where do I go from here?
I need some good advice. I am post my second laminectomy and according to my surgeon at Johns Hopkins headed for a third, which I will do all in my power to avoid! First surgery was a laminectomy with fusion,rods and screws. the condition was termed spondolothythesis (sp ) with spinabifida and scoliosis at the same level,L4,L5,S1. this was termed a failed surgery. Appr. 3yrs. later, after being jerked around by the first surgeon,being refused help from any other surgeon, being told to go back to the surgeon that messed you up. I found a surgeon at Johns Hopkins who agreed to help me. 2nd surgery was preformed, rods were removed,screws were removed and an attempt to relieve pressure and reduce pain level. Rods,screws and a 2nd fusion was preformed. Now after returning to Johns Hopkins for check up, due to increased pain, I was told that 2 problems exists, 1, level above last fusion has failed and needs fused along with more screws and longer rods. 2, one of the rods is broken into appr. halfway down the length of the rod, two screws are broken, one screw has the head of the screw broken and the second is broken into. Surgeon wants to wait until pain meds no longer cover the pain and also use injections preformed by pain management to help control the pain. When all else fails, then he wants to go in and do the necessary procedures. I am so tired of the constant pain. I am tired of the constant use of pain meds., I am tired of the inability to live my life as I once did. I know there are people who are worse than me, that have cancer and other disorders that I am sure cause more discomfort than I, but that doesn't mean that I am no more miserable than they are and very tired of it. Any suggestions
as to what I can do that might stop this misery once and for all?