What do I do Now???? Need advice from those who understand
Hello, my name is Mary. I am so glad I found this web site with others who know and understand what we deal with in our daily lives. I am a disabled nurse, I was a nurse for 33 years and in 2007 I was thrown down by one of my patients ( they did not know what they were doing). Anyway my first back injury occurred in 1998 and since then my chronic pain has been a ongoing problem. I have had every test, every injection and procedure in the books and then some. During this injury in 2007 I had to have spinal surgery, a Laminectomy and Lumbar Discectomy: I had already had several diagnostic test during the past few years/ months and these were the findings:
Facet Joint Disease
Neurophathy in arms and legs
The surgery was a failed surgery and made things 10 times worse. First of all I developed pneumonia and went into respiratory distress, was on a vent and in the hospital a month. They had to tie me down cause apparently I was fighting, I was in a coma so I had no clue of what was going on. When I was able to get off the vent I found I could not move my arms and legs, took me months to regain mobility.
To bring things up to date, I am having terrible pain and find it very hard to walk. Every nerve and muscle in my body feels like it is attacking me. The neurosurgeon just diagnosed me as having
Arachnoiditis. No cure!!! My pain is almost driving me to insanity. He suggested a Morphine pump, now I take oxycodone 30mg four times a day and morphine 30mg three times a day plus soma. I do not like what I have read about the pump, I am so scared to have another surgery. I am so stressed as to what is the right thing to do. As it is all truth be told the oxycodone and morphine I am on does little for the pain. I have no life anymore. And I do not think I can live with this agony the rest of my life. I would love to hear from anyone who is in the same or simmular position and get some other perspectives. Another back surgery is out of the question, I was told I probally would not live through it because of the damage from the vent and resp. Distress. HELP.......
Mary ( aka. LadyMary42)