Text Size: A A A
SpineUniverse Community Advice
Get help and share your story with others who know what you're going through.
Please register or log in to join the discussions!

Severe pain after cervical fusion c5/c6

From: neck91 - on 02/21/2011 11:43pm

Aug of 2009 I suffered a large herniated disk - After conservative treatment I chose to get a anterior cervical fusion c5/6 with plate on Feb1st 2011. Before surgery I had right side neck pain -Upper back pain and right shoulder and upper right arm pain and on average the pain level was about a 5.

Immediately after surgery and up to today Feb 21st, I am experiencing severe neck pain on both sides pain level without meds a 9 - Right shoulder right arm pain about a 6 when arm is extended and when reaching across my body - Upper back pain gets really bad about an 8 at times.

My first post op was Feb 18th and the doctor seemed to have an answer for everything saying that everything was normal and I'm where I should be in the recovery process then at the end of are meeting he tells me I'm behind in progress. FYI, I didn't wear a neck collar for recovery. My doctor prescribed PT which really aggrivates the conditions. My doctor believes its all muscle spasms. I know nobody can answer with certainy, but has anyone experienced or known anyone that has had similar conditions after surgery and was it muscle related spasms or me having the large herniation for over a year before surgery is it possible that I have nerve damage? Everything that I'm experiencing is pain , no numbness that I can tell nor really any weakeness. I have to hold my head down just enough otherwise I really start causing a lot of pain if the head is looking straigh ahead or down too much. Any thoughts on what TYPICALLY causes the conditions I'm having.

Thanks for reading.

Do you find this discussion helpful?
3

32 Responses

Like/Dislike
2
on 02/23/2011 7:43pm

I am NOT a doctor, I DO NOT have a degree in medicine. I am a post surgical cervical fusion patient and have been seeing my surgeon or his P.A on a monthly basis since 2006.

I have had two separate surgeries to fuse me from c4-c6; the first was from c5-c6 in 2007. After the first surgery; I DID NOT DO what the doctor, my husband, my children & friends told me to: and that was to sit down, wear my collar and not to wrench my neck. A year later in 2008 when the donor bone wasn't fusing to my own bone, we decided to remove the first fusion and fuse from c4-c6. THIS TIME I LISTENED. This is MAJOR surgery and all your regular pains will be amplified and/or sorer than usual, just relax as you will have spasms as the muscles are healing; they have been invaded. I'd give it 6 months to a year to begin to feel more "normal". You just had the surgery 3 weeks ago!! Are you sitting in an easy chair, in a collar doing just little physical therapy movements? Get yourself a collar and wear it when you sleep so your neck stays put. i slept in an chair for about two months just sitting up and being still. My husband even got me a kitten to keep me in "The Chair" it is important to relax your neck muscles and just practice looking left to right SLOWLY, not pushing your neck past it's "spasmic" level. Do you have some "Biofreeze"? you can get that at you physical therapists office. It really helps. That and a heating pad and time.

Like/Dislike
1
on 02/24/2011 3:31pm

I have a protruding disc in my neck and degenerative disc disease, I recently had a L4L5 fusion(,they were more worried about those) now Im not so sure about the other surgery.This one was not at all what I had expected and the results definately arent.after reading your story Im convinced Ill deal with it.I hope things get better for you.PS wasnt there a nerve spec.in with your surgery? If you think you may have neve damage your family doc. can order a test

Like/Dislike
0
on 02/24/2011 8:06pm

Thanks Anisette! Since my fusion was secured using a plate, my doctor didn't prescribe using a collar while recovering, however I wish he would of and I left him a message today to see if I could get the ok to do so. I've been sitting and lying down quite a bit, but once the pain meds kick in I try to get out once a day and go for a 1 mile walk. It's weird because all the pain I have now after surgery is the same exact pain I had before surgery except it's worse Note: I did develop symptoms that I didn't have prior to surgery and that my left side of the neck and left shoulder have quite a bit of pain. Like you said I'm only 3 weeks or so Post op, so I ll try to stay positive, but the arm pain kind of scares me a little bit, b/c if they removed the disk off the nerver why do I have twice as much arm pain now??

To what kind of like: You know I did so much research before this surgery and I really thought I would come out of surgery with minimal pain as over 90% of the people that get this surgery do. The remaining 10% or so seem to experience more pain and the recovery process is a lot longer than usual or expected. I ve read many many great stories about those that had this surgery, but those that weren't so lucky seem to have on going issues even many years after. I to like you had back surgery, I had a fusion at L5/S1 about 6 yrs ago and feel great now, well I did feel great but my low back starting really hurting about 4 months ago and an mri showed lots of fluid in the facet joints. Remeber if your neck is compressing a nerver and you don't do anything about it you take the chance of damaging that nerve, so do a lot of research and take care of yourself. Thanks for the reply also.

Like/Dislike
0
on 02/25/2011 10:04am

I would like to confirm what Anissete said about Biofreeze. My massage therapist uses it, and the feeling on my neck and back is really wonderful. I just love massages, I was at the massage therapist about 10 days after my ACDF- I couldn't wait! Massage truly makes me feel better, dealing with all the pain and stress from my condition-- it truly helps.

Like/Dislike
0
on 02/28/2011 10:20am

Listening to your stories has helped me deal with my surgery. I had my surgery on 27 July 2010 to fuse c5/c6. Within 3 weeks of my surgery I began having left side pain two times greater than prior to surgery. I had a second MRI done three months later by a second surgeon, now I am up for a second surgery on 14 March 2011. It seems that I have ruptured and extrude another disc (c6/c7). They told me that they were also concern with the bulging disc at c4/5 and there might reason to fuse them as well. Over the last six months my left side pain has been so excruciating that I just wanted to crawl in a shell and die. But I am excited to try Anisette idea to wear a collar when I sleep and also using "Biofreeze".

Like/Dislike
0
on 03/03/2011 12:04am

You are almost a month in after your surgery. I hope you are feeling somewhat better now. I had a double fusion (c5/6 & c6/7) on 12/7/10. My pains after the surgery were more than I anticipated; however, they did begin easing off quite a bit around week 5 after the surgery.

Like you, I have implants, and wore no brace. My surgeon told me not lift anything over 10 lbs, and not to "over-do it"; however, he did tell me to move my neck and walk to help work out the soreness. My first check up was after 2 weeks to ensure the screws and plate was OK. That checked out, but I explained to the surgeon that I had my neck to pop/crack some, and it was very tight. I asked about a massage and he told me not to get one since my muscles and nerves were healing from the surgery. He basically told me that it'd take time to heal.

Well, I'm about 3 months in now. My next appt. with the surgeon is March 27. What I call my surgery pain is gone. My numbness in my hands happens every so often now versus every day. The stabbing pain in my shoulder is gone. The stabbing pain between my shoulder blades has decreased to an off and on pain of about 1/4 of what it was.

My problem now is that my muscles around the top of my back, up my neck, and even into my head/face are in a vicious cycle. The muscles get so stiff and tight they sometime will pop my neck themselves. Other times I constantly move my neck in order to get it to pop. Other times I push on my neck with my hand to pop it. When I say pop it, I'm not sure what it is dong, but it is so tight and painful, and when it pops, it becomes loose and I almost have a short time of painless clarity. Then it repeats daily.

I constantly use Aleve and Icy Hot and a heating pad virtually every day. The heat really helps, just make sure you use moist heat. I'm still waiting on that massage, so I'm calling the surgeon, asking if he can up my appt. I hope he'll have an answer for me then.

In the meantime, I hope your pain decreases and your recovery is speedy.

Like/Dislike
0
on 03/03/2011 4:19pm

I had a 4 level fusion March 2010..C4-7. I was required to be in the hard neck brace for 3 MONTHS! That is the period of time for the fusion to be successful. Started PT after the brace was off and it was still too aggressive for the fragile state of the neck. I would advise to seek a different Dr.; my surgeon keeps ALL his cerv patients in the brace for 3 months; no driving, lifting, very light activity. You will prob need another MRI or xray to show the success/failure of the fusion. I had awful pain for few months after the surgery; also had titanium screws/rods with bone graft from my pelvis. I am SO much better now but still have hand symptoms and lot of stiffness and 'hard' muscles around the neck area which are definitely flared by too much activity. I can't believe your surgeon didn't put you in a brace!!!! Only time I was to take it off was to shower. I wish you good healing and a good doctor!

Like/Dislike
1
on 08/07/2011 9:00pm

I was born with scoliosis, as i have grown older it has become worse my daily living impossible due to lower and neck spasames, i have had right side loss aswell as alot of pain that has been cronic for a long time,causing sleepless night's and distress emotionaly draining my life force to the point that i feel collapsing. I couldn't walk,pigeon step's,doctor's ignoring my pain even though i went through rehabilitation for this problem there is lack of understanding from my point of view. I believe that i have further under laying issuse's to what is going on like a spina bifida as i tend to go spastic,this has happened all my life,besides fit's in the night feeling like i'm going to die,waking to shakes in the night, put on gabapentine it has slowly eased off. This should be recognised as a disability in complete form, there is lack of understanding and proper care to people like me and i feel sorry for people who live there life in terrible internal pain as i live in daily life every day it is a chore for me because i can't run,i fall,slip,scared to place my feet incase i hurt my back further each day a fear for me. To wash my hair bending it hurt's, it takes me time and pain to lift myself, i feel crippled daily,if i had a choice living the way i am i'd rather not live at all because of my daily living that is impossible and hard,people expect too much,think your normal inside i'm crying with pain. I understand how suffer's feel,because at least if you lost your legs that you could understand, there is no help for disabled people with cronic scoliosis and i feel very sad that i have never had the right help. Doctor's who laughed at my predicament, to me the nhs have failed people like us, i'm a health care worker and speak the truth,but i'm trying my best to help other people. We need to stand up and be counted, our basic human right's i'm sure anyone in pain like me feel's the same as i do be counted,i understand how it has impact because i'm going through it.

Like/Dislike
1
on 08/07/2011 9:00pm

I was born with scoliosis, as i have grown older it has become worse my daily living impossible due to lower and neck spasames, i have had right side loss aswell as alot of pain that has been cronic for a long time,causing sleepless night's and distress emotionaly draining my life force to the point that i feel collapsing. I couldn't walk,pigeon step's,doctor's ignoring my pain even though i went through rehabilitation for this problem there is lack of understanding from my point of view. I believe that i have further under laying issuse's to what is going on like a spina bifida as i tend to go spastic,this has happened all my life,besides fit's in the night feeling like i'm going to die,waking to shakes in the night, put on gabapentine it has slowly eased off. This should be recognised as a disability in complete form, there is lack of understanding and proper care to people like me and i feel sorry for people who live there life in terrible internal pain as i live in daily life every day it is a chore for me because i can't run,i fall,slip,scared to place my feet incase i hurt my back further each day a fear for me. To wash my hair bending it hurt's, it takes me time and pain to lift myself, i feel crippled daily,if i had a choice living the way i am i'd rather not live at all because of my daily living that is impossible and hard,people expect too much,think your normal inside i'm crying with pain. I understand how suffer's feel,because at least if you lost your legs that you could understand, there is no help for disabled people with cronic scoliosis and i feel very sad that i have never had the right help. Doctor's who laughed at my predicament, to me the nhs have failed people like us, i'm a health care worker and speak the truth,but i'm trying my best to help other people. We need to stand up and be counted, our basic human right's i'm sure anyone in pain like me feel's the same as i do be counted,i understand how it has impact because i'm going through it.

Like/Dislike
0
on 08/07/2011 9:00pm

I was born with scoliosis, as i have grown older it has become worse my daily living impossible due to lower and neck spasames, i have had right side loss aswell as alot of pain that has been cronic for a long time,causing sleepless night's and distress emotionaly draining my life force to the point that i feel collapsing. I couldn't walk,pigeon step's,doctor's ignoring my pain even though i went through rehabilitation for this problem there is lack of understanding from my point of view. I believe that i have further under laying issuse's to what is going on like a spina bifida as i tend to go spastic,this has happened all my life,besides fit's in the night feeling like i'm going to die,waking to shakes in the night, put on gabapentine it has slowly eased off. This should be recognised as a disability in complete form, there is lack of understanding and proper care to people like me and i feel sorry for people who live there life in terrible internal pain as i live in daily life every day it is a chore for me because i can't run,i fall,slip,scared to place my feet incase i hurt my back further each day a fear for me. To wash my hair bending it hurt's, it takes me time and pain to lift myself, i feel crippled daily,if i had a choice living the way i am i'd rather not live at all because of my daily living that is impossible and hard,people expect too much,think your normal inside i'm crying with pain. I understand how suffer's feel,because at least if you lost your legs that you could understand, there is no help for disabled people with cronic scoliosis and i feel very sad that i have never had the right help. Doctor's who laughed at my predicament, to me the nhs have failed people like us, i'm a health care worker and speak the truth,but i'm trying my best to help other people. We need to stand up and be counted, our basic human right's i'm sure anyone in pain like me feel's the same as i do be counted,i understand how it has impact because i'm going through it.

Like/Dislike
0
on 09/14/2011 11:33am

I need to have a fusion on c5-c6. I am trying to decide whether to do it in October or wait. I am getting married in may. Any thoughts?

Like/Dislike
0
on 09/14/2011 11:33am

I need to have a fusion on c5-c6. I am trying to decide whether to do it in October or wait. I am getting married in may. Any thoughts?

Like/Dislike
0
on 07/22/2012 11:40pm

My gosh huh? I am 6 weeks past my surgery. I don't want to scare anyone and I advise to get the surgery because we don't want to loose control of our bowels, but this is hard work! I have two things going wrong for me my neck and back. Screws and titanium plate, disectomy and fusion were done on my neck. I am left with this huge slit on my neck! Does this heal properly? No stitches just glued closed healing from the inside out. How long does it take? It's so ugly and I can't wait to take this neck brace off! Now my back is acting up and my legs are being affected. The pain is going behind my legs into my knees, ankles, and feet. What kind of medicine helps this? It's only 5 weeks post-op and I'm already thinking about another surgery. Is all this surgery really worth it? I need some advice PLEASE!!! Any advise can help because we are the patient's and we are experiencing all the pain, recovery and hopefully SUCCESS! The doctor's shrug their shoulders and usually push you out of their office in 10 minutes..not fair! Let's start a prayer group here...maybe we can pray for each other!

Like/Dislike
0
on 07/25/2012 1:13pm

Hello neck91
I have c5/6 disc rupture/protrusion (& others) so I kinda know what you are going through. Additionally, I was a nurse and helped individuals in recovery and care. I refused to have any surgery and continue to not have any. I have seen and known people that have had absolutely wonderful results and others that had horrific consequences. I choose to live with the pain as it is, as I at least know what I am facing everyday.
And yes from the surgery you could have nerve damage.but the nerve damage could be a result of have the disc pressing on the nerves for a year... (do you have any indications of nerve damage that did not exist (NEW SYMPTOMS) before the surgery numbness/ tingling??? )
If it is truly muscular then you would be Rx'd muscle relaxers Baclofen, Soma, Flexeril ... did he give you any? in addition to the narcotics you are on? There are also direct injections available for muscle pain.
If at any point you lose faith in your doctor you should seek another Dr opinion. The 1st dr need not know about anyone else you see. Ask the new Dr to evaluate you condition as of RIGHT NOW. Ask for his opinion without the prior doc's influence. (DO NOT LIST THE OLD DOCTOR ON THE NEW FORMS... ) reiterate that you need the new opinion. Some doctors will be funny about it and you may need to visit a doctor in a different city to get what you need...
You have to remember Drs all run in the same professional and private communities... they work at the same hospitals even if the do not work at the same practices.
I personally would go to a different city and get an opinion... I would tell them about the increase in pain that has persisted, and that the Physical Therapy makes it worse. Just to be safe.
There are no TYPICAL causes for any symptoms...because no matter how many c5/6 ruptures occur in a population they are all different ... to a lesser or greater degree or the disc can bulge out or rupture into the spinal canal... so each surgery is different and each surgeries outcome can be varied by huge degrees.
Although and this is only from what I have read here... because you have to hold your head in a certain way and this means you are neither stretching or contracting the muscles. Muscle spasm may be to blame... you can try many things at home (after checking with your doctor) like moist heat therapy, or professional massage, or rubbing bengay on the muscle... Additionally, make sure you have your full narcotics dose on board before you do any P/T and afterward as you will be more sore.
I hope this information was helpful and I hope you do feel better soon.
Alissa <3

Like/Dislike
0
on 07/27/2012 3:25pm

Hi All, I just signed up and was reading all your comments... I also am deciding what to do. I was in a funeral home waiting in line to pray at the casket and a 25 foot beam fell from the ceiling and head my head. I was knocked out and required 7 staples on the top of my head. I have been fighting neck pain for 7 months! Did PT, did 60 days of total rest, nothing worked. I am a big runner, about 40 miles a week. I have only run 3 miles total since December, with pain. I have a 4mm rupture/herniation at C5-C6 and fusion surgery has been recommended by my neurologist. Was told 3-6 weeks in a collar, 3-6 weeks no driving and 3-6 months no running!! Ouch! Help me choose:
a. 39 yr old neurosurgeon that I have NO references on
b. 56 yr old orthopedic surgeon that I have one really good reference
c. 70 yr old neurosurgeon that I have over 20 good references on
d. none of the above

THANKS!!!

Like/Dislike
0
on 08/13/2012 10:07pm

I had fusion with bone growth material on c4,5,and6 with a couple of screws too. My cervical spine had snapped back at almost a 90 degree angle and the ruptured disc was compressing my spinal cord restricting the flow of my spinal fluid causing one extreme 5 month spinal headache.The biggest problem i've been experiencing is pain in all the muscles at the back of my neck.. I guess it could be because where my cervical spine used to be located between the muscles may have changed from the spine not being there for so long. I have pain turning my neck but have been exercising my neck slowly and gently and it is helping some. I figure a couple of months more and it will be even better, No matter how bad the muscle and nerve pain it is 1,000 times better than that 5 month nonceasing excrutiatingly painfull headache was Wayne R

Like/Dislike
0
on 08/23/2012 5:53pm

I'm sorry you are having so much pain. I had a back operation L3 and L4, a spinal fusion with rods. I have experienced numbness in the one leg and knee. I'm now out of my brace, but I notice that some days I have really bad pain in my back. Does anyone have this? Doctor said everything looks good and to continue to go seeing my pain management doctor. Does anyone have pain in back or knee problems after this surgery.

Like/Dislike
0
on 08/25/2012 11:08pm

did you ever think about having a cage ....I have two rods and 6 screws for 9 nears in that area c5 to t1 and in the most pain ever and failing also had lumbar spinal fusion with bone graft which failed and on thursday have a cage....I am I did alot of research and am in the medical field and interviewed serveral of the pts. numb leg spasms night and day in both legs and numb left....cannot walk more than a few step. so trying a cage and then the neck I am in horrible pain in the neck area .....always have been night spasms toe curls all night long have to jump on my toes 10 plus per night.. useless mesds

Like/Dislike
0
on 10/31/2012 8:58pm

Anisette,

Many thanks for your response to the original poster. I had a ruptured C5 disc that had broken up and was causing several problems with my neck. The pain in my right arm and shoulder was unbearable.

Two weeks ago (on my birthday of all days), I had surgery to remove the ruptured disc and all the broken particles, and had a fusion with some kind of synthetic bone. The doctor then screwed a titanium plate into my spine.

I am just starting to recover from his (I had a stoke in 2007), and I am starting to move around a lot better. I was not prescribed a neck brace because of the titanium plate.

I am experiencing terrible muscle spasms in my back that are very painful. Muscle relaxers don't seem to work - in fact nothing does.

I was starting to get worried about this when I saw your very sensible post. I have done what the doctors told me and rested, but I need to be patient and understand that this is major surgery and I have to rest for several weeks longer.

I was expecting major miracles, so I want to thank you for making me see sense and understand the healing process.

JimC

Like/Dislike
2
on 12/10/2012 4:12pm

I had acdf of c5/c6 10/25/10 and i still have excrucating pain in neck tthat shoots down left shoulder down to arm .also if arm is down at my side it feels as if there is a wieght pulling it down shocking pain shoots up arm .and theworst is the headaches and neck pain that keeps me in bed for days i take norco and soma but just dosnt take the pain away .also get where my left side of my face feels like after novican starts wearing off.difficult to do housework cant work. Have had cts done reg and with contrast on neck say they look fine. Also have had mri reg and will be haveing a mri with contrast on shoulder soon. See dr today to find out nervee conduction study. I too have the pain when looking down but also when looking up with head tilted back pain shoots down arm was told could be perment nerve damage. Also had cortisone injection month ago was great for one week cant get left arm up to side.

Like/Dislike
1
on 04/05/2013 12:45pm

Boy, Does anyone out there, other than myself, get real frustrated that there are never any doctors or surgeons that respond on these pages? I have been struggling with constant upper back and neck pain for almost 10 years - post surgery - twice. I am angry that the doctors and surgeons always treat us like we either don't know what we are talking about, are malingering, or just plain crazy. They NEVER take any responsibility for what is happening, don't listen and NEVER have any answers. In fact they don't even seem to care. I find them to be very impersonal and downright arrogant once I started going back with concerns about the ongoing pain and symptoms I was / am having.
Do any of them have a CLUE as to what might be going on at this point? NO!!
I believe there is still so much grey matter about the human body, nerve system and how to fix it that they can't possibly have all of the answer. But by gosh they could at least admit it and say that THEY will check with other specialists in the field and try to figure something out. But NO they won't say that and besides, they are too busy doing more surgeries and making big bucks to spend any time researching the problems that either continue after surgery or are caused by surgery.
I don't want to be a drug addict, a pin cushion or a hopeless case. I want answers, I want help.
But it is my experience after years of research that no one has answers and we are left on our own to write these blogs and seek help and answers from one another.
WHERE THE HELL ARE THE DOCTORS AND SURGEONS AND why aren't they trying to help us figure this out?
Sorry about the negative response but my heart just hurts for everyone experiencing this and who aren't getting any help or answers.

Like/Dislike
1
on 06/25/2013 10:59pm

I would like to add on to this discussion if I can join in. I also had a C5-7 cervical fusion with plate and screw last June. It has been one year now. I am still in a lot of pain. I am better in some places but worse in others. My knees hurt and my back is killing me. Something happened to my legs after this surgery. I am going to the gym, walking, etc. but my legs feel weak and my ankles hurt also. I'm not sure if it's from my back or my cervical region affecting my back and nobody is telling me either. I am going to try an injection to see if it works just so I can get answers for my back. I can't work either. I have spasms in my neck if I do to much or if I get stressed. All this medication is awful and I cannot concentrate either. Sorry to be so down..but pain, pain, pain...I'm tired of it! When it rains now.....I'm curled up in a ball waiting for the sun to shine again from arthritis. Sorry to be such a debbie downer guys but I'm just joining in and want to see if anyone else is experiencing this as well. Let's look up and ask God to give us positive thoughts and ask him to heal us all!

Like/Dislike
1
on 06/27/2013 12:44pm

I had cervical fusion c5-c6 c6-7, June 25, 2012. I have the worst headaches. Everyday!! Almost like migranes. My Dr says that it from muscle tension and spasms. He sent me to a neuro, who thought she might need to check for brain tumors. NONE found. I hurt in the upper spine, between my shoulders. Dr has me on Topomax for headaches, Flexeril for spasms, and Norco for pain. I still have to get up and go to work about 48 hours per week.....

Like/Dislike
1
on 06/27/2013 6:51pm

Oh that's a tough one! I can look straight ahead and turn my head pretty good. However, I do have upper back weakness. Maybe you need to just rest your neck a little. Maybe PT was too much for you. Try Aleve and hot packs for a while. Give your neck a rest. I hope you don't need another surgery. Hot packs really work good! Best of luck!

Like/Dislike
0
on 10/08/2013 12:48pm

I've had the exact same thing happen. My surgery was 10 months ago and the pain has substantially gotten worse over the past several months. My doctor told me it was muscle spasms. I'm not buying it. Have you gotten any answers?

Like/Dislike
0
on 10/08/2013 2:55pm

to mtrosemgz : I am wondering the same thing you are. Why aren't doctors responding to these complaints and giving us some hope or direction? My surgery was almost 10 months ago and I've never been in this much pain in my entire life. I would give anything to reverse the surgery and just have the occasional pain I was dealing with post accident/pre-surgery. My MRI report from the hospital says there is paramagnetic artifact related to orthopedic hardware at C5, C6 & C7. Also says there is a reversal of the lordosis. In addition, it says that at C5-C6 and C6-C7, post operative change is seen. Some ligamentous hypertrophy posteriorly. However, when I went to the orthopedic surgeon (not the surgeon that did my surgery...I wanted a 2nd opinion), he said well, you have several slight bulging discs but nothing to warrant another surgery. Ok I see that on the report as well, but why didn't he tell me what all of this other stuff means. I've done my google research and feel that these findings are pretty serious and are probably the reason for my excruciating pain. I'm scheduled for another MRI on my lower back now but I'm feeling like I'm getting tossed around and that I'm going to continue to be told that relief could take a year or more and that I may have to just deal with this pain. I'm not buying that. I guess I'm going to have to go to a doctor in another state to make sure there are no mutual dealings with each other. I'm sure doctors stick together and won't come out and say there was a screw up in my surgery.

Like/Dislike
0
on 10/09/2013 9:27am

I'm so glad to hear that I'm not CRAZY!!! I had the same surgery. The spasms won't go away! I have weakness in my legs but the doctor said that I'm okay;. I had myelopathy plus I have some myelomalacia which was spinal cord bleeding. I also have back pains and I think its from my neck because excersize is not working. I can feel it from my back of my neck to my lower back. I've had severe pain since 2011. The only meds they are giving me is Lyrica and it is not working. The front of my chest is weak as well along with my upper and lower part of my body. Some days I'm good, some days I'm very bad. When it rains...I can't go out and I cringe from pain. I stretch every single day and try to strengthen my core. I recently went on vacation and walked too much up hill. Paid for it when I came home. My ankles hurt and calfs are weak along with the tops of my legs from the one hour walk I forced myself to do. My legs are heavy also. I can't think from the Lyrica and I hate it. Does not really work for pain. I feel like I have gotten worse from this surgery. Although it says, 90% get better...I would say hold off on surgery until the very last minute....keep excersizing...take the muscle relaxers... and see what happens because you will always have to excersize and stretch from the rest of your life from this. This surgery did not do much for me except maybe stop the progression and even so.. I'm not sure if I made the right decision. I guess I'm better but there is other symptoms that go along with this sugery. Nice to hear that I'm not crazy anymore. I haven't been able to work since 2011. It's awful...but I'm finally getting use to being home and saying this is how my life is going to be. Keep exersizing and stretching...very important! Love to all! and thank you!

Like/Dislike
0
on 11/01/2013 11:59am

Well, Its me again...finally had a mylogram, which has showed that the top fusion is not growing together. Scared that my pain was coming from the graft moving around. I have been wearing a Orthofix bone stimulator for the past 3 weeks! Yay!!! I'm feeling so much better, that I have come off of my norco! Still having a little discomfort thru the shoulder area. I am beginning to feel like myself again! Thank The Good Lord!!!!

Like/Dislike
0
on 02/07/2014 9:50am

Well, after wearing this "horse collar" (bone stimulator) for 4 months, still no fuse. I believe it is not going to fuse together. I have now been refered to pain management, for evaluation. They will want to see if the pain is "in my head"..... oh well. My surgeon is not telling me everything! My headaches have returned. Still a lot of pain in the shoulder area and now between the shoulder blades in the spine. Oh No!! Any suggestions? Maybe I just need to go to another doctor!

Like/Dislike
0
on 02/09/2014 3:11pm

Hi had a fusion/discectomy with titanium plate and screw C5-6 2 years ago. I am in so much pain and discomfort its unbearable. I believe I am going in myelopathy again. The physiatrist I am seeing now says that I should never had gotten this surgery and should have just done physical therapy and excersize to manage it. This operation did not work for me. I have so many spasms I have pulling from the back of my neck to my lower back which has affected my joints. They have put me on Lyrica 75mg 3x day. I am gaining weight like crazy and want to get off this stuff immediately. I got this surgery because I wanted to work and I CANNOT! It's terrible. My advise....hold off on this surgery as long as possible. Yes...you are going to suffer with pain, but if you have this surgery...you are going to experience your neck muscles getting shorter, popping, pain, upper back pain still. My advise...hold off as long as possible! Going to see surgeon tomorrow to see why I am having so much pain, weakness and discomfort despite me strengthening my muscles. Didn't they say...no restrictions? Please say a prayer for me.

Cancel
Delete