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Had full fusion with the Harrinton rod 1984 now 41 and living in pain hell with herniated discs, chronic pain and feel so alone!!!

Started by Bubbles on 04/11/2011 1:14am

HI Everyone,
I just joined this site and I hope to meet up with others with similar issues so we can advise one another. I had a full fusion T8 to L4 with the lovely (not) stiff harrington rod. I am now 41 and am a professional teacher missing 30 or more days of work a year with all the vacations and holidays because below the rod my discs are smashed, and I have tons of other chronic pain problems. 41 going on 90.
Here is what I have:
~the rod is so stiff I cannot straighten up for a about 2 hours in the morning and sometimes like this weekend all day as well. Stooped over, was checked for flat back syndrome and a doc said I didn't have it!?) aka MORNINGS ARE HELL and I cry a lot
~Nerve pain going down both legs
~constant back spasms
~on a rollator a lot which is embarrassing and unbelievable as I "look" in great health
~Numb leg to ankle often
~constant pain
~started on oxys 3 15mg a day and its not making a dent other than making me a ditz
~sick and tired of being sick and tired and aching
~considering getting an xlif surgery on June 3rd.
~getting new catscans, mris, and xrays this friday and will see the surgeon on Sat April 15th., 2011

PLan A the surgery restores me to being able to work without a pain level of below 5 and I will continue working as a teacher
Plan B going on disability as a single mom of a 13 year old, you tell me how I am going to do that?????

Anyways I am freaking out AND would really appreciate knowing someone going through similar stuff so we can help one another. My family that decided to get this surgery for me when I was 14 have said "I love you but I cannot help you" so no family support. It feels as bad as the chronic pain.

What does work:
~massage, myofascial release anything relieves the pain, touch touch touch.....
~inversian table, I hear my spine unfold crack crack crack and then I am upright in the ams as long as ~I dont bend again for anything....my daughter loves that poor thing.
~more massage, ahhh relief, for a few hours
~my tempurpedic bed is good
~sometimes I can walk when i get straightened up
~ice my back every day

I hope to get connected to people who are living this private hell...........its so lonely and people just dont understand.....
Much Aloha,
Bubbles

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Don't give up! I had surery after surgery (8). Worked very hard with my body all my life. I finally found a Dr. that would operate on me and he helpped me a lot! It was very diffecult to find him. I take a lot of meds and I found heat to help and a way to relaxe the back. I take lorazapam, a small dose and I cut that in half during the day. The problem is staying awake. You have to experiment with what works for you. Chances are you are always going to be in pain, you just have to fine a way to deal with it. There is a doc out there that can help you, just don't give up. Doctors are like teachers, there are good ones and ones so good you will never forget!

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Hi Bubbles,
Wow,i am so sorry,you are so young to have all this.I too am in my private pain of hell,and i am tired of unloading on family,this is why we are hear.Please write to me anytime,try not to give up on hope,My husband found a doc who fixed his back after 2 botched surgeries.Find what works for you.I am too facing a permanent disability status as i can no longer go back to my work as a nurse which i did for 29 years.
Take Care,
Blessings,
Nurse Nancy

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Hi Bubbles,
Wow,i am so sorry,you are so young to have all this.I too am in my private pain of hell,and i am tired of unloading on family,this is why we are hear.Please write to me anytime,try not to give up on hope,My husband found a doc who fixed his back after 2 botched surgeries.Find what works for you.I am too facing a permanent disability status as i can no longer go back to my work as a nurse which i did for 29 years.
Take Care,
Blessings,
Nurse Nancy

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HI All,
Thanks for your replies. Nurse N I may be going on permanent disabiltiy also. Have you started the process?
I had the worst day yesturday and a better one today. I am still teaching 30 more days til schools out and 34 til possible surgery.....
Talk to you later,
<3

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Hi Bubbles.....i love your name,
As a matter of fact ,i have started process with social security disability.I got denied first time(which is normal)and i have an attorney working on my case now.Thank God that we have the good days along with the bad days,sometimes it seems like a balancing process,but i believe we have a merciful God who will not allow us to suffer beyond what we can handle.Hang in there with everything and remember you have all of us.
Blessings,
Nurse Nancy

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feel better

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Dear Donna,
Wow,i wanted to cry as i read your story,and i feel that i have nothing to complain about.You must be a remarkably strong woman after everything you have been through.I pray you will be able to have some better relief one day.It is good we have this site to connect and support each other through.
Take Care,
Blessings,
Nurse Nancy

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Dear Donna,
Wow,i wanted to cry as i read your story,and i feel that i have nothing to complain about.You must be a remarkably strong woman after everything you have been through.I pray you will be able to have some better relief one day.It is good we have this site to connect and support each other through.
Take Care,
Blessings,
Nurse Nancy

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Thank you Nurse Nancy
i lean on God and his strength . All i know is that i was dealt this hand and as a person of faith i know God wont ever allow me more than i can handle.

I hope u get better as well

dd

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I know I am just telling my story here in detail, just want you to know that your not alone, and I am so sorry for all you are suffering through.

Employment Position: Highly Qualified Texas Certified Social Studies Teacher
Hire Date: 08/2004, length of employment 7 years
Prior to the injury on 10/14/2010, I was in excellent health. I played golf, was a rock climber, scuba diver, cyclists, walked my dog approximately 20 miles per week, and led an active rich and fulfilling life. I did not have any back problems, never complained about my back, was not treated for any back problems, nor took off a single day of work for anything related to my back, neck, legs, and hip in the seven years I have been employed at Grand Prairie Independent School District.
On 10/14/2010 I was standing in the hallway outside of my classroom during passing period (as required) when students started running toward a fight a classroom down the hall from me. I ran making my way through the many students to see a larger student assaulting a much smaller student. The larger student (the aggressor) had the smaller student (the victim) pinned in a corner portion of the hallway on the floor with the victim under him. He was punching this student rapidly and hard enough for me to hear the blows landing. I identified myself and attempted to stop the assault by grabbing the arm of the aggressor. The student did not stop hitting the victim nor could I control his arm as the student was much stronger than me with the back force of his arm hitting me. I wrapped my arms around the upper portion of the aggressor’s chest and attempted to pull him off the victim, yet he did not budge and continued hitting the victim.
From a standing bent over position, I exerted all of my strength pulling him up in backward direction, yet he still held onto the victim continuing to strike the victim. This action resulted in both of the students falling back on top of me to the concrete floor since I could not maintain my balance or the weight of this violent encounter. As they landed on top of me, I noticed that the aggressor was holding on to the victim and continued hitting him. With my arms firmly wrapped around the aggressor’s chest from behind him, I wrapped my legs around his lower body (his legs) using one of my legs to somehow push the victim away from his attacker. With my arms and legs tightly wrapped around the aggressor from behind (I had his back) using all the energy I had, I attempted to restrain him, yet he continued to resist my efforts as we (for no better words) flopped around on the floor. The whole time I was telling this student to stop fighting. We flopped on the floor for maybe 30+ seconds while I held onto him with all my energy fearing not only my safety but mostly the safety of the victim who was now standing in the area. Finally, the aggressor stopped trying to break free of my hold on him saying “ok ok let me go”, which I replied I will as long as you do not attack the victim, which he agreed to.
I released him and quickly stood to my feet fearing that he might go after the victim again, but he did not as he quickly walked away from me. I told the student to stop and tried to follow him when I felt severe intense pain shooting throughout my body, which caused me to fall back down to the floor on my hands and knees and I crawled to the wall gasping for my breath and in agonizing pain. The large crowd of students began to disperse and one of the principals arrived asking me what happen. All I could say was that there had been a fight and remained on my hands and knees at which time the principal asked me if I was okay, and I said no. The principal call for the school nurse, opened the door to the classroom I was near, and I tried to stand to enter it. I am not sure what happen then exactly, but I remember being on my knees and resting my upper body on the seat of a chair in that classroom. I said to the principal and the nurse to give me a few minutes and I’d be okay since I know I had a class full of students that I needed to get to. The principal told me not to worry about my class and that I needed fill out an accident report and go to the doctor. The nurse asked me questions pertaining to my current condition.
After several minutes maybe 10 or 15, I was instructed to make my way to the main office where I would receive directions to the doctor’s office. I was asked if an ambulance was needed, which I declined thinking that the pain would stop soon. I stood and slowly hobbled to my classroom to get my personal belongings a small cooler and my work bag. I thought I could carry these things to the main office since they were very light, a pound maybe, but I could not since the pain in my back and legs were severe. I asked a student to carry them and walk with me to the office. I slowly walked or hobbled to the office where the accident form was completed and I was instructed to go directly to Care Now to see the doctor. The school secretary made all the arrangements and the nurse carried my belonging and escorted me to my car.
I somehow drove myself directly to Care Now where they evaluated my condition and determined that I needed to go to the emergency room at once. I went to Harris Methodist ER in Mansfield Texas where a CT scan and x-rays were taken. Really I do not remember much from shortly after the fight until I got home the night. I remember being asked what hurt and I said my back and legs hurt real badly and I told them that I had surgery on my low back in the mid 80’s. I was prescribed Hydrocodon 750mg and Valium 10mg, and directed to follow up with my treating physician at Care Now. The next couple of weeks are foggy to me. My daughter came to take care of me at my home for the next week or so.

Upon returning to Care Now I was treated by Dr. Ellen Dahl Associate Medical Director who ordered an MRI, prescribed medication, and referred me to referred me to Bruce I. Prager, M.D. Orthopedic Surgeon. A few days later I had the MRI done and saw Dr. Prager shortly after that who evaluated me, prescribed oral steroid medication, 800 mg ibuprofen, and physical therapy.
A week into physical therapy (approximately 3 weeks after the injury occurred) I received a diagnosis letter (extent of injury) from TASB Risk MGNT FUND, adjuster Ann Datcher, stating the extent of injury being a low back sprain and age related degenerative disc disease, which seemed to me to be an understatement of the severity of my injury due to my symptoms and severe pain. I contacted my adjuster Ann Datcher who informed me that this was determined by her company, which I contested since it seemed like there was much more wrong with my entire back that was not being addressed. She informed me that I had age related degenerative disc disease that was not caused by the injury, which I disagreed with to her.
I returned to see Dr. Prager about one week later showing him the TASB Risk MGNT FUND extent of extent of injury diagnosis letter, and he disagreed with it saying I needed to contest their findings. He informed me that I had at least one herniated disc and it would take much more then minimal invasive surgery to fix it. I also informed him again of the pain in my mid back and neck which was now much more apparent to me, which he said was caused by the initial injury, but that he could not address it since the extent of injury diagnosis did not cover that area. He referred me to John C. Milani, M.D. Orthopedic Spine Surgeon who I saw for the first time on 12/07/2010.
I have seen Dr. Milani several times since then, I have always complained about my mid back and neck pain. Dr. Milani told me from the first visit on that he could only treat me according to the extent of injury report provided to him from TASB Risk MGNT FUND. To me, it seems like he has always disregarded my symptoms, and on one occasion he told me that a small herniated disc would not be causing all these problems, which I replied to him with what about my neck and mid back pain, and he told me that it was not part of the extent of injury. Dr. Milani focused on SI injections and the sacroiliac joint instead. He did request and re-request SI injections, and following the Designated Doctor’s Report of 01/19/2011 an MRI of my upper and neck area, and pain management treatment, but these were all denied by TASB Risk MGNT FUND each time.
Even the Designated Doctor’s Report of 01/19/2011 referred to my herniated disc or discs as degenerative disc disease a preexisting condition, but made several recommendations that were always denied by TASB Risk MGNT FUND. I was instructed by the Workers Compensation Commission that I had to attend medical examination evaluation that was requested by TASB Risk MGNT FUND. It took place on 03/28/2011 at Exam Works 12001 N. Central Expy #800, Dallas TX 75243 preformed by Juan Capello, MD. After reviewing the report I find it to be an attack against my character let alone false and inaccurate. I can cite several portions of it that were vague discrediting statements made toward me, which could have been asked by him to me during the examination but were not needless to say ending up in his report. Juan Capello, MD seems to have disregarded the Designated Doctor’s Report of 01/19/2011, overlooked the complete lack of any treatment provided to since the physical therapy ended, and has declared me 100% well ready to return to work even though the severity my condition has not changed at all since 10/14/2010 in my opinion I have gotten worse.
On 03/29/2011 I had a scheduled routine follow up appointment with my Care Now treating physician Dr. Fleischer. After the prior day’s medical examination evaluation, I was in severe pain suffering from muscle spasms to my neck, mid and lower back, horrific shooting leg and hip pains all of which were present the day before but at a lower level of severity. Dr. Fleischer suggested a cortisone injection and I agreed to it. While waiting for the nurse to give me this injection, the muscle spasms became so bad that I could no longer stand, and I attempted to lay down on the bed/table in the room. I could not lift myself onto it, and since I felt like I was about to pass out from the horrific total body pain, I laid down on the floor in the fetal position. I called out for help and finally someone arrived, I believe it was my nurse. The nurse (a large male) called for the doctor and together they both lifted me to the table where I laid in the fetal position in tremendous pain and when questioned explained what happen and how I felt.
Dr. Fleischer added a separate pain injection (Toradol) to the cortisone injections and the nurse stayed with me for quite some time afterwards. Another 15 to 30 minutes passed before I was released to go home. Like always before Dr. Fleischer ordered me off work for three more weeks. On 04/01/2011 I returned to see Dr. Fleischer on my own accord since my pain level was very high, and I thought that receiving the injections of 03/29 again might help since it was the most treatment I had received since 11/2011. After discussing it with Dr. Fleischer, I learned that the cortisone could only be given once every 3 months, but he could give me another Toradol pain injection. He then went on to tell me that he had just received the medical examination evaluation report as he read it over to himself, I asked him what it stated since the whole time I thought the medical examination evaluation was to help TASB Risk MGNT FUND corroborate the Designated Doctor’s Report of 01/19/2011 to finally start some kind of treatment for me. I thought this because my adjuster Ann Datcher of TASB Risk MGNT FUND told me that why they had requested it, a blatant lie on her part to me.
After briefly reading over the report, Dr. Fleischer told me that it said I was “exaggerating my symptoms and ready to return to work at once”. Of course I was shocked and said “so what do I do now”? He told me that he was releasing me to return to work per the report’s recommendation and he was done treating me, but that the nurse would be in to give me the pain injection and he left the room. The nurse gave me the inject and returned in 10 minutes with my paperwork releasing me with zero restriction to work informing me that Dr. Fleischer and Care Now would no longer be treating me. Still shocked but also in severe pain (the pain inject does little to reduce my level of pain) I left Care Now. When I got home I read the release form and could not tell if I was to be released on 04/04 or 04/09 to return to work along with being total flabbergasted by this sudden turn of events I called Care Now to speak with Dr. Fleischer about it. I was transferred to his nurse’s voice mail where I left him a message regarding the matter. I never heard back from him that night. I called back the next day and spoke to his nurse who told me that she sent him, Dr. Fleischer, an email yesterday and was surprised he had not contacted me last evening. She went on to tell me that he was not in today but would be in tomorrow so she would send him another email. Dr. Fleischer never returned my two attempts to contact him.
I am appalled by the way I have been treated for the past five plus months. I received little to any real treatment to heal my injuries sustained on 10/14/2010 while performing my duties as a teacher for the Grand Prairie Independent School District and protecting a student for serious harm or possible death. I believe that Richard Fleischer, MD of Care Now, Juan Capello, MD of Exam Works, and TASB Risk MGNT FUND are Grossly Negligent in their care of my health and recovery to be at the same level of functional ability I had been prior to the work related incident on 10/14/2010.
My physical condition has not change and slightly worsened since 10/14/2010. It is difficult for me to even maintain basic life skill functions at this time, but due to the reports given to the Grand Prairie Independent School District by Richard Fleischer, MD of Care Now, Juan Capello, MD of Exam Works on behalf of TASB Risk MGNT FUND, I am expected to return to work in the morning 04/11/2011 for full duty with zero restrictions regardless of my actual physical condition as well as all benefits provided to compensate me while unable to work had been halted.
This past week 04/01/2011 until now, I have been trying to seek some kind of medical treatment for the severe pain I am suffering from that began on 10/14/2010 while performing my duties as a teacher for the Grand Prairie Independent School District and protecting a student for serious harm or possible death, but I could not be treated by any medical facility I contacted which includes the Texas Back Institute, my primary physician Dr. Coppel, and others. My employer the Grand Prairie Independent School District has informed me that if I cannot work tomorrow 04/11/2011 I will be placed in inactive status and virtually lose my job as a certified teacher for GPISD and be unemployed.
(*At this time*) I would like to commend the Grand Prairie Independent School District for supporting and providing me with all the possible help they could offer throughout this traumatic ordeal.
I spent over seven hours at Parkland Memorial Hospital’s emergency room last night 04/09/2010 to seek medication so I can attempt to attend a full day of work tomorrow, basically I will pretend I am better than I am so as to not be unemployed and not only be physically disabled but also have my career destroyed too. The ER doctor at Parkland Memorial Hospital advised me to attempt to attend work on 04/11/2011 using the medications prescribed at whatever level I feel I can perform and has referred me to Parkland’s Orthopedic Unit to begin treatment of the injury that took place on 10/14/2010 while performing my duties as a teacher for the Grand Prairie Independent School District and protecting a student for serious harm or possible death to make me whole again.
All I ever wanted to be healthy again and for this insidious painful suffering to end so I could have my life back, start living again, and return to my career as a teacher. My quality of life is below Human Rights expectations and been reduced to a living Hell. This is a despicable way to treat a human being. I am physically broken and emotionally destroyed due to this incidence that occurred on 10/14/2010 while performing my duties as a teacher for the Grand Prairie Independent School District and protecting a student for serious harm or possible death.
To the best of my knowledge this is an Account of the Injury Incident and Medical Treatment I have experienced within the Texas Workers’ Compensation System from 10/14/2010 through 04/10/2011
I returned to work for three day all drugged up, still in pain, limited range of motion, and rather useless. After each day I felt worse and worse until on Thursday morning when I had to crawl to bathroom, which I will not gross you out with any further. I sleep a few hours at a time, live in constant pain, can’t even get treatment due to Texas State laws the favor business and vilify the victims. No one will listen since I am only a drain on company profit and profit not ones health is all that matters anymore. My life ended on 10/14/2010 in all practical terms, and I guess I will be homeless soon since I no longer have an income.

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Hi Slukes,
Wow,all i can say is i read your whole story,and although it seems like your story is so much more traumatic,i also suffered a work related injury on June10,2009.I went through a lot of the same stuff with the Doctors,false reports,claims adjustor,a living HELL to say the least.Please DO NOT give up,you must fight for your self,You are not okay,i am too messed up for life,i can no longer work as a nurse.I just had surgery L5-S1 fusion on my low back 3 weeks ago.First of all have you gotten an attorney yet?This is a must,i don't know how the laws are in your state,but you can not fight this battle alone.Please email me if you have any questions that i can help you on .I will pray for you,yes your whole life will be different now,but it is not hopeless.I too was so active,very fit,did all kinds of activities,i traveled to third world countries to do medical missionary work ,i worked 12 hour shifts as a nurse,mother of 5,grandmother of 4.My email is ,nancynurse4mission@yahoo.com.
Take Care,
Blessings,
Nurse Nancy

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Hi Bubbles,

I am a 32 year-old female living the same hell as you. I have adult idopathic scolosis, degenerative disk disease, flat back syndrome and arthritis of the spine. The disk between L4 and L5 have disapated and I walk with a limp. I also have a leg length discrepancy (3 inches) that causes severe pain on my right side. Welcome to my world. I have two young children, 4 and 6 and I refuse to have the surgery and put my family in a situation where I am of no use to them. I have seen numerous surgeons and they all say the same thing: Surgery is your only option. I have had 4 steroid injections this year and can only get one more within a six month period. I have gone to PT and it huts more than it helps. I sometimes have my 6 year-old stand on my back to releive some of the pressure. I have to literally crawl out of bed every morning and it gets to be depressing at times. I have seen a psychiatrist to help me deal with my condition and they just don't understand the feeling of uselessness that I deal with. I am on disability, taking 8-10 pills a day to alleviate my pain, to no avail. I am on disability at 32, how sad. I just want to say that Iunderstand what you are going through and if you need someone to vent to, I am here. People like us who have to deal with this need a strong support system. I am hopeful that you will get the treatment that is best for you to relieve your symptoms. Be blessed

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Bubbles, I am in the same boat as you other than I don't have children. I am 45 years old. I had surgery for scoliosis at the age of 13 in 1982. I now have flatback syndrome. I got fired from my job as a mental health therapist for missing too many days of work in 2010. I immediately filed for disability in November of 2010 and am still fighting to get on it. I'm the appeal process now. It is so depressing to be only 45, have a Masters Degree in Social Work and can't do anything with it. I spend most of my days in bed due to the pain. I am on 15 mg of morphine 3 times a day and it helps very little.

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I have had scolosis since I was 10. I did not have to have surgery until I was 50 when my curvature progressed. I found that aqua therapy works. I know your article is from 2011. My stabilizing rods broke which then caused an infection in my back. I had to have all of the rods put in in 2009 removed in 2011 due to this infection. The initial surgery went well and I was doing well with walking and pain level and returned to work standing for longer than 2 minutes, walking again, etc. When the infection occurred I then had to have two/thirds of my hardware removed and now only have a small section left in my T spine. I am so angry because I was told these rods would last a lifetime unless I had been in a major car accident. The parts were made by DePuy who has a terrible record of implant failure in hips and knees. I want to take action against them but cannot find enough people who have the same problem for it to be worth an attorney's time. Isn't that a crock. I am on 80 mg of Morphine time release 3 x daily with other medications to help my pain. Other than the aqua therapy, I don't know of anything to take away the daily pain. All I can advise other than that is do not get DePuy parts put anywhere in your body.

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Hi Bubbles,
new to the site but long time sufferer. I have spondylolesthesis grade 4. Had it since I was 11 and I too am a teacher with two daughters, raising them on my own. Only good thing is they are now in their 20s! But the pain will never leave me. I had surgery in 2011 because I could no longer stand the pain. Couldn't walk or sit or sleep or stand anymore. Had to give up my job where I had taught for 3 years and completed my Masters degree but the pain won. Was stubborn as a mule on giving up my career to have surgery, but I couldn't even go to my girls' basketball games or go grocery shopping for that matter. It was so bad I spent most of my time on the floor, crying or hating myself. I had no choice but do the surgery. My doctors were afraid of the vertebrae falling off and causing my permanent paralysis. They couldn't understand what was keeping me walking. Anyways, surgery was my only option. I had to go on disability. My family said the same thing "deal with it". I didn't know what to do. I lost everything. My house, my second car, bills piled up, but I had to go through with it. Since then, I began receiving disability and even though it's not alot, I had to make a go at it. I subbed when the pain would let me, took part time jobs and budgeted like crazy. I'm barely getting myself out of the debt hole and returned to work. I worked this past school year, but I don't think I can do it anymore. It's really demanding on my body. I have only missed two days because of my pain, but my weekends are filled with hot baths, muscle relaxers and heavy pain medications. I can't go on like this. So I decided to change my career. I love working with children and that's all I ever wanted to do but I can't do it when I'm in pain or on pain killers. Took me a long time to realize this. It's your choice but I feel I have to find my new "norm", what is normal for me now. I'm alot older now too since I was first battling the pain and I can't do it anymore.

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Bubbles, I am so sorry to hear you are in such pain. I had my spinal reconstruction done and was doing well until two of my anchor rods in my hips broke and I got a rare spinal infection. They had to remove two thirds of the rods after all that pain and suffering and I had to go out on disability. Being a single person myself (but my children thank goodness are grown) I had to resort to disability because I had three debridment surgeries to remove the infection and infected rods. I almost went sepsis (due to my infectious disease doctor being negligent) and would have died if it had gotten into my blood and bones enough. I ended up having to have a blood transfusion.

I am in a lot of pain even when lying down. I am on morphine sulfate, nerve pain, fast acting pain meds and muscle relaxers to get through the day. I totally understand your dilemna. I did try aqua therapy for a while until I fractured my foot and have been in a boot for 12 weeks. Due to the back infection not being totally gone because there was a screw that broke off so there is still a slight infection around that screw and I will need to be on antibiotics for the rest of my life. I have not yet been able to go back to the pool but the heated water and the exercises they gave me did help. My insurance paid for all but 20%. I was going to go through the sessions set up and then join the pool myself and do them on my own. It was helpful to myself as well as my boyfriend who has had back fusion also. You may try that. It sucks having to give up a job I loved but with a two hour commute (sometimes longer with traffic) to work (it really isn't but at 45 min. ride but with DC traffic is sucked) and sitting in one place all day; I had no choice but to retire on Social Security Disability. I was approved in one month. If you decide to go that route, get each and every piece of medical records and describe in extreme detail your daily activities and the amount of pain that you go through. Even the simplest task if you have difficutly, put it down. It took me longer to retire from my Federal Agency (some of that was due to the laziness of the staff not processing my paperwork). I could not believe that if I was approved so quickly with Social Security (which I heard was very difficult to do) that my Agency dragged their feet. That was hard not having the income I needed to get by. My home is in jeopardy because of it but there are programs out there that I am using to get me through that. I hope you get some information and if not at least my heartfelt sympathy and understanding about your pain and situation. I have had scolosis since I was 10 and have had a lifetime of pain and struggles. As a therapist told me, "You are allowed 7 min of poor little 'ol me but you have to find that inner self to tell you that this is not going to beat you and that there are others with bigger problems that succeed. So, pick up your bootstraps and don't let this win you over." I remember that everyday. I have my moments, believe me, especially when I have to turn down taking care of my 5 yr. old granddaughter or having to decline doing something. But, I am not going to let this get me. Trust me I cry a lot but I have been now reunited with my High School sweetheart and we plan to marry. He has back issues and helps me with mine. We both have a good support system with family and friends. Our faith does help us also. I have learned to let people help me (and for me Ms. Independent to do that is a feat in itself). Let others help you. Check out the aqua therapy, go to a pain management clinic (they have also helped me a lot). And, if you need to talk, write me at Roses4jen@aol.com and identify yourself in the Subject line as "Bubbles" and I will be here for you to listen. My prayers will be with you. Take care, Jen

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I am also a scoliosis survivor and want each of you to know that my best wishes for pain free days go out there. I agree with Jenny that we have to be strong and proceed with our lives the best that we can no matter what. I had the harrington rod and fusions done when i was 13 in 1971, i am 54 now and like you have pain every day,but it may not be as severe as some of you have. I worked for 33 years as a nurse and noticed as the years went by the fatigue and the pain became a problem where i felt i wasn't able to keep up the pace because of my health problems. I haven't worked now for 2 years and recently gave in to filing for ss disability.I have been on tramadol for 10 years now and it does help with the pain but i knew if i kept working i would have to take something stronger,and for me i did not see that as an option esp. when you are caring for others.It would not be just for them or me.I have read a lot about the new surgery for flatback and i am afraid to even go there and besides i don't have any health insurance and have not had for 10 years after i had to stop working full time because of all this. It definitely takes a toll on your life,physically, mentally and financially. I would like to talk to you all if you come back on this site. Anyways take care and hang in there.
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Is there anyone still participating in this discussion??? I am facing this and I have way to many questions. Please contact me!!!!

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Hi Tymlezz, What kind of issues are you having? I pop on here every so often just to look. Maybe we can compare notes. See Ya!

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