SpineUniverse Community Advice
Get help and share your story with others who know what you're going through.
Please register or log in to join the discussions!

Spinettes Meet Here.

Started by upanddown on 11/28/2012 1:57pm

Let's start meeting here so we can keep track...What do you all think?

Do you find this discussion helpful?
0

31 Responses

Like/Dislike
0

O.K., anyone know how to create a facebook page? If anyone of the spinettes does, please do. Then we can chat back and forth in better time. (I'll try and make one too. The 1st one to make a page gets a hug and glass of wine:P)
Janet :)

P.S. Better hurry because I keep expecting the spine-universe police to kick us all off! (Just saying.)

Like/Dislike
0
Like/Dislike
0

Well I won then,,i have a facebookpage,im sippin my wine,,plenty of meds so im feelin no pain.U guys dont have a facebook page?it will B nice we can see everyones family photos..just go to facebook sign in using ur email and walah u have a page.i havnt beenon facebook so long let me go check what emailname its under,,ill b right back

Like/Dislike
0

took me two seconds,,in the google task bar above type in facebook.com and up will come ur page,,on the bottom right near tool bar "chat is peaking up click that n it will show whos on so we can all chat at once,,,any problems ill walk u through it,,,is any one on? otherwise leave facebook page up n when someone signs on it will show who,,tell me everyones status

Like/Dislike
0

once ur on facebook and u go to bottom right where it says chat a green dot will mean someone is available to chat, u dont have to close any of the tabs to flip back n forth till u guys get the hang of it....knock knock is anyone their yet. on my page r all pics of my family nieces and nephews..my maiden name is cerbone,,ullalso see my niece Rafaella podstupka,,im tryin to give u visuals,,my stefanie comes up..well im there so u owe me a 3rd refill

Like/Dislike
0

Im waiting,,is anyone on,,,tick tock tick tock

Like/Dislike
0

How long do I have to stare at the screen B4 u guys figure this out,,lol
atleast give me a time to meet or a signal that ur workin on it..Ill B drunk by the time u do.We need to designate a daily time.

Like/Dislike
0

I'm trying...lol

Like/Dislike
0

After U get onto facebook.in the center top type in persons name hit search and it will send a request for us to accept U, once accepted you can read our pages and chatlike I told U on bottom, but U have to send out request first, Trish I put yours in as u wrote it but nothing comes up which tells me u havnt designed a page yet..for me just put in Rene Maiello.it will show shirley ny send request as friend I will accept and vi vers and we have to do that for all of us to chat

Like/Dislike
0

Ill check back at 8pm im hungry

Like/Dislike
0

Rene I sent you a friend request, JANET you have to tell us what your name is on FACEBOOK AND DANA TOO

Like/Dislike
0

Janet (Hall) is this you.? I sent a friend request to this Janet in Kansas Lol let me know

Like/Dislike
0

Lorine and Trish, I accepted your request,,now I get to see what U guys look like ,what a beautiful bunch we r ,,Lorine I love ur santa hat,,,,,and no thats not my normal skin color I just Tan really dark, that was taken in Jan2011, we went to punta cana just B4 my first surgery,,normally we would go every January as a family N then I would go in summer w/girl friends..This is the first January in 12yrs that we r not going, I went last summer after surgeery,then I went in February 2012 just B4 my august surgery.I call it my happy place. so I shouldnt complain I did get there this past february,,missed this summer vacation and now im missin this January,,,But im determined,,I will get there soon,,and Im draggin U guys w/me,even if I have to p/uthe TAB,lolso now that we R linked to facebook can we get out of here n start chattin,,,next step is skyping,on facebook we can exchange phone #s,,have U guys ever skyped..its cool, the computer rings like a telephone,,,,so whr is everyone this mornin,,Im havn my coffe waiting for one of use to get on. @ Janet u didnt tell us what happened yesterday at docs. ill switch back to facebook and wait for one of u guys..Rene

Like/Dislike
0

Rene, I sent you a friend request. Trish, for whatever reason that wasn't an option when I tried you. Lorine, I also sent you one. Anyone know about Dana?

Like/Dislike
0

I have a facebook. too.... sent requests to Rene and Lorine, wasn't able to get Trish. Janet I didn't know your last name....

Like/Dislike
0

So what, ? Now all the spinettes are dumpin the site to go to facebook. You guys are like the life of the party, make sure you still check up on us: )

Like/Dislike
0

Hey Justin,
We didn't leave leave, just got together for a chat. :)
Janet.

Like/Dislike
0

I went to see a new Dr. yesterday and I can't believe it's letting it bother me this much but here I am.
I'm more mad at myself for being upset than at the Dr. at this point. ( I think that Dr. would like her job if it wasn't for the patients she had to see! Damn sick people.)
Wow, and I paid to be treated like that. I mean I sat in her office, she has never met me before and says to me, "hmph, what do you want today, more downers?" I said "Downers?" ( I take a sleeping pill, a pain pill and a muscle relaxer.) I told her that no, I didn't want more "downers" what I wanted was to not hurt anymore, to be able to at least clean my house, drive my car...The regular every day things she gets to do without hurting so much I can't think outside of the pain and if she had any suggestions, I was all ears!
I'm so, so, so...I don't even know. This isn't going to get any better, and I'm gonna need "downers" for sure if I have to go through this crap every month! I should just call her office and ask for a high dose xanax , just one pill for when I have to see her next! ( Which I wont of course, I'm going to find someone else.) God help me, that Dr. drove me to have more than enough wine last night! And, add, plus, also, I've lost my voice! I must have bitched about it yesterday because when I woke up at the dreaded 4:00 a.m. my voice was gone! Great, now I really am gonna suffer in silence. :(
Sorry to have had to write this. I really shouldn't care what someone who doesn't know me thinks. But I guess I do or it wouldn't bother me.
Is there anyone I could complain to, like a complaints office where she works? Do small practices have one? I finally understand what others have been talking about, I'm really sorry that not only have we been injured, opened up and altered and still be in pain, but have to injure insult to injury every month because of it. They should be ASHAMED!
There, I would write more but I type at the speed of cold molasses and my coffee is getting cold.
Thanks for reading,
Janet

Like/Dislike
0

Its normal to be upset bout it, that is some b.s., you should post the docs name on here, so we can find a place to write a review, . And def try to find a way to report that, not in the least bit professional. Just remember that anyone who has never been through this will never be able to understand, and if they are just plain ignorant, they'll understand much less.

Like/Dislike
0

upanddown - i believe the medical profession has a medical review board that they answer too. Even though this doctor is in private practice, she is still liable to report to a "state"medical board. Find out who they are and let them know how unprofessional she was. They "state boards"(i believe) must attend a cultural/sensitive course annually. Find out information from there. I think doctors forget that the patient pays there bills and if you are not treated properly then you will just have to find a new doctor. Do you what you need to do for yourself and I hope this helps.

Like/Dislike
0

rene Maiello I just sent you a facebook friend request.

Like/Dislike
0

Wow, what a few days. After that visit with the new Dr. I just went downhill. Of course me being me (and being very good at cutting my nose off to spite my face), I decided it was time to feel how far I've come and NOT take anything other than ibuprofen...I'm a total IDIOT! By the morning of day 2, I couldn't move.
On the "up" side though, is when I had my 3 month post op. app. with the surgeon on Monday, I told him the truth... That while, yes, while the arm pain is mostly gone, the rest is just as bad or worse, and if this is how I have to live...I don't want to. If I have to suffer not just the physical pain and all that which comes with it, but the condemnation I when I ask for medicine...No Thanks!
Long story short, he's setting me up to get a c-spine myelogram. He believes what I'm feeling is referred pain. So we'll see what happens.
The lumbar, even as painful as it is, is as good as it's going to get.
Soooooo, I guess we're all going to have a merry little Christmas???
Sorry for the blah blah...
Janet. :(

Like/Dislike
0

Oh Janet, I know how it all brings us down. Here's how I felt this morning at my post op visit. First time I'm seeing surgeon since hospital. He comes blasting in the room computer in hand open with my latest X-rays... He sits and boasts out about how everything is perfect!! Everything is in perfect placement blah de blah de blah blah.... I felt like a car, the hood was open and he was giving it all a last shine... ( his face as he looked at his work via the X-rays on the laptop) plop he closes the lid and says .. So your doing well I see! I went on to tell him that I was not happy that Percocet is not to be found anywhere in this county and the Vicodin wasn't helping as much as the Percocet. He said well its okay, you'll feel better soon and it's time to start weaning down and stretching out dosages of pain meds..I said ohh so guess I can expect to be pain free pretty soon then? He said I didn't say that.. I said then what r u saying, that I should just endure the pain because according to your dates I should not require narcotics? He said I will keep your pain managed for another month then I will refer you to pain management doc of your choice to continue managing. When I attempted to discuss the nerve pain in my r leg to my toes... He said yea well everyone feels it differently. Ok then.. We'll see you next month.
Soooo there ya go... This is a universal issue Janet. These Docs are scared to prescribe. That's the bottom line. And PM docs have now placed themselves on a thrown wearing tee shirts with the letters
" I AM GOD" printed on them. And you think the mugs and tee shirts I designed were funny? I'm not LOLING anymore because what I first thought was humorous has turned out to be the truth...

Like/Dislike
0

I'm so sorry Trish, for you, me and everyone else who's going through this.
Janet

Like/Dislike
0

was just wondering, I know Rene had mentioned she did all her xmas shopping online through amazon, has anyone else used it. I've got quite a few more things to get and have just been wearing myself down looking at places and not finding what I want. But have always been reluctant to order and use credit cards online. That may change quick though as I overdid it today and am paying now, but that's just a neverending story that most of us have to deal with. Is it a safe site to use, if anybody knows please get back to me

Like/Dislike
0

Justin, I've never had a problem with amazon. I was like you until last year (reluctant to use the internet and credit card), I really don't think it's any more risky than anywhere else. We even buy tires online! I hear you on the "over doing it", I caved and decorated the tree, just the arm movements had me on my knees. ( The tree looks good though.) :)
When are you going in for your procedure and did you get your mom in to see the doc about those heel spurs?
Janet. :)

Like/Dislike
0

H, i Justin, hows things been,,us spinettes have been meeting up on facebook alot so we can all chat at once,,,we have alot of laughs,,come join us send me a friend request and ill accept it,,put in my name and town which is shirley ny. as far as amazon I have been using themfor years, their customer service is great on returns and its a secured site,,never had an issue. stay well lok forward to hearing from u,,Rene :)

Like/Dislike
0

La Nisha, ill look for ur request and accept it,,send another just incase i didnt recognize to request it, ill check now.

Like/Dislike
0

Thanks Janet,and Rene. I'm gonna try it out. And yes I was able to get momma in to doctors for the heel spurs, they did xrays and prescribed her some orthopedic insoles,and I actually talked her into an ozone injection, which seems to be helping her out so far, I think its kind of a gradual healing process. As for me, I've been ok, things are turning around a little. Disability was approved also on first try and only 2 months, even though it seemed twice as long. They paid me backpay and went over what they should have because my work comp kicked back in also, so now I'm gonna end up hafin to pay them back about $1500, not really sure how that works. Just hoping it don't give the adjuster another stupid reason to cut off my work comp again, and my surgery is set for the 14th of January, at least I'll be able to spend xmas and holidays with family and even though in pain not in bed all day. It took a long time to kind of get into xmas spirit this year, but I hope everyone else has been able to. :)

Like/Dislike
0

Hi Justin,,,,not that where in the xmas spirit,,but where trying to force ourselves to be,,The pain isnt going to go away so my philisophy is,,if its gonna be painful eitherway,,I might as well enjoy it ( or try to ) either way.I do it for my kids and family,,,and me, i guess. We cant let this rule our lives, as it does..and by shopping online its like receiving a xmas present daily in the mail,so thats fun.Amazon is great,when ordering try to choose the sellers that dont charge shipping,,I find it a big savings,,their prices are great, they dont charge sales tax and I choose the sellers that dont charge shipping, so between the both its all in our favor. Have fun shopping,,stay well, and dont be Bah Humbug,,it will work in your favor,,I promise,,,Hope mom is feeling better. Enjoy the holidays...xoxoRene PS join us on facebook,either put in our names or give us your last name and state you live in and we;ll send you a friend request.

SHOW MAIN MENU
SHOW SUB MENU
Cancel
Delete