SpineUniverse Community Advice
Get help and share your story with others who know what you're going through.
Please register or log in to join the discussions!

Direct Pars Repair scheduled - advice welcome

Started by MamaE on 02/15/2019 1:18pm

Hello, new here, this is my first post. Wondering if anyone has some helpful tips or words of support. My son, age 15, has bilateral L5 pars fractures (spondylolysis) and a grade 1 forward slip (spondylolisthesis). He was an advanced-level dancer (hip hop, ballet, contemporary, tap), but has been lying flat in a brace for 10 months, unable to go to school. He is scheduled for a surgical direct pars repair, with compression screws and bone graft, at the end of this month (February 2019). Has anyone here had this procedure? What should I be doing to prepare us and support him? Thank you for any suggestions! :)

Do you find this discussion helpful?
0

12 Responses

Like/Dislike
0

Hi. I’ve just joined and read your post. How is your son doing? Has he had the surgery now?
I have the same condition just being treated with pain meds and steroid injections.

Like/Dislike
1

Hi Vicky,
The surgery is completed now. It’s only our first day home from the hospital. I think it will take months to find out how well it’s going to help him return to a normal life. The body has to heal in the two (bilateral) fractures where the bone grafts and screws were placed. You may have already found info, but if not you could google “direct pars repair surgery” and you’ll find articles describing different techniques. Maybe ask your doctor if this is an option in your case. It took a lot of searching for 10 months and 4 consultations in different cities for us to find someone who could perform this procedure. How are you doing?
Best wishes,
Laura

Like/Dislike
0

Hi, this is also my first post, I’m 43 year old male living in the UK and have been diagnosed with bilateral L5 pars defect with grade 1 anterolisthesis of the L5-S1, which is basically lower vertebrae slippage by 1.5cm and two stress fractures. I have had to take six months off work and I’m unable to take part in any sports. I read about this condition and this particular treatment on this site with a post from a guy called Scott Hews, his post was from 9 years ago, I managed to get in touch with him through email and he is still living without much pain with this procedure and is still active in sports at 52 years of age. He gave me the name of his surgeon, however he has retired now, so at the minute I’m frantically looking for someone who does this procedure , if nothing else to get a consultation as in the UK our NHS seem only to offer the fusion, which I want to steer clear of. It has given me a little hope to read your post, and hope your son heals and gets back to his former self. Can I ask if you’re based in the uk and the name of your surgeon or even the hospital or clinic you used.

Like/Dislike
0

Hi Laura,
Thanks for replying. I’m interested in the pars repair rather than the fusion but surgery is the final option so holding off on it as long as I can. I’m scheduled to have the injection this Wednesday so hoping it still has good effect. Will post back after it’s done.
Vicky x

Like/Dislike
0

Wishing your son a speedy recovery. Hope he’s ok x

Like/Dislike
0

Hi Blathan,
My surgeon is called Mr Sian. He is based at stepping hill hospital in hazel grove. I’m not sure if he does the direct pars repair but he has mentioned the fusion to me as a last resort. I will ask about the pars repair if surgery becomes a necessity.

Like/Dislike
0

Hello, Blathan,
I can completely relate to your being in the position of frantically looking for someone who can perform this procedure (direct pars repair vs. interbody fusion). I, too, read the posts on this site by Scott Hews and Richard T from years ago. Interesting that you were able to reach the former and glad to hear he is doing well.

At one point in the search, during the months of my son’s physical therapy and lying in different kind of braces (soft LSO, then hard custom-made TSLO) with no improvement, I tried to post a new discussion thread asking anyone for names of doctors to consult, because we live in a small town, and it felt like looking for a needle in a haystack. The moderators would not post the message asking for specific doctor names. What helped me was looking at online bios of surgeons at major nationally-ranked hospitals, combing through their areas of interest. If I found “spondylolysis” or “spondylolisthesis” I put the name on the list.

Shortly I figured out that most of those who listed “spondylolisthesis” only offered interbody fusions. I didn’t want that, if possible, because it would destroy a perfectly healthy disc between L5 and S1 in an adolescent and would create a loss of flexibility and stress on higher levels. The surgeon we ultimately found is at a major university hospital in a large city in the mid-Atlantic region of the U.S. It’s nationally ranked #3 overall, and ranked #8 for its Children’s Hospital. This doctor is a pediatric orthopedist, so I’m afraid he wouldn’t help you as an adult. I wish I knew of an adult surgeon in the U.K.

My son’s surgeon gave us a 80-85% success rate estimate, with a less than 1% chance of nerve damage. He said the direct repair (Bucks technique) would “put your vertebra back to the way God made it” by fixing together the fractured parts of the pars interarticularis. That sounded good to me. I also liked hearing that, if it turns out this doesn’t work, then we could either try it again, or we could do a L5-S1 interbody fusion. It seemed worth trying the direct pars repair first.

Wish I could help more. Do you know anyone in the medical profession who might be able to make some phone inquiries on your behalf? Best wishes!

Like/Dislike
0

Thank you, Vicky! I have read that many people live with this condition just fine without surgery, so maybe you will be one of them. I hope the injection helps this week. Let us know.

Like/Dislike
0

Thanks for your responses, I’ve found a few names of surgeons and have started sending emails so fingers crossed, thanks again and will keep you posted.

Like/Dislike
0

Hi MamaE, it’s been a couple of weeks since last contact so how’s your son responding to his surgery?

Like/Dislike
0

Hello, it is 3 months out after my son’s direct pars repair on L5. He can manage pain simply with an over-the-counter dose of acetaminophen or ibuprofen, but his activities are very limited - he is mostly still lying down and walking slowly, not going out of the house much. Usually there is no pain in his legs or feet, but that comes on intermittently with moving around. At least so far, this hasn’t been some kind of quick miracle cure, but we are holding out hope for the longer term.

SHOW MAIN MENU
SHOW SUB MENU
Cancel
Delete