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Chronic Pain that never goes away

From: cherry - on 03/06/2010 10:47pm

I have been living with back and pain since 2000 and have yet to find a doctor that understands just how bad it is. I have been taking Norco 10 mg 4 times a day for over 10 years and am still not getting any relief. I tried everything and am a very compliant patient. After 2 years of PT, injections, chirpractors I was left with a choice of surgery. A 360 degree fusion in the L-4, L-5 region (hardware and all) in 2004. I returned to fulltime work out of sheer detirmination and necessity.
The pain is now so bad it is making life unbearable. Sometimes I think I would be better off dead and have begun to think it is the only escape.
Is there anyone who has a doctor that will help or even listen with some compassion?? Can anyone recommend a doctor that can help me? The closest city is Dallas and I am told I need a referal just to make an appointment to talk to a pain management doctor. I don't have the money, insurance or a PCP to help.

Help....please?????

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on 03/09/2010 1:17pm

Cherry:

I know what you mean about the pain being so bad that it is unbearable I had a spinal cord tumor back in 88 which was removed. i was okay for a while but now I have horrible nerve pain down my left leg, in my feet and buttocks. I saw a pain doctor which I would highly recommend you see. I will probably have a spinal cord stimulator inserted. You don't say exactly where your pain is coming from, so I don't know if the scs would do you any good. But, again, I would see a pain specialist in your area. Also, I am in Houston if you care to know the name of the doctor I'm seeing, let me know.

Good luck and take care.

Pam

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on 03/11/2010 11:49pm

Cherry:

Although I don't have the solution to your problem, I wanted to let you know that you are not alone in not having your doctor understand just how much pain you are in.

I have had back problems since I was in my early 20's. I am in my mid 50's now, and for the past two years it has gotten really severe. I too, have been through PT, injections, etc. but so far, nothing has helped. No one understands just how much pain I am in. Not my PCP, my pain management specialist, my employer, not even my mate. Sometimes I wish I could transpose my pain into their bodies just so they could feel what it is I have to deal with on a daily basis.

So, although I can't provide you with a solution to your pain, I do offer you my understanding and compassion.

I wish you success in your quest to find someone who will be able to help you.

God Bless

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on 03/12/2010 11:35am

I am sorry to hear what you are going through and although I can offer no solution I do understand what you are going through. Please don't explore death as an option. Just know that you are not in the same boat. And I'm sure that you find help. I just joined this discussion group hoping to find a solution to my own problem. Maybe if we keep talking about the problems we all have someone will listen and offer the answers we need. There must be compassionate health care professionals with real solutions.
Keep up the good fight!

The author has chosen this as the best response.
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on 03/13/2010 2:54am

Cherry... Thank you so much for posting! I was lying here in bed tonight thinking just exactly the same thing you are. So many people around us cannot understand in anyway the terrible pain we are going through, and I think at times they think we are a pain in the ass, at least my spouse does I know, even though he doesn't want to admit it. He tells everyone that I am a "wonderful wife" and he loves my dearly but we've had a non-exsistant sex life for years because of my back and it puts an enormous strain on the relationship. I have had all the medical "stuff" you have trying to alleviate this horrific pain. I have an infusion pump, which I thought would get rid of most of the pain, however it only dulls it enough to make life sort-of livable. I think about ending it all a lot too. There is no way a human body can go through such a assult without wanting relief but none for us has been found. I had a plif- fusion w/ hardward in 2000 which left me in worse pain than before, very depressing!!! In 2004 I got the pump which has helped, really to be honest I would be a paraplegic w/o the pump. I still have a life, I try to face each day with a good attitude but it's getting so so hard. I'm coming up on 11 yrs in severe intractable pain. Looking back, I don't know how I've been able to do it. I try to pray and stay close to God but at times I am so angry at him. I am new here and yours was the first post I read. I'll be here for you, and know theres someone else going through exactly what you are, if that's any comfort! =) Jaynie

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on 03/16/2010 8:13pm

Thanks you sooo much for all of the words of encouragement, the kindness and the time you all spent out of your lives just to reply and encourage me. I have to say I didn't know there are so many of us out there with the same struggles. It has helped me ALOT just to know I am truely not alone.

Many Thanks to each of you,
cherry

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on 03/19/2010 2:27pm

Hi Cherry -

I can totally appreciate the amount of pain you live with. I too am at a last resort. My Doctor (in Dallas by the way) has suggested a 360 Dbl Lumbar ATIL Fusion. He also does Disc replacements (very expensive without insurance). However, you do not require a referal to see him. See the web information below. Before decideding to do a permanent fusion, I would HIGHLY recomend at a minimum you have a consultation with him. His name is Dr. John Peloza, and is one of the leading spinal surgeons in te country, and has been voted top 100 in D magazine for last 8 or 9 years. Currently, he is going to try one last procedure for me which is the SCS mentioned above. Again, without knowing your specific issue, I am not sure if a neurospine stimulator is an option for you, but for me it is all I can do. At 33 yrs of age, I am just horrified at the idea of having a fusion, but my life in this amount of pain is unbearable. I thank god for my wife everyday for her love & support. Without her, I would not have made it as long as I have. Check out the site. Get an appointment. You will be glad you did.. Sincerely

www.centerforspinecare.com

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on 03/27/2010 7:31pm

Cherry, I also have been suffering severe sometimes unbearable pain, I was born with congenital kyphosis, and underwent posterior spinal fusion T11- L2, with instrumentation. in1999, in 2003 I injured back, and since then every day has gotton worse, I wrkd an office job for 2 yrs, 06-08 and finally had to admitt I couldnt do it anymore, The pain is so bad sometimes I just want to jump out of my skin, I've been to pt, chiropract, pain mgnt, meds, inject on cervical, and sacroliliac joint. with no relief whatsoever. I also think they are not very understanding, and very cold at times, feels like they think this pain is no big deal wish they could spend a day in my shoes,

I just wanted to let you knw I totally understand were u r coming from, good luck.

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on 03/29/2010 8:19am

I completely understand the pain that you are dealing with and the feeling of being unable to live with it. I had a spinal fusion from T-1 to S-1 in 2007 and a pedicle subtraction osteotomy with almost the same length incision 10 months later. I have never recovered from either surgeries and have nearly intolerable pain. I have been doctoring and testing for this ever since thinking someone has got to be able to figure this out and help me! If everyone in my life could feel this pain for 5 minutes they would be doing EVERYTHING to get any relief! I am in my early 50's and the thought of living like this for the rest of my life is horrible. I try to take it one day at a time or one minute as the case may be

Some doctors volunteer their services through free clinics. Do you have any in your area? Please check as you need someone to help you. Hang in there and don't give up!!

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on 03/29/2010 12:44pm

I don't have a suggestion about the financial end of it, but I can recommend a pain specialist in the Dallas area whom I feel is is both knowledgeable and compassionate. You do not have to have a referral to see him. I didn't. His name is Dr. John East. His phone # is 972-380-0000. He is in Addison (suburb of Dallas.) Praying for you~

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on 03/30/2010 5:07pm

HI IM ELAINE I JUST CAME BACK FROM SEATTLE A COUPLE WEEKS AGO,I WENT THERE TO GET A SECOND OPINON ON MY SEVERE NECK PAIN WHICH I HAVE HAD FOR THE LAST 13YRS.THE DR TOLD ME THAT I HAVE SCOLIOSIS,AN THAT I NEED SURGERY.I HAVE BEEN ON SEVERAL PAIN MEDS AN THEY DONT SEEM TO HELP ME MUCH .THE PAIN WORSENS AT NIGHT.I TOSS AN TURN FOR HRS TO TRY AN GET COMFORT.I DONT HAVE A SUPORT GROUP THAT CAN HELP ME THRU THIS .IS THERE ANY ONE OUT THERE THAT IS HAVING THE SAME ISSUES WITH CHRONIC PAIN,

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on 03/30/2010 10:09pm

I am sooo touched by the response and support I have been blessed with! I hope to be able give back to each and every person who took the time to respond. I think you all saved me from myself and have given me hope again. I feel like my issues are so small compared to most of you.

I am humbled

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on 04/22/2010 8:08am

Hi everyone, I also wish people who don't feel the pain like we do can switch places for one day, Has anyone have difficulty getting social sec disabilty, I was denied now have lawyer, and have a hearing next week, If anyone has similar experience please let me knw. good luck to all

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on 06/19/2010 6:24am

I think the goverments must help people with this problems more,it same for the other people this..Must help more 2..

Erasmios L
poker calculator

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on 06/19/2010 7:01am

HI CHERRY.I TOO HAVE BEEN LIVING WITH SEVERE BACK PAIN FOR 17 YEARS NOW.I AM 44 YEARS OLD.....IN 1993 I HAD A RUPTURED DISC AND HAD SURGERY...LWAS OUT OF WORK FOR 3 MONTHS.WHEN I WENT BACK MY PAIN WAS STILL PRETTY INTENSE..AND THE JOB I HAVE REQUIRES ME TO STAND 8 HRS AND LIFT AND BEND ALL DAY....I MADE IT TIL THIS PAST OCTOBER WORKING IN PAIN AND NOT BEING ABLE TO SLEEP AT NIGHT FROM THE DISCOMFORT.....IN SEPTEMBER THE PAIN STARTED DOWN MY RIGHT LEG AND I COULD NOT WALK FAR WITHOUT STOPPING...SO I FINALLY WENT TO THE DR. AGAIN...AND HE SAID I HAD DEGENERATIVE DISC DISEASE...3 DISC;S WERE DEGENERATED AND ONE RUPTURED AGAIN.. SO IN OCTOBER I HAD A SPINAL FUSION AND THEY REPAIRED THE DISC'S THAT WERE DEGENERATED WITH HARDWARE.I HAVE SCREWS AND RODS IN MY BACK...AND THEY FIXED THE RUPTURED DISC........WELL I HAVE BEEN BACK AT WORK FOR ALMOST 3 MONTH'S ...I AM A STOCKER IN A MAJOR RETAIL COMPANY FOR 17 YRS NOW...THE JOB I HAD BEFORE I LEFT FOR MY SURGERY WAS LIFTING BUT NOT REALLY HEAVY ...THE 1ST WEEK BACK AT WORK I WANTED TO DIE...SEVERE PAIN ALL DAY BARELY ABLE TO MAKE IT TO MY CAR AFTER WORK........THEN IT EASED UP UNTIL MY WORK STARTED MAKING ME LIFT 50 LB BOXES.BECAUSE THEY HAD NO HELP...SO FOR THE LAST 5 WEEKS I HAVE BEEN LIFTING HEAVY BOXES AND NOW I AM IN SO MUCH PAIN I DON"T KNOW WHAT I AM GOING TO DO......BE HAPPY U HAVE SOMEONE I AM A SINGLE MOTHER FOR 17 YEARS AND I HAVE NO ONE TO HELP FINANCIALY OR EMOTIONALLY......MY DAUGHTER JUST TURNED 17 I HAVE 2 YRS TO PAY ON MY HOME AND IM SO DEPRESSED BECAUSE WHEN I TELL THE PPL AT WORK IT IS TOO HEAVYU THE JUST LAUGH IT OFF AND SAY...U ARE IMPORTANT WE NEED U...THEY DON"T CARE HOW I SUFFER........I TOO HAVE THOUGHT ABOUT ENDING IT ALL MAY TIMES.....I HAD TO CALL IN TO WORK TODAY BECAUSE I CAN.T STAND LONG I PROBABLY GOING TO GET FIRRED SOON IF I DONT GET SOME RELIEF...........AND I WILL LOOSE EVERYTHING....BUT U ALL ARE RIGHT..NO ONE BELIEVES U WHEN U SAY U ARE IN SEVERE PAIN...OR THEY JUST DON'T CARE.......MYSELF I AM TIRRED OF LIVING LIKE THIS...IT'S NOT REALLY LIVING IT'S JUST EXISTING IN HELL......THATS THE WAY I FEEL........ HOPE U GET BETTER SOON CHERRY...AND REMEMBER BE THANKFUL U HAVE A MATE...IF I DID NOT HAVE A DAUGHTER I PROBLY WOULD HAVE DONE SOMETHING STUPID LONG AGO........DEPRESSION HAS RULED MY LIFE FOR YEARS AND THE PAIN JUST MAKES IT WORSE........I HOPE U GET BETTER SOON....SORRY FOR BEING SO NEGATIVE.IT'S JUST THE WAY I FEEL............THANK U ALL FOR HAVING SOMEONE TO TALK TO!!!!! IM JUST SO SCARRED I WILL LOOSE MY JOB NOW.BUT WHEN U ARE HURTING THIS BAD U CANT LIFT 50 LB BOXES AND STAND 8 HRS........CONFUSED DEPRESSED AND IN PAIN.........

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on 07/19/2010 9:05am

Hi, Darla, I totally understand, I have been suffering for the past 31 yrs, I was born with kyphosis, and had 2 back surgeries, and fusion and instrumentation from t11-l2, in 99 and in 03 had to lift heavy stuff for job as well and now I havnt been able to work in two years, my last job was an office job cant sit or stand for more than 20 min at a time, I now have, deg disc disease, osteoarthritis, sacrolilliac joint pain, and dr wont do surgery, said would prob make me worse, cant take narco pain med due to stomach prob, went to hydro therapy, had sacro inj no relief, did tens, chiro, nothing has helped, I also hve take med for severe depress, next opt is nerve simulator pump any one have one, need advice, Please, Please as much as I agree, if I didnt have kids I would hve done something stupid as well, But knwing how it feels to hve a parent end it all, never goes away, I wouldnt do that to my kids, No matter how bad things get for me. good luck here if need to talk.

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on 07/26/2010 8:54pm

Cherry: I am almost new at the pain coming from vertebrae pressing nerves. I have been suffering it for 4 months but very very very strong lately. The pain makes me cry. I could not walk or stand for more than 5 minutes. Mornings were hell for half an hour until I had rested for about half an hour or sitting. No cooking, no even going to the supermarket. I am a teacher and scared to death to loose my job when we begin next August. I can tell yo that today, after having had 5 docotors appointments, 7 sessions with the quiropractor, acupunture, X rays, MrI's I have improved 95%. I have insurance and I had to skip it because my PCP did not wante me to go to a neurosurgeon that someone recommended to me. I paid from my pocket because I said that a referal would not stop me from getting better. The last doctor the orthopedist told me to get the epidural injection and I got the appointment for a month later! He did not even asked me how I was feelling or how much pain I was having during that second app. So This neurosurgeon wasmy angel! He put me on a pills treatment that are working plus doing the inversion table. Also he sent me to PT but I am scared they move my nerves after I am improving. I live in Orlando, FL, far from Dallas. But ask, and ask for a good CARING doctor who knows what pain is. You will find it ans you will be blessed and you will improve.

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on 08/17/2010 11:27am

Cherry(and all),
Just wondering how many out there with NO insurance? My DH is self employed..and frankly, any insurance we could afford, would simply cost us more than paying out of pocket in the first place. (this will hold true unless I need surgery!). I have noticed the number of dr.s who will not see self pay patients. I finally found a neuro, and we feel he blew me off. I just wonder if it's an insurance thing???
Mine started 6 years ago, when I had my last child. I contracted a virus(cytomegaly) that stayed with me for 6 long weeks. After that...I slowly developed symptoms of pain all over. My L foot is the most painful, and pretty much where my pain started. I do have a spot in my lower back that feels like a pinched nerve...and does hurt alot..but not the BIGGEST part of my pain. Now both feet(left still worse), and both hands(and arms-R being worse) are always in pain..up to shoulders, neck in particular, and really just all over! I feel like I have run a marathon (all day..everyday)...the day before. I am taking ultram twice a day..(for 2 months now.)and it works a little...but for about 3 months, I started getting numbness and tingling in my hands and feet. Sharp pains sometimes...twitching in feet sometimes..and now chills in isolated areas, at different times.
I am fatigued(of course!), and run into things on occasion(balance), and now am tripping alot because of this L foot. I for the life of me cannot tell whether this is a pinched nerve or MS.
My mother has MS, and the neuro we went to said my mucles were TIGHT and I needed to stretch more. My DH and I were shocked!! He said I have nothing that looked like MS...and after $300, and 15 minutes of his time..he sent me away!
Does anyone have these sx?, and is the Neuro out of his mind?? He did not offer an MRI, which we were hoping for...And, is he blowing us off because of insurance??
Any experiences would be helpful! I love reading about each one of you...and as you all are..I am also very happy that I am not alone...even though I wish we all knew the reason we are in pain!!

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on 08/26/2010 5:42am

Hi everyone, I also am having trouble with insurance, I live in New york and have mvp. my husband ins through work, as of july 1st our ins went to high deducable of 3,000, for a family, and no help with prescriptions. On limitid income it is very hard. I recently went to Dr. and she suggests, going to be tested to see if eligable for nerve simulator, although I am scared. I just recently got my decision from social security after fighting for two yrs. I hope things work out for everyone.

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on 08/29/2010 1:29pm

I'm going to refer you to a colleague in Dallas, Dr. James Stone. Jim is a very special kind of chiropractor. Before you stop reading, know that Jim practices a very unique method called Network Spinal Analysis that uses only LIGHT TOUCH to make the adjustment. Network Care works with deep nervous system stress to help you better connect with the resources you need to heal on every level: body mind & spirit. While I cannot guarantee any kind of specific result, I have seen many "miracles" in my practice; people who had given up all hope of a normal life now living fully again.

Dr. Jim is a very gifted practitioner and a truly fine human being. I don't have his number handy but I'm sure you can find him. Please take this suggestion seriously. If you have not had the opportunity to deeply reconnect to your own vast healing resources, you haven't tried everything!

Other people looking for Network practitioners in their area: checkhttps://www.wiseworldseminars.com/

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on 08/30/2010 1:40pm

Thank you very much for your reply, I have had back surgery from T11-L2, with fusion and harrington rods and screws, also went to chiro and had electo stimulation, would your dr. friend be able to help with all the rods being where they are?

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on 08/30/2010 2:16pm

Jamie97,
YES. The nature of this type of work is to start wherever you are and begin to bring you to the next level. Because there is no popping or twisting, your surgeries will not be a problem. This will be very different from the previous chiropractor you saw. Frankly, I don't recommend electrostim but that's your call. Good luck!

"Thank you very much for your reply, I have had back surgery from T11-L2, with fusion and harrington rods and screws, also went to chiro and had electo stimulation, would your dr. friend be able to help with all the rods being where they are?

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on 08/31/2010 12:33pm

Fred Blum, Thank you for your suggestion, why do you think I shouldn't have electo stim, any thoughts. Thank you very much

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on 11/04/2010 6:44pm

Does anyone know of a doctor in the Houston area that won't make you go in every four weeks for a refill? I have had pain most of my life. Neck and thoracic pain scoliosis and reveres cerical curve. I also have DDD with nerve and spurs and I could go on. One car accident that wiplash is most likely to have occured. Some of the diagnosis was done in my late twenties and over time things just have gotten worse. I was a ballet dancers for years and I am sure that didn't help. I have seen two pain managment doctors. One did injections but just pressure point. The other doctor did injections T area and C under fluroscopy and that was why I started going to him. Well now it's been a year and he just blows off doing the injections and just wants me to come in everymonth for the same Rx. Most of the time he doesn't even know my history and make me feel like he is more worried about how much money he is making. They drug test me every three months and random too. I can't deal with being in pain all the time , trying to keep my job and woriking around this Rx apt that I can't belive that this is it. I am a slave to my pain management doctor. I work in a hospital and when I am off I am crying taking meds and going to the doctor. I am 55 and just can't keep this up, so after all this writting here is my question. Are there any doctors in my area that care? I would love to find one. Houston Texas. I want my life back, Thanks

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on 02/12/2011 2:09am

Hi sherry momma,

I,too, had numbness and ting,ing in hands and feet, with ddd and herniated l 3/4. I was walking off balance. Please go see a neurologist. He can do blood work and a brain MRI to determine if you have ms. If your mom has it, I would urge you to check it out. My issues resolved, except I still have that mysterious hand and feet tingling. Another doctor worked me up for thyroid disease. He put me on a med to see if it stopped the tingling. It didn't, but I can deal with the tingling. I hope your issues resolve, also.

Blessings-

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on 02/27/2011 1:04am

Hi Cherry
I feel the same way alot about just blowing my fricking head off and ending this relentless pain, the misunderstanding from the family where I seem to treated like a low life becuase I don't just get up and do whatever they want. Or the always relentless "if you would just stop taking all the medicine and sitting in the recliner guilt trip" I don't know anymore. I have 4 fusions in my neck from 2 different surgeries, and 2 or 3 fusions from the front and back in my lower back. I hurt at a pain level of 7-8 constantly even with a pain pump, I can barely do anything so I am looking for suggestions myself. I dont think I have the optiong of blowing my brains out because of what it would do to my kids. Not real sure the wife would be bothered tooo much. I am subscribing so hopefully some else has a remedy. I feel like just a total looser and a burden, with no sympathy at all from anyone

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on 05/10/2011 4:19pm

Hi, Cherry (and everyone else) --

You're having a really great discussion, and we're glad we can facilitate that.

Just wanted to jump in here quickly to say that we recently launched a site for people dealing with chronic pain. It's called Practical Pain Management, and we're working with some of the leading pain management specialists to provide help and information to people like you.

If you want to check it out, go here: http://www.practicalpainmanagement.com/p... .

As a bonus, PPM also has a journal that's read by many, many pain specialists, and all the articles are online -- you can read what the specialists are reading as you research your condition.

Best,
SpineUniverse Editorial Team

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on 06/07/2011 11:49pm

Hi Cherry
See about getting a pain pump. I could hardly walk or do anything until I got the pump. Now I am almost out of pain and getting around fine. Everyone I have heard from with a stimulator has them taken out do too excessive itching. The pump worked for me and should work for you too.
Good luck and take care

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on 06/08/2011 7:28am

Sorry that you are in so much pain after all the tx. maybe a pain pump would be your best option to relief?

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