SpineUniverse Community Advice
Get help and share your story with others who know what you're going through.
Please register or log in to join the discussions!

Scar Tissue Galore-Ideas?

Started by james302 on 07/16/2010 12:40pm

I just had a new MRI due to recurrent leg pain after 3 lumbar surgeries in past 4 years. The scan looks like a youngster scribbled all over the lumbar area with a white marker. When compared to what it looked like just prior to last surgery (8 months ago) it is unrecognizable. Anyway, spine stability apparently ok so thankfully don't need a fusion but steady pain in left leg usually reaching 7-8 most days. SCS has been recommended but from what I read here and elsewhere that looks somewhat unreliable in terms of longer term pain relief. Anyone have other ideas?

Do you find this discussion helpful?
0

5 Responses

Like/Dislike
1

James -

What about an intrethecal pain pump? I, too, have a ton of scar tissue and have pain in buttocks, groin, and leg. I was told by a neurosurgeon that the SCS wouldn't help but a pain pump would. What do you have to lose to do the trial for it? By the way, you have also got to do a trial for the SCS. For both, everything is done externally to see if they work before implantation. You also have to have a psychiatric exam before either one can be implanted. At this point, I don't know if I would pass! LOL! I have heard horror stories about both of them, as to lead wires being jarred and ending up in another place, infection, overdoses for the pain pump, etc. In spite of this, my pain meds work minimally, at best, so I'm considering the pain pump. Risk Be Damned! I would say research both on this site and the Web. Good luck and let us know what you decide.

Pam

Like/Dislike
0

Thanks Pam for the reply.I am conflicted about what to do. I wonder if they can just keep the trial version without implanting and just wear the belt or whatever a couple hours a day when running the program? James

Like/Dislike
0

James:

They do the trials for an SCS on an outpatient basis in a hospital. There's still wires -- known as "leads" going into your spine/back depending on where your pain is, but the device itself is not implanted. My understanding is you have a few stitches .They leave this in from three days to a week depending on your doctor. Then if it works, they go ahead and implant the device in your abdomen -- they told me it's about as big as a half dollar, and put the leads back in. They'll give you a video if you decide to try the trial. So you as far as having something on a belt, that's not how it works. If it did, I'd get one!! Let us know if you decide to try this. If so, I hope it works out.

Pam

Like/Dislike
0

James,

I too have a ton of scar tissue, I'm only 22 yrs old, most of my scar tissue is all from the 8 epidurals I've had over the years, not from my discectomy/laminectomy. Is yours a form of arachnoiditis? I have also been recommended an SCS, and I refuse it just because of my age, but I have just started seeing a new pain management Dr. and he has a lot of good ideas. In two weeks he's going to give me an injection from the side rather than straight in or intracatheterly to avoid risk of more scar tissue build up (Mine starts from the L2 and goes all the way down, looks like huge bullseyes on my MRI covering about 3/4 of my spinal cord). Forgive me for not knowing exactly what the compound is, but he's going to inject some type of acid that is especially made for breaking scar tissue. If that doesn't work he has a back up plan to go in endoscopically to scrape it off. He just performed it on a patient twice my age and the results were amazing, so hopefully something will pan out.

Like/Dislike
0

Mike-thanks for the reply.I would be interested in learning more about the injection details as well as the endoscopic removal of scar tissue. I keep thinking that there is a solution. Keep in touch.James

SHOW MAIN MENU
SHOW SUB MENU
Cancel
Delete