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FLATBACK- from failed scoliosis

Started by donnad on 10/10/2011 3:41pm

Reply if u too are disabled from results of Harrington rod surgery to fix scoliosis in the 80s and now have fixed saggital imbalance or flatback syndrome and intractable pain . I cant sleep in bed for over 2 yrs now sleep in a recliner i cant stand erect and disabled

told by surgeons i need PSO pedicle subtraction osteomtmy now i also have bilateral stenosis and inability to feel when i need to urinate move bowels , called hemi pelvic parenthesis.

I use tens no help, meds no help , therapy no help and i know folk who had PSO s and even needed more surgery due to pseudo fusions occuring due to scar tissue from previous surgery

any of you in CA have this too, i can barely check my mail and when i shower i almost drown since im bent over and water rushes in my nose like torutre i m alone no help , medicare starts NOV, only 44 feel like 90

severe intractbale pain w severe radiuclopathy facet arthrosis flatback and DDD on top of it all as well as bilateral stenosis found in april

havent slept more than 3 hrs a night for over a yr some days even skip sleep for 2 dys meds dont help

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I feel your pain! I am disabled from the results of spinal stenosis surgery. Only 51 years old. What aggrivated me was the length of time it took them to figure out what was wrong with me. I have every incurable condition you can think of on top of the many things wrong with my back. I too have scolioses. that was the first thing they told me. And the list goes on. I know if I was alone I would need help. 'You should have a caregiver helping you. I know it is a financial burden. When medicare kicks in that is the first thing you should ask. Do you have a chair in your shower? That helps me a great deal.Otherwise I would not be able to take a shower. You have made it this far and you can do it! I would like to tell you to keep your chin up but that is easier said than done when you are in this kind of pain. Believe me, you have made it this far, YOU CAN DO IT!Never ever give up. I wish you the best of luck. Keep the faith.

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I feel your pain! I am disabled from the results of spinal stenosis surgery. Only 51 years old. What aggrivated me was the length of time it took them to figure out what was wrong with me. I have every incurable condition you can think of on top of the many things wrong with my back. I too have scolioses. that was the first thing they told me. And the list goes on. I know if I was alone I would need help. 'You should have a caregiver helping you. I know it is a financial burden. When medicare kicks in that is the first thing you should ask. Do you have a chair in your shower? That helps me a great deal.Otherwise I would not be able to take a shower. You have made it this far and you can do it! I would like to tell you to keep your chin up but that is easier said than done when you are in this kind of pain. Believe me, you have made it this far, YOU CAN DO IT!Never ever give up. I wish you the best of luck. Keep the faith.

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TY Karen Yes the Bilateral stenosis i also developed discovered this April is cause of reason from my pelvis down and on left side my wntire lef goes fesd with no feeling this is after i sit on a hard surface.

The hemi pelvic parenthesis make it hard to feel when i need to pass urine this too is from advanced stenosis. WHAT kind of surgery did he have for stenossis? I still have the orgi surgical Harrington rods in my back from 1981 that hve 3 inches on new bone encasing all the rods fused to my spine and jjos am =wkre

i will get helath home care in NOV cause i need to hve someone due light hskekeeping and to check my mail for , i cant get to mail bx but every 10 dys then i take trash bags an dumo all the mail and wrap it around the walker handles so the weight is carried by walker not me .

too

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