SpineUniverse Community Advice
Get help and share your story with others who know what you're going through.
Please register or log in to join the discussions!

Confussed and hurting mentally and physically

Started by Kris519t on 02/25/2013 1:34pm

Hi all I'm new here and found this site while looking or answers and thought I would share my story and see if anyone has any advice on how to proceed:

In 2005 I was in a car accident and was subsequently diagnosed with "dehydrating disc". Which had pinched a nerve in the wreck. I had two rounds of spinal epidural steroid injections and things were great no problems. Orthopedic md told me to just be careful what I do.

Fast forward to march 2012 I fell down my front steps and hurt myself again. Didn't really think anything about it and went in about my biz a few days later I was in PAIN so I went to my pa and she gave me steroids and a list of other pills over about four months finally sent me for an MRI then to the ortho the same day where I was dignoase with ddd at 27 I did more rounds of ses injections and they relieved most of the pain and I was released from the ortho and told to be careful and come back if I needed them. My pa told me she would keep me on antinflamatories and something for the pain if I over did it and needed temporary relief

16 days ago now while working on a rental property (family biz I have someone who does the hard stuff) I was sitting In the floor putting down peel and stick tile and I sneezed didn't think anything about it really but something in my lower back popped. Two days later I went to get out of bed and bearly made it to my living room before I thought I was dieing. I called my GPs office to make an appt only to find out my pa had left the practice but made an appt thinking the new one would refill my script (boy was I wrong!!!!). This man walks in disnt identify himself or anythig asked me what was wrong I told him and he said "oh it's a pulled muscle put heat on it take ibephrophin". (Mind you here I've been on meloxicam for almost a year and was given strict order from pharmist not to take ibephrophen). I brought this up and he laughed came over grabbed my leg and started jerking it around like I was a rag doll. I was already at like a 9 on the pain scale with electricity shooting down the back of my leg all the way to my toes. At this point I was crying like a baby on the exam table and he said I'm gonna give you muscle relaxers and steroids. I asked about refilling my hydro he said no you don't need anything that strong just take some iberphron you just had the hydro refilled (June of 2012. I asked when I was leaving just to make sure I didn't have a bottle I didn't know about) if you need the scrips that close together your addicted. I brought up that it had been June or July and he said sarcastically yeah ok and I haven't been practicing medicine for thirty years

I took the relaxers and steroids he prescribed and tyneol every four hours for the last like 13 days and have been unable to get off the couch except to go to the bathroom. I'm scared to death I'm oding on the tyneol because now I'm sick on my stomach I'm quite light headed every time I get up and my vision is getting blurry.

I called the ortho to make an appt only to find out that I have to pay off the 2500$ out standing bill before they will see me again (I have been paying on it little by little every month) being on a fixed income and having most of our rentals open because I have had to rely on others to do te repairs I don't have 2500$ just laying around to take and pay them. I'm in misseary my "future mother in law" says I should just make an appt with her husbands ortho and go see him but idk if that would make them think I'm drug seeking or if that would take longer to get treatment or how that would look

But this is getting really bad no matter how I lay it hurts I can't sit up because the pain gets so bad I feel like I'm going to pass out I have fallen twice going to the bathroom because my leg has went numb. I have thought about going to the er but they are just gonna send me home if I do. I feel like a burden to everyone and I'm getting so depressed

My mom thinks I've ruptured or herniated a disc and its pressing on the nerve because it feels like I'm laying on a large pebble most ways I lay. Two days ago I thought I had peed in my pants on the way to the bathroom because it felt like someone pured warm water down the back of my leg but I hadn't and yesterday it started being all tingly like it was asleep and hurting athe same time.

Sorry about my horrible spelling but I have had to post from my phone and I stink at typing on this thing. I'm just so tired mentally and physically and emotionally I don't know what I do

Do you find this discussion helpful?
2

13 Responses

Like/Dislike
0

Kris519t,
You definitely need to go to the ER the longer you wait the more likely to cause permanent damage. Some ortho's are really bad dr's. Get a refer all from ER for a Neurologist so they can do a nerve study and further testing.

Like/Dislike
0

I forgot one more thing. In my experience I also have similar medical problems. My pain led to also being diagnosed with major depression. Which I am still being treated for five years after injuries. I hope this helps you some.

Like/Dislike
0

Kris.... this is my first time too. I want you to know first I am praying for you to be pain free and that you also find a Dr. that cares and will help you. I know the pain, I have a "fragment pressing on my nerve' and the pain is greater than I ever imagined. 10 on my scale. It felt like someone was beating my left shin with a ball bat, the pain started at my back and sent down my leg to my shin. I could not stay on my feet, had to run back to bed and find some kind of position that didn't hurt as bad. Also weak on my feet, almost fell a couple of times. Anyway my Dr. tried prednisone with the packet that you start with high dose and end with real small. We did that twice and the first couple days of each it didn't hurt as bad, but then I got almost all of the side effects of prednisone. So then he gave me Nuronton and it worked. For two weeks now I have been without the excruciating pain. I can tell it's still thee but it is livable. You need to make an appointment with a new Dr. and (pray first before deciding who) and tell him everything and get an xray, CT or MRI - it took an MRI after my xray to really see what was wrong. Now they say mircroscopic surgery, you may need surgery. Almost every hospital has a fund for those that can't pay. Check into that if you have to have surgery. Also, if you have not been able to work not just for yourself getting rental property ready, but actually making money then go and see if you can get a medical card, sometimes it goes back a few month, maybe it will pay some of what you owe. Get verbal with this and get help and pray every step of the way. I have been healed several times by God, and have been wondering why I have going through this, he has taught me there is pain that I did not know existing. When he healed me of 5 ribs broken from car accident it was painful, but not as bad as this. It help me in knowing how to pray so I thank HIm for it. But I am ready for it to end and I pray yours does today in the name of Jesus. If you can let me know how things go. Anne777

Like/Dislike
0

I forgot to finish about my 5 ribs. On the 5th day in the hospital I felt heat go over all the broken ribs and the pain left. I had called for a pain pill 15 minutes before and she said I needed to wait a little while yet. So anyway she walks in after the heat and said "here's you pain pill" and I said "I don't need it". Wow it felt wonderful to be healed. Eleven days later I spoke (main speaker) and sang at a meeting with over 150 people. It was my first time to speak in front of that many people, but it didn't matter what I said I was a miracle standing before them. God is good.

Like/Dislike
0

hi kriss gosh My first concern would be get the pain under control. any orthos that have seen you before get somthing for you? either that or go to emergency room they should be able to help. If you have insurance thats good . If you dont get some cause the surgery you need is very expensive. good luck. I had surgery over a year ago 8 screws and rods my lower back is fused together. You may want to check out and see about some exercises my back will hurt I go for a walk and its betr. If you are bending a lot or doing things that may cause Irration to your muscles and nerves. Check out a tense machine mine helps me. lots of hot as you can stand showers.

Like/Dislike
0

Thank you all for the comments. First ill comment on the advice ect then ill update on the last couple days if that's ok. (I'm so glad to have someone to talk to who doesn't think I'm insane )

Lala3015-- I have really debated going to the er but I'm afraid they will be just like the new pa and think I'm just drug seeking and send me home wo MRI or anything and then it will be just a wasted trip of energy and effrot I hate the er. I know there are bad orthos I've been through two of them before finding the one I have but they merged with a bigger company and their financial policies changed big time and is ridiculous now. I am already being treated for depression from all the "mess" going on the last few years. But they ain't helping rigt now with all this new stuff

Anne777- I am going to see a new gp tomorrow ( I'm not sure where everyone is from but I'm from nc USA) and every ortho I called to see if I could get an appt said I need a referral from a gp. I explained my situation to the new gp and they understood I'm looking for help. Also as far as government help I don't quilify for any I've already tried. They consider the property as desposable income and it has to be sold before they will help. Over the last two years they have been out in the back burner because of my grandmother passing, my grandfather haveing multiple strokes my mother being very ill and now me. But when they are all running paying hospital bills wouldn't be as muh I a burden but gettin there is te hard part.

Larry -- since my ortho has went under a new parent company they won't even write me a script till my bill is paid off. I have done the hot shower. Well sitting in the tub

Ok so yesterday my....... Ummmmmm..... Idk what to call him "best friend" couldn't stand it anymore seeing me in all the pain I have been in so he pulled some strings with some if his friends and as much as I don't want to admit it he found me two pain pills (same thing I'm used to takeing). I cried for almost an hour while he sat tere convincing me to take them (I'm not one to take meds that are not "mine" and I really didn't want to take them but he finally convinced me to take it to get a little relief I made him promise to babysit me and not let me do anything that would hurt me if it made me feel better.

It made me feel better as far as the pain well kinda it didn't make it go away but it made me kinda not care it was hurting but when the pain "eased up" my leg was really really weak and tingly and it wa weird it felt like it was in hot water like a wet worm feeling but not to the touch. I was able to walk to the bathroom but as it wore off I was in just as much pain as before

As much as I hate to say it he is bringing me anther one today because I have to get off the couch today I'm not going to do anything stranous but I have an "Emergancy" at a rental and he doesn't know what to do I'm just going to supervise and sit there while he does it I'm not gonna move because I'm scared to.

I'm kinda worried about tomorrow though at three cause I'm scared a they won't give me anythig or want to start over with steroids ect or my insurance won't approve the MRI for two weeks agai.n this time if they want me to go to an otho I'm gonna suggest I go to the same one that my "best friends" step dad goes to I have been talking to them about all this alming with my mom and everyone thinks I have ruptured a disc instead of jus a simple pinched nerve but idk I'm going crazy.

Like/Dislike
0

Update. I went to the ortho appt yesterday and I heard both thigs I was scared to hear. I go on the fifth to have another injection which scares me because the last one almost made me sick. And my follow up is on the 27 th I'm not better we are gonna sechudual sugary. The ortho looked back at my MRI from mid 2012 and said there were several thigs going on in my spine that I defentlly have ddd (which scares me a little but I've gotta live with that but he said that there was a torn disc on the MRI which is probably now ruptured but now I'm more confussed (I was hurting so bad when I was at the office I couldn't think they were close to sending me to the hospital because my Bp was up so high). But I'm confussed on what the difference in herniated bludging and ruptured is and how they tell the difference on the MRI. I have been looking online bu I'm still lost :(

Like/Dislike
0

hello again kriss theres not to much difference in bulging ruptured the shot is a waste of time go in and find a good ortho surgeon that can fuse it and get you going again.if the disc is bad its not fixable inless it is replaced or fused and when its like it is now and you feel pain its not going to be any betr it will get worse over time. I have had times where I felt betr after a while then you think ok its betr then you move wrong and it worse then it was before. I had a mri last week I have been having problems with acking and soreness in my legs and hips. and got a f ollow up last thurday and I have arther on the vetebra next to where they fused just below it. surgeon says aleve take 2 evey day and it does help alot. I can tell the weather is going to change faster then the weather man. as of now Im glad I had my lumbar fused together.

Like/Dislike
0

The first set of shots I had did wonders and I was good for several years but the last set made me sick and wosey for a couple days. I don't like needles at all. They gave me valums to take but I still stay tense. My nervers are shot. I have been in the house all this time and I'm going insane. The pain pills are helping some makeing it so I can at least go to the bathroom by myself. I feel like such a burden to my mom (I still live at home --I'm not a dead beat or anything I stayed at home to help take care of my grandmother who had Alzheimer's ) right now I kinda wish I didn't because I feel like I'm beig a pain to her I know I'm not bit I still feel like it. I'm to the point where I just wanna go get dinner some where heck I'd be happy to just get in the car and ride around my home town for a while.

The ortho I have is good I've never heard anythig bs about them and they did my moms second surgery several years ago. I have faith in them but I don't thinkntsghe fusion he's talking about he didn't go into much detail (probably because they know me and know how I worry) I am just so tired and so drained you would think doing nothing wouldn't be that way but I feel more drained then I do when I used to work in rentals.

Sorry I ramble when I'm upset

Like/Dislike
0

So I made it through the injection. But I really don't remember feeling this crappy after the last one. Every time I get off the couch I get sick on my stomach and really light headed. Last time I felt like I was starving this time all I want is water and Popsicles its all that wants to sit on my stomach. It's weird. And kinda scary I don't like it is this normal or the reaction I had before normal?? One place says no more than three injections in a year this was my fourth in eight months

Like/Dislike
0

I am so sorry that you are going through all of this. It can feel so hopeless and depressing and being on pain medications can exacerbate this, although sometimes there isn’t a choice. As far as the injections go i was told up to 4 a year. My first 2 worked wonders and for months i was pain free, but any further ones didn’t last very long. Finally after years and years of pain and a worsening back, I had a 7 level spinal fusion which was extremely successful. I am totally pain free at this point! Anyway, my best advice is to find an excellent adult spinal specialist that you trust who can guide you through your specific issues and perhaps recommend the course of action you can/should take starting from the most conservative first. God bless!

Like/Dislike
0

hi kris591c
hi I am new to this too, I know what you mean about doctors they can cause the worst pain. I suffer with widespread degeneration in my spine. low disc space at L5/S1, mild disc protrusion at all lumber levels. narrowing of left exit foramen at L4/L5 AND L5/SI, Normal marrow signal apart from end plate changes and haemangiomata and joint osteoarthritis. I have been through hell over years I've been to pain management the first time I was on burn out, I went there with a open mind but they were saying it was in my head I said to them if I hit you with hammer on your hand where would the pain be she said hand, it goes to show what they new then. I take a lot of pills 32 a day and oramorph solution and I am still in contant pain 24/7 days a week I know what you are going through. Its a living nightmare I've begged for operation but the surgens wont touch me i'v seen so many but no joy. my heart goes out to you as I know about pain.half the doctors don't know about bad backs so it hard work for us we are just numbers its sad and we suffer. I just keep battling on we got to for our sakes but some time we feel a burden but we got to keep fighting.

SHOW MAIN MENU
SHOW SUB MENU
Cancel
Delete