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Possible 15 years of titanium allergy

Started by Laurie Romanello on 07/14/2020 11:03am

Hi! My name is Laurie and I’m now 52 years old. I have a history of surgeries with include:
1987-intestinal intussusception corrective procedure
1995-hysterectomy leaving only one ovary
1996-cervical cancer vaginal cone
2001- Lumbar laminectomy with three fusions and hardware
2001-Reopened for Antibiotic flush in lumbar due to severe Pseudomonas infection
2003-Hardware removal (during found 1 loose screw & fluid collection from prior infection
2004-Fourth fusion added
In 2005 I started gaining allot of fluid weight all over my body. The doctor said I had edema. I remember pushing my finger down into my leg and it left a big dent that would stay there for a long time. I could even make a hand print by squeezing around my calf. It was at that time I also had to be hospitalized at least twice a year with pneumonia. That went on for several years, until around 2016 . Then the edema started going down and the pneumonia stopped Justin quick as it started. I know, good right?! Well I had plenty of others that didn’t stop! They only got worse! I have unexplained bone pain that has gotten so intense ,I can hardly handle it anymore! I have pain down both legs and my right thigh is completely numb. I get these hives that are extremely itchy. Severe sweats! I wake up every morning with my tongue swollen up. My skin has gotten very dry and I developed these white circles around both elbows. My dermatologist did a biopsy and it came back with severe inflammation. I’ve also gotten sensitive to the sun and bright lights. My vision became blurred now and the eye doctor said that the tiny vessel’s are extremely. swollen like someone with severe Sjögren’s syndrome. I made many trips to the ER for pain in my lumbar so severe I can’t even stand up straight! The last one I was tools that the MRI showed L-1 L-2 level has a Large protrusion which has caused severe spinal canal stenosis. They also found a fluid collection within the adjacent paraspinous soft tissue. On a CT scan before that, they found that my intestines were severely inflamed. I just got a phone call today telling me that I have a bad intestinal infection caused by C-diff. Maybe that explains the nausea and diarrhea. But it doesn’t explain the severity of my back pain! I can’t even get the MELISA rest now due to COVID! I really feel like I’m going to die now and I can’t even get the proof I need of what’s causing all this! I was a healthy vibrant young lady before back surgery! Now I’m just a shell of what use to be. I really need to get the last fusion that was put in me, taken out! Does anyone have any input or ideas?! I’m so desperate right now!

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2 Responses


You may have a titanium allergy, but your symptoms and positive inflammation sounds more like Lupus. I don't know what state you are from, but my state is now conducting tests. Contact your primary care Dr. & ask if you can be seen & tell them your symptoms and positive inflammation tests. Good luck


Laurie, I feel your pain. I am located in Canada, however my situation slighty different than yours . In 2000 I had a couple of construction accidents that left me in intractable pain for twenty years. Doctors just kept prescribing opiods etc. Because of my dosage being so high I accidently overdosed more than once lets say. In Jan 2020 I made the decision that the meds were not helping me, so I slowly quit all meds. Still in horrific pain, and covid happened so doctor access was limited to phone appts. I was nowhere. Im 52 btw and a carpenter for 35 years although the last ten have been unable to work at all. So enough about me, here is what I did, hope it helps you to. I after quiting the meds was able to think quite clearly again, being a carpenter all my life i developed excellent problem solving skills. So I thought instead of treating my pain , perhaps better to solve what is causing the pain. So after watching youtube I was able to diagnose myself/ confirmed by my neurologist that I had Adhesive Arachnoiditis and DDD as well as arthritis in my spine. So this is what I did, PAIN what is it Basically inflammation , things ending in itis inflammation. So it all comes back to what goes in your mouth is what your body feels like. So I quit eating /consuming anything that causes inflammation ie sugar, processed foods, medications, alcohol, more than 50 grams of animal protein/day. Then I added strong anti-inflammitory/ anti-oxidant foods to my diet ie curcumin, quersetin, fish oil. In about three months it was like a miracle my pain from 9 out of 10 down to 1 or 2 out of 10. This allowed me to excerise/ cause I was overweight and get moving again. You can find all this scientifically researched on the www . I really hope this info can help you, However PLEASE don't try and dose yourself with natural products, a naturalpathic doctor is the best way. Otherwise these natural pruducts can do more harm than good sometimes. Good Luck and all the best. I have lots more suggestions if your interested, after 20 years, having my life back is amazing.