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"electrical" charge when moving....anyone?

Started by wendiann24 on 04/29/2010 12:22pm

I would like to know if anyone else besides me gets an electrical/shocking wave from head to toe every time you move? It's a feeling that's hard to explain, but I have to say it's like an electrical current going through you...kinda shocking but more statical. I know, sounds funny, but it's been going on for a while now. I already have major back problems and see pain management on a regular basis. I can't even remember all the names for what is wrong, but my L5-S1 is a major problem with broken facet joints and a slippage forward, which I can understand the leg "jolts", but not from head to toe....even when I blink hard or turn my head....take a quick step, normal step, etc...
I take several pain meds and have never had this sort of side effect from them, so I don't see this as a medicinal problem. I do have sciatica and arthritis and degenerative bone disease. I was told by my hubby that I am shrinking and leaning to the right more...great like 5'2" isn't short enough! HA! Yes, I do have to laugh because I'm soo fed up with all the pain and jolts that if I don't laugh I'd be crying 24/7 and I can't make hubby feel worse because there's nothing he can do about it. Luckily SSA is working on my case for SSI and disability and wants me to have a current MRI, which I whole heartidly agree to...it's been since 2006 for MRIs. I know that I have the shakes all the time and i do drop things all the time, including a 425 degree pizza pan on my arm causing a 3rd degree burn, but can I attribute that to the morphine and Lyrica (which I've been on the same doses forever) or is it my back calling out for more attention and getting worse? Please help me somebody! oh, and BTW, I'm almost 40 and looking to be adopted by anyone who has health insurance....and understands all this crap....and who lives in an area with a great surgeon! hahaha....gotta laugh!!!

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I didn't clarify that it's not a pain, just bothersome. The pain is a whole other subject. I did notice that if I carry something, even really light, it goes all the way through me. Any suggestions?

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Ewww, sorry, that doesn't sound fun at all. My left arm goes numb when I move in certain directions, but that's it. Well, and a herniated cervical disc at 29. Does it get better???

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Sorry Sunny, in my experience it doesn't get better. All my problems started when I was 35, just sitting on the floor folding laundry minding my own business and then WHAM! burning and pressure pain started in my lower lumbar region....just one small triangular region. Now, almost 5 years later I have pain every day and no one believes you even though you have an MRI showing why you hurt. DUH people....look at the MRI. I hope you are able to find a doctor that will fix the problem and not just shove meds down your throat or inject them into your spine! I hope you don't have to go through all the frustrations alot of us have to go through.

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Hi Wendiann,
I can tell you that I broke my back when I was 17 and now I am 43. L5 and s1. After 3 kids and years later I have developed spondylolisthesis I believe 12mm which I am told is a lot. I can totally relate to the "electrical charge". My condition gets worse everyday. My problem was that I was to embarassed to tell anyone.I have just recently filed for dissability and was turned down by fed. because I have been a stay at home mom for 12 years and not enough income. I am hoping that I get ssi like yourself. my doc all aproved me and said that I am dissabled from waste down. I can walk but not without serious pain.Beding down is the worst for me.
My docs want to operate and I am scared to death!!
do you know any success stories of lamanectomy and metal and screws put into your back?
right now I wear a back brace and take pain meds. it helps a little.

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PS. I did have injections of steroids and they did help, however, it only lasted a month!!!
it was still worth a month of pain free

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SandySavy,
I know all about the spondylolithesis, I have a more than a 5mm slippage and you know all about the crap I feel. I don't know about the surgery part of it as I am scared crapless too! The surgery that I would like to have is for the ACADIA (?) system. No fusion, so you'd still be able to bend. BUT I live in the middle of Iowa and there's nobody around doing that clinical trial. If you go to the clinical trials part of this website, you can find out if there is anyone close to you doing it. And if they are, can I come move in with you for a couple of years? We could be surgery buddies...LMAO...sorry..had to laugh. We could argue over who's turn it is to get up and grab the meds....

I am wondering though if the electrical zapping is because of me slipping more...and how serious should I be taking it even though my pain mgmt docs may not. I have my appt on the 13th of May and I write down everything even though they don't ever care about my pain journal. I was told by a surgeon in Des Moines, "sorry, I won't do surgery, so I can't help you", while having to pay the outrageous consultation bill!...nice way to say, "don't let the door hit you..."

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hi Wendy,
Thank you for making me laugh!
I have never heard of this surgery you are refering to but I will definatly inquire about it thank you.
I live in Sarasota Fl but I have traveled up to Tampa for doctor visits.
I will also tell you the jolts that you are feeling are probably from more slipage. I was at one time 5'6. now I am 5'5 1/5.
But throughout the years as my spondothelisis got worse the shockwave of pain got worse.
worst of all they did discover a 1 inch tear in my disc with 2 bulges. They discovered that through an MRI that I had while I was sitting up. much better than the lying down one.
Did you try the steroid injections into your spine??

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Sandy,

I've had dozens of injections....every three months since Jan 06. Only one worked and it lasted three months...but of course Ft Dodge, IA can't keep pain mgmt drs....he left right after he found the sweet spot and that was this past summer. So, I'm pretty much back to square one with those drs...have to re-train the two that are new! I keep telling them that they need to repeat what the previous doctor did, but NO, they know my back better.....IN WHAT WORLD? For the longest time one of the nurses thought i was faking it because I showed her once how I was sitting when the pain started...sure, I could get up and down at the time, but it was the pain that roared through me afterwards! Hello??? I sure hope they are documenting every fricken thing they see....I'm always laying down while I wait....and of course I lose circulation in my feet every time, but what's worse...the pain, or the other pain with no circulation? I have had Raynaud's disease since I was born, so I can handle the white cold no responsive toes, but not the ripping pain through the rest of me. I'd also love for my hubby to understand all this crap too...but NO...."go get me a beer", hand me a smoke, go make me a snack, etc... I'm almost to the breaking point with all of them. He's now starting to get mad because I'm on this site...He can kiss my little sagging ascot...HEHE.
Sorry, yesterday was horrible for me and I just needed to blow steam, thanks for listening!
One thing that helps me a little is...you ready? I listen to the Bee Gees and get into the music...just fade and tell the world to go somewhere in my head! I'd love to go to Florida....Barry Gibb is there...yummy...*Big grin on my face*
Anyways...meds got my head skipping around here...
Look into that anatomical facet joint replacement surgery, see who's in your area and if you qualify. I'm scared to dealth about fusion, but this is one surgery I wouldn't be scared about because you can still bend afterwards! It's here in the clinical trials and I keep watching for Iowa to pop on the list, but they haven't yet and it's been a few years since I started. When I first heard of it, the only place was Colorado and I was willing to hop on a train 10 times in 2 years to get there, but at that time they were only looking for those who had radial pain in legs, no back pain with it. I have both and it must have been a No-No. Great...a 5'2" NO-NO...makes me feel important...just like the in-laws do! JOY! OK...gotta stop rambling and get off of here...wish SSI could see me ramble! HAHA

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Hey Wendiann!
I still have the electrical jolts you speak of, after surgery; Fusion L4-L5 S1, back in June 09, from what my new Nuero says is caused by further slippage, ie the Spondylothesis, and ARACHNOIDITAS; as there were no indications of further nerve damage shown from my myelogram 10 days ago, because of very little fusion healing: almost none present on the right side. It is very unlikely that any medication would cause this.
The answer is probably you still do not have the proper diagnosis; [here we are again in the same boat that is always leaking]. You must find a Dr. that will listen properly, [hard to find one], from what you are describing in your post sounds like a problem with maybe C6, C7 or somewhere near that area, In my case I was lucky to find a Orthopedic surgeon that did not just hear Low Back Pain, I actually found my Dr. after a fall on the ice in 2005, where I happened to break 3 enclosed bones in my left foot, along with the Spondo flare up, and neck pain.
Once again getting it all right depends on your job status, health insurance and the best Imaging available.
He sent me for MRI's on the foot, my lower lumbar and then finally Cervical. For me at that time I already knew that I had some type of birth defect in lower back, due to the fact that I had been turned down for 2 different jobs back in the late 70s, pretty sure that is illegal to do today. I wound up going to my own Dr. and was told that the x rays showed L4 and L5 slightly 1/4" and 1/2" out of alignment, I was around 24 at the time I think. So what that all means is that I was told at young age that as I aged I would have back problems, well in 2005 I was 50 and the fall on my butt caused a grade 4 Spondyloisthesis of L5 S1, along with DDD and Arachnoiditis, please search this forum for the description of ARACHNOIDITIS, think every one who suffers has it!! Sorry for rambling.
What I was trying to get at is that this Doctor listened and suspected I had problems with my Cervical spine as well as lower, so he gets me a referral to a good Pain Treatment Dr, who sends me to ProScan Imaging located inside of Paul Brown Stadium [home of the NFL's Cincinnati Bengals football team]. Their imaging was in 3D and revealed much more than shown in the MRI's taken at local hospital. For instance; with the 3D image it showed that L5 had not fused properly [a birth defect] only visible with the 3D. and as he suspected Cervical Spondylosis, disc osteophyte complex at C5-6, with right lateral recess stenosis, and at C2-3 a disc osteophyte complex again causing bilateral lateral recess stenosis. Which after the very first Cervical Steroid Injection I experienced dramatic pain relief, and intermittently over the next 4 years able to avoid cervical surgery.
Unfortunately there was no other option for the L4-5 due to the severity of the osteoporosis and Spondylothesis, although through periodic treatment and pain medication made it 4 years without the surgery.
So any way I still do get the "Shock" feeling periodically from my head to foot, will probably have to have the cervical surgery some time in the future, but will seek other treatment options until then!
God bless you and hope your pain subsides!

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Banjo,
Thank you for the information and telling us of your history, it was quite insiteful. I soo appreciate it. I'm in the process of doing the research about it now, but was told by hubby that I have to go to bed soon, especially because my dear mommy gave me and my son her illness for mother's day...she could have kept it! I will continue to do more tomorrow.
I always thought that I had something wrong with my cerical spine because I'm one of the only women I know that has an adam's apple since birth. Even through migraines, they never looked at my neck, always a lumbar puncture.
Oh, and btw, SSA has decided that they just want me to have an exam done...no mri, no xray. Great, but for some stupid reason, I'm hopefull that who ever they send me to will still want new scans. I can be optimistic but I do know better.

Talk to you tomorrow!

Wendi

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I'm no dr. but have experienced some/most of the problems you are having. I was told 10yrs ago at the age of a mere 30, I had what was called Arachnoiditis. I know sounds horrible and even though i am terrified of spiders it has nothing to do with them! I'm sure if you look it up you may find some very helpful info. on this disease/disorder. I will say that it is only diagnosed by Myelogram, MRI possably CT. I too filed for social security disability and sent my med. records in with my paperwork and b/c I had 4 different Radiologist from 4 different MRI's and Myelograms saying the same thing that it was ARACHNOIDITIS, my SSD was approved after only 2 wks. I just found out here recently the reason I was approved so quickly and have not had to be re-evaluated at all in 10 yrs. is b/c of the diagnosis of the arachnoiditis. It apparently is one of the impairments that is automatically approved and there is no cure, you can only treat the symptoms and it only gets worse rather than better. I don't want to scare you but if this is what you may have brace yourself its going to be a pretty bumpy ride!

Hope this might have helped you some......my prayers r with you.

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HI WENDIANN24, SO SORRY TO HEAR OF YOUR PAIN. I'M 51 NOW, BUT 10 YEARS AGO, THAT WAS HAPPENING TO ME. TO TEST MY NERVES I HAD SEVERAL EMG'S. EVER HAVE ONE? THIS IS THE FUNNY PART, THEY PUT NEEDLES INTO YOUR LEGS, ARMS ETC (ONLY LEGS FIRST THEN HAVE TO RETURN) AND RUN ELECTRICITY THROUGH IT, TO SEE HOW MUCH NERVE DAMAGE U HAVE.ELECTICITY-TO DIAGNOS SHOCKS. LOL. THE LEG ONE I CRIED THROUGH THE ENTIRE THING. NO WORRIES NOW THOUGH, MY BROTHER JUST HAD ONE, NO NEEDLES AND NO PAIN. JUST HAD FUSION SURGERY LAST MONTH, DOING WELL SO FAR. NOW, IT'S THE NECK,S TURN. I TOO, DROP THINGS. I HAVE MATCHING BURNS, FROM THKSGVING TURKEYS 2 YRS IN A ROW, ON DIFFERENT HANDS OF COURSE, SO LOOKS LIKE THEY BELONG. KEEP UR SENSE OF HUMOR, U R FUNNY! NEXT TIME U P/U MEDS, READ THE SIDE EFFECTS ON ALL. MAYBE IT'S ONE OF THEM(DOUBT IT) BUT JUST LAST WEEK SAW DOUBLE FOR THE FIRST TIME, POURED MILK INTO THE (FAKE) TEA. IT WAS A COMBO OF MEDS. WRITE BACK, LET ME KNOW HOW UR DOING..

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Well it is good to find someone else that has this pain, you know what I mean. I have been trying to explain this to my almost babies momma almost wifey and the Dr's , but it is very hard to explain to them . The difference between mine and yours is mine happens when I am sitting and laying down for sleep, when walking i just have numbness from my scar down both my legs to my feet and toes. It isn't just plain numbness, it is like walking on needles and sometimes it causes me to stumble. Now back to to the jolting and electric shock. Those are some of the worst feelings and i did not know what the heck happened. I can be sitting at computer and I get a big jolt, like someone turns on a switch and when I am in bed ready for sleep, wow. Those are the worst, it will feel like the electo shock therapy or TENs Unit, I know everyone has had that hooked up to them in Physical Therapy. Well turn that up , multiply by 10 and you have it. Now mind you I'm only 31 and my first operation at 29, Lamininectomy,discectomy of L4 L5 and L5 S1 and then another a couple months latter adding laminotomy. Okay now before the operations I had all the PT and the steroid shots and had it up to my butt in pain and nothing working. Led to the operations and after the 2 nothing worked more pain and discomfort, disc slippage and nerve pain. It all led up to the lower back fusion of L4 L5 S1 . Still having pain, numbness, jolting " shocking feeling" .. But hey i've got to march on , I have 2 little ones that need their daddy and they and m almost wifey come before all. Like I mentioned before I am glad to find a place were their is other people either having some symptoms or knows what I am talking about. If anyone would like to talk or knows what I am going through , chat me up. Email me or facebook me .

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Well gang, just for an update. I was not able to make it to my pain mgmt appt. I had been getting sick last week, which I choked up to just a bad upper resp. infection, and by the time Thursday came around I knew I wouldn't make it into the office. I was hospitalized Friday for double pnemonia and just got out last night. I'm still on the mend, but it'll be a while. Pain wasn't nice to me being on my back, but atleast the hospital staff was awesome and gave me what I needed for it. They at least admit I have a back problems, whereas my pain management is still keeping me from getting the health insurance I need to keep them paid, but that's another topic! I do have an appt with an old doctor of mine and we will get things done right and pushed things through so I can get what I need.

Wendi

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Sorry for this late response but i might help. Have u tried PT? There is this device caleed Tens Unit that could help u reduce the electric shocks. Since i am an international patient I can tell u that at the time when the el jolts started i was in france. They didn't know what's wrong with me and i couldn't take it any more so i came back home where i was finally diagnosed with herniated discs. I had my surgery in croatia thank god at a private clinic (need i say it was not that expensive) and ever since i 've been doing better. Hope this helps a bit good luck to u

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I have degenerative disc disease as well. I'm sorry for your pain. I've had a lot of vertebrae problem and this sounds familiar to pain I had one time.
I went to my chiropractors where the doctor xrayed my spine and he could see that a bulging disc was pushing down on one of my nerves. It's something to think about. . . Also, see if one of these conditions may be what is ailing you-http://www.northwestspineclinic.com/resources/common-conditions

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