SpineUniverse Community Advice
Get help and share your story with others who know what you're going through.
Please register or log in to join the discussions!

If They Call Themselves Pain Management Doctors,Why Cant We Receive The Proper Pain Management

Started by rene on 12/05/2012 6:49pm

A group of us on this site have decided to take a stand and fight for our rights to be treated like human beings with respect, not to be looked upon as drug addicts and to find a way to reach out to the proper authorites concerning the fact that we are not receiving the proper pain management due to the issues of the FDA making it difficult to obtain the medicatios needed to try and live some sort of quality of life that the chronic pain we have to endur limits us from enjoying and surviving. Because of the past few years doctors have been wrongfully medicating those whom do not warrent these medications and due to this issue,, we are all pleading for help to be treated. Im sure 99% of us have had some sort of issue with these pain management doctors by being told that they will be weening us off the medications ( usually by the third month post our surgeries) using the excuse they dont want us to get addicted or cause harm to our kidneys or liver. Which brings me to all the people whom use this site as some sort of support, as we do. Do they take patients of their Diabetes medicine after a few months, or the MS, Heart and numerous other disease,,do they take them off of their medications for the need of survival. We are reaching out to the spinal community suffering with Chronic Pain acknowledged as a condition/disease warrenting these medications..We are asking for your help for all of our benefits to reach out and have the system changed, and have chronic pain acknowledged and treated like any other unfortunate condition/disease. We all have the proper documentation,testing results and surgeries to substantiate the reasoning as to why these medications are needed. We will soon Be posting where our pleas for help should be sent hoping we will be heard. We are also depending on everyones help to try and overcome the struggle we go through on a daily basiis to tolerate this chronic pain which can only be helped by receiving the proper care.We are speaking out because we are tired of being frowned upon by our families, friends, doctors, and pharmacies as being looked upon as drug seekers. We Anxiously await some responces to help join in what we rightfully deserve as human beings..Thank you for listenening and hope you join in on this constant struggle we go through monthly to just receive our proper medications. Stay posted for we will soon have the proper information to whom or which department of affairs to bring this issue to attention .. We need numbers to be heard, this cannot be a small group to tackle such a large issue. Thank you for your time and listening ear,,it is for alls benefit that we approuch it together...........................................

Do you find this discussion helpful?
10

35 Responses

Like/Dislike
0

OH..Thank GOD..for this site..i was looking for a place where I would have a voice and could be heard...i have suffered with chronic pain since my twenties and I am now 54 in feb..I was told many years ago that fibromyalgia didn't excist..I have had a fobia of taking meds for many years but got to the point where I had no choice I spent 2 and half yearys in my bed in magor depression..finally I tried meds for my problem, the docs put me on vicodin,roboxin,and klonipin..was working for me great..it took me 2 and a half yrs to get on disability and iv ben on it for 4-5 yrs now..i have many of the pain problems that are listed on here..i was told no more meds except tramadol which is a joke like taking ibuprophen..doc sent me to pain management he sent me to all the test iv had done the nerosurgion that iv ben to 4 times now, each time hes hurt me causing more pain, last time he stuck a needle in the heal of my foot and for a month I got like electric shocks in the heal of my foot, a foot doc said he hit a nerve, went to pain management I was told by him that the only way he would treat me was to give me shots in my low back and neck, now with my prob with anxiety with meds that I don't know it I said I cant do that..in 3 days I got a letter from his office with him dropping me as a patient..my back is up against the wall and I see myself crawling back in my bed and staying there for the rest of my life..i believe GOD showed me this site after much prayer..i will gladly be a voice crying out in the wilderness with everyone her..please let me know what your next move is..and thank you so much for being here for people that are struggling every day just to get out of bed and function..GOD BLESS EVERYONE HERE

Like/Dislike
0

Im in so much pain and fixing to redo my l4-s1 fusion from the back this time because I didn't fuse and the pain is awful. I suffer before asking for help because iv been on hydrocodone for a long time and started to run out a few days early it's embarrasing to ask for meds or to bring up because people judge you even though u have proof. finally asked my doc for something else a week ago having surgery in 5 days he called in oxicodone it makes me sick but the point is im not getting help for myself qicker like waiting to go to er and so on because the way we are treated and it should not be like this. Im so tired of taking meds please god let this surgery help and let me have my life back.

Like/Dislike
1

i have been treated like a drug addict in another state who refused to prescribe my pain meds. i had to fly cross country to my prior physiatrist to get them. an RN who worked 32 years even after a bad slip and fall in '98, i struggled with pain for many years. it got worse and worse until august 3 2011 when i couldn't stand up at all and had an emergency microdiscectomy that failed. after almost dying from a massive saddle embolus the next month, my pain was horrible. i stopped working, went on disability and stepped up my visits to my physiatrist who was a pain management specialist. she was great. i took oxycontin 20 mg. religiously without a problem, and it did help somewhat.

i spent three months in our house on the east coast after the PT released me and my disability ran out. i was seen at a PCP and pain management and neither would prescribe my meds. so, cross country to my physiatrist i went. twice!

we have permanently moved to phoenix, and i met with a new neurosurgeon this week who scheduled me for an L4- L5 spinal fusion. i am truly disabled, and placing all my tired hope in the fact that he thinks this will help me. his associate does pain management, and i see her friday. if she messes with my meds or withholds, i don't know what i will do. maybe because the surgery is scheduled i'll be lucky and she will maintain my regimen.

i'll never forget how i felt practically begging for my meds. it's demoralizing. i hope chronic pain sufferers can mobilize and do something so that they are not totally destroyed by their pain.

Like/Dislike
0

That's what it's going to take. We must unite. A few years back they tried to make Kratom illegal but so many marched on Washington, the lawmakers who were trying to make this plant illegal, changed their minds. Why? Sheer numbers and outrage! I just moved to Indiana to be closer to my sister. She suddenly died last month, and even though my pain was in check, even though I came from a renowned pain clinic, I am being forced to wean down my meds for a pain pump. Even the pharmacies are giving me trouble and I'm using the same one. My local won't fill it but a town. 19 miles away had no problem. In winter it is a problem.. I will stand with you!!!

Like/Dislike
0

My doctor is wanting to try spinal stimulation on me I have been cut down on my medicine so bad they even had to put me on hospice. I haven’t been properly treated for my pain as I live in Tennessee and we have about five pain doctors in a city of over 300,000. And in West Tennessee there is simply no pain doctors at all. I have a variety of different problems including possible cancer and COPD diabetes neuropathy in both legs my neurologist has already said that it’s not all due to neuropathy and some of it is mechanical and I believe a lot of it is mechanical because as long as I lay here in the bed I do pretty good with the pain it’s just when I start to get up and do things I start to get out of breath and I can’t continue because my back starts hurting and it’s not my lower back or my upper where I have a nodule in my lung. They do not want to take the nodule out unless it starts to get bigger and appears cancerous because they don’t want to cause it to become cancerous and spread just because they took the module out. I’m assuming that is the reason anyway. I know a lot of my problem is that I have a lot of muscular problems and need to build up my muscles by working out or just working at home and cleaning bending and doing things that I need to do but it is very painful and I get out of breath. I refuse to be hooked to a Oxygen Concentrator I don’t want to become addicted to the oxygen because you can become addicted to it just like you can become addicted to anything else. So I refuse to do that I bought a small swimming pool and I can’t get out there and clean my pool and I do pretty well I can get around and do some laundry sweep change my bed sheets etc. but then my back. I do not want this surgery the spinal stimulation but I’m afraid if I don’t go through with it that I will be cut off from my medication totally because that’s what they do. If you don’t choose to do their procedures they just cut you off. What do I do has anybody tried spinal stimulation. I have arachnoiditis in my lower back from a failed back surgery years ago and so many back punchers that I don’t want anything sticking in me and I can’t even wear a tens unit on my lower back anymore because it literally makes me jump off the table. I have arachnoiditis in my lower back from a failed back surgery years ago and so many back punctures that I don’t want anything sticking in me and I can’t even wear a tens unit on my lower back anymore because it literally makes me jump off the table I also don’t know that if my pain is mechanical that this will work for me anyway so what should I tell my doctor and how do I keep them to increase me to what I was on before that was working. I was on just 20 mg four times a day of extended release and I got along fine with that and now they have me on 10 mg twice a day extended release and 10 mg instant release every four hours which is not working at all because I don’t know if you all understand or feel the same way that I do about extended release medication but to me I have been on every dosage from 80 mg down to now 10 mg extended release Oxsee cotton I was on just 20 mg four times a day of extended release and I got along fine with that and now they have me on 10 mg twice a day extended release and 10 mg instant release every four hours which is not working at all because I don’t know if you all understand or feel the same way that I do about extended release medication but to me I have been on every dosage from 80 mg down to now 10 mg extended release Oxycotin. When I was taking 80 mg of the ER I would get about 8 to 10 hours of relief when I was taking down to 60 mg it went down to about 6 to 8 hours of relief and when I went down to 40 mg it was about 4 to 5 hours of leave in 20 mg about 2 to 4 hours i’ll release and 10 mg is giving me about an hour to two hours of relief. Does anybody else experienced this has anybody else experienced this? I would love to run a study as a bio chemist I could write a paper on it but I would need a lot of people to do the study with. And a few doctors that would be willing to keep you in their office and give you the medication and take your blood every two hours depending on the medication that you were put on so that we could have it tested because I believe it only rate leases about 10 mg to 20 mg depending on of course the dosage but no more than about 10 mg an hour. But because it is a steady stream it stays in your body and if you can get away with 10 mg an hour I don’t understand what the problem is. I am thinking of calling Mallencot I believe that’s the name of the distributor and asking them because they really should do a paper on this I don’t think anyone has. It would not only go a long way as to helping people if say you had a wreck and was on this medicine but it would also help the doctors understand that you’re not getting 80 mg an hour just because he gives you an 80 mg tablet and that you could get but I was 280 mg a day basically and possibly four or 510 mg for breakthrough pain. Which honestly I hardly ever had to use when I was on my 30 mg four times a day I never hardly use the 10 mg it was only when I overdid things or try to do things that normal people would do you like walk a few blocks or jump off a ledge into a very beautiful waterfall as I did when I was in Hawaii which by the way had I not had my extra medication I would never have been able to even make the 14 hour flight. End it scares me to have something in my body like this and have a flight or go somewhere like that and it mess up on me and then me end up in a ER that I know nothing about and they know nothing about me and may have to earn my trip early because of this at least with my pain medicine I know I can take it and it will not interfere with anything. End it scares me to have something in my body like this and have a flight or go somewhere like that and it mess up on me and then me end up in a ER that I know nothing about and they know nothing about me and may have to in my trip early because of this at least with my pain medicine I know I can take it and it will not interfere with anything

×
SHOW MAIN MENU
SHOW SUB MENU
Cancel
Delete