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Started by SigynV on 03/28/2016 3:02am

New here. Wondering if anyone has any experience with L5 S1 spinal fusion? The good the bad and the ugly lol. My husband had one 5 months post op and still having some serious issues.

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I.had a anterior n.posterior fusion in August 2015. They went thru my stomach n back. I'm in more pain then ever. Should I remove them? That's what I would ask. I'm in same boat. I feel more pain like I just got out of surgery but worse. Any help plz lmk too thank you

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I had a posterior anterior double L 3-5 fusion about two months ago due degenerative disc disease. It has not been easy. I am still on pain meds but getting better. I have had to wear a Velcro brace. There are many restrictions which is difficult to deal with. This will be a very slow recovery and it may take 8 months for my bones to finally fuse. All I
Can say is don't expect too much to soon. If you over due it, you will regret it.

You didn't say what complications you are having?

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Karen, just saw your post. A couple questions? Did he have a neurologist or orthopedic surgeon do your surgery? I had a neurologist. Also did you walk walk walk after your operation. This is important to prevent scar tissue from forming.

I still take pain meds 2-1/2 months after but it is not unusual to take them longer. Remember this is a major surgery! Every case is different. It is easy to get depressed but hang in there. Is he now doing physical therapy?

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Hi there ,
I had Anterior l5s1 fusion a year and 4 months ago. I have never been the same. I am 44 yeasts old. I had a herniated dis and also suffer from spinal stenosis and disk degeneration. For me, the nerve pain in my right foot became worse and new pain such as numbness in my thumb, index finger and buttock pain . ...weird. also I suffer from what I call an all over body ache. Hurts to lay down, stand up and walk. Makes you feel like your 80. I've just had a round of steroid shot's and hip injections that did not work and now I am on Lyrica which is a very serious medicine lots of side effects. I hoe your husband finds some relief.

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I am very sorry for everyone's bad side effects! I too, am in the same boat. I had a PLIF of L5-S1 5.5 months ago. I am still in worse pain than I was pre-op. I am 35 years old and afraid of not ever getting back to normal and an active life! My recovery has been so discouraging. So far, my surgeon agrees that my recovery is abnormal in length and the severity of pain. However, he says all of my images are fine. I am in the process of setting up a second opinion. Best of luck to all of you and your husband. I am back at work, but some days it is so hard to even get out of bed I don't know what to do! Has anyone had a second opinion?

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I am so sorry for all your problems. I am three months out and still on pain meds or can't function. If the pain continues my neurologist said he would direct me to a pain management center. I am not sure what to expect or how long the pain will last although it is getting better. I just don't want to rely on these meds. So I guess you are not alone concerning pain. I know it is a major operation but I wish my neurologist would have prepared me better on how long the post op pain would last.

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Lynn, I am sorry you are in so much pain too! I also wish my surgeon would have given me realistic expectations. He told me I'd be feeling good and back to work in 2 weeks, and able to work from home 1 week after surgery. Neither were true! I am still on pain meds too. I was referred to a pain center, but I really did not like it. It was expensive, and the clinic gave me a bad vibe. My surgeon has agreed to continue to follow me and manage my meds for the time being. Again, I am so sorry for your troubles. I wish I knew when the pain would stop or at least when I'd get back to pre-op! Best of luck to you. It is a very frustrating process.

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Thank you for your reply, and sorry you had such a bad experience with the pain center. I am on Medicare so hopefully it will cover it. You are lucky your Doctor was so understanding. I may wish for this as well!

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I hope everything is a bit better since it appears that a month has gone by since this post. I've just joined. I had a L5-S1 fusion with plate/pedical screws/titanium cage in Oct. 2012. It's hard for longer than 5 months, but slowly it will improve until one day you realize that you haven't had the same pain you had for years. I've only recently been able to sit for periods of time and I'm a writer (in the summer, teacher during the year), and it's been a few years. Every year I noticed I could do a little more. If he's having serious issues with no improvement at all and you are not happy with his surgeon, the one I used is actually advertised on this site in some banners ads, Dr. Jack Stern (neuro..I had an ortho too in the same practice...Seth Neubardt. My friend's husband had the same surgery days apart from me and they had him in heavy PT and he had incredible nerve damage issues and pain and my doctors said going back to work in 3 months was PT enough. I didn't feel like "me" until probably a year and a half later....no pain anymore which was great, but my flexibility issues and trying to sit and move differently were a challenge. Also, got tired easily but it improved each month slowly. To be open...I am used to the issues involved because this was my second surgery - 1st for scoliosis in 1978 and this was for a total degeneration...actually a mni-salvage surgery as well as fusion as last ditch effort. I could no longer walk further than a room length without falling. I'm fused T2 through S1 so I'm pretty stiff - but pain is pain and he should definitely discuss this with his doctor....5 months later he should be able to go places, work, drive...if he's struggling than a second opinion would be my suggestion. I wish him...and you, the best.

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Memleigh, thank you for your history and hope. Having screws, cages etc. is major surgery and I am glad to hear that maybe by five months things will get better. You are certainly a survivor with all that you have been through!

I agree that finding the right Doctor is extremely important . I have had bone spur removal , cervical disc removal and my most recent operation from the neurologist. And although I am in pain , I saw the X-ray a week ago and was amazed and pleased everything was in the right place!

If the Doctor did not show your husband X-rays and explain and show what happened, demand it or get another Doctor. I am glad I chose a neurologist as to when it comes to your spine and nerves I feel they have the best experience. Hang in there!

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Just curious, I am still in great pain, but it almost feels like severe mental cramps! Anyone else experienced this type of pain. I also have trying to get thru to my Dr. And I am just being ignored by his assistant. Apparently they want to wait another week until I am completely out of meds. I am so frustrated and don't know what to do.

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