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thinking twice????

Started by vivianne5 on 03/25/2017 1:00am

I'm so glad I found this site! My doc/pain management Doc is suggesting the Boston scientific spinal cord stimulation therapy.
Even the trial seems scary. I was advised today that I need to be evaluated by psych as well prior to trial or surgery, if i decide to anyway. I've been suffering since 2010. it all first started with pain and numbing neck, left shoulder and left hand. It all was a work induced injury. I first received my shoulder surgery rot-cuff in 11/2009 at Palo alto medical foundation, the symptoms were still there with my neck and hands so the nerve pinch and bone spurs didn't clear or better pain & numbing. after months of physical therapy they then decided to do carpal tunnel surgery with my left hand. again after therapy it still didn't tget any better, now at this time and still my left hand shakes tremendously. still pain and numbing. 3/2010 they decided to do a spinal fusion on C5/C6. This surgery made all things worse, I lost my independence, my job ended- company closed after 13 years, I couldn't carry my first granddaughter, my sleep was horrible, I became depressed, I developed anxiety and had to depend on others to assist me with almost EVERYTHING. Approximetly 4 weeks later I became extremely ill. I was unable to hold any food down for days. I became so ill i was admitted and hospitalized for 3 weeks. I was diagnosed with Gastroparesis, basically my stomach was partially paralized. there was no motility after several test were made. I lost almost 60lbs. I couldn't eat hardly anything til this day I still struggle with it. They believe that during my surgery for my fusion the vagul nevrve had some damage and effects my stomach this nerve starts in the begining of your spine to your stomach.. It' s now 2017 I now suffer with C6/7 bulging disc, spinal stenosis, spurring and Along with my left hand that swells everyday and shakes out of control, weak, tingling and stinging pain and unable to use. I have had so many spinal blocks about 15 of them in california and now in Texas. I'm scared to have anymore surgery's because of any side effects i've tried many meds and want no more. alot of medicines make my stomach condition worse. My immune system is very low and also have been diagnosed with fibromyalgia. my pain management doctor is suggesting now this spinal cord stimulation therapy and I am just not to sure about it. Nervous to have any other issues. But if it can relieve my pain to even 20% I'd live a better life. Everyday is a struggle. I can no longer work my orthopedic doc has put me on Permanent Disability, my stomach doc has put me on limited disability, my fibromyalgia doc has put me on permanent disability as well but along with my poor health SOCIAL SECURITY has DENIED me permanent disability or any disability 4 times. They still feel i am young enough and still have the ability to work. I'm on my second appeal and set for trial... my attorney says it may because I'm still young in their eyes (47) and my appearance does not look as if I am permanently disabled because I can still walk!!!!!! I'm helpless, any suggestions?? any positive recommendations on the stimulator???

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and to add to all my mess......I've devoloped a soft lump on my lower neck, Doctor says its fluid that is developing from the friction of my bones???? they gave me a creme...smh!!!!


Hello, vivianne5. We are sorry to read all you have endured over the years. We can't imagine how hard it's been to live in that much pain.

We think it's totally natural to be nervous and skeptical about a new treatment. It's good to ask lots of questions to understand your risks and benefits, and it's important to learn as much as you can about the treatment. The more you know, the more confident you will be about your decision to move forward--or not move forward--with the treatment.

With that said, we'd like to share some content with you on spinal cord stimulation. These articles may repeat some things your doctor has already told you about this treatment, but perhaps they will shed some light on aspects you hadn't yet considered:
( Spinal Pumps and Spinal Cord Stimulators )
( Spinal Cord Stimulation after Surgery )
( Spinal Cord Stimulation for the Control of Chronic Back Pain )
( Spinal Cord Stimulation: Advantages and Risks and Who is a Candidate? )

Keep us posted on how you're doing. We hope whatever you decides leads you down a path toward a better quality of life.