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We know what meds Don't work. What DOES?

Started by upanddown on 12/20/2012 7:32pm

If you've found a combination that works for you, or know someone that has, please share your knowledge. You never know, it may be something so simple that most people haven't thought about it. ( Like ice for nerve pain.) Anything you can think of would help. What do you use for pain, muscle relaxer, sleep. What nerve meds are out there? What vitamins help? Which do more damage? What has been your experience with different pain meds and the combinations you've tried, good and bad? I know there's a limited amount of meds out there, but maybe, just maybe, there's a formula out there somewhere that actually works long term.
Any and all info is welcome, no matter how small.
Thank you for reading this post. :)

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32 Responses

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Janet, you stated it before what would be the best pain combo,,,,,THAT MOP HANDLE..luv ya Rene

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LOL,Rene. I know right!

As far as pain meds, and the different combinations go, here's what helps me. If my pain is more of the dull, deep, ache, hydrocodone and zanaflex works ok. But when the pain is the sharp, shooting, burning type, the butrans patch and oxycodone is better.
When I had sever headaches, I told the Dr. that nothing kicked my headache like ibuprofen. She replied with, "you know what works best for you." That being the case, the freedom to have some flexibility with pain meds could be key to getting a decent amount of relief. Just as with headaches and the different types and causes, pain is very similar.
After all, they don't treat the common cold and pneumonia with the same meds, even though both will have you almost hacking up a lung.
I hope, if enough of us post what works for them personally, we may find a common denominator for what works for what kind of pain.

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How do we get rid of that BIG pain that keeps taunting us,,,,u know the pain SAMULITIS

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Rene...Ignore him?!

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I have suffered with chronic neck pain for 13 years now. The best meds that works for me is methadone. Use muscle relaxers definitely. Neurontin for the nerves is a medicine you should also ask your doctor about. If your having trouble sleeping, ask your doctor about trazadone or one of the other meds in that group. Try to stay at a minimum for medications if you can. A heating helps me greatly with my pain. What is wrong with your neck?

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pc, thanks for posting. I have a feeling there aren't that many pain meds out there. In fact, I think, at some point' I've been on everything except methadone.
My surgeries are as follows.
2007= 2 level fusion of L,4,5-S,1. A.L.I.F. w/ discectomy. + instrumentation.

20012= Single level fusion of C,6-7 w / instrumentation, discectomy + donor bone.

Good results for the first 3 YEARS following the lumbar fusion, but going down-hill pretty fast now.
Good results for the first 10 DAYS following C-spine fusion. Worsening pain every day now.

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pain meds were not helping me much so I took lots of hot as I can stand showers was the only thing that I found that would help. and walking. after I got home we have a whirlpool every morn I would be in it for a half hour. muscles take time to heal some I have talked with take up to 2 years to totally heal. the pain will go away if you do what you are suppose to. with exercise and no bending over squat or down on your knees. my fusion is 1oo percent I have 8 screws and rods I feel great. I try to be careful not to strain or pick things up I shouldnt.

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Larry, it's been 6 years since my lumbar fusion. For a few years I was doing well enough to continue working. But after a second injury, which resulted in a cervical fusion, (which failed to relieve my symptoms), the lumbar pain has returned, only this time, with added sciatica pain.
Anyway, that's neither here or there. ( I have more diagnostic tests scheduled on Thursday for the c-spine.)
I focused my question toward medication because for now, that's my only option. ( As per my surgeon's orders.) At this time, all other avenues have been exhausted.
Thank you for your post. I find hot water relaxing too. It just doesn't help much with the pain. Still, even though I'm pretty much house bound, can't stand, walk or sit up-right for more than 5 minutes at a time, and the pain in my back and limbs is worsening by the day, I do still have use of them. So I'll count my blessings, and be thankful that I'm not in worse shape.

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@beenworse. Thank you for the tips. It sounds like you have an awesome Dr.. It also sounds like he has the perfect patient. ( By that I mean, following Dr.'s orders to the letter. ) I think it's very far and few between, having that sort of relationship with a Dr., I'm glad such a thing still exists.
Thank you for the tips as well. I have been slacking off as far as nutrition goes. I've been working with foods that lower my cholesterol more than anything. I should be looking for foods that naturally reduce inflammation and work with my body to reduce pain too. I'm glad you mentioned it, I'm going to look up information on that tomorrow. :) It can't hurt, it is up to me to try MY best, if I expect the same from a Dr..
I have done massage therapy ( several types ), and while it was relaxing at the time, there were no lasting effects.
I agree that the mind also plays an important role with health in general, as well as pain and depression. ( I'll look for a good comedy to read next...It may help.)
Thanks again for your response. Between the other people and you, I have some things to try. :) I have a heating pad ready and waiting for my lumbar tonight. ( Wish I had a hot tub though.) :)

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Hmm, I wonder why my "thank you" posts have gotten "thumbs down."
I'll try this again....
To all that have responded to my question, a big THANK YOU.
:D

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do any of you have a grabber so you keep your back straight If you dont you should get one. the less you bend the betr you will feel.

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Larry, I never thought of getting a grabber!!! That's exactly what I need to get my house picked up. Reaching the floor isn't as easy as it used to be, and a grabber would make a world of difference. I don't know why I hadn't thought of that. Where would I get one from? What department? I can see if my hubby will pick one up for me if I know where to send him.
I'm actually excited to use one, I have been wracking my brain as to how and get the floors picked up, or laundry out of the dryer, and the toys and socks that my granddaughter leaves in her wake!
Thank you! What a gem.
:)

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upandown also do you set to put on shoes? If you do get you a long shoe horn it works great no squating. my wife got me this stuff I have a shower thingy its long and you put soap on the foam so you can do your legs and etc. any thing that you can do with out bending is the best pain relief thats what helps me. also they make different lengths of grabbers I have one it has a long shaft on it thats how I pick up around here. anyway hope I have helped in someway take care hope you feel betr.

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upanddown sorry I didnt answer your question my wife got this stuff I think from walmart online wife says it under proffesional cleaning check it out also the bigger hospitals have them also that do spine surgerys. and the drug stores have them also like check out cvs. I went back to my surgeon all up tight one time told him to check my back out, cause my lower back hurt he ask me if i was keeping my back straight I told him as much as I could and he showed me that I can squat or get on one knee. no bending. he told me I was over stretching my muscles. after about a week pain went away. anyway Im sure you here all kinds of storys but you never know tilll ya give it a try. by for now

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Larry, Thanks for the input. I've found a 32" grabber at Northern tools. Wal-Mart is closer though, so I'll be getting one tomorrow. The Shoe horn is something I never thought about, I'll check that out too.
At first, I was taught a movement for picking things off the floor without bending at the waist. I'll try and explain it... Standing on one leg, keeping knee soft, (not locked) reach out in front of your body with the opposite arm ( always opposite arm and leg). Allow the leg you're not standing on to raise behind you as your outstretched arm lowers, keeping all of your spine straight and aligned with the out-stretched arm and leg. ( Hope that made sense.) This is the technique I used for years after I had my lumbar fusion. Unfortunately, it no longer works as it strains my newly fused neck.
I can't tell you how excited (Yes EXCITED), I am to get this grabber thing! Just to be able to pick up house will make me feel loads better. (At least my "ego" anyway.) It'll be good to feel like I've done something useful for once and not cause more back pain doing it. :) Thanks again, I'll let you know how I do with it. :)

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hwy Janet, how did mylogram go..so I see u got a new toy ( reacher) lol.hope it helps..what w all the thumbs down. I found ever chat informative..to whomever is disliking,,and if ur disliking chats, dont read them. Stay well ,let me know about test outcome,,Rene :)

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Thumbs all fixed to the best I can ,,haha :)

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Rene, there you are, I was just asking the Spinettes about you!
Yeah, I just had the myelogram done, it was real intense but it didn't last long. I hope it shows what's wrong, I'm tired of sharp objects being stuck in my spine.
How are you my friend? I missed you here on s/uni. I could see all these people who could use your expertise and needed some input. I'm glad you're back, now you can get back to nursing and make us laugh...It was entirely too serious there for a while...
How did your Christmas go? Did you get all 12 fish cooked? ( I thought about you.) :)
I had a beautiful Christmas with my family, had a great meal, played trivia games, and then drank some really good wine. I didn't let the pain get on top of me, I took what I needed to keep it at bay. Like I said, I really enjoyed this Christmas.
I don't have the "grabber" yet, but I know that will cut the work in half for me, not having to bend down and pick stuff up. At this point, that's what it's all about...Making my life easier, and prevent what pain I can.
Now I'm rambling, I'm so glad you're back. :)

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hi again upanddown thought I would mention we have 14 grand kids and they can mess up a house fast. I have a little mop for the hard floors and I vacum so I no what you mean about house work. I also have a device that you put your sock on and then slide your foot into it and take hold of the strings and pull whamo sock is on really neat. now sometimes I get my grand son to help me pickup. I also do trash. my wife had spine surgery years ago and has bad knees. so I have to do alot of the house work when I have felt the best is when i would get up and walk in the morning . ok will takecare happy healing.

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I thought I should tell all of ya that when I was 19 I fell off a two story building and broke my back and forty years later I got it fixed And Im glad that I did The amazing part is I dont have any pain now I have had some muscle issues its arther the crazy weather so I hope all of you get betr. also I dont no if any of you kept your brace but if I am going to lift a laundry basket or somthing kind of heavy I put my brace on. I have experinced some really painful moments. I drove a semi 11years was a mechanic for 38years lifted heavy stuff all the time with a broken back guess Im lucky im not paralized. I will keep all of ya in my prayers

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Thanks, Larry. I actually pulled out my old hard shelled back-brace yesterday morning, it does help, a lot.
You know, I used to cry because I couldn't go to work and make some money. Now, I just want to be able to clean house without hurting for the next two days. Or how wonderful would it be to wake up because I've had enough sleep instead of because I hurt so bad...I know everyone here knows what I mean. Pain has a way of putting things in perspective doesn't it.

I have a feeling I'm going to need another disc taken out of my neck. I also know, it doesn't matter how may discs they remove, this pain will be my constant companion, forever. Now it's just a case of me doing all I can to make my body as strong as it can be, finding the tools I need to do the day-to-day things, and getting the right combo of meds.
It's so hard sometimes, just to keep my head above water. It's exhausting, being in pain all the time. I am so grateful for this site, and the good people here. It's a shame we're here in the first place, but the fact we all understand each other's difficulties is such a blessing.
I am going to keep a list of what I CAN DO, and focus on that. Thanks again for thinking about me and posting your ideas. It truly is appreciated. :)
Have a great day, Larry, and to anyone else that happens to read this post. :)

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I went for a walk today and the pain that I get from my muscles has went away. all I have to do is walk some and I have felt great all day also upanddown. If you are having problems walking. you should get a walker and try to do some walking I no it doesnt feel good at times. but It does help some. If you get more surgery done check out the places you can go and stay for rehab help. thats where my wife sent me for about a month. I go back there to visit I take my little dashounds also they were there about everyday with me resting on my bed. They take and work with you and help you deal with pain. one guy in rehab worked on a place in my back with his hands and made my pain go away he was aisian nice person. well everyone happy new years and feel betr to all.

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Update.
I got my grabber. I love it. I also pulled out my old back brace from when I had my lumbar fusion.
I rode in the backseat of a car for 11/2 hrs last week and ended up in the ER due to pain. ( Which I thought was a kidney infection.) Turns out that it was muscle spasms. ( I have NEVER gone to the ER due to pain before.) This pain was incredible, I could hardly breath it hurt so bad. Long story short, the Dr. asked me if I needed pain meds, I told him I had plenty. I told him what I was taking, and after he saw the amount of metal in my back and how long I had been suffering with pain he said I was not taking nearly enough pain meds. He told me to take (up to) 80mg of oxycodone a day, and he wrote a script for Valium. He also gave me a shot of Demerol. Between the shot and the Valium, I wasn't in much pain at all.
So tomorrow morning I'm going in to see a new Dr.. We shall see what happens. I hate to think I'm going to have to take more meds, but I can't live in this amount of pain. I can only imagine what I'm going to feel like tomorrow after sitting in a car for 45 minutes that it takes to get to the DR.
Today, I'm putting my turtle-shell brace on, take my meds and go around the house with my grabber! Then take a bath so hot it will probably burn the skin off my back! But OHHHH does the heat feel good.
Sorry for sounding so down in the dumps. Sometimes it just gets on top of me. The good thing about being "down" is I know the "up" is just around the corner. :)

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hello upsanddown yes pain does suck thats for sure. Im glad you have a way to keep from bending thats great sorry about the ride and all the darn pain your having. I didnt have a great day my self. my grandson got under my feet yesterday causeing me to fall but Im pretty sure I didnt do anything. but we keep agoing around here. hey have you got a heat pad that helps also . I have been taking Ibprofen two tabs at a time. most of my pain is muscle after 40 years of pain it bothers me if I want to go to bed. I try and stay away from the other stuff. good luck with the new dr dont no where you live but if all else fails come to michigan to get your disc repaired . I was reading about the new disc repair I guess other countrys are replaceing the discs I read where the us hasnt started doing it yet anyway good luck tomorrow.

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hello everyone I failed to ask an other question How many of you have a tense machine. it really helps the muscles out by sending battery pack jolts to your aching muscles I have one on as Im typeing this . If you dont have one really this some times is the best pain help you can get. even if you go thru the day and your back is acky .

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I'm back...I went to the Dr. and guess what? He wasn't there so I had to see the P.A.. (She's a WITCH.)
She was so condescending last time I saw her, I just couldn't bring myself to ask for any pain meds. ( I asked for cholesterol meds instead.) I'll just have to wait until I can get back to see the new Dr.... I have to plan so far ahead due to not driving, there's no telling how long it'll be before I can get in. Oh well, such is life.
I did get out the other day with my daughter and walked around. My back, legs and shoulders are killing me, but after I write this post, I'm taking a scalding hot shower and then going to walk to the post office. Hopefully it will help loosen my muscles up. Really, it can't get much worse, but if I don't move around I'm going to get all stove up. Then I'll have to use that grabber thingie and pick up house. ( Granddaughter and 3 adult kids are all home this week and they all leave a mess in their wake! Gotta love 'em though.
I'll post again later,
Janet :)

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I use a combination of heat and cold packs. But when you are active and have to run around with kids, driving a lot, this is almost impossible. My doctor gave me samples of Lyrica, it worked very well on my pain. But insurance will not cover this med, and it costs over a hundred dollars for one bottle. They have been substituting gabapentin for now. It works if you take large doses. Then I cant drive, so I only take it when I do not have carpool and am staying home.
I have lower back and shoulder and neck pain. They have found cysts on my lower spine and my hip socket. The pain is constant. I cannot keep taking meds that help only in large doses. I am first doing the steroid injections in my lower back, if it does not work then surgery to remove the cysts.
I had injections for my neck, they did not work...they say lower back injections are usually helpful and can eliminate pain.
I am extremely frustrated with all of this.
I am a healthy active woman, take all kinds of vitamins, nothing has really helped except the Lyrica.
Keep taking your calcium, vitamin D. omegas, vitamin C, to keep your bones healthy.
Where is you pain?
They say to sleep on your back, a pillow under your knees, a towel rolled up under your neck for support,
I also use tiger balm ointment at night, it helps to relax your muscles, also bengay pain patches, they are a great help. Out of all the pain patches they are the best in my opinion.
If you have a significant other, that can massage you, that is a wonderful help.

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I end up sleeping on my back these days. Like you said, with a pillow under my knees. I'm on the Butrans patch for pain, it does take the edge off. I have hydrocodone for breakthrough pain although oxycodone works much better. I use valium 3 times a day for use as a muscle relaxer, sleeping pill, and anti depressant. I also had to start on cholesterol meds, but after reading the risk of liver damage...I might just have to stick with my diet and lower it naturally. It's not easy as I end up having to cook my meals separate from my family's. I'm going to run my meds through the drug interaction thing and see what's what. At this point, I know more than my idiot Dr.
Ice works better on the nerve pain in my shoulders, but I can't stand cold packs on my back.
Thank you for your tips. I'll keep searching for other things also. You never know what might actually work.
( Like foods that decrease pain.)
I walked in place for 6 minutes yesterday, and today I feel like I took a trip to hell and back. I can't believe 2 years ago I walked at least 6 miles a day, every day. I guess it's just going to take time to gain muscle. Not much I can do about gaining a new spine though.
Hope to hear more from everyone. Again, thank you.

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