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Pain . . is it our lot in life?

Started by Strhuntrss on 05/14/2015 8:31pm

All of us here have had to deal with some sort of pain. Whether it be from surgery or not.
But most of us still end up in pain. Whether it be mild Orr severe.
I ask . . . Is it our lot in life?

I'm asking this question so. . How do you deal with your pain when all else has been done?

Thanks
STR*

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Your post was by mine so I read it and all I can say is I really, really know how you feel. My best hope is that technology and compassion for the ever-growing need for PM keeps evolving. You might try something I did......not very successful for me yet but if your willing to be a guinea pig I looked up every clinical trial site and made an account with all my problems. I did see one in my area for surgery on herniated disk in the L-spine, but that's not where mine is. I get depression trials a lot too.... My heating pad is also my best friend and a good doc can sometimes get a pretty good cocktail of meds where its not all narcotics............good luck!

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Thank you Cynny!
I will check out the clinical trials.close to where I live.

God Bless you!
STR *

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Just google clinical trials and you'll get several sites from usually medical companies. You don't have to search for your area only because how they work it is when you put your info in there, whenever something comes up in your area and you have that listed as one of your problems, (so list A LOT) they will send you an email of that trial. You can also do a search in the sites of whats coming up near you. Good Luck! Some will even pay for your accommodations or just for doing the trial! :)

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As a fellow sufferer in your world..I hurt myself continously on the job as an RN FROM 7/87-7/95 UNTIL WAS BASICALLY KICKED IN THE A** by the non-union hospital I worked at. On Disability since 2003...
MY FYI-I worked many specialities but the one I worked @ was CRITICAL CARE RESEARCH RN FOR 2YRS IN THE HOSPITAL-I WANT ALL MY FELLOW "COMRADES" TO KNOW-LEGALLY @ ANYTIME YOU CAN QUIT ANY CLINCIAL TRIAL NO ?'S ASKED..$$ REIMBURSEMENT OWED ETC...Some clinical trial personnel can be very manipulative in my hx of dealing w/the drug co workers-mostly outside the hospital where WE ARE ALL OVERSEEN BY AN IRB-INDEPENDENT REVIEW BOARD...PLEASE DO NOT SIGN UP FOR ANY STUDIES THAT DO NOT HAVE ONE! THEY MONITOR ALL STUDIES INDEPENDENT OF THE FACILITY TO MAKE SURE NO ONE IS BEING COERCED..ETC...
Most clinical trials are great but I WANT EVERYONE TO KNOW FOR ANY REASON YOU WANT OUT-JUST SAY SO-sometimes the follow-up w/the labs + post visits are too draining on you-if that happens & you don't want to participate further-JUST REMEMBER YOU ALWAYS HAVE THE RIGHT TO SAY NO & ALWAYS REPORT ANY NEW S/S YOU DEVELOP WHILE ON THE STUDY DRUG-THIS IS VERY IMPORTANT INFO!! I am not trying to scare anyone but I just want everyone to know YOUR RIGHTS because I care about people not the studies=YOU are #1 always:)

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It can get depressing the ups and downs of our lot. We are not alone, and I guess that somehow helps me. I wish I had a car to drive me places. Not having one and living with pain is hard, because I can't get out in the country where I need to feel refreshed. Still working at trying to find a bus route that might take me somewhere pretty. I can't help but keep thinking what did we do to deserve this pain and misery?

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It's been a bad week for me and really hard to wake up in the morning and be grateful. The more I stress over the back pain the more my muscles get stiff and the pain gets worse. Is this our lot in life? Yes, probably and that's what is so horribly depressing about it. I had a job that I loved and was an active grandmother, mother, friend and partner and 7 years ago it all ceased to exist. I can honestly say that I hate the condescending doctors that look at you and say "you have great range of motion...you're fine". I just want to scream!! Range of motion has nothing to do with the nerve pain down my hips and legs and feet from my lower back. I've had the tests...my three discs are shot! Surgery was finally done on my cervical spine after 2 years of telling them that something was wrong. They told me that they had seen worse! By the time they finally consented and did the surgery I had extreme nerve damage from the compression. They told me if I hadn't waited so long the damage wouldn't have been so bad! What? People don't understand that with chronic pain you not only lose your friends, hobbies and special occasions...you lose yourself. So I guess our lot in life is to just keep taking the pain pills, anxiety pills and all of the other poisons they prescribe and pretend we're fine. Like I said...it's been a bad week. Thank you for letting me vent to people who actually understand.

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I can soooo relate to your ? Is Pain our lot in life? I have been dealing with pain for more than 1/2 of my life now & I'm only 54 yrs. old. I had a Harrington Rod Spinal Fusion as a teenager in 1979 & afterwards did very well. However,after the birth of my son , wear & tear over the yrs. & a car accident in 2003, my pain & low back issues have left me unable to work & on SS Disability. I was on Fentanyl for 6 yrs. ( after car accident) which helped immensely with the pain but I became physically addicted & a recluse. I had to be hospitalized to get off the Fentanyl & get my life back. It'll be 2 yrs. in August that I've been off that drug & I thank God every day! While I try my best not to use meds, I do wear a Butrans Patch 20 mcg. Regularly & I get cortisone injections 2 x yr. But some days are just too bad & I do take morphine then which helps a lot when nothing else does! It is hard though as I've had to give up a lot due to my pain & I've lost many friends too because of it. It can be lonely & depressing some days for sure but I'm a survivor so I'll keep surviving as best I can. It feels good to talk to others who understand & know the struggle of living with pain & never knowing when it'll rear it's ugly head for how long or how bad. It's the sitting & compression that get me the worst. My discs are a mess(degenerating) & my left sacroiliac too. It really is a day to day thing right now. Next Friday I get another injection (2nd once since April) so pray it gives me some relief for 6mos. or so, I could use the relief! Wish you all the best & any comments, suggestions are helpful....

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I am on a heavy dose of pain meds. I still work 40 hours a week. I try to live my life. I am 49 years old. I have 3 small grandkids. Do to a car wreck in 2003 I have had 2 different lumbar fusions. And still in pain. I am on a anitdepession meds. My pain still gets so bad I do think is this worth living. Having a good support system helps with some of the mental part

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David P. Man: Are you REALLY promoting your own business on this forum?? What nerve! I see that you have given the same response to more than one person, all with the request to text you for info on meds. I will be happy to let SpineUniverse know what you are doing. Shame on you!

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Re the person who was on the Fentanyl patch, I am more than a bit concerned about the patches, I'm on 125 micro every TWO (2) days. I started @ 25 every 3 days back in 2008!
I get injections every 3 months, @ L4 and L5 most likely degenerative disc disease. Diagnose varies, but amounts to the same thing. I origionally asked specifically not to be given anything from the OXY family. Now it would seem I'm addicted to the patches. I have trouble keeping them on due to aquatic physio, and will have to go 4-5 days without. Don't seem to get sick, but the pain comeback is severe. I am not a surgical candidate, so that's where I'm stuck. Very worried about all the medication I'm taking from an ex jock who didn't need aspirin to a mini drug mart.

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