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L5-S1 Disc gone..

Started by Hero9 on 12/23/2011 9:56pm

Hi everyone, i'm new here and just trying to find some more information. I'm 17 years old and diagnosed with servere Degenerative Disc Disease and spinal steneois. My L5-S1 disc is completely gone which concludes why I have been having horrible lower back pain. I have never really heard about this condition and never really paid attention to it. I have been trying to do some research on it. So far i'm still rather confused why I have DDD at a young age and why one of my discs are already completely gone, again at such a young age. The doctor I had said it could be genetics and my life style, thou I am going to be getting a second opinion. Another question I have is I have started treatment of meds, physical therapy, and steroid shots, but since my disc is gone will it most likely lead to me having surgery to replace the disc?? The doctor who is an orthepedic suergon said that we will see how i'm doing with this treatment for 3 months and go from there, but i'm just curious if I will most likely end up having surgery. Now that I understand what is going on, I have so many questions!!!

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Mine was worn into 3 small pieces at 44 yrs of age from hard work lifting 85lb fish cartons bent over for 25 yrs and genetics but 17 seems awful young to me without another undiagnosed problem to cause DDD at such a young age. I had excellent results from fusion. I'd get a 2nd opinion now as bone to bone just didn't work for me and also before you start down the road of having to take narcotics daily,that can create a problem itself. Get a 2nd opinion is my suggestion.

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Hero9, I have been dealing with numerous spinal problems since I injured it in the Army when I was just 20 in 1983. I am now 50 and totally disabled due to my spinal conditions. Since my injury my spinal problems have just continued to get worse and I'd get diagnosed with something else with my spine every time I'd go to the doctor. I have tried I believe most every type of therapy out there with NO POSITIVE results at all. I've had 1 surgery at the L4-5 area and it failed just 10 months later and the problems were all back again. Now I still do therapy every day I am physically able to function enough to do them. But those days are few and far between. HaHa. I have been on Narcotics for over 10 years now but, I can tell you this much about the drugs. You CAN get lost in the drugs if you allow yourself to. And it isn't pretty when you do so !!!! If you get on the NARCOTICS for the pain you WILL BECOME ADDICTED to them without a doubt !! You just have to learn to stay consistant with NOT ABUSING them on your own ! Take them as prescribed only !!!
I have to go see a surgeon on January 9th to determine what we are going to do about my current situation. Hopefully I get some good news at this visit, HUH ?
I have to agree with Jerry on this matter about staying off of the narcotics and getting a second opinion !!!
Hero9, are your parents involved in this matter with you ? You are absolutely going to need support from your family and friends during these hard times. Everyone needs someone for support at one time or another !! Well good luck to you in the future and definately go get that second opinion at the least !!! Take care of yourself. You to JERRY.

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Hero9, I am shocked to hear that someone your age has this degenerative problem. God be with you. I first noticed lots of lower back pain in my 30's. Had to have coccyx (tailbone) removed in the 80's. Had gone snow skiing and fell many times. I did not have a specialist, at that time I had no knowledge of doctors specialties or skill level had surgery done by doctor in small hospital in our small town. It was necessary, pain was extreme. But since having that I have had a different pain but pain was still there.Could not sit nor stand very long, always had to recline, for many years have had to recline all day. On Nov. 8 I finally had a spinal fusion @L 3,4,and 5. At my first appt with doctor after surgery he did xray and showed me and his associate as well, and he circled on xray, that the disc under L 5 was severely slipping now. And said, 'we have to watch this one now'. I asked him why he didnt fix that one too when he was in there. He said it looked good then, although I have an mri stating that it is degenerating. I am furious and depressed. And so, 3 wks in rehab, now home. Having severe sciatica left leg to bottom of foot. must use walker to pick myself up as that leg is useless. I can't wait until I am allowed to get into the pool at the Jewish Community Center. I get a noodle and kick around the pool for an hour. In the past using pool eases the pain. That can help all of you if you are near a pool anywhere. Yes, I tried chiropractic (it can haelp for many years), the spinal injections, massage, but finally had to have the surgery. And so, am suffering like the rest of you and on meds. And yes, Hero9, get second and even 3rd opinions. And find the very best doctor you can find in this field. My heart goes out to you. This seems very unfair that someone your age has this condition. Best of luck. Thank God I found this site. I am not alone. And, I also have family members who simply dont understand my condition. God be with you and lead and direct you as you find the remedy for your pain.

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Hero9, now that you have had treatment for 3 mths how are you doing? I am shocked that you have this problem at your age also. I feel very sorry for you having to deal with this. But, yes, genetics certainly play a part in our physical issues. My father had 3 discs removed. (like in the 40's & 50's). In those days they removed the disc but did nothing else. And after the discs were removed, after each surgery, his pain was gone. Of course, when the next disc went bad he had the severe pain again. But when he got older, in his 80's, he had NO pain. And, of course, I had my spinal fusion last November and the severe sciatica is getting worse and worse. And so, hope you have found someone who is helping you. As for me, my surgeon said I need more surgery but I cannot face that at this time. Good luck.

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Hi Hero .I also have ddd and its my l5-s1 also i am 37 ,i also have spondylothestis(sp) Its hard to spell and say ,means my spine has slipped .I never noticed any pain in my lower back until i hurt it at work 2 yrs ago and since then its been getting worse ..i had a buldged disc l4 which is terrible pain i could not walk so which i demanded a cat scan once this was done it showed bulged disc and which sent me to a orthapedic surgeon in scarborough ,i saw him once in oct 2010 said i need a lower lumbar fusion meaning he will do a plif ...posterior lumbar interior fusion.....meaning he will insert titanium rods along my spine with screws and then takes bone fragments from my hip to fuse it all together ...this im having done may 30 ,Im very hopeful this will help ,i have 4 kids and now have been off work since nov last yr ..im pretty fit so this will help .Good thing is that you too are very young and if u do need this surgery nows the time to do it ....its true this isnt supposed to happen to people that are young usually over 50 ......i have talked to a few people that have had this operation and say it has helped them tremenously....its not fun living in this pain and being afraid to even walk the wrong way to get that jabbing pain ...hope this helps ...feel free to write me with any questions.Sincerly R

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