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Severe Pain from multiple ACDF and now more problems

Started by 102054167143122... on 08/09/2015 9:32pm

We used to live in TX. 1st surgery was Nov 11. Had and incompetent ortho who admitted she did not fuse all the dics and brought me in two months later, Feb 2012, to fuse another disc instead of the two MORE she was supposed to fuse. She strung me along for two yeas and then said, "It's been two years and I am not longer with the practice so you cannot sue me for malpractice." I could not BELIEVE my ears. SO I have been put on disability and MEDICARE and could not find a neurosurgeon who would accept Medicare. We moved to Wyoming in Late April 2015 and just got into see a neurosurgeon this past Friday who gave me all of 45 seconds of his time. HE said to see what happens in a year. WHAT?????? My MRI and CT scans are horrendous and he said it was a liability for him to "try" and fix it. I just cannot believe this crap. I just turned 40 in June. This si not supposed ro be happening. :(

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I am so sorry to hear about your misery and suffering. I feel that someone should respond if only to let you know that you are not alone in this. I am a mess from C2 to T4 myself and have been in increasing pain for 27 years. I made the mistake of thoroughly researching my options before the pain and dysfunction became disabling. I chose to 'wait' until better surgical options would hopefully be available. I may have been better off if I had chosen surgery ten years ago when it was first suggested by all of the surgeons I saw. I still hold out hope that better techniques and solutions will be available for us multi-level cervical spine sufferers. I don't know what to say to give you some hope or help you with the daily suffering other than to say that I have been in horrible pain for 14 years while caring for a chronically ill spouse, a special needs child, and raising 3 other children into adulthood, and it hasn't killed me yet. I have enough good days, hours, to keep me going and hopeful. I wish you all the best and will pray for your healing or at least that you find good care and comfort as you deal with this very challenging health problem. Please keep me 'posted' on your journey. I truly care.

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I can't imagine what your going through but after two fusions and an exploratory surgery I opted for the morphine pump. It's a God send,couldn't live with out it. 9 and one half mgs per day is awesome along with three vics. I wish you the best.

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Pain is one of the hardest things to explain to others. It can' t be seen so it must not be real. I have had 2 separate cervical surgeries. I had c-5/6 and c-6/7 done in 2010 and had c-4/5 done 2 years later. The first one made a great difference but not much from the last one. I had a very good neurosurgeon. I still have some numbness and tingling and quite a bit of pain anytime I get fatigued. I tried everything imaginable before I chose surgery. I do get some relief from keeping active and use muscle relaxers and pain meds. I did recently find a book that has some great ideas in it for pain management. It is an older book called"Pain Free" by Pete Egoscue. I would like for others to read it. Hopefully get some relief. I know nerves can have continued inflammation and swelling for a long time. I try to use the stretches when I can. I do know how difficult it is to try to exercise when you hurt. Make sure you change positions regularly also. Too much "resting" hurts too. Good thoughts heading your way.

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I am very sorry for you. More surgery may not be better. I had C4-7 by a very good neurosurgeon to keep me from paralysis (a bit over a year ago). Everything in my neck collapsed, bone spurs, etc etc. he said he really needed to fuse my whole neck but it was not feasible, so C0-3 are bad and now since the rest of my neck is fused the areas above and below hurt if I do too much of anything (like go out to dinner or drive somewhere). So I understand and feel bad for you and everyone else who has a bad spine. It is so sad that there are not better options for pain management. And people who have never suffered chronic pain don't understand. Everyday is a challenge and now I am applying for disability because I cannot do the job I love anymore. I have had lumbar surgery too.

See if you can find a good osteopathic doctor. They can help you use multiple modalities to improve your quality of life. My whole spine is falling apart at all levels and the neurosurgeon said there is nothing he can do because it is too bad at too many levels. So I must learn to cope. A good pain management doctor is a godsend. I am trying a new PT (who on first visit increased my pain), an anti inflammatory diet, and a pain physiologist to help me cope mentally with my new reality.

My best wishes to you.

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