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help!! I'm scared no one is believeing how much pain I'm in.

Started by baggers on 08/03/2013 1:11pm

I'm currently on the waiting list for a l5/s1 spinal fusion at RJAH hospital in oswestry for spondylolisthesis, a disc bulge and degenerative discs. I've only just turned 22 and I'm in so much pain and I'm scared that no one is believing me when I say how much pain I'm in.
i have been on the waiting list for 3 months and in the past 4 weeks the pain has got much worse with new symptoms are appearing. I've always had intermittent pain down my right leg as well as lower back pain but now the right side of my bum constantly hurting. the lower back pain is constant and keeps getting worse.
I've also experienced numbness on the top of both feet at the same time.
I contacted my consultants secretary to if i could get a date for my op and they said it will probaly be in around 6 months time. i also asked to arrange a review appointment with my surgion but have been told I will probably have to wait til October for that. I have an appointment to see my GP on Tuesday next week to see what I can do while waiting for my op. I don't want any more pain killers as I'm on 20+ tablets a day already. what should I ask for??
I don't know how I'm going to be able to wait 6 months for this op!! I can't afford to give up work but its hurting so much.
I no longer sleep I have had 1 good nights sleep this year after my 1st acupuncture session but that's been it. I just feel like I'm fighting a losing battle and don't know what to do anymore!!
how do I get across how much this is hurting??? should I ask to have a new mri???

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Hi Baggers.
I have had some successes with pain relief on both pre and post surgery. Let me know if you are interested and we can discuss further. Regards Andrew

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Hi Andrew

I'm open to any suggestions about pain relief! I'm willing to give anything a go if it will help,

Jo

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I feel your pain!! i had fusion L4 L5 S1 with 6 screws 2 rods, discectomy, laminectomy and a bone graft from the iliac crest.
20 pills a day?? what are you taking?
my surgery was 4 years ago. I'm still dealing with daily debilitating pain. The levels of pain change through out the day. i'm on 3 differents meds, Ultram, ultraflex and vicodin. Only another pain sufferer can truely understand your frustation with Drs and people close to you. Its an awful feeling when someone dismisses what you are telling them.
The fusion puts stresses above and below the fusion. I now have intense SI joint ( sacrol iliac joint) pain. The SI joint is directly connected to the hip joint. My SI joint is out of wack from the fusion which has cause my hip to be out of alignment and i now need a freakin hip replacement !
So how do i deal with the pain? Meds of course but also get in the pool almost everyday. I belong to the local YMCA. I can get pain free in the pool !! some days i'm in there for 2-3 hours! i first get in at the deep end and with a kick board or other float i put it in from of me with my arms over it and just let my feet hang taking the pressure off the discs. In slow motion i run in the deep end for 10 min or so to warm up. Then i do back stroke then free style laps. I feel like a different person in the pool.
I also found a chiropractor that has helps. He gets my low back and SI better aligned and i wear a 4 inch velcro belt that helps to keep everything where its supposed to be. I was told the hip replacement should help with some of the pain.
I also just reciently joined a pain management group through my therapist. Other people going through the same thing....about pain meds, being dismissed, feel like your complaining to much, not going places because of the pain, cancelling plans at the last minute because its a bad pain day.
Hang in there! From how you were talking I dont think youre in the USA. Our medical system is different. If you can get a second and third opinion. Bring records , xrays, MRIs. How long ago was your last MRI?
best of luck!
Denice

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I wanted to add that there are many many people that have had great results with back surgery. They are out enjoying their lives. The people on these boards are people still suffering. But please please please try every option out there before you do surgery!
Denice

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Brother I feel your pain as I am there myself. I had to come to the ER because I could not walk and was not able to move anymore. They gave me some strong IV drugs to help with the pain and inflammation and I'm still here at the moment. I feel much better but there would have been no way I could have made it without the ER. Do you have the same option? If the pain is trully that bad then the ER is the only way to go. I mean they had to carry me ouf of the passeger seat of my girlfriends truck and put me on a stretcher. If they won't believe that kind of pain then they are just cruel. Not sure where you live but waiting that long for surgery is just crazy. I am complaining that I have to wait 3 weeks! I have heard tons of bad horror stories about surgeries but i have tried it all and everything has failed. I have to tell you though most of the horror stories i hear are from open back surgeries and fusions. Most of the success stories I hear come from the minimally invasive surgery folks and that's what I'm getting even though I have been told to get a fusion. Definitely get more than one opinion heck I've gotten 4! Good luck man.

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Andrew I'm definitely interested in pain management so any advice you feel like sharing would be greatly appreciated. i take it this site has not "reply with quote" options or PM boxes?

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hi
yes I live in England so I'm on the NHS which means the waiting lists are long and I'm at one of the top spine hospitals in the country so that makes the wait worse. I looked at going privite but that would cost £10000 which I just can't afford!

my mri was done last October and I had a CT done in march this year to confirm the diagnosis. But no other tests done. I'm currently on 3 30mg nefopam tablets, 400mg ibuprofen & 400mg paracetamol. they have tried me on a number of different medications but a lot make me really sick so I've had to stop taking them. the combination I'm on at the moment doesn't make me sick and does help dull the pain down but it's still not great.

I find myself constantly feeling like no one understands how I feel. my bosses at work have been pretty understanding but I've notice the past couple of weeks that they keep expecting me to do more and dont understand that I will have "good" days where I can tolerate the pain and bad days where I'm just tryin not to cry all day from the pain. I have almost gone to the emergency room on a couple of occasions but feel that they will just give me more pain killers and send me home.

I see my GP tomorrow morning and hopefully he will help sort something out because I don't know how much longer I can go on like this. if he won't help I think ill just have to go to the emergency when ever it get unbearable and see if they will help. I'm only 22 and I just think they won't believe how bad I feel

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Hi Jo
Could you perhaps elaborate a bit on why you have this back problem, was it as a result of and accident / injury and how long ago did this happen.

I work on a cellular level and do this online. I have developed certain protocols that assist in removing trauma, fear, pain, memory of protection that is still locked in on a cellular level.

This is a deep and painless technique which should yield results within hours. We could do this via skype if you are interested and it takes approximately 2 hrs.

Warmest Regards
Andrew Brummer

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I haven't been able to pin point what cause the problems. the consult say it could be to do with the fact I started walking from 6 months old and would climb all the time which also meant I would fall all the time so I could have been from a fall at a young age.
my mums conviced that it has something to do with a car accident we were in when I was 10 it was a major accident and I was the only person involved that didn't have major injuries! I just had a couple of bruises and everyone else had major breaks and multiple injuries. I didn't get checked at the time as I felt ok and was more concern my mum got treatment.

how much does this service cost Andrew?

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Bagger.....

Andrew Brummer is posing as a spine expert. Look him up on the internet. He is a fraud wanna be. Do NOT send him money!

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Neecy 926

Thank you for your valuable contribution and research into my "credentials". This world and times we are living in is ripe with examples that Neecy is suggesting.

I did not select a check box to state my credentials when first registering on this site and certainly do not need credentials. The proof is in the pudding and the only thing I care about are results. (So does the people I work with)

I worked with this person on this site online yesterday and feel free to validate his email to me regarding the work we did, his posting can be found under pain community and maybe ask him if anything was mentioned about a charge for my services.

Massive pain after working as bricklayer
From: danishguy - 3 days 5 hours ago

Herewith his email to me :

Hi Andrew

I had hold a lot of anger towards myself, for allowing the injury to happen, but after the session and throughout the day, I have released a huge portion of that anger. So I am definitely more positive now.

Regarding the pain. The pain is still a four on the scale of one to ten, but I'm still positive that this technique, will yield results.

I can hardly describe how thankful I am. It warms my heart knowing people like you exist.

Have a wonderful weekend.

Best regards

- Michael Nielsen

Neecy, I do not blame you for reacting this way, you were only looking out for Baggers. However, if you are in any physical pain, please feel free to mail me and I will assist you, Baggers, I can assist you at the very least in preparing your body for this physical invasion, which if it should it come to this, will assist in reducing the associated trauma and subsequent healing process. On the other hand, which I have done before, your body could repair it self sufficiently to the extent that you do might not need surgery after all.

Think of it. How much could a positive result be worth to you.

Andrew Brummer
andrewbrummer001@gmail.com

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Hi Denice

Reading your post I can understand the pain you are going through.

I am here because I have the sincere conviction and belief that I can make a difference.

I would like you to prove me a fake by agreeing to work with me online for 1-2 hrs tomorrow and see for yourself if what I am offering does have any value.

The outcome of that, you are to present to this forum upon completion.

I need 1-2 hrs of your time and a skype connection in to facilitate.

Really hope you will accept.
andrewbrummer001@gmail.com

I work like I don't need the money, love like I've never been hurt, dance like nobody's watching, sing like nobody's listening, live like I am in Paradise.
By His grace, I am making a difference

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Hi Baggers,

I am so sorry for the spot you're in and unfortunately know it to well your frustration. I had total disc replacement 10 years ago. All was well for the first few years, them symptoms started returning. My GP seemed to be trying to cut back on my pain medication and sent me to some specialist that just started yelling at me. He told me I only had mild discomfort and to go back to work. Then my GP implied I had a drug addiction and did not want me to go to pain management. Tha-t was the last I will ever talk to him. I will start a topic with the entire story, as this as your topic.
I'm sorry you are in so much pain, it's sad that we always have to prove we have pain.

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Dr. Ratsprecher is a professional who has plenty of experience and training.

Do not be intimidated by needles! That being said, many will be intimidated. It is common to feel this way; however, chiropractors has been around for centuries. Millions have had this procedure done and are better off for it. Grab your fear, toss it aside and make the appointment to Dr. Ratsprecher of Chiropractor Bergen County. You will be happy that you did.

Dr. Ratsprecher has a gentle, caring, and effective way of approaching the body. His successful method will decrease nervous system interference in the body through the use of postural correction. This treatment can significantly reduce many of the pains and issues you are experiencing.

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