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Failed Harrington rod fusion

Started by Heather5589 on 01/31/2018 2:52pm

Hello. I am new to this forum and am looking forward to hearing from those who are in the same boat as I am. I am 28 years old I was diagnosed with scoliosis when i was 5 years old and of course at that time I had no idea at that moment my life was changed forever. I remember having to wear large bulky braces and of course I was picked on for being different. By the time I was 9 years old I literally looked like a human question mark. By spine at that time was 68 degrees curved. Still wearing the brace that obviously wasn't helping at all my mother started searching for a different orthopedic specialist. My very first appointment with the new doctor he was in shock and my mother was told I need emergency surgery to correct the scoliosis. So in 1999 I had my spinal fusion with harrington rods placed. I was 10 years old at the time of my surgery and at that time 72 degrees curved. I have had nothing but problems ever since. When i was released from the hospital after my surgery I had grown 6 inches and had a normal 28 degree curve. Throughout my childhood and teenage years I experienced mild back pain on a regular basis. When I was only 12 years old while playing kick ball at school I remember the most excruciating pain I had ever felt and was immediately rushed to the hospital. We were told that the hook of my distal rod and broke and was just laying on my spine. Fast forward to today my rods have broken in more than 15 places. Pins have broke, screws have fallen off. I see a spine specialist monthly. I have had many split disc in my teen years that required year round physical therapy and the use of a tens machine with mild pain medicine. I can no longer work I have a 10 year old son to support on my own so I worked full time until I could no longer bare the pain. I am now diagnosed with chronic post operative pain, severe scoliosis (my lumbar spine is basically a complete U shape), lumbar disc degeneration, osteoarthritis, and chronic pain syndrome. I have no quality of life I am on a number of different medications including oxycodone, neurotin, meloxicam, lyrica, flexeril. Also, two different sleeping medications. I have trouble sitting due to bone to bone rubbing and disc pain. I also have SI joint problems and have had injections into both joints since I was 16. My doctor can no longer give me injections as of about a year ago because my joints have developed holes in them so my injection medication just leaks right out and don't provide any relief. Other than my spine specialist I also have seen a few different orthopedic spine surgeons. Every surgeon I have seen advises me not to have any surgery to replace my hardware with a couple refusing to touch me at all. They all say if i am given the surgery there is no way to tell how bad the damage is until theu cut me open. With broken hooks and screws around my spinal cord and wrapped around nerves and in muscles basically the surgeons are scared to paralyze me or causing me to be worse off than I am now. Plus with my lumbar degeneration I was told they didn't think they would be able to refuse new hardware being that there isn't much bone to fuse. I have also currently been awaiting disabilty for over 3 years. My lawyer says the only reason I was denied on my first claim is simy because I am so young. So my question to you all isanyone out there have such extensive problems after have harrington rods placed? Also, anyone around my age having the same problem getting disabilty benefits? I have worked more than enough to qualify plus my lawyer even told me I will be drawing more than some a lot older than me. So That's not the issues just simply my age. I have already had a hearing with an administrative law judge and was denied I then filed a motion with the appeals council just a few months ago and am still waiting to hear a decison from them.
Thanks for any help you guys could give me. I also apologize for the lengthy story I just don't know anyone else that knows even one bit of what I am going through or any of us with these awful spine conditions.

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