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Doctor recommened Pain Pump, Anyone have one? On Disability

Started by debbie63 on 10/10/2012 12:52pm

My doctor recommended the pain pump, for I have 3 disc Fusion, and have degenerated disc disease. Has anyone have one. Also I am on disability, Do they consider this, so that you can work. I am trying to get more info, so I can make a decision. Thanks Debbie

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Also mentioned the stimulator, but I have heard all negitave things about that.

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Hi Debbie,,,I had numerous patients when I was working who had the pumps inplanted,,I found they had great results,Keep us informed on your decision, Rene :)

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IMHO, You can get the same releif from oxy and not have stuff hanging on you.
I was on 60mil oxy 3 timesa day just as good.I think.Good Luck.

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my question is ive had 4 cervical neck surgerys and 3 back surgerys, two medical spinal stimulators implanted and then taken out been through 2 inpatent pain programs and got adicted to oxycontin i got help getting off opiates and switch pain clinics but my question is the new doctor wants put pain pump in me and im scared about getting hooked again ive had severe chronic pain for 23 years and the worse is work comp is pushing me to go back to work i just dont get it,days i cant barley do anything

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I think oxy pills will help you more if keep under control.I have been there. Good luck.

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Debbie,I was friends with a man that works for WC in NY. He told me after a lower back fusion 1 out of 10 go back to work. So don`t let them push you back to work start saying to them you are in LOTS of pain. Your going to be out till you feel better. I hope this helps. It made me feel worse. I don`t know much about the pain pump. Why I didn`t go with it YET what happens if it dumps all the meds in you? Then how often do you have to have it filled? We all have to live with what we do. I just had a SCS I`m having some complecations with something so simple.Sam

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Hi all, I am going to the pain management tom morn, regarding getting the pain pump. I take 3-4 Norco's a day and 2-3 flexril a day. I have been on meds about 3 years straight now, and they do not work anymore. They never took the pain away anyway, they only help a little. And the side affects dont help either. I also ware a back brace and leg brace and just recently got a wheel chair. I have been reading alot about the pain pump, because I dont know what else to do. I am also appealing with SS Disability, because they seem to think I can work now. I have gotten a free attorney from the Chicago Bar Assoc. So I hope this helps, I will let you know how the meeting goes tom with pain management. Also any help with this subject, I appreceiate.
thanks Debbie

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I have also heard the pain pump works better then the spine stimulator. But hopfully I get more answers tomorrow.

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Hi all, I had the pain pump implanted in Nov 2013, and for the first 3 months was working pretty good. I was on clonidine and dilaudid any getting a little dizzy so my doctor put me on fentenal and forgot to put the clonidine in and I had a clonidiine withdrawal. and ended up in the hospitial. I am currently working with a cardiologist and pain doctor to get my meds right. I am back on clonidine and morphine and my blood pressure is up and down. also on bystolic fm cardiologist. Anyone with these types of problems, wanting to find someone to talk with, so I can get some help.

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I have had 5 back surgeries over the past 17 years. After my 5th I went with the Medtronics Intrathecal Pain Pump. I have had lamenectomies, spinal fusions, pedicle screws and clamps inserted and still had serious pain. I have now had the pain pump in my abdomen for 7 years. It is scheduled to be replaced in Dec. 2014 as the battery lasts 7 years. Affter the initial stages of titratiing it to find the right amount and mixture of dilauded, marcane, clonodine combined I am thrilled to say that the pump has given me back my life! Most of the time I am almost pain free. If I strain myself I might aggravate the scar tissue and experience pain, but that is rare. I swear by the pain pump, I travel the world now, every year and no longer worry about the chronic pain. I do have some limitations, such as long periods of time standing in one spot can be painful. I work around those situations that I know can cause me pain. On a day to day basis I work full time and feel quite lucky to have responded so well.

Rich Gair, Orlando, Fl.
rgair@cfl.rr.com

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I had a Medtronic Intrathecal pain pump implanted May 2015. It started with Prialt, a non-narcotic but very expensive and has side effects that are frightening. After a couple months my pain wasn't controlled and doc switched me to plain Morphine Sulfate. It has been a miracle! They say if there's a 50% reduction in pain it's considered a success. Some days my pain is a zero! I take breakthrough meds Norco 10/325 @ 3/day if needed and Zanaflex for muscle spasms. I am on disability and although my pain is greatly reduced, I cannot return to work as standing, lifting, bending, twisting etc still exacerbates my pain. My hope was to return to nursing but that's not realistic once I tried working again. The pump may be relieving a bulk of my pain but it's not a panacea.

I'm seeing my PM doc today for a refill. They usually refill every 3 months as the efficacy of the drug goes down and at 4 months the medication is about gone. There's a port in the pump that they stick a needle in, withdraw the old medication and insert the fresh batch.

I'm on edge today as my doctors contract with my insurance (Medi-Cal) ended a couple months after putting the pump in. I fought with my insurance to extend his care as I had JUST had it implanted. It was the last thing I expected--to have a medical device surgically put in then have the Doctor leave the insurance plan. I like my PM clinic so much too and am terrified of not being able to find a pump doc at all or one close to me that accepts my insurance.

If I can't find one, my choices will be to have saline put in to keep the pump patent (it cannot run dry) and get back on stronger oral meds which is so disheartening as the pump meds only require 1/300 of the oral dosages. There are opiate receptors in the spinal canal and that's why the pumps work so well. The medication bypasses the liver so you're not metabolizing the med like an oral med. They told me I have to talk to my doc today as my extension ends in a few days. I'm scared and feel lost. As a nurse I consider this a Continuity of Care issue which is how I obtained an extension with the Doctor even after his contract expired. I know Medi-Cal is not a moneymaker and the offices are overrun with patients on disability insurance but I still feel shoved to the side.

I picture my alarm going off in 3 months and having No one to refill the pump, causing it to malfunction. I'm usually an optimist but having something surgically implanted makes a huge difference. Aside from my own issues with insurance, I'd recommend the pump highly. Just make sure your doctor is going to continue his insurance contract.

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Hello debbie63 I'm not sure if you get any of your questions answered considering that it is now 2016 but I have a pain pump and on disability but I was told that my ddd is real bad and I'd probably not ever go back to work but with that being said I've had my pain pump now for just over a year now and it has helped me in a lot of ways now I am still taking meds yet but the doctor will eventually be taking me off of the meds and I will only be getting just what the pain pump provides. Just before the pump was put in I was told that I had two more disc that were in their way out due to the disease and was told it would eventually take over my whole back. I hope this helps a little bit and I'm willing to help with more info if needed.

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Yes, have had morphine pump implant 1 year today. Has made a positive impact in my life, nothing hanging off your hip, not feeling stoned. You might have to take breakthrough meds but very little than you used to. Two companies have the pump.

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Hello Debbie63. I myself have a pain pump and have the dilauded in it I've had it for going on 2 years now and will soon be taken off the oral pain meds. My pain pump the only time that you have anything hanging off from you or tubes coming out is during the trial period and then if this works during this time you will get an inplanted on just uder the skin and will never show. I've had the spinal fusion and I've got the degenerative disc disease in my back and most not all of my pain is gone and with my pain doctor you can get morphine or the dilauded which ever you may or may not be allergic to like I was. However I will say this since I have had the 2 surgeries and the pain pump I'm on disability and my docs are saying that I'm not going to ever work as this will end up controlling my life and I won't be able to work but others are different. The pain pump has helped me but I still can't do everything that I use to at all. I hope this helps and you let us know what you decide upon... One last thing you yourself do not get to push a button to give yourself ups upon ups and you don't get more in the pump until its time to get a refil so the over dosing isn't as easy cause your doc controls all your doses and increases and all of that... Good luck and prayers to you

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