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Im Back, its been 1 yr since my last blog,hope my info can help someone

Started by rene on 09/02/2012 9:45pm

Hi everyone my name is Rene, I am an orthopedic NURSE (misssing my job),so if anyone needs help deciphering their medical reports due to all the medical terminology (mumbo jumbo) Id b happy to help. For 2yrs I leaned on this site for support n help to get me through my L4,L5 Discectomy and PAIN. The.Psych end of our issues plays a Big part in our issues.Being married for 26yrs almost ended, family life was dissintergrating and I too became a FISH IN A FISHBOWL (homebound) for 2yrs.To all you newcomers to surgery on their spines, you feel like your world and hope for living is coming to an end, so take advantage of this wonderful site full of friends going through the same thing.Let me start by saying my lumbar surgery ended up with the diagnosis of FAILED BACK SYNDROME (which means pain in that area forever).For over 2yrs I kept getting worse, Pain was unbearable and finding a good Pain Mngmnt doc was impossible.You go through being treated like a drug addict and most (all) of the time never getting any releif, sleep or able to even dress yourself due to the PAIN that never stops, its 24/7.MOST important im hoping my experience can help you.Anyone whom has already went through surgery and feels like their either in same PAIN or it has increased,this is where I hope I can help.After trying holistic, accupuncture , I gave in to agree to receiving steroid injections,I didnt by choice, Pain mngmnt wouldnt treat me w/narcotics unless I went through the protocol,(which is injections and if that doesnt work they wanted to do the spinal cord stimulator which stops the brain from receiving the pain signals.number one it all comes down to $$$$$ for these drs.The injections r $2500. an injection (which u receive one then 2wks later u get another if needed,some it works for,so god bless,,and the 3rd is done 2mos later and this series can only b done 2x a year, if u opt for inplant which is an average of 30thousand after all is said and done (and drs receive kick backs from inplant companys) I know all this bcause of my experience as an orthopedic nurse for 12yrs. Anyway ,I had no choice after visiting numerous Pain mngmt docs who wouldnt treat with oral meds (then why r they Pain mngmt docs) if they wont treat w oral meds? Why bcause they have to account to state why their treating w narcotics,WELL stop giving the scripts to the narc seekeres,WE HAVE medical MRIS and surgeries and documents to justify why.So unwilling I receive my 2nd injection n end up in ER to find out the injection punctured my spinal cord which caused even more pain and migraines,(THIS IS THE PART THAT CAN B HELPFUL) they did an MRI of my neck to make sure the spinal fluid wasnt collecting near my brain,well P.S they found my spinal vertabrae was tilted in opposit direction and a kinck in my spinal cord and 2 discs herniated (thats why I was still in unbearable pain and not getting better but worse after my Lumbar surgery. Its been 3 wks since my cervical surgery and I have regained feeling in my hands and legs.Even though going through the pain of the spinal cord leak (error) it was a god sent,If that Dr didnt make that error Id still b suffering. Now remember, the longer a nerve that is being compressed the chances of regaining that nerve r none,meaning u loose the nerve,it dies causing permanent damage.eg:no feeling or use of whatever body part that nerve controls. I was at the point of no feelings in my fingers and both leggs from knee down,coulnt walk and loss of bladder function (didnt urinate for 5 days). I was admitted immediatly not for spinal leak,that healed on its own, but for lack of urination and to make the decission of having cervical surgery,yes I had the surgery,a titanium rod,4 screws and a disc spacer was done, within one day ( 10 day stay in hosp) I regained feeling, was able to walk (which I couldnt walk for 1yr). The bladder issue was very serious, all those toxins entered my body causing a doozy of an infection that caused me to be confused and not speak my thoughts correctly.All in All my point ,if you already had surgery n are still complaining of pain and other dibilitating issues, MAKE SOME NOISE with these docs,tell them to stop looking and repeating MRI's at same location.Make them test the other parts of your spine,Thoracic,Lumar and cervical, maybe this is the route of your complaints,but again , ive learned we are just another number to their patient list, its very hard to find that doc that will go the extra mile for us,SO KEEP up hope n dont give u, No matter how many ER visits or calls in the middle of the night or visits to the neuro surgeons it takes, make a fuss, ITS OUR RIGHT and our bodies.If I choose to take narcotics for the pain n ruin our liver n kidney function ( as docs say to us why they wont treat w narcotics) thats our choice.All I tell my doc is I want quality of life and if it takes the use of these meds, Ill take it.And yes I still see pain mngmt for my failed bak surgery to lumbar,but atleast the pain is tollerable n I have good n bad days, hopefully one day I wont need the meds one day. I hope my (long) story didnt bore u too much if anything I hope it helps with someones future of getting the correct treatment. but you wont get the correct treatment unfortunatly unless u make a very LARGE, LOUD STINK. Good luck to all. Rene :)

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Id like to add my final DX: cervical spondylosis, Lumbar discetomy 0f L5&6, Failed Back Syndrome,Radiculopathy.Degenerative disc disease, Cervical fusion,rod,screws and plate of C5&6

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Hi Rene, I'm Justin, and first off want to let u know I hate to hear about other people going through such painful problems, as I know how it feels. Maybe not as bad as u have had it, hope u continue to feel better!
Was hoping u might have some helpful advice 4 me, back in 2008 I injured my back at work, turned out to be L4 , L5 herniated discs. Went through everything except surgery. I have always had physically demanding jobs and in a way prefer that or am just accustomed by now, neways, after 3 steroid injections there was some relief for 1 yr. tops, then afterward every 2-3 mos. or more often, the sciatica acts up time and time again, sending me straight to the ground & in bed for a couple days w/o hardly being able to walk. I just decided to try & live w it as Dr. had told me I would have the problems 4 life & left the work comp. claim open. I went back 2 doc in 2010 cuz I couldn't bear the pain & he gave me tramadol again & said I was looking better than 1st visit 2 yrs. ago.
Again 1mo. ago w/o injury I underwent incredible pain and had to go to the doc once more, this time with a diff. 1 after doing another MRI doc finds I have another herniation in L5- S1 and that it is not related to the previous injury which I find to be a load of #@$$ DO U KNOW IF A PREVIOUS HERNIATION WITH STEROIDS INJECTED TO AREA AND CONTINUING TO DO HARD WORK WOULD HAVE AN EFFECT ON THE NEXT LOWEST DISC. I would think it's possible but the doc says he think it may be from smoking, please reply, and hope I didn't bore u with so much detail, as I tried to leave out so many other bad situations they have put me through over the yrs. THX

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Hi Justin, yes , another herniation is something most or us go through. Once U have one, U and most of population have other discs herniate ususally due to the fact we seem to be prone to these spinal issues cause thats where are bodies seem to be week .I would never mind hearing your complete history, never a bore. Id b more than happy to help w/any questions I could answer or just share the tiredeness and frustration and PAIN we R all suffering. Doesnt it suck, thats just the point. We go through surgeries or treatments of all sorts and either it doesnt work or another issue pops out,(literally). Thanx 4 your response, hoping I or anyone else on site can help you through with questions and support..good luck RENE

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Thanks for gettin back 2 me Rene, I appreciate it. It does feel good to talk to others who actually know what its like, and yeah it does really suck, I'm only 31 yrs. old and sometimes feel as if I was 60. My leg has pretty much been numb for the past month and am worried about permanent nerve damage from it all. Yeah it does seem like one thing turns into another the nerves, neck, back ,legs, arthritis, etc., was talking with a friend who has replaced his L5 2 yrs. ago and is doin better than ever said he opted for that over a fusion which to me both are pretty scary to even think about having done, nut if I wait to long and when I'm older I start to think about not being able to physically recover as well as I may right now. Since the doctor is pretty much tied into the insurances network for workers comp, I've gotten a lot of run arounds, besides having to deal with all the b.s. On the new MRI it's not really showing a bulge area around the previous herniations but I'm pretty sure they are still there, as I never really stopped having the sciatic pains. It looks more as if the spinal canal as u go down gets narrower around previously injured area and then just sjuts almost at new injury.

Try and stay positive with me and hopefully we can get back to somewhat where we should be physically, I know it's hard, easy to go into stages of depression, I've been off work for about a month now and am starting to go crazy, but it is a huge help to chat with you,thanks again,

Justin

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Morning Justin, Hope u woke up havn a good pain day,,,,,isnt thats what this life is like? waking up everyday with either a good day or bad one,n the bad ones last for a few days, the good days are just one ( if it lasts the whole day)....PAIN PAIN PAIN, And the psphycological end thats even worse. Im only 45, at 43 is when all this ______ started. Nurse one day, and now im not. I keep asking " why / what did I do to deserve this? ( Im sure we all ask this) Can u tell i woke up havn a bad day,,haha.,,and the medication does nothing,,it takes the edge off for an hour, thats about it.We go through the surgeries , they dont get rid of pain but yes they stop the permanent damage to the Nerve.and u deff. dont want that. numbness,feeling and most scary of all is loosing control of your bowl/bladder at S1. If you dont get those discs off those nerves the nerve dies n S! controls your bowl/Bladder. Dont not have surgery this time if your neuro surgeon suggests it, just b wise who you choose. the better hospitals have on staff the better docs n surgeons, so try to get neuro surgeon that way, or by recommendation ( through the grape vine ). And yes some people feel great after there surgeries n have no latter issues or pain, its the role of the dice. n smoking does stop the healing n can cause problems, Im a smoker, tryin to quit, cause yes it eggsaserbates the Pain n stops the healing.Im out of work too since Jan 2011 and I too am goin crazy, depressed ( I go to psychologist 2x month) it helps,those in our lives r tired of us complaining,but oh well, I tell them If u only felt this pain maybe youd be more understanding, but they think bcause of surgery, I shouldnt be in Pain,what they dont get is this is the one area of the body that yes we get fixed w surgery but bcause nerves r involved the pain will always b there.well I too rambled enough, time to start the day, ...Have a good one Justin, bye for now, Rene

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Yeah Rene, I can tell ur havin a bad start today, hopefully as the day went on u felt better, and yeah, its an everyday thing. One day all right, & next, like hell. Went in today for the first steroid injection in L5&S1 it was all right, but doc. did tranforaminal from the side at more of an angle to get straight to the nerves. It was a little more painful, but nothing compared 2 what I've already experienced. Ur def. right about not wanting to go on and on about pain or problems with family and friends even though they are supportive, after a while, they don't know what to do or say to help. I never get tired of hearing what u have 2 say so,Ramble on Rene!!! That's cool with me,I'm glad to have found u on here I've never gotten onto a chat page, but luckily,ran into u on the way. Being out of work on top of everything else makes for so much more stress. And don't worry, I'm sure u didn't deserve any of this as u must be a good, beautiful, caring person. Made that obvious to me just by the way u help me in such detail and generosity somebody mustve made a mistake makin u go through all this $#@&,keep ur head up Rene

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mornin Justin,,Thanx for the encouragment,its far in between,u hit the nail on the head of our families n friends.And you would think all us spinal sufferers would be use to it psychologically and get a grip,,maybe some do? God bless them,,but im finding it harder as time goes on.how bout u? I was so active, w my work, family nursing, Cooking ( us Italians put food first..haha )...I weight lifted, ( ya,, n old lady weight lifting) to u 45 must b old.lol. Anyway this is the bgining of a new weekend, evryones home and Im determined to hav a good one,cant go through another day like ysesterday. Hope your weekend goes well, nice talkin to u too,,hav a good one RENE :)

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Morning rene, that's good that family is down for wkend,let them c u be happy for a couple days and just try to enjoy the wkend. To me as time has gone by, its harder like u said, psychologically, I used to lift weights too,and play sports or even simpler things in life like hiking skiing,and it gets to me, but I try to stay active doing what I can. I used to do roofing work since I was younger, like 14-15, with my dad, then after high school I went straight to the Marine Corps, and between a few other jobs right now I'm working on the Navy ships in San Diego, been with the company for 7yrs. now,started from the bottom & worked harder than almost everybody there, became a professional painter,and now I'm a supervisor there. I've given them yrs and my health, as I also had a scaffold that I was standing on fall down injuring my shoulder and not to forget, my back. Having been used to a certain pace in life and having to do the exact opposite is extremely hard for me. Now I think if my company isn't going to try to find a way to get rid of me. They been good in the past,but the upper mngmnt. is changing some and the ones that were already there, now just want to screw everybody else to get their bonuses,etc.
But u were wrong about 1 thing, 45 doesn't seem old to me,I've always been able to relate well with more mature people, and a mature woman also reflects a different sense of beauty that younger women can't. As for us unlucky guys we usually just get old. Have a great weekend &cook ur a$$ off Rene. Give ur family quality time with u and let them give it back
LATER, Justin

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Hi,
I was just reading your posts and once again, ( i find this a lot on this site), I was struck by how familiar your stories are to my own.
I used to be such a fighter. Had the tenacity of a pit bull with a bone. I absolutely would not give in to the pain. Then I just woke up one morning and "allowed" myself to stop the fight, (I was losing anyway).
I don't mean I gave up on life, but for the first time ever, I admitted defeat. ( Pride, ego, whatever you want to call it simply had to take a back seat). So now, if it means I lay in bed or on the couch all day, and nothing gets done, then so be it. I "allow" myself to do it. On the days when I can't stand it any longer, I double up on meds and get things done. I know my pattern. I'm not going to beat myself up about it anymore. I don't expect my family to understand, hell it's taken me years to figure this out myself. I think we all just reach a point in time when we say, " It is what it is."
Were' not designed to be in chronic pain. I'll do what I have to do for some quality of life, (last time I checked, it was me living it, not the so called "Dr's" who are paid to treat us). There should be a sign next to (most) w/comp dr's names that says, "Paid by w/comp insurance to TREAT YOU BADLY."
Anyway, just wanted to say, it's less isolating knowing it's not happening to only me. So good, bad or indifferent, keep on postin'.
:) Janet.

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Welcome and hello upndown, yes ,I found this site helpful for my 1st surgery jan 2011, lots of helpful kind people that YES can relate to our conplaints and to find were not alone in these situations. Unless you r goin through it even our family,kids friends , whomever, will never get it,,, so thats what brings us here to try n help eachother. As you read I had my 2nd surgery, in my neck this time, its 4wks now. Felt great the 1st 2 then BAM its back again, remember, they fix the structural problem but unfortunatly medicine hasnt come far enough yet to repair the nerves,,that f----n hurt like hell. So whats your future hold as far as ur spine what do docs say? and yes , the lifestyle change sucks, If we do decide to participate in a function, shopping,,,just about anything,,we pay for it for the next few days cause all spinal nerves become inflammed in it HURTS. most people on this site dont realize thats why their in pain, Ive been visiting this site 4 almost 3yrs,I enjoy helping, if I can since im an orthopedic nurse for 12yrs, or should i say was..I HAD A 465LB PATIENT FALL ON ME,, and all i remember is 2 mos later woke up one day with unknown sciatica pain,so i thought, untill to find all that other crap..n 6 wks later had the laminectomy done.have been in pain since,, cause of neck issue that was unknown, which brings me to the present..all structuraly fixed, but nerve pain is a forever,relentless,Pain in the ass. So yes we hav too fight it a stay strong and say screw it, if this is what my lifes gonna b like, ( n we only get one) Im gonna try to make the best of it. I dont mind anwering and helping in deciphering for anyone who need help understanding the medical language,ha ha so im more than happy to help IF i can, GOOD LUCK TO ALL,,HAVE A PAIN FREE DAY :) :) Rene

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Hi Rene, this is debbie63, thank you for replying to my message. I am fighting with disability. I have been on it for a year, then they sent me to their doctor last month, which was a joke. They asked me to bend a little. and bascailly they are saying I am normal, they did not listen when I told the doctor, I can not walk, sit or stand for more then a hour. I can only walk so far, and have to lay down because I am in so much pain. I am waiting for a date to see the SS-DHO to appeal. But in the mean time I am trying to see what I need in order to stay on Disability. Can my Primary doctor say Failed back syndrome, or does that have to come from my nero surgent, who did the surgery? At this time I have no insurance and my primary lets me pay little amount to see him, but the nero surgent makes me pay more. I have not seen him since early this yeard, because I cant afford it. Or should my primary, schedule more tests? any help is so appreacited. I am really lost here and dont know what to do.
Thanks

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Hi Debbie, sorry to hear of your dilema, ( like we need this sh-- along w the pain n suffering were goin through,,doesnt the system suck, especially when we see those collecting for no just cause and they receive aid in every aspect. I assume you were receiving temp. disability since your redoing the process again, correct? Yes your neuro surgeon would be the one to label it failed back syndrome, I could b wrong and a primary may have the jurisdiction to diagnosis it. Failed back syndrome is noted to any back surgery that was successful,( structurly ) but chronic pain still exsists. Disability has a numerous automatic disabilities that if a person has that entitles one to disability, supposively without denial. if u visit your states disability site, It is called the blue book, once your at the site,or under Muscular n neuro issues you will find this list of ailements that qualify. I know for sure Degenerative Disc Disease. Chronic Pain, Herniations and many more r listed. Also the more testing, visits to doctors (at least monthly) increases your case, n if u cannot resume your past job duties especially if it is professional or required schooling, that also will help. What state r u in? Also the more documentation n MRI paper reports and medications bring w you when you meet w their doctors, list all doctors and ER visits, As a matter of fact my first disability doctor apt is next week the 19th, lets see whats instore with my verdict. Im only entitled to SSID, as far as financially they take into consideration my spouses income , which will prob. leave me w NOT receiving any added loss of income ( which is a joke, Long Island is so expensive) n the loss of my income is weighing heavy on us. My disabillity will pretty much just cover the medical end, Ill take any help at this point. Hope your having a pain free day, Rene,,,,,always a pleasure chatting..

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Hi Rene, thanks for the info, I am in Illinois, and yes I am on temp SSD till the hearing. I tried to look up in the blue book disibility, but did not see DDD just diff spinal conditions, so I am not sure. I know in Chicago the disibility doctor I went to was a joke. They dont consider your pain, when I told her I had DDD and Chronic pain, she just said "Oh you have arthrits and yu should be able to g back to work". She didnt care that I cant sit or stand. or about the pain. And the medication makes me so sleepy, and blurred vision, plus other things. and I am forgetful. I do literlly lay down 90 % of the day. I hope your doctors visit is better then it is here. I did make an appointment with the nuro sergent to see if I need to take any test before the hearing. I cant get in till next month, I will let you know how it goes. Thanks again for your info, and keep us informed how your visit goes.
thanks debbie

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Hi Deb, your state guidlines must b different from NY cause those r in ours,,just for curiosity im gonna check out your state to see what they consider eligable. You would think all states would b the same, What does kinds of benefits does your state entitle u to? And do you get financially penalized if your married ( they subtract your spouses income in NY). Its worth you getting a disability lawyer, most dont charge unless they win case, n their cap is 1,ooo.oo... they do all paperwork n phone calls and filing, I found it a small fee to pay just not to have to do all that running around.Plus we get 12mos. in retro pay,( what our earnings were b fore stopping work, they take their fee from the retro check, and bcause I know nothing of the system its worth paying the fee than being denied, those benefits are r our only source of income supplement , and medicall and sometimes both. If your not married or are considered low income their are added benefits,,food stamps, electric bill and phone help and more depending on state.so it might not b such bad idea to look into legal aide if its free, Good luck on your venture also, Ill let you know how mine goes next week,,RENE :)

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Did you ever time that right,Rene!I knew you would be back(bad pun)eventually!I am trying soooo hard 2 get the new MRI date bumped up,almost got arrested!

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Goodevening Spineless,Yes Ive returned, I had a second surgery on my neck this time. This whole situation is DeJaV. only add lots of pain to the mix. Its been a year so I dont remember u ...... dont take it as an insult . So whats your story? Im always curious to know others history. Looking forward to hearing from u.. bye Rene

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Hi Rene,

In reading through so many posts I am seeing that spine surgery is NOT like having your gall bladder removed. Ya know your symptoms and pain then surgery to remove the diseased gallbladder and bingo! It's done and you're better! I'm wondering if by choosing a surgical option I am only opening a can of worms for myself....

Feel better,
Trish

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mornin spinlessinalberta, Thank you for the compliment, There is a person in need of medical advice in Canada whom ive been trying to help, but im not understanding why its so difficult in Canada w the medical attention she is having such a hard time to receive,,Why is it so hard in Canada? and how r u doing? do u have issues w receiving medical care since u live there too? Hope u have a pain free weekend, keep me informed, its always a pleasure to chat? RENE :)

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Morning Randy, your not a moron I replying to your question to move my blog up so u can find it. , -How r u feeling today, what has been your routine, is pain management doing their job? youll find sometimes youll hav to go through a couple b4 u find the one that doesnt treat you like where drug seeking addicts,,we all go through it,,its so degrating and even worse they dont prescibe the correct pain management,,they all try to push w those injections, why? bcause they get 2500.00 per injection, so beware,,some find they work and some dont. Im getting my third on Tues. ...against my will, the first 2 I ended up in ER , it enhances the pain 4 a few days then ur suppose to reap from the benefits, but its a new pain mngmt doc n I cant endure anymore pain so im doing it again, I prefer the oral meds, but the hav us by the b----ls n if u dont they cut u back on meds or make your life more misserable than we r going through, so im playing the game w them. SAD what we ( how were treated) even w the mri reports and surgeries u think they would be more compassionate,,but they did this to themselves by writing scripts unecessrily to the toothless wonders ( i call them) so now the FDA makes it very difficult to get the correct medications as u hear on news about docs who r getting arrested due to them writing them the scripts, n now WE have to pay for it. Its a viscious cycle.Hope your enjoying your weekend, will chat again,,,RENE :)

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Norskigirl, Heres my blog u were looking for..When u have the time write me ur MRI findings on this blog. I will B watching for your responce..How have U been feeling? Today on the Island (Long Island ) its cool and Damp, U will find ur body becomes a walking barometer.especially the dampness will make ur days feel worse. On these days I try to keep the back warm so these OLD bones dont ache as much. What state do U live in? Hows the weather? I have a Doc appointment @day, Im consulting w/ a new pain management doc, Im still trying to find one that cares,Its at 12:15 and its only 10 am, its sad how long it takes to get dressed n ready now,We cant move around and get ready like we use to,,prety sad im 45 feeling and moving like Im 90,actually I think a 90 yr old can prob do better than me,haha,Ill check in on everyone later, Hope All have a somewhat Pain free day,,,Rene :)

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Wow Rene,
You were right. We do have many similarities! I hated the injections too. Only 1 worked out of 5. Karen,,about ur MRI,,I read it,,,Boy U have alot going on,, sorry to hear that,from ur MRI the grinding ur feeling is from bone on bone,U have alot of crystalized acid deposits too,,,I know there telling U to excersise, but ur spine has so many issues I wouldnt push it,,ease up a little ur spine is brittle,just try some leg stretching to keep the muscles from shrinking, the more u excersise the more inflammed the nerves R getting causing added Pain.And the traction is a deff. nono,,what where they thinking,,they did that to stretch ur vertabrae to open up the joint spaces bcause of ur discs loosing its fluid, like a flat tire, but after reading ur MRI ur spine is to fragile, and after fussions u never want to stretch the vertabrae in those areas it will cause the fussion to break.increase ur protein, that helps w/muscle repair. In the drug stores they sell BOOST, I like the choc flavoured one,they are high in protein also. Coconut water is also a great way to replenish your body of electrolytes. feel better, Rene :) also ask doc if u can take a vitamin called Glucosamine chondroitan, thats to help grease and lube your joints and vertabrae. of us did. Most people don't have the pain tolerance that we do. My neurosurgeon who did my ACDF fusion for myelopathy told me on a good day I would start out at a 5 on a pain scale of 1-10. Really? Thanks for the hope. My pain has progressively increased. I do take pain meds so I can function and have some kind do a life. I will write more soon regarding other things you wrote. I don't know if I can email the MRI results I wrote up. I may have to email them to you if I can't figure out how to post it on my IPad. Thank out for reminding us to fight and make a big stink. If not, they just walk all over you. Hang in there!
Norski (you can call me Karen) :)

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Thanks for this great forum!

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I was able to copy my MRI stuff and post it. problem is I doHi Karen,,about ur MRI,,I read it,,,Boy U have alot going on,, sorry to hear that,from ur MRI the grinding ur feeling is from bone on bone,U have alot of crystalized acid deposits too,,,I know there telling U to excersise, but ur spine has so many issues I wouldnt push it,,ease up a little ur spine is brittle,just try some leg stretching to keep the muscles from shrinking, the more u excersise the more inflammed the nerves R getting causing added Pain.And the traction is a deff. nono,,what where they thinking,,they did that to stretch ur vertabrae to open up the joint spaces bcause of ur discs loosing its fluid, like a flat tire, but after reading ur MRI ur spine is to fragile, and after fussions u never want to stretch the vertabrae in those areas it will cause the fussion to break.increase ur protein, that helps w/muscle repair. In the drug stores they sell BOOST, I like the choc flavoured one,they are high in protein also. Coconut water is also a great way to replenish your body of electrolytes. feel better, Rene :) also ask doc if u can take a vitamin called Glucosamine chondroitan, thats to help grease and lube your joints and vertabrae.n't have a current MRI for my lumbar or cervical neck. I'm pushing for it. The Flexion/extension X-rays are what recently showed the anterolisthesis on C2-3 (I believe) and retrolistthesis on C3-4. They are above my fusion. This is what I'm worried about. You'll see you and I have some similar things. I did have an ECT.. I will be looking forward to hearing good news from you about your appt. Good luck and sleep well! Norski

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Hi Rene, I wrote you last month. Since then I finally was able to see my Neurologist. He recommened me getting a pain pump or stimulator implant. Also I need to do another MRI. But I have to wait till my medicare kicks in. That wont be till next February. Do you know any one that has one. I have heard good and bad things about both. And I am still waiting on SS D to give me an answer on my appeal. The only good news I have is I found a free lawyer. If anyone is in Chicago, The Chicago Bar Assoc. takes cases. Hope you are doing well.
Debbie

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Hi ,
I am new to this community. I have had back pain since I was 36 yrs old,I am now 63 and 3 different cervical fusions C3 to T1 and L-4 to si and also SI Joint. My most recent surgery was Oct. 11, 2012
so I am now 14 days post op. I had Sacrilliac Joint Fusion on May 24,2012, On June 22, 2012 I was taken by ambulance to the hospital because my intire back locked up I could not sit, stand or even lay down, the pain was excruciating. I was in the hospital 5 days on IV dilauded. They left me go home without weening me off the Dilauded in 3 days I started going into withdrawl not a fun thing. My family doctor helped me get thru that ordeal. When I was inthe hospital I had a bone csan done that is when it showed C7-T1 was lite up. My surgeon told me he really didn't want to do surgery so he asked me to try injections which I did July11, 2012. I do not know what happened, I remember them putting in the injection to put me to sleep and it burned so bad and then pain really bad pain the doctor asked if I could have awake because as soon as the doctor put the needle in I started to scream and cry uncontrollably I still don't know what happened. When I went back to the surgeon he said he felt I didn't have any other choice but to have surgery so Oct 11,2012 he opperated on C7-T1. I am still in considerable pain my right side, shoulder down shoulder blade into right arm, my fingers aren't hurting but every thing else is about the same. He told me he had difficulty getting into the area to operate, he said he had to use the extra large spreader and remove one of the screws from a previous surgery and I not a big person so because of the problems he had it is no wonder I am in pain. He sent me to get a TENS UNIT. I think it is helping with the pain because when I turn it off I feel more pain. I am also on oxycodone amd soma which makes me so tired but it helps. I have read where quite a few people have had this pain in the back same as I do, if this surgery doesn't help I don't know what I am going to do because the pain is the whole right side and it comes around to the front of my chest, it even affects breathing sometimes.There are times when I feel like I can't take it any more . I do not have the problem some of the people have my doctors are very good about medication. I do have to get written prescriptions and pick them up and go to the pharmacy they can't call them in and most of them you can't get refills you need a written pres. everytime.I still have pain in the low back and legs as well. I am on disabillity but do to finances I would like to get a job, I have been on disability since 2003 I used ALLSUP Company to help me get it and I got it on my first try in 6months. I do have Thyroid under active,I had Graves Disease and it was treated with RAI, I have had other surgeries for a total of 29, on my feet,elbow,shoulder,trigger finger, carpal tunnel and more.

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