Still in Pain!!! 6 years on
I AMNEW ON HERE ANDWOULD LIKE TO say Hello.
I am a39 year old male who had an accident in 2006 that went un-diagnosed for 6 months and by the time it had (paid private) I had suffered spinal cord damage to c5-c6 area. I went through having emergency op and had c5-c6 acdf. I recovered but never got back anything near to what I used to be like. In 2009 I took a turn for the worse again and needed c6-c7 doing also. Ever since I have been in somewhat terrible pain. Sometimes barely unbelievable to point I think about no being here no more. I am currently in extreme pain and again can see no light at the end of the tunnel.
My last MRI a few months back said I had Progressive Mylomalcia to the area around the c5-c7 , could anyone elaborate why it says progressive? I thought it was supposed to be stagnant and not get any worse. I don't understand why the Progressive??
I take pregabalin, morphine patches, diclofenac and baclofen.
I have been having some strange muscle contractions within my arm arm and some more pain than I usually get + when I sit my leg pain and burning intensify greatly!!! I find myself just standing for much of the time which can be exhausting!!
The last MRI said I had no compression now but its the progressive mylo that's really worrying me, as I don't understand..
I used to be a fitness instructor and loved to workout, I do try and keep active but not sure if I should train with weights as this maybe worsening my symptoms..
I am permanent disability now but I have gone back to Uni to study and have nearly completed a Degree in Business Management as I would love to get back into work but this pain is holding me back.
Does any else know of this progressive mylomalacia ?? and will this mean I will get worse over time??
Thanks in advance