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Fighting Disability

Started by frowningmom on 10/08/2012 10:11pm

I am 32 years old. I had an auto accident in 2006, it completly changed my life. With in three months of my doctors putting me off work we lost our home. Things just can't get much worse. To top it off I have 5 sons. I have been diagnosed with, spinal stanois, scolious, degenertive Disc, Degenertive bone, arthritis, fibromyalgia, anxity,chornic pain syndrome, migraines, memory loss,my shouldar has been locked almost up to my left ear, the neck pain is unimaginable, and so much more I can't even keep up any more. I am always tired, can't do much without hurting myself. I have not been released to work since 2006. I did make an attempt on my own that resulted in a fall and more pain. I only lasted three weeks. I just had an appeal hearing august 31st. My second appeal. I honeslty hate living anymore. I only leave the house to go to the doctors or to run in the store quickly, always have to have someone with me as if I am a child. I used to love living, was so active. Heck I only mssed three days work after giving birth to my son. Of course the social security adminsstration think people with disabilities enjoy not working. In november, my uncle was on his death bed. I went to the hospital to say my goodbyes. Just the drive and movement went against me. As I walked down a couple stairs my back did it's locking magic. I couldn't move my leg to reach for the next step. Broke my elbow. Took 6 hours to rebuild it. A doctor told me my back locking is my bodys way of protecting itself.LOL you would thinkmy body would understand breaking bones isn't protection at all. My migraines make me pass out. I have to give myself injections to stop them. My husband left my sons and I cause he couldn't take being my caregiver anymore. My hands open and release things by themselves, Sometimes I completely lose my eyesight. usually only last a minute or so. I think the head trauma cause all these strange things. i never know when it is going to come on, sometimes I go months with those things happening. But everyday the pain is there, the lack of mobility. I am terriffied of being denied again. I already lost all control of my life. So many doctors, injections, medications. I really don't want ssi. I want my life back and all the years I have been robbed. i want to play with my sons. I can almost bet if they invented a time machine, everyone with these issues would take it over a disability check. At my hearing the judge asked the vocational expert if there was any jobs I can do with out walking more than 5minutes, lifting anything, sitting for more than 20minutes, not around the public, not around change in temps. The vocational expert said I can load a machine and press a button, there are 70,000jobs in our area. Never mind that all 22 meds I take a day say do not operate machinary, and am I supppose to crawl to this machine. Sure when I pass out from my migraine this machine will be nice and cuchy for my head to hit. The worst part is my last hearing before this appeal the vocational expert said I was unemployable and they still denied me. It is a shame when the system makes you realize you are worth more dead than alive for your children. Currently my children and I are packed in my parents small one bedroom house, with no income. This is a nightmare to say the least. Wish us luck. Hope everyone out there fighting this awful mess gets the help they need, deserve, and busted butts paying into.

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Frowningmom,
I am so sorry about what you're going through. Your life makes mine look like a feel good party. I simply don't understand...any of it. I know how you feel though, like they hope you'll just go away and die. Keep on holding on though and don't give up. Do you have a lawyer? If not, getting one is defiantly something you should do if you don't get approved this time round. I will be starting the process soon (after I turn 50). Did you retain future medical after your auto accident?
I hear what you're saying about the job thing. Hell when we can't even be a spouse or parent, that should be a clue!
Let us know how you're doing/coping, the're people here that have been, and still are, in the same boat you're in. Support is something we all need,
Janet

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Janet,
Thank you for your support, and yes I do have a lawyer. After my last appeal he said he thinks everything went well, but my age is a problem. He also said he could see the judge wasn't happy that I haven't stopped smoking cigarettes, so it could go either way. I'd like to quit smoking, but at this point it's all I have left. I can't understand how that can weigh on anything really. My doctors haven't released me back to work in over six years. I have a wonderful doctor who has been supporting me through all of this. Just keep your fingers crossed for me and I will update everyone when ever I hear anything. Good Luck when you apply.

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The bit about smoking is odd, what the heck? I guess I'm gonna lie about that when I go through it. I only smoke about 3 a day but...It's my one vice. I bet the judge smoke his cigars!
Keep your head up.
It will be ok in the end, if it's not ok, it's not the end.
Janet

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we have been fighting for my husbands disability since he was injured ON THE JOB...busting his butt in 2009. So frustrating. We also lost our home, had to move about 2 hours from where we was to live with our son. His first appeal was denied because they determined he could not bend, twist, lift, stoop, kneel, walk or sit more than 10 minutes at a time...BUT, he could CRAWL. Are they serious??? My husband suffered permanent nerve damage to his lower back,degenerative disk and bone disease, depression, insomnia, and he has a heart condition...he is 47 and has already had 2 heart attacks. We now have no home, no car, and we have had to sell alot of our home furnishings to have alittle cash on us. In June of this year, he underwent a spinal cord stim implant to help with the pain. Instead of the constant pain, he feels tingleing sensations through his body. He loves it...he hadnt felt his right foot in over a year...within 30 minutes of the surgery, his foot woke up. The implant along with the Medtronics company, and his spine doctor, Dr Prince, they have been wonderful. Now if only the Disability office could see our side of things. Good luck with everything, you arent alone.

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Good Luck to you and your husband too! Can't believe they denied him cause he could crawl. This system is really messed up. I had a neighbor who recieved disability for ADD. While I do know people with severe cases, hers was not. I would get so angry because she worked under the table and I wish I could do half of what she could. To top it off they added her sons. Her doctor backed them that they too had ADD. The boys were just bad because they had no supervison. I am not a doctor, but anyone with eyes and ears could see her and her boyfriend were up all night, slept all day and the boys were 2 and 3 and did what two and 3 year olds would do while alone. It is very stressing when you lose everything and have to live like this and can't get help after paying into something that is suppose to offer you protection if something like this happens. I wish there was something more we could do to have people like us, our voices heard. If the judges could just spend one day in oour body to see what misery is.

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I am so sorry about all that is happened to you an your family i feel your pain i have 3 curves in my spine an it sucks no one will hire me because im a liabilty which is bs. i have 3 kids an we are living in a hotel right now because without me working we only have my boyfriends income. disabilty has denied me once an it takes so much to reapply ive giving up hope. reading your story i dont feel so alone you are a very brave woman an i hope that things get better for you. your story has given me hope it sucks for those of us that need ssi an get treated like we are just trying to get a free ride even tho the people who dont really need it get it so easily. ive always wanted to work an i have done jobs under the table so to speak but them jobs only lasts a few days because once the see how my muscle spasms make my body shake they always let me go so im at a dead end but thanks to you ive got my hope back i love living i love my kids an ive had to be strong for them now i feel like i can be strong for myself as well an i do wish you all the luck in the world thank you so much for shareing your story its not a fun feelin when you feel alone with pain an heartache.I really hope things get better for you an your family with much love to you Dana

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Dana,
Thank you! Your words were encouraging also! I will keep you in prayer. You are right that the people who don't need it get it easily. My dads neighbor in fact, got his a in couple weeks. I watch him build fences, do masonary, pore concreate, build retaining walls, just the other day he wad residing his house. Boy does it burn my buttons. I choose to just keep thinking God has a plan for me in all this chaos. Never stop fighting Dana, It is very tragic how we can fall through this broken system, but giving up gives them more power over us. Atleast with the fight we can feel somewhat productive I guess. Best of Luck to you and you family, stay safe, and remember all we can do is protect ourselves for our children. Will keep you posted when I receive my latest discission.

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Thank you so much. I dont feel so alone . I want to be brave like you and i pray everyday an night to god to give me strength. It is so hard sometimes but now my hope is renewed thanks to you an god. I see im not the only one going thru these hard times. And yes i understand what you mean about your nieghbor ive been around people that got theirs with in a couple weeks a few took a few months but still quite a few claimed mental problems but yet they are walking around with no problems. they have jobs but only get so many hours so they can still get ssi. this makes me so mad. i have physical problems that prevent me from gettin hired i dont understand our goverment. i mean how is it people like us have to fight so hard to get the help we need. Just like with grants ive applied for a few to be denied. but yet others get them without any problem i dont know what im doing wrong. But im not going to lie to get the help i need so i wonder what more can i do.Thank you so much for your prayers and your kind words ill be praying for you an your family to.

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Frowningmom & Dana & others that are trying to get disability my heart goes out to you. keep fighting and appealing they are counting on you giving up. Eventually you will be approved (hopefully). Do you all live in the USA? I live in Canada and just recentley was approved for disability it did take a long time 1 appeal but the thing that real over turned the discission was I had a Function Capacity test done by a reconized occupational therapist. The report can be kind of expensive but if you need it for any other legal action it really works well in the courts too. I hope that helps a little bit ladies I hope you keep pressing on because you deserve to have this coverage. stay strong keep the faith :) Kim

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