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Pain Pump

Started by Joeybobbie on 01/25/2011 7:47pm

Hi I have had I don't know how many surgerys, epidurals, Nerves burned away. 4 fusions in my neck in 2 different surgerys, 2 fusions in my lower back from the front and back, and had a deer broadside me on my harley 6 months ago, Luckily I didn't go down at 50 MPH but he messed up my left leg with torn tendons in the knee and ankle which I still havent had fixed. All in the last 3 1/2 yrs. I finally opted for the Pain Pump and it is making all the difference in the world for me. Its not adjusted all the way where it needs to be yet though, They have to move it up slowly, The Surgery only takes about 30-45 min, The recovery at home the first week was the only problem, You loose some spinal fluid in the procedure ( common ) so you get really intense headaches when your upright, as soon as you lay down they dissappear, Those are almost gone as everytime they adjust the dose on the pump the low pressure in my spinal fluid gets a little more normal, Its a God send for me even though its not where it needs to be yet, As far as the stimulator, I have some friends who opted for one of those and it made them " Itch like Crazy" and they have all had them taken out. The stimulator didnt really help the pain. Everytime they adjust the pump the less narcotics I have to take, Hope that helps
It really was a God send for me, doing more now than in yrs, But its periodic, they still have a little ways to go on the adjustment but it is getting there.

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could you give me the name of the surgeon you used?

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Hi was Dr. Kushwaha in Houston that did the Fusions, Dr. Simpson at Methodist Hospital at the Med Center in Houston that did the Pain Pump. Both Dr.s are very well respected worldwide in thier fields. Dr. Kushwaha is a Orthopedic Surgeon and Dr. Simpson is a Neurological Surgeon. Dr. Simpson is a leader in the field also of deep Brain Surgery. He is also a PHD and also teaches at Baylor. Both are very good Dr.s and show a genuine care in getting you well.
Hope that heps you.
Joey

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do u use Baclofen or Morphine? Had some patients w them, saw huge improvemnt in their muscle spactistacy and they said helped w pain.Hope its workn 4 u. :) Also w pain, remember its caused by the INFLAMMED nerves n roots caused by our spinal issues.. Weather plays big part on days we feel better,have u noticed? So find that anti-inflamatory that works for u, between narcs periodically.and anti-inflamatory and dailybmovements cautiosness ,hopefully things will improve,but remember ur mind must stay strong n fight.. I refuse to give up my career, ive beeen out of work since DEC 10,finances r tuff too.Pain is worst of al, l u get to point u just want to give up, ....and family thinks pain is in our heads,thank heaven for this chat forum n psychotherapy..Too funny, u thought i was salesperson,.:) howd ur injuty occur? I had 465lb patient fall on me. 5 discs herniated,cheated out of comp cause syptoms werent till 3 month later.I live on Long Island, 2 girls in college.and tryn to keep smile on face like nothins wrong,bored as hell not workn,and cant go out its to excausting.Thats my story,feel better RENE :)

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Seriously considering pain pump since nothing else has worked. Want to be able to walk more than around the house and stay in good health....other than the pain from a fall 28yrs ago. Your comments were helpful and encouraging. Wish more people would relate their experiences with the pump as I understand lots have it. A few questions: how long did you stay in the hospital after it was put in? Exactly where did they place the pump? Can it be seen? Does it feel heavy (I already have a cage and titanium screws at L-4/5 level of my spine)? How often does it have to be refilled? Does it hurt to be refilled? Does the medicine make u sleepy/drousy? What happens if your doctor moves; is another specialist available in your town or would u have to find one on your own? Any other info that u feel would be helpful to me. Currently, the closest doctor to me that performs this procedure is 65 miles away. He was reccommended by the Head doc of the Nuero Dept of a major hospital. And it seems he is the only one in this area. Thanks.

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Hi Beachgrani
After the operation I was in recovery about 3 Hours then went home. The Nuerosurgeon actually assigned me to a Pain clinic that was close to me. It's on my left side by my request because I play guitar. They were going to put it on the right, so think about something you do that might make one side better than the other. It barely shows and if I weighed more I think it wouldn't show at all. You don't really feel any weight at all and it's at a point now that I don't even notice it. They refill it about every 6 weeks and it doesn't really hurt at all. Just kinda like a pen prick, not like a shot or anything. I have 4 different medicines in there now that they gradually introduced over time to get all my different areas of pain feeling better. I have Morphine, Baclofen,Clonidine and Bupivacal. The Meds all go straight into your spine via a catheter inserted in the lower back and goes about 4 or more vertebrae up from the lower back. All the medicine kinda circulates with your spinal fluid and bathes the pain recepters in the spine so they dont transmit the pain to your brain. If you have a injury or anything else you still feel it. I don't really know how that part works but you don't loose any sensation at all just the pain you had. You don't get high or anything like that, since it goes into your spine it stays there. It's not processed in your stomach and then circulated into your whole body so you don't feel it. As far as a new Dr. in your area you can call medtronics or your surgeons office to find a different Dr. in your area.The Dr. that puts it in usually is not the one that maintains it. So you can probably find a closer pain Dr. that does the refills and everything else. Like I said the Dr. assigned me one in my area. I hope this helps you on your decision because I looked all over the place and even here and couldn't find any testimony about the pain pump before I had it put in anyway. If you have a problem or emergency they can turn the pump off or even remove it if you want. I can't see anyone wanting thiers removed and going back to the pain it works so well. One other thing Don't opt for the spine stimulator because Everyone I have talked or read testimony's from have had thiers removed because it made them "itch like crazy" so I would recommend the pump. It worked great for me. By the way the medicine isnt a very large dose. It's only 1/300 of what you would have to take orally and it works better.

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Thank you for the information. It is very helpful. A chat partner also called me yesterday from medtronics and related his experience with the pump. Also positive. I will make my appointment this week. Earlier this year I tried the stimulator. It did not lessen or take away the pain and made me very uncomfortable....in fact, miserable, so I know that's out. The pump is my last resort. Over the past 28 yrs i've tried chiropractic, physical, and aqua therapy; accupunture, nerve block, cortizone shots, message therapy, vax-d therapy (which worked before the operation but the insurance company claimed it wasn't FDA approved and refused to pay. I found out 2 yrs later it was FDA approved but the Office of Personnel Mgmt said too much time had lapsed for me to appeal.), pain medicines (which only make me sleep), patches and epidurals. I was even given a back brace that weighs almost as much as I do which only caused more pain. Wish I knew someone who could use it. So I feel like i've been royally screwed since my fall was not my fault and the gov't agency in which the fall occurred refused to accept responsibility since it had hired a private contractor to maintain the floors. The contractor of course skipped the country! Doctors give different diagnosis so I don't know who/what to believe. I just want to spend what life I have left walking, not sitting; and being as active as possible. I'm so glad the pump is working for you. I hope I will have similar results. Thanks again.

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I had a stimulator also and it did not help me.2 back surgery neck surgery and I go to have sacroiliac fusion sept 29 2011 my neurosurgeon has suggested the pain pump.Meds do not work for me? So the pump works good for you? Thanks for any imput.

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Will be glad to let u know my results once pump implanted. Have to first get my doctor to call to set up appointment., so i've been told.

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Hi Rossam
I'm not a Dr. but it seems like the pump would help you alot. It circulates in the spinal fluid so it seems like it would be able to get up into where the pain is. I would get a second opinion on it. The difference in the pain is night and day, it works so well with even all my problems that I can go out and almost resume a life. I will not ever be able to work again but still I can at least go out and do things in moderation instead of being stuck at home in a recliner like I used to be. They had me on so much meds that I was a zombie and still in alot of pain even with them. It was like I still hurt but I don't care anymore. since I have had the pump put in I have done more things since 12-23-2010 when it was put in than I have in the previous 4 1/2 years combined. I hope that helps. Granni let us know how you make out and good luck with your Dr.s. Will be waiting to hear.
Joey

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I was wondering why the heck wouldn't my doctors say something to me about the pain pump? I guess I ended up with the worse ones. It does sound good. How r u doing now?

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Is it possible that even though the morphine pump therapy has helped many it is on its way out? I have found a doctor with whom an appointment can be scheduled for the installationt; however, cannot locate a doctor in my area who has the capability of refilling.....which appears to be one of the requirements for installation. At this point I am very frustrated. I live in the Myrtle Beach area. The closest doctors for refilling are at least 65 miles away. Evidently this is unacceptable.

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I am at the same spot, the Doc that will put it in is 100 miles away
So I am trying to get him to send me to a closer Doc

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Thank you that was helpful. I just dont know what to do anymore. Going to a new nerosurgent in Nov. whos in Rochester which is about 1 1/2 hrs. away It will probably take us 3 hrs. I have to stop alot to stand. Cant sit or stand to long. I will say something about pain pump, to see what new Dr. thinks. Again thanks

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You need to find a pain specialist for the refills, they usually have a pharmacy. They need a pharmacy for the medication. Or if you are a Vet you can go to the Veterans clinic or hospital to get it refilled. Alot of the good pain clinics have their own pharmacy and work on the pumps. As far as the VA they are implanting pain pumps in soldiers with serios problems for pain control so they are set up to do the pumps. Just call around all the pain clinics in your area and find one that can do it. The surgeon doesn't do the refills.

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Finally located medical doctor in my area to do refills; however, before I can make an appt to even discuss it I have to first have the pump installed. And before I can get the appt with the surgeon for installation, I have to get a referral from my orthopaedic doctor, who then has to order an MRI and provide my medical records. It's a work in progress, and i've had to do all the work! Wish medtronic had laid out the steps one has to take in their brochure. Had to find out on a piecemeal basis. Hopefully i'll get to see the surgeon before 2012. No VA hospital in or near my area.

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Hi Beacgrani
What I had was a test first by an injection into the spine to see if it helped. after the test I had a referral from the pain Dr. for the Nuerosurgeon, He then scheduled the surgery and I reported to the pain Dr. ASAP, in fact the pain Dr, said to call in after the surgery and tell them I have a new install and needed to be seen at once. The Dr. turned on the pump with its first fill of just Morphine and gave me some medicine for the really bad headaches that you have the first couple of weeks. THe headaches dissappear as soon as you lay your head flat

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My journey for a pain pump installation ends today. On advise of my doctor, and because of the risk involved, I may look into having it done once I relocate to an area where doctors are available who know what to do in the event of an emergency. I'm glad that it is working for many of you.

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Good luck Beachgrani. I really wish it would have worked out for you without moving. I know for a fact it would help you. Maybe you have some kids living close to a larger city that does the procedure, but then again you would still need the refills. I really hope something just turns up to where it all works out. A last ditch effort may be to call medtronics and see what they could do where you are at. I hope you the best
Joey

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I sort of stumbled onto this discussion while looking for information about pain pumps and I'm hoping some of you can answer a question I have. I'm considering having a pump put in and as some of you have already done have had two Neuro stimulators put in with little result. My pain management doctor has cautioned about a problem he says is common and that is the development of a granuloma sometime soon after implantation of the catheter. I didn't see that mentioned in any of the responses about the pain pump, for that matter I really didn't read a single negative comment about the pumps. Though new to this group I would appreciate any information those of you who have the pumps could provide. Thanks in advance!

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I had a stimulator that caused me more pain because of upper back problems so I had to remove it
and I am waiting for my doc to set up a test to see if the pump will work for me.also possible 2 level
fusion in my neck.the hands of med are slow!!!!

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