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Posted in: Neck pain.

AM I crazy or do theses new DR think we are all drug adicts because we are in pain

Started by tony g on 06/27/2010 4:39pm

I have had really bad back npain for over two years . I have had Xrays MRI CAT scans 6 8 are bolging they wont fix or give meds she said to learn to live with it . . hurt all time legs ribs arms hands nubm

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what i dont understand is why we need to go to a pain management doctor in the 1st place
switch doctors my painmanagement dr says stay on pain meds until surgery

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Tony,

I understand what you are saying and deal with it myself, but unlike you and some others, I have a primary care doctor that actually understands me and knows when I'm serious about something wrong. My problem doc is the pain management dr and staff. I think it may be more the staff than the drs, but they all look at you like you are faking the pain and that you are a drug addict. The pain mgmt doctors made me the addict I am today!
All I can suggest to you is to get copies of all your scans and images and go looking for a new doctor, one that is compassionate....ask friends and family about their doctors and how they are treated. Just a primary care physician at first and then go from there, which will probably be pain management or neurologist, or even ortho. You may just even need to take your images to a chiropractor. There are alot of chiro's out there that have big bulky machines that can help you with the bulging discs and get you back on your toes. You may be lucky enough that you don't need surgery and the chiro will be your answer! It was my answer for bulging and protruding discs. I was on a machine called a DRX-5000 and it took about 3 months, but it was worth it, I no longer have a disc that looks like a worm crawling out of the ground. I hope you have insurance because that will be your life saver. It is expensive and insurance didn't cover treatments when I went through it 5 years ago, but now I hear that since it's proven to work, they cover it.

Keep me informed, I'd like to know what happens with you!

Wendi

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Hi Tony,
my pain management doctor understands my pain now! The problem I have had. They start you off at a real-low dose of whatever pain medication they put us on then increase . My pain management Center has probably increase me 30 times over the phone. So instead of taking two pills a day they increased me to three. Then your script runs out a week or two early. Six different times it took me days to get my prescription. The doctor never writes it down. They increasing you without looking at a chart so they don't write it down. Then when you call for the prescription a week or two early they said you can't get it til 30 days. Try to get your doctor to fax you or e-mail you the increase in writing. Then you can just send it right back. I've had lots of problems. My doctors is a neighbor and always trusted me I never asked for something I didn't need. Always get that e-mail Tony and everybody. I am not addicted to painkillers but I know I can't live without them so you tell me. My Surgery date is next thursday for me hopefully I will never need painkillers again..

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Hi guys
I'm five and half weeks postop I had my surgery/fusion. Prior to my surgery I was on a lot of pain medications narcotics. The anesthesiologist and the surgeon knew exactly what I was on it was doctor prescribed. 4 1/2 hours later after surgery I was still in the recovery room my wife demanded to see me. I was crying,screaming and sweating in pain. The anesthesiologist was there with my wife she asked what is going on why was I in so much pain. The man told her he wanted to see if my pain was relieved from surgery like a lot of people. She Said after 4 1/2 hours I think he needs pain meds don't you. There were three days of unreal pain. They took me off the pain meds I was taking presurgery. They gave me a little ms cotton. Equaled about a third of the pain meds I was taking presurgery. The third night he finally came with my regular pain meds that was taken presurgery. I would of never thought the surgeon would cut back pain meds minutes postsurgery. We're talking right after the surgery was finished. To your discussion yes they think were all drug addicts and just seeking a high. 5 1/2 weeks postop there's no way could live without pain meds. I hope I can say that in a couple weeks I'll be off the narcotics but I know I will not be. I go back pain management September 1. My surgeon never prescribing any meds once I was out of the hospital. I would never go back to my surgeon ever again for another surgery. I know a lot of people out there who take a lot more pain meds than me. The surgeon should of got me through the hell of surgery with pain meds. Am I addicted to pain meds I don't think so. But I also know I can't live without them! I still have 7 out of 10 pain level. Sam

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Yes they do!! It is crazy!! How are we supposed to live with this pain?? Getting meds is the hardesyt part of all of this somedays!! What I want to know is : I want to talk to someone who has had Lumbar final fusion. I wnat everything they exp in suregery,,, stay at hospital.. catheters?....Bone graft is a real concern. I wnat to use my own bone,, but I feel when I have my pre Op visit Dr going to say that they use that artificial business,, please let me know

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Sam227.. did you have a bone graft? Would you please share your details of hospitalization, like how long,, catheters,, just anthing you can share please. My SUrgery si on the 20th and I am more afarid of the unknown,

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Yes, they assume we are drug seekers & they are trying to cover their butts where the DEA is concerned. Unfortunately, by doing this the DEA is forcing people who are genuinely in pain & not addicts or law breakers to seek relief wherever & however they can get it. They hit the streets, purchase street drugs & then become addicts. It's a sad state of affairs.
I went to a new PCP after mine retired who flat out refused to give me anything for my pain or the muscle relaxers that I had been on for more than a year.
The sad thing was that I always took much less than what was prescribed, trying to get by on as small a dose as necessary. I went through an agonaizing 2 weeks before seeing a new PCP who was more compassionate.
I've heard from everybody that surgeons don't prescribe pain meds except for the hospital stay.

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Hpymom,
Check out the thread "I'd like some HONEST feedback" lots of surgery info on there :)

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Well unfortunately there are a lot of Drug Addicts out there claiming to hurt just to get the Meds. Have you tried the Neck and Back Institue in Denton Texas, Dr Michael Hisey. I have bulging disc at 4 and 5 with bone spurs, he was reluctant to operate until I had therapy , well half way thru the therapy and am hurting worse now than before, so sharpen the knife Dr, I'm going for the fusion.

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Hi guys,
to the lady that is having a lumbar fusion on the September 20. You will have a few weeks of hell ahead of you. Other than my back I was in physically good shape. It was real hard for me and I had to go to rehab center after the hospital. Please go to the thread/discussion Failed Back Surgery Are the Percentages Right. Go to the bottom of the page of push last post. There are three people including myself there telling all about fusions. We're way off topic a lot of helpful information for you. Thanks Sam

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Thank you Sam and the other friend who gave me the "thread" info. I am new to this and I do not understand how to get to that link,, Please Help me

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Hi Hpymom,
at the top of the main page, there is a place where you can click " Community advice" click that, then down the right side of the page you will see "treatment options", click "surgery" these threads will be listed there. Good luck:)

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Thank you so much!!! I am at this point doing this day by day,,,and I wanted the Hospital Experience. I want ti know what to expect from A-B. I am having Spinal Fusion. Dr, NEVER said anything to me about Bone grafting and taking bone from my hip. Doe EVERYONE have to do that?

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Hpymom,
I don't know, I am new to this as well. I have my first consult with a neurosurgeon the 9-20, afer a year & a half of trying everything else. I'm like you, soaking up all of the info I can. I think the more informed you are, the better you will feel about all of this People used to just hand over all of the decisions & total trust over to their doctors,I think that's wrong. Knowing what to expect can be scarey, but priceless also. We can get through this together :)

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JUVA P that sounds like a plan ...a PAIN PARTENR LOL

Yes I am scared,,,, not sure what of EXACTLY.. but scared. The infor mation that everyone is sharing is so helpful to me,,, a special thanks to Sam,,,,,

Ya I just want to hear all about Bone grafting form anyone who had that ( I understand we ALL need that if having a Spinal Fusion) and the 3 or 4 days after suregery... Like de we have cathetors? How soon do they get us "UP"? things like that...

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Yes, I'm interested in the same type of info, as well as what the typical length of time is before they release you to return to work, also how to prepare our home....do we need a tiolet booster? A walker? Something to help us get up out of bed? LOL, lots of ???

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YEs I too am so interested in ALL these things!! I am a majorly organized person.. But I am gettimng a feeling from this group that I can put that in the closet as there are many many things that WILL NOT be in my control !! BLah!!

good luck to all!!
Barb

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juvap
I'm out 6 1/2 weeks from a fusion. I still use the high toilet seat. You should put handicap bars in your shower. I wish I had them around my toilet than I would not need the high seat. The Handicapped toilet seat is very uncomfortable A walker will be definitely be needed. Make sure you get the butt wiper and the grabber. I still use the grabber now.: I don't know when I can start bending again. Sam
I started another discussion saying exactly what my surgery report said. It Might be helpful to you.

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I've got spinal stenosis and slipped discs. My dr started me out with 5 mg of percocet and 5 mg of valium once a day. Over the course of 7 months and after seeing the orthopedist to look at an MRI I had done in June of 2008, the max amt of pain meds she says I can have is 20 mg of percocet and 20 mg of Valium twice a day. WTF? I work on my feet in retail standing and lifting heavy objects a minimum of 6 hours 5 days a week. I can retire in 2 years but don't know if I can live with the pain if I keep on working. No insurance, so no injections or surgery an option. I'm probably and addict now and need more pain meds but no go with my Dr. People with our condition are always in agony!

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Hi Sam,
Thank You for the info. I've been following your posts from pre-surgery & find them very helpful (scarey at times LOL, but honest).
I think I'm going to visit a medical supply store, for the 15 minutes that I can stand a day to get an idea on pricing. I'm quite sure that my insurance won't cover these items. Did you purchace them on your own? If so, where did you get them?
Judging by the time of your post, I see that you can't sleep at night, hopefully things will improve for you very soon.

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Coni,
Yes we are. Makes me wonder if some of these doctors have experienced anything worse than the occassional hemrrhoid.
The most I can get from my doc is 10mg hydrocodone 4 times a day & a few muscle relaxers. I'm seriously having to consider taking a leave of absence prior to surgery, because of the agony I am in after 5 hours of work. I'm a librarian & although it does involve some lifting of boxes of books & lots of bending, most of the time I'm seated behind a computer. Can't imagine having a job right now that required me to be on my feet.
I hope you experience some relief, however brief.

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A pain management doctor can give you a lot more meds. For eight months presurgery I was on OxyContin 60s every 12 hours2 per day and oxycodone 15s every four hours 8 per day during the daytime. And muscle relaxers at night plus Mobic two times a day. Till your on narcotics pain meds high-dose don't think of having surgery. There are easier surgeries that you might need. Don't have a fusion until you've exhausted everything. Fusion is a very tough surgery. If you're in pain like I was you would not worry about being addicted to pain medication. The media makes pain meds sound real bad. As long as you take them doctor prescribed its okay I guess. Good luck Sam

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Really?
Oh boy, I was counting my lucky stars just to have what I have. My other Dr would give me absolutely nothing for the pain & no muscle relaxers, he was isulting & told me that if I needed pain meds to go back to my own small town dr. I was close to homicidal. Finally did go back to that small town Dr & so far, he has helped me way more than the first, although he tends to trivialize my condition.
I also thought that the lower dosage of meds you were on pre-surgery, the less it would take to control the pain post-surgery,
The only PM dr is over 2 hours away & my understanding is that he is worthless.

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My surgeon said because of all the pain medication I was on presurgery. I had a tough time postsurgery. The pain management doctor knew I was having surgery. Her job was to make my pain tolerable. Once I had my second MRI she was very free with the pain meds. Till that point it was like I was talking to a ROCK that didn`t listen. It must be my second MRI was real bad. Sam

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Hey Sam,
Do you know the degree of deterioration between your MRI's? What caused it to get worse & how much time lapsed between your MRI's?
Sorry for all of the questions LOL. It's just that I've begged for another MRI, because I know my condition has deteriorated & they told me it has to be 6 months between. My first was in May.
How are you feeling now? have you been able to decrease your meds?

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My MRI were about 10 months apart. The first one the impression
1 moderate central canal stenosis at L3 -- 4 with a mild right exiting neuroforaminal narrowing.
2 mild central canal stenosis L4 -- 5.
The second MRI 10 months later impression
significant canal encroachment L3 --4 an L4 -- 5 due to short pedicles, facet and ligamentum flavum hypertrophy and disk bulging. Collateral disk bulging and L3 -- 4 maybe in contact with the extraforaminal nerves, particularly in on the right.
I don't know if this will help you out in all. There is a lot under findings but way too much to write.
When I went to my third second opinion surgeon he said I have a disk in my neck messed up. The 26or 28th of September I'm going for a cervical MRI. He could tell that without a doubt with just playing with my fingers. People on this forum say he's got to be crazy but we'll find out soon. I hope he is wrong. But my arms are numb almost daily. I don't know if I can go through another spine surgery.

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Thanks Sam,
I really hope you don't need another surgery. Gosh, this spine stuff is ugly.

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Has anyone had epidural injections for severe spinal stenosis and L4-L5 herniated discs and do they help? I'm scheduled to have an injection and am scared I'll be doing more harm than good. Do the injections hurt? Can't hurt as much as the everyday pain I suffer. Percocet 20 mg per day and Valium 20 mg per day just don't get it and my primary care physician refuses to increase the medication even after my orthopedist said it was indicated. So shots are my only option at this time but how long will I be out of work after the injections. I stand on my feet all day in retail.

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Jauva are you still with us? Please let me know how your doing,. I hope you are well, Sam

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