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2 years post op acdf and l5-s1 lamenoctomy and worse now than before surgery--HELP

Started by Jenna1Pooh on 06/07/2017 9:11pm

I had 5 out of 7 herniated discs in my neck and a herniated l5-s1. So Oct 2015 I had an acdf spinal fusion 3 levels c3-7. Metal plate 8 screws. Nov. I had a disectomy and lamenectomy of l5-s1. Since then I keep telling the nerosurgeon something is wrong. He won't listen. Been back 15 times. Every time I lay down I have numbness in both arms. The pain in my neck is excruciating. I have ehlers-danlos syndrome, degentritive disc disease, scolosis, allergic to steroids and numbing stuff don't work for me. Recent x-ray shows I have retrolethesis of the artificial disc of c3-4 and bone spurs above & below plate and c7-t1 is messed up & scolosis. He won't do surgery again and his solution was to switch pain Mgt. Doctors. I've done pt, aqua therapy and had to stop after 2 sessions. I take Percocet 7.5 and 850mg of neurotin a day. I can't take the pain in my neck. My current back situation is the MRI shows a being tumor in l2 vertabre and herination in l-5 with stenosis and an Annular tear, and arthidesis. My back hurts constantly numbness in foot and pain in butt and legs. Doubt he will fix that either. I could go on and on about what's wrong. Been trying to get disability for 2.5 years. I have Ohio Medicade. I am at my wit's end. Oh and my plate is crooked and I can't tip or turn my head to the left. I'm lucky if I can get two hours sleep a night. My neck is killing me. My arms are useless. I get 3rd degree burns because I don't know I'm getting burned until it's too late. I just had carpal tunnel surgery but pinky and thumb still is painful and numb. As a matter of fact that was surgery # 19. I've had ten in the last two years. Anyone have any solutions or advice what to do? I've tried going to two other surgeons and they both say I'm the neurosurgeons problem. I'm only 41. I am at my wit's end. Thanks in advance. And no I wasn't in a car accident I am a domestic violence survivor.

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1 Response


Hello, and thank you for taking the time to post in our Community. We can't begin to imagine the amount of pain you endure on a daily basis. We are so sorry to hear about all you've been through.

We wish we had answers about what's causing your pain and how to fix it, but we don't. What we can share is our doctor finder tool: https://www.spineuniverse.com/locate/spe... . This will help you find qualified spine specialists near you. It sounds like you haven't found a medical team who takes your pain seriously--and, at the very least, you deserve that. Our best advice is to keep seeking out a doctor who gives you the time, attention, and acknowledgement you deserve--and don't stop looking until you find him/her.

You may never completely eliminate your pain, but we believe there are treatments out there that will help you manage it and regain your quality of life. Keep us posted on how you're doing. We are rooting for you!