Hello fellow travelers on our journey to pain free living :-)
I was unable to locate a group or discussion about this condition. From what I understand there
is not going to be a cure in what is left of my lifetime, so I seek wisdom from anyone else who has
it to deal with daily. I have chosen to not have the fusion in my neck and the Neuro has declined to
remove the misplaced screws in my Lumbar Spine. Now, with 4 new herniated disks, maxed out on
the time released Morphine and 10/325 Norco's, I am on a ( in my mind ) what seems to be a very
low dose of Meth and Percocet for breakthrough pain. I also suffer from relentless muscle spasms in
and around my shoulders and probably down to the middle of my T-Spine area. This gives me
near constant headaches, and some really memorable Migraines that I was certain would kill me.
I know people who have gotten spinal cord stimulators and sadly have had no relief with them. A pain
pump has been mentiooned to me as a possible therapy. Now to add more misery and suffering, I
found that I have kidney stones bi-lateraly. An attack is nearly as miserable as appenditis. It's gone
I got rid of it a few years ago. My question is about the Arachnoiditis. Is it going to get worse as time
passes, is the pump a good idea? I find it a very long wait for the taken by mouth meds to get to the
job of stopping the pain in my Lumbar region. Since I had been on such a massive dose of the Morphine for so long, I was lucky to get the Methadone from anyone. I'm grateful for the help it gives, but it's not enough for me to live in anyway one would consider normal.
I would love to hear from anyone with more experience about the pump and the Arachnoiditis, how
they tolerate it, and any suggestions that they have. I find Sage Wisdom to be invaluable in these
Many thanks to everyone. I pray for many hours of being pain free for each of you and one day an
instant cure for all of us. It took me over 30 years to get 20 Vicodin and some Dr to believe I was
really in pain.