autoimmune reaction to hardware and need to remove
I was following a discussion about hardware removal and learned that it has been done and is usually an easier recovery and procedure than the initial fusion. My husband had cervical fusion done at 3,4,5 nine years ago. About 3 years after his surgery he started developing all kinds of autoimmune type symptoms - he had blood blisters on his tongue which led them to test for leukemia, he had thrombotic purpura (little purple dots on his legs), he grew overly sensitive to the sun, he developed gluten intolerance, and migraine headaches. His headaches and neck pain were so bad he tried a rhizomotmy. That resulted in three years of fibromyalgia type symptoms with burning pain, fatigue, joint pain, and headaches. Life has been miserable for him and he is on all kinds of meds. Now just after the body pain seemed to finally subside he was left with a chronic, severe headache with shooting pains in his head occurring also. The pain doctor suggested an occipital nerve block. My husband was hesitant due to the bad result after the rhizotomy, but she said that was burning of nerves, this is just a shot, so he went ahead and did it. Within two days his muscles started to twitch all over and now he has body jerks that are so bad it looks like he has parkinson's. He is hardly able to walk because of the severity of the muscle spasms. He said he feels like their are electric jolts going on all through his body. I cannot believe this happened!! BTW, the headache is gone, but at what expense!! So now, after another odd result to a procedure I am convinced, as I was after the rhizotomy, that he is allergic to the titanium plate and screws in his neck. We did a MELISA test on his blood and it came back just hundreds of a point shy of being positive for sensitivity. They said "inconclusive", but I think that it was close enough, because these symptoms are just not typical of the typical pain post fusion. I think that after three years there was corrosion of the plate and that when he has nerves exposed (through rhyzotomy and the shot in his head) his body has violent reactions to the presence of the titanium particles. So, what to do. All I can think is that we finally need to get that hardware out! We have moved since his original surgery and the doc does not want to treat an out of state person for care reasons. Would we be better off to stay in Illinois for months and use the same doc if he will do it, or should we find someone in Indiana where we live, who will. Does anyone know docs in the Indianapolis area that are great spinal surgeons and have removed hardware. I know so many folks deal with the pain and suffering that can happen post fusion. How many of you with the widespread issues have considered allergy to the hardware? I am convinced in my heart that that is my husbands problem. I would love to hear from others about any experiences you have had with widespread pain and with hardware removal. Please forgive any misspelling of medical terms.