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Bone overgrowth from lumbar back surgery using Bone Morphogenic protein (BMP)

Started by bethbg on 06/25/2011 7:19pm

OK, here's is my first posting and while I hope to receive responses, it may also mean that I am certainly not one of the few to have been diagnosed with bone overgrowth after lumbar surgery.
History:
October 2010 - fusion and decompression right side of L4/L5
November 2010 - decompression left side of L4/L5
December 2010 - decompression at L4/L5 due to bony overgrowth

Post November 2010 surgery I developed left foot drop. While there is some improvement, I must still wear an AFO. This is after 3+ months of physical therapy.
April 2011 - developed right slap foot (almost a foot drop) and discomfort that has blossomed to my taking anti-inflammatory and pain meds. Even with the medications my pain level is at minimum a '5' but generally a '6/7'. A recent MRI shows bone fusion but the hardware blocked the original surgical area. A CT and EMG are to be performed in July.

Per NS, he believes I have developed another bony overgrowth that is pressing on right leg nerves based on my symptoms. The tests should confirm his diagnose.

Have you or do you know of anyone else who has been diagnosed with bony overgrowth after use of BMP?

I so appreciation your response.

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14 Responses

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I have issues with bone overgroth also. I had a fusion on l-5 s-1 in may of 2008 and never been right since. They used that BMP and within 3 months after the surgery and me complaining to the doctor they dod a MRI and a CT MEYLOGRAM and it showed the bone displacing the nerve root at L-5 .MY doctor did not cut me to fix that he blamed the pain in my back and legs on granulated scar tissue. He tried epidiural shots that didn't work and said he wanted to do exploryity surgery and do a fusion on L-3. I found another doctor and in Jan 2011 they did a decompression- laminectomy on l-4, I-5 and S-1 and was told before surgery that because the nerves were pinched so long that there is a 50% chance of permant nerve damage.I had Moderate Stenosis and the first doc. missed that. Six months later I am not much better. Let another Dr. look at you to make sure your doc. is not missing anything.

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Hi I had a fusion L5-S1 in 2003 and two surgerys following. One to remove the hardware and one exploratory. I live in pain everyday! I have tried everything even injections which do nothing. At night my legs hurt sooo bad and my feet too that I can hardle walk. My left leg is worse than my right foot and sometimes I feel like I want to glue a pully system to my feet to make them move. It feels like I have an invisible person pushing on my lower spine! The doctor that did my surgery released me in December 2009...said there was nothing more he can do. I do not have a current doctor because I live in rural part of Pennsylvania and I would have to travel for hours before finding a doctor I can trust. I have never heard of bony overgrowth, is their a website that I can find more infor on this subject?. I have no idea what to do....All I do is cry! I am 51 years old but feel like I am 100. I take Ultrams all day long and they do nothing!

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Thanks for your replies bayouking and julieg.
I have an appt with a different NS for a second opinion post July testing. Unfortunately this NS has not treated patients for post surgery bone overgrowth so I am somewhat at a loss as to whether I should see him. I too live in a more rural area and while my original NS is in the SF Bay Area, it does get costly to drive the 500 miles r/t.

I empathize with you on the leg and foot pain. My NS still released me to return to work after I had called his office several times to complain about the onset of new symptoms. I pushed back harder until he had to see me and now realizes something is amiss. Bony overgrowth is a listed side effect listed with use of the bone morphogenetic hormone (bmp). Typically in spinal fusions, surgeons take a bone graft from the patient's own hip and use it to reinforce the fusion. The bone growth protein, when used, replaces the need for a bone graft.
There is very little information online about this side effect other than the FDA site and the EHealth Forum.com – blog. You can get info on other patients who have a myriad of issues since their diagnose/surgery(-ies).

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I believe it would be helpful to have a second opinion from a spinal specialist if there is one in your area. I had good results from my spinal surgeon fusing L4-5 which already had bony overgrowth. That was 8 yrs. ago and I have been mostly good in that area since.

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Hi, I am sorry to here of your medical problems.You asked about " bony overgrowth" this appears to be common. Not necessary good. You can research this for your self. And develop some good questions basic on your research.

Go to Google and type in "bony overgrowth" and a great deal of information will come back. You have to filter out the parts that don't apply to the ones that doe.

Your best source on this is your DR who has all your information and test and can explain the main factors involved with this problem.

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Thank you for your advice. With a CT and EMG performed last week I meet with my N/S this afternoon & shall follow up with test results. A second N/S opinion/appt is scheduled for this Wednesday. :)

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Generally, when it comes to surgery, "practice makes perfect," so more experience is better. However, if the doctor is recommending something that is not often done, such as multi-level fusions, more experience would not necessarily be better.

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I'm so sorry.

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BMP: Bone Morphogenetic Proteins does not sound like fun. Search in Google for "BMP: Bone Morphogenetic Proteins" and there are several links including on this site.

Just wondering with all the medical issues that you have are you able to get into a warm therapy pool? It would be very relaxing... maybe doing some small exercise to see if you can get more movement.

Hope that you acquire all your medical records incase there might be some medical issues that can come forth.

Keep us posted on the developments.

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A lot of pain. Anyone had a hard time finding out if the protein part was used to cause spine overgrowth?

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Hi Beth, I went for my L3-4 fusion told by my surgeon he cud fix me 7/22/10. I had my nerve canals blocked as you did left side real bad. I went to a laser center in Orange N.J. the Surgeon there fixed my leg and foot. He help me with my 3000$ deductible he paid it for me. Go to the doc that started the now BIG center. He was a open back surgeon but he seen what he was doing to people and stop. Please read my big thread on here under SAM227. I hated laser surgeons 4 years ago. Now if you don`t go to this one your never going to be pain free. I never will be cuse I had the open fusion but my leg don`t feel like a 18 wheeler Truck is rolling on it. SAM

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I have the same problem and bone has grown everywhere in my spine and is pressing on my nerves

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I have not checked in here like I should have, for my own good. Do ANY of you know if there are Dr.'s that are seeing patients with this?! I finally have found a Dr. that will treat the Rheumatoid Arthritis. That is advancing seems like monthly. This is scaring me to death knowing my whole spine is covered over. I know without a doubt the lawsuit will only be settled if ever after my death. Love you all for being here!!!

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Please understand you are looking at a back fusion you have a bad surgery ahead. We are.on here after we wanted to go back to work and be pain free. That is a good dream. One out of ten go back to work after a back fusion. My pain management doctor told me to get the SSD right after surgery. She's a doctor that regrows Brain cells for people. I couldn't believe my life was over at 47 but as I knew it,it was. Yeah I cud tell you all the sad stuff ALL you r living though. All I can say is keep trying things. Life with pain sucks. Make sure you have 1 thing to get up every day. Even if it's a pet. I had 2 years that we're bad. It's hard to believe in the new you. No one else does. Sorry for my life Sam

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