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Spine Solidarity...any and all responses welcome.

Started by 1816725287@facebook on 04/09/2012 7:24pm

I am in my last couple days of waiting for a spine surgery and was desperately searching the internet for someone or something to relate to. I happened upon this website and feel that i should share my story with some people who understand my suffering while I wait for my friday morning surgery. I am desperately looking for some solidarity because of my horrible personal spine history. I am a 21 year old female who has been suffering from level 4 spondylolisthesis for the past 7 years of my life and my spinal fusion scheduled for friday will be my THIRD major spinal fusion. My condition was not caused by an accident or injury, it is a naturally occuring skelatal condition that caused my L5/S1, vertabrae, to slip all the way out. This first slip was grade 4 and it was 7 years ago, i was just little high schooler, and i got diagnosed on a monday and was in for surgery that friday. I had no choice because it was only days away from paralyzing me. I jumped right into it thinking it would be similar to the 3 hip surgeries and body casts i had endured as a child. (also due to natural causes) i was very young and very wrong about the complexity of my first spinal fusion. It was nothing like my hip surgeries. Most of the entries I have read on this site about fusions have all nailed it on the head about the recovery time, pain, the eating habits, organs going to sleep, PT. And because my case was so extreme and so unheard of for my age you can go ahead and take all those different things that I listed and multiple them by a million. I was in a body cast, my hospital stay was 11 days, needless to say it was a nightmare. but i conquered that mountian and i recovered! for about a year i was pretty much pain free. then i ended my sophmore year and was back to HEAVY narcotics and alternative pain therapy, all so i could painfully graduate high school. as soon as i graduated i was in for fusion number 2. my first fusion failed, my body rejected the fusion and i became a mystery case study for the entire orthopedic staff. my second surgery was met more agressively with new technology in the form of a bone growth protien called "bone morphogenic protien 2" (BMP2) and of course the hardware that comes with every surgery (screws,pins,rods). But you guessed it FAIL!!! since that surgery I have been home bound from the horrible pain i go through daily, from the moment i open my eyes in the morning....to the moment my eyes close at night....my pain chases me down, holding me back from my life. my health, my mind, my heart, my family, my soulmate and my overwhelming need to live life full and free. I can only describe my reason for another surgery that to most looks like a suicide mission as a last chance to live the life i deserve. A life that has passed me by for the last 7 years, and those 7 years where meant for growth, learning, and enjoying the perks that come along with a peaceful suburban life with a loving family. Instead of that i was being swept away by a life altering event that led me down a path of early maturity, extreme self awareness, and an emotional journey of self actualization. My whole life revolves around a very large regimine of narcotic pain killers and that is something i refuse to be stuck with for the rest of my life, i struggle with the strong grip of opiates and how much they control me. I am done with this pain and everything that goes with it. My third surgery is on friday and all i am looking for is something from my fellow patients that tells me im not alone. because for a 21 year old girl with my spine history it can get very lonely. I am just sitting here on my computer writing my story to you guys, feeling so scared and unsure to turn my life upside down again. Any words from anyone would be much appreciated.

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Hello,
Even though I haven't had 1 surgery yet. I say and pray that your third time is a charm! Sometimes you need 3 to get it right. Technology is changing so rapidly that they have better technology now than before!
I too am in my 20's (28) grade 3/4 spondylolisthesis depending on which scale you judge it by. with out any trauma. I understand how lonely spondy makes us. I have lost most of my friends. I never go out anymore. I am struggling to keep a job. Good forbid date or do what others in my age group are doing. I feel like I am being left behind while my friends are living their happy ever after.

I am planning on having surgery in October after my cousin's wedding in Hawaii. I hate not living and just existing.

I really hope this surgery gets you the results you deserve!

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I''m 51 and had L5-S1 fused in April '09 and consider it 90% succesful and then had T11-12 fused Oct '09 and that has caused rapid DDD next 4 levels up. Can't imagine going through what you have been through at such an early age. The letdown of failed back surgery can devastate you. I hope you are well on your way to a full recovery by now.

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Here's a *gentle hug* hun!! *hugs* you are a brave soldier through your battles!! U may have lost a few battles, but the war is yet to win for u!! U sound like a remarkable young person who must of needed to take this journey to become who u are today!! I hope THIS surgery took, and the lessens you were meant to take away from this experience has been achieved so u can move forward into a whole, and healthy life and future!! Please keep us updated on how ur doing since your surgery!! Your in my thoughts, take care.:-)

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Spine Solarity
I feel awful for you. And I'm right behind
You . Would you mind e mailing me.
Hairthehman@gmail.com
I just feel more comfortable talking
Soon I hope!
Thanks
Hairthehman

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Sorry... Hairthehman@gmail.com
I'll be up
Thanks!

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Hi Janelle, I know you want to hear good stories about the surgery your having friday. Just remember and the ppl that have the good stories aren`t on this website.Were all the ones going into the spine problems or the one`s that are still fighting the pain. I `m having a SCS put in on thursday so I`m a wreck and that`s a nothing surgery.I know how you feel at such a young age. As someone said this will be the surgery that FIXES us both. I wish you the BEST of LUCK. Sam , Facebook me if you want.

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Hi Janele,,please read my heating pad blog,,Rene

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HI Janelle!

How are you these days? I hope better!

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Spine Solartiy,
I'm going through pure hell trying to find a Dr in the Mpls area that doesn't mind writing out a script or two. My central pain is just getting horrible, after the VA cut back everyones pain meds. They don't know what you've gone or going through and I'm in pain so much and you know how hard it is.
I make an appt with these Pain clinics and oh, we don't do anymore than a few percoset or something.
Im DDD ridden, with herniated and bulging discs.
I've tried some injections, nothing. No their gonna cut cords! And my nuerophathy is intense as lightening. Can you help?
Hairthehman@gmailcom
Thanks Harry

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Thinking about you and sending love and healing light!

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