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Any1 with me here???

Started by Skittles on 11/13/2012 2:54am

Hi, new here. Just joined. The clock on my wall shows Im well on my way 2 another all nighter. It's almost 3 a.m. here. First, let me say a great big "southern howdy" to each of you. I will give you a summary of my situation and will try 2 keep it as short as" painless" as possible. Born with scolosis, always had back pain growing up. Had a car accident in "04" which produced 2 broken vertebra', temporary paralysis, damaged cervical spine (which later resulted in C3-C6 ACDF) also, I wore a turtle brace for 9 months, to correct the broken lumbar bones. was told later by another surgeon that surgery should have been done on broken lumbar vertebras right after accident to repair the damage done. But since healing (and I use the term healing very loosely) had taken place from using the turtle shell for months, it was now 2 late to do the Kyphoplasty. At the time of my accident, I was told that this surgery was very new here in the U.S. but had been done very successfully in Europe. For whatever reason, I was fitted for a shell to correct the broken bones vs. the Kyphoplasty. Fast-forward to "08" still experiencing back pain, some days excruciating....but things r what they r and you learn to manage with whatever tools you have managed to pick up through the years. I had already went through, PT (several times) PM (quit going to this place because I was sick of all the drugs & the vicious cycle + the atmosphere there), used heat, ice, TENS, meds of all sorts,had my share of ER visits, ACDF (which worked for me) and I, also, am pretty sure I made some deals with the devil to get me through some tough days and long nights. Then in "09" I develop a new kind of pain issue. Severe constant & excruciating pain in my stomach, throwing up 4 days @ a time, fever, extreme weight loss-went from 143 to 97 pounds in 4 months (Im now back up to 112 pounds) Hospitalized so many times I lost count. In this last year alone I was admitted 19 times. Turns out I have Chronic Pancreatitis all the test were done nothing showed a reason why I have it...No, I don't drink. Found out in July I have it due to a gene I carry (SPINK1) took them 2 yrs 2 do a DNA test to see if it was heridetiary (I KNEW it had to be because nothing else made sense as to why I have this chronic disease.) Yes, Im also insulin dependent. So, after all the admissions, pain, feeding tubes, IV for severe dehydration (so bad I could no make urine or produce tears when I cried) I was prompted to go back into PM...I agreed, simply because I could no longer live in this much pain w/o help. 4get the stigma that goes with being a chronic pain patient. I just needed help. Ok, so now, Im in PM again. But only being treated for all my spinal conditions, according to my dr's pancreas pain cannot be controlled, therefore we wont try. Just deal with the attacks as they happen. Ok, so the spine treatment. I recently had ESI ( last Thursday) since this I have had a headache, which is made worse by sitting up, the throbbing I can hear my heartbeat kind. My back still hurts, aches, feels heavy like a concrete block sits all the way across the lower lumbar pushing onto both hips, more so on the right hip. Constant tingle that goes all the way down my right leg into my foot, which I assume is from the meds being shot directly down my affected leg. My leg constantly feels like it has a cord attached to it and its being plugged into a socket with electrical currents being shot inside it. I get sharp shooting pains that r quickly shot down my right hip all the way to my foot that r so fast they r over and starting again b4 u realise they have even happened (takes my breath @ times) I have a burn in my right hip. Does any of this sound familiar 2 any1?? I am scheduled for round 2 of these injections on the 27th with a 3rd set to follow..My questions r should I have gotten relief already or is this something I should not expect relief from until later injections r done? And if these injections are not the answer to my situation, what can be tried next? My dr has said that a fusion may have to be done 2 relieve all this mess. Is there more that can be done to help b4 i have to endure another fusion and recovery time? And also, back to the Kyphoplasty I was told in yrs past that that particular surgery should have been done immediately following the broken vertebras & could not be done once the bones have healed in whatever place or shape that they have. So, my ? is this: Has any1 here had this surgery years after the vertebras have healed to the best of their ability? Is this no longer a surgery that has to be done immediately upon injury to the spine? Ty for reading. Sorry, it was so long, but when ur new it takes awhile to get things all in. Thx in advance for any response I receive.

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When I had the E.S.I. they set my legs on fire, burning all the way to my heals, both times. I didn't get ANY relief at all, I actually hurt worse for a few days afterwards. But that was me, plus, by the time I had the injections, I didn't have much for discs left. Surgeon said I had potato chips where I should have had doughnuts. (I think he was hungry!)
I worked with a guy who had just one injection and he was all better. So I don't really know for sure.
Sorry I'm not much help,
Janet. :)

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Not to interupt but Janet,,is it all the meds were on or are we all just strtin to sound like stand up commedians,,In all the years im on this site this bunch is histerical,,I thought I was the only silly one with a sick sence of humor,,,I love it,,,anyway,,Hi Skittles, welcome to the funny farm,,lol,,My only input that might b of some help is,,,the injections will not stop the electricity pain,,that is caused from a disc pressing on a nerve,,in my experience,,the docs push for those injections to make some $, they get 2500.00 an injection, they dont make $ on writing scripts,,some do find releif in the injections but its only goin to mask the underlying issue,,sorry to say. And then when we do get the injections ,,the first 3 days it ENHANCES the pain B4 we find releif. As far as the repairing of the spine, yes its true once they have healed,,its almost as if they have to go in ,rebrake them all to reset them,but theres also all that scar tissue that has to B taken into consideration,thats why the doc stated what he did. Its your body and your call, I highly recommend a 2nd n 3rd opinion. Oh,,and I forgot to introduce myself,,sorry,,Im Rene ( Ortho Nurse ) and also part of this funny farm,,dont mind us, we have gone through so much,,we all have a big sense of humor hear,,but we have found it to B the best medicine....feel better n wecome to the clan,,we r all here willing to help in any way...Rene ;)

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Hi and welcome to the club. I had 2 ESI AND I had only mild relief in certain areas but not completely. The thing it did do to me was screw up my blood sugars. I am not insulin dependent but on oral med. I also went for weeks after losing hair. Oh yea and the weight gain was a pleasant surprise for me too. Other than that I found them to be a waste of time but as I understand it it is part of the pre surgical protocol; meaning docs have to document non invasive treatments for at least 6 months prior to a surgical option. It truly is your call because some people swear by them. good luck to you and I hope they help.

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Hi my name is Cate I am so sorry you have been thru all this in one lifetime. I am no doctor but I had a fall in 2010 January and broke my L1 and damaged L2 vertebrae. that was 3 years ago and I too am in terrible pain am now back at doctor who is saying may have to have spinal fusion but it has been 3 years and spine has healed in its own way. not it has not I am not able to do the things I did before. Had another fall 5 weeks ago and hospital says no new damage but am in as much pain as when I first hurt myself, don't want to speak to family or friends as they sick of me whinging. please keep going back to specialist someone must be able to help, lots of love Cate

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