cut me off claiming their independant dr. says i was workable two weeks after injury. I am getting a bit better but still cant stand long or sit long. I play musical chairs all day. office, living room, bed to lay down. I take scooters when I shop cause i cant walk the store without being in pain and have now hired a attorney for workmans comp and disability claim. My dr has been sick or I would have seen a orthopedic by now. As I need that for disabiltiy claim and for next step in recovery. My 14yr old daughter does more house work than I do. Cant bend for long. lift, twist, do any repetiive motion even folding laundry killsme. I can stand long enough to throw a meat loaf together of fast meal like that beyond that cant cook, Unloading dishwasher kills me and washing is as bad. But I'm ok to do factory work. I have a few days where I feel good or ok and then i go and do something stupid like walk the store or try wii fit again and its all gone. Many times I sleep in two hour shifts. sleep two up 1/2 to 1hr then sleep two up again sleep two more and stay up from 4am on. So I totally relate to your pain. Hope you find releaf soon. If I hear of anything besides spinal lasar surgery that i check into I'll let you know. check into the Lasar Institute very helpful info.

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momswings,

to get started on your recovery and orthopaedic appointment, can you have your doctor who is out sick fax your records/recommendation for surgeon consult to your insurance company? hope all works out and your day is bright.

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Thank you for your help. I actually see my doctor tomorrow and will be descussing orthopedic, and pain management. She is a exstreamly busy lady and many things get put aside unless you call and remind her but shes a great doctor that is why she is so over worked and understaffed. Gets frustrating sometimes but I love her. She has done a lot for me since my back started up. Now if I can just get diability to follow through I'll be good. Thanks Againd Candi

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All I can say is make sure you think it through and go over all the alternatives before you think about surgery. I had very bad spinal stenosis in my neck and had surgery on it 12/13. Be real sure this is what you need to have done, because the spine is a crazy thing. I am still in pain from mine. I had a laminectomy and spinal fusion from T1 to C3. recovery has been rough to say the least. Good luck in whatever you choose to do.

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Thank You for all your advice. I am trying to cover all my options before resorting to surgery. I'm being held up by dr. apt right now. She's so overbooked I cant get in was sposta see her today but we had a major snow, rain, and sleet storm and roads are to bad to go now I have to wait another two weeks. I just cried. Im tired of the pain, tired of the waiting and tired of no answers. I'm just sitting here doing nothing. My next option is to see the other dr in the clinic who kind of knows her stuff but doesnt know my case. To get the referals done. I'm just really upset right now. Thanks for letting me vent. You are all so great.

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Hi everyone.nurse Nancy here,home from hospital yesterday,surgery went well with just a few .problems post op,like not being able to urinate after surgery.I am not going to lie,it was a very difficult first three days post-op,but i know i am on the road to recovery !I will keep all updated.Oh i had fusion @l5-s1 along with a host of other things,anterior and posterior approach.

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Hi Nurse Nancy
So glad to hear from you- I was thinking about you these past few days and keeping you in my prayers. Happy to hear your feeling better, it will be a tough road ahead, but you can do it. Keep plugging away at it one day at a time :) Please keep us informed about your recovery, we're all cheering you on
Chris

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I was feeling like you did. I have been dealing with mine since April of last year and became progressively worse each month. I had surgery March 8(l5-s1), been in more pain that before surgery but I'm hoping that is normal. I had minimal evasive surgery. 2 screws, 1 rod, and cage. I see my surgeon on Mon and hope the pain I'm still in is normal. I have never had any type of major surgery so this has been rough. Good luck to you, but I would have several opnions. What is water therapy? How and where do you do it? Every time I take a hot shower I think of how sitting in a hot tub would probably feel awesome.

Maryann

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Hi bread girl,
Water therapy is in a heated pool where I walk in the water. I walk with weights, use a kick board, hugging it to my chest, but always in an upright position. I use fins , too. If you have a fitness center with pool or a community pool, ask to see the water aerobics instructor. Also, at my fitness center, there is a hot pool with water aerobics suited for people with arthritis. It feels really good.
I have gotten 3 opinions and am scheduled for minimally invasive procedures on April 14th.

Nurse Nancy,
I am glad all went well and I wish you well in your recovery.

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Hi everybody

Today, 1 month ago I had spinal decompression and fusion on L5-S1.
I have to say that I thought it would be much worse than it was. Of course there is pain, but that was easily controlled with meds, I was in the hospital for 3 days, was walking on the second day and then went to a rehab center for 1 week. 3 hours of light PT daily, 1.5 in the morning and 1.5 in the afternoon.
I weaned myself off the narcotics as soon as I got home.Took me about 4 days. Mostly I am taking Aleve, but sometimes when I overdo it I take a muscle relaxer. I was told not to let the pain get to bad, because then I have to take stronger meds again.
What really really drives me nuts are all the restrictions, you all know about the BLT. No bending, leaning and twisting. But my pain is all but gone, just this nasty itching because everything heals, but I do sometimes forget not to bend or lean or twist. I hope I don't do damage when that happens, it is only occasional.I do walk with my walker twice a day for 10-15 minutes which makes me very tired still.

Now I am not cleared for any physical therapy other than light leg lifts and ankle rotations and I did go back to work last Monday, I have a sit down position at our local YMCA....and I can't go into our warm water pool till the doc says so.This doing nothing is driving me crazy to the point that I just start crying out of the blue for no reason. I also don't like to be dependent on anybody, my husband is fantastic and helps so much that I start to feel guilty.But he says to not think silly thoughts, that what he is here for :)
I also think that my body is rebelling, I feel like running, my back feels like I need to stretch it al lot, like there is another body inside me that wants to get out, lol, but how do I know if I don't overdo it and hurt my fusion?
I have an appointment with my surgeon on the 19th this month and if he tells me I still can't do anything I'll kick him,lol...
All in all, I am glad I had the procedure done, my leg pain is gone, my back feels fine.So it was worth it to me. All of you that are thinking of having this done, I can only say that it wasn't bad at all and the right thing for me.
But it is for you to decide. I wish you all the best.
Sylvie

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I have had DDD for more than twenty years and it got to the point that I lost the use of my right leg. I was had dragging my leg around and trying to manage stairs or just getting around. Two years ago I had surgery and when I got out of the hospital I had full use of my leg again. It worked but I still have alot of pain in my lower back and have been on pain meds since. I am now not taking the meds daily only when I get the stabbing and hard pain, which is about 4 days a week. I did apply for SSI and got it without using a lawyer as i had all the right medical recors and doctor statements.
Beleave me even if you do have surgery and it works for you the roller coaster ride is still there. Sometimes it gets to where I don't know if I want to go on.

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Sylvie,
Five weeks ago I have l5-s1 fusion. Everything seems to be going ok. Still have some pain at the incision site. Some movements hurt or send weird pains in my back, but other wise I think I am right on track. Start PT and it is going good. The therapist says I have lots of tightness in my legs and is trying to loosen that up as well as alot of weekness in my upper back as well as my entire body. I have been on light duty since sept of 2010, which means I have not done anything for many, many months. Right now I'm not working at all, my dr has not released me yet to return to work. I am on oral pain meds, muscle relaxor(only taken at bed time) and a fentyl patch. The patch is due to me being on morphine for 5 months prior to surgery and they need to bring me off the morphine. So I have some good and some bad days, but the good are becoming more frequent so I am hoping this surgery is a success. Good luck to you, don't push yourself, you will get there. I have heard it can take up to 6 months till they say your surgery is actually successful. So take it easy, its hard, I know, I want to be outside riding my bike and doing some planting but not possible, yet.

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Hi Breadgirl
Seems like you are on the right track as well. Just don't overdo it, I hear that from my hubby, my boss and a lot of other people. I have my 2nd post op next Tuesday and I hope he clears me for physical therapy. For the last 3 days I have light pain in my leg , different than before the surgery but I am sure it is from being so totally immobile, even though I started work 2.5 weeks after surgery, it is a sit down job , no lifting no nothing, basically just like being home.
Tuesday I went to the mall with my son, just walking around, had my walker with me of course, then we went to lunch, and after he dropped me off at home I sat down in my chair with some ice on my back and woke up 3 hours later,lol
Surgery does take a toll on the body and I am getting better, but I tend to get impatient.
I took a muscle relaxer last night, my whole back felt very tight, but other than that I only take Aleve.
I hope that you can get of the meds soon , but don't let the pain get to bad or you start with higher doses again. If you need the stronger stuff, take it.
Stay in touch...Sylvie

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Sylvie I remember those days of being exhausted. I still do sleep more than I used to, but I think that may be due to pain meds. I do get tired out more than before surgery but my tolerance is starting to build up. I am lucky I do not feel any of the leg pain or pinching of my nerves since surgery and hope to never again. It was the worst. From the moment I woke up from surgery all leg pain, acheness in my legs and shooting pains down my legs has gone away. Walking is still a challenge and I can not walk very far or for very long, but hopefully that will get better. I do not use a walker but some days feel like I could use it. Hope your able to start PT, I believe for me this has helped some. My back and my legs as I told you before are so tight. The therapist feels the tightness in my legs contributes to some of the back pain I have. Good luck to you ,keep me posted on how your doing! Nice to talk to someone who is going thru similiar things.
Maryann

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Hi all

On Tuesday I had my 6 week post op and most restrictions are lifted, No more walker, I am allowed to bend, lift and twist and all the other stuff but am advised to ease myself back into real life. I am allowed back in the pool, on my recumbent bike and to walk...slowly, a little bit more each day.
Stairs still scare me and a standing shower without my seat is somewhat difficult. I bought a shower mat that is more like a thick cushion at Walmart and it really helps with keeping the balance.
I asked my doc why all of a sudden the top of my foot and two toes are burning, not all the time but certainly more than I'd like.
He said that the x-rays show no indication of anything pressing on any nerve, it could be the way I was walking while recuperating, or it might be coming from my knee. That will have to be replaced in a few years, not ready for that yet. I'll give it 6 weeks till my next appointment and if it still hurts I'll see a foot doctor. I think it might be from all this time of doing nothing but sitting on my butt. We'll see.
All in all, everything healed nicely, no pain in the back, scar looks "good". This week I'm busy with Easter and so, but on Monday I will go back in the pool 3 times a week to start. Doc said, I don't need physical therapy, I had enough of that in my lifetime to know what to do, Again, I have no restrictions just go slow and don't overdo it, listen to my body. I hope it don't start screaming, lol.

FYI..I was told that taking Aleve is the worst thing to take when you had a fusion, anti inflammatory meds will slow down the fusing, not sure if they told me that, and if they did I was probably doped up and I don't remember. I didn't take to much of the stuff, thankfully :)
Now , If I should need it I take Tylenol.

Have a very happy Easter,
Sylvie

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