Patient and Family Participation in Scoliosis Treatment

Making Right Choices for the Treatment of Idiopathic Scoliosis: A Patient Guide by Dr. Sigurd H. Berven.

Sigurd H. Berven, M.D.
Assistant Professor in Residence
UC San Francisco, Department of Orthopaedic Surgery
San Francisco, CA
The purpose of this article is to provide basic information about the treatment of Adolescent Idiopathic Scoliosis (AIS).Scoliosis is a disease that causes the spine to curve to the left or right. AIS, also termed Adolescent Scoliosis, occurs between age 10 and maturity.

AIS may start at the onset of puberty or become apparent during an adolescent growth spurt. This information will help patients and family to be active participants in the medical and surgical management of AIS.

scoliosis curve

In managing AIS, the judgment of the surgeon and the participation of informed patients and families are as important in determining treatment outcome as surgical techniques. Decision-making in the management of AIS remains complex despite the availability of data on natural history, prognosis of different curve patterns, brace treatment factors, and surgical innovations. The management of AIS includes several steps and treatment options:

  • screening and early detection of deformity,
  • observation of changes in deformity over time with informed judgment regarding prognosis, orthotic and non-operative interventions,
  • surgical planning and operating,
  • post-operative care, and
  • long-term follow-up.

doctor with 2 women


Surgical treatment of idiopathic scoliosis varies throughout the country. As with many elective surgical procedures, the decision may be determined by factors such as the surgeon's or the institution's training, experience, and preferences, instead of the decision being based on the disorder and the patient's individual preference. Such variability in treating idiopathic scoliosis reflects uncertainty. In the setting of uncertainty, an informed patient and family should be empowered to participate actively in treatment decisions, and participation will positively influence the outcome of orthopaedic care.

Patients and family members should consider the next sections of this article when evaluating treatment options for AIS. Patients and families should seek further information on these topics from their care providers.

Last Updated: 02/13/2008

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