As Dr. Berven suggested, always discuss treatment options with your orthopaedist so that you thoroughly understand his/her recommendations and seek other opinions if he/she is unable to explain recommendations.
Patient and Family Participation in Scoliosis Treatment
Making Right Choices for the Treatment of Idiopathic Scoliosis: A Patient Guide by Dr. Sigurd H. Berven.
AIS may start at the onset of puberty or become apparent during an adolescent growth spurt. This information will help patients and family to be active participants in the medical and surgical management of AIS.
In managing AIS, the judgment of the surgeon and the participation of informed
patients and families are as important in determining treatment outcome as surgical
techniques. Decision-making in the management of AIS remains complex despite
the availability of data on natural history, prognosis of different curve patterns,
brace treatment factors, and surgical innovations. The management of AIS includes
several steps and treatment options:
- screening and early detection of deformity,
- observation of changes in deformity over time with informed judgment regarding
prognosis, orthotic and non-operative interventions,
- surgical planning and operating,
- post-operative care, and
- long-term follow-up.
Surgical treatment of idiopathic scoliosis varies throughout the country. As
with many elective surgical procedures, the decision may be determined by factors
such as the surgeon's or the institution's training, experience, and preferences,
instead of the decision being based on the disorder and the patient's individual
preference. Such variability in treating idiopathic scoliosis reflects uncertainty.
In the setting of uncertainty, an informed patient and family should be empowered
to participate actively in treatment decisions, and participation will positively
influence the outcome of orthopaedic care.
Patients and family members should consider the next sections of this article when evaluating treatment options for AIS. Patients and families should seek further information on these topics from their care providers.
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