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ankylosing spondylitis

Started by richard donahue on 08/13/2011 2:41am

has anyone out there ever had a cervical osteotomey a procedure where a section of the vertabrae is removed and the head moved upward so the view is lifted from a downward gaze to a more straight upright gaze. a complex surgery that has risks especially at c-6 and c-7 area. requires a halo for several months.

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Sounds serious to me. I would get all your records and make sure you get second and third opinions. I don't know what your pain level is, I would not rush into something like this unless you are at extreme pain and can't deal with it. You tried PT, Aqua exercise ? Have you tried pain meds/pain management? I guess my main messages is get other opinions. Good luck.

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thanks for your reply, i wish i had taken your advise before i had the surgery. i am just trying to find someone who also has had the same or similiar surgery. needless to say it was major complex and fraught with side effects,some of which are permanent. after a few years and some revision surgery and additional nerve surgery i am about 80% back with just some deficits in the hands and numbness in my arms. in retrospect,i am conflicted about whether it was worth it. the long rehab and side effects give me pause.

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Hi Richard , I have had 2 oteotomies i have had a thoracic osteotomy to prepare for my cervical osteotomy as they had to do mine in two parts as my spinal cord was streched i am now recovering from my last cervical ostetomy and didnt have to many problems. Finding a dr capable of a complicated procedure is difficult at best .the problem i had is i had a thoracic osteotomy my dr waited to long my hardware broke from the stress of the desease pulling me down and he waited to long to continue with my cervical so we had to go back and replace the rods and hardware then do the cervical . i am 2 weeks out of surgery now and am doing great ,i have gained most of my in height and couldnt be more pleased although it is a vary hard road i hope i have helped in some way i did have some problems at the osteotomy site with inflamation and had radiating pain down both arms but it does seem to be deminishing as time goes by thnks jerry

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thanks for the information jerry. you're the first person i have ever heard from who has gone through the same type of surgery. i'm wondering where you had your surgery and who you saw. i am from boston and one would think there would be plenty of options for opinions but there wasn't. the guy that has operated on me is the chief of spine surgery and past chief from the mayo clinic. i think he's great,even though i had complications and ended up with nerve damage in my arms. he now is planning to do the similiar procedure on my thorasic area. i would like another opinion but can't find it here in boston. i am actually looking forward to the surgery if it will improve my posture and take some of the stress off the hips. my sacroilliac is fused causing pain on motion limiting my ability to walk any distance.
were you in a halo after the cervical work? i would like to hear more about your experience when you have time.
thanks
rich d

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Yes I have had a thoracic oteotomy in witch the hard ware broke then fixed with a couple more levels then a cervical osteotomy among others very scary procedure although worth it , as I can look forward in muliple ways lol hope that it helps although with the cervical osteotomy did have nerve pain down both arms for a few weeks untilm the inflamation went down hope I helped ??

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Hi richard , My Dr was from Cedars Sanai in Beverly Hills Ca wouldnt go any where else so far so good i have had my cervical osteotomy in sept 2012 and like you I had big time doubts as my arms hurt so bad but got better after a few weeks altough iy was a very long 3 weeks not knowing if the arm pain would stop hope for the best for us all heck of a mess . Jerry

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