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Confused and worried

Started by sam082077 on 05/17/2010 10:06pm

I have been having serious pain in my low back what I thought was hip pain for about 18 months now. I had started working out, and thought when it first started that I had pulled a muscle. I tried rest/ice/heat and got no relief. After about 6 months I went to see a chiropractor, and was told I have a spinabifida occulta in my lower lumbar and sciatic nerve pain. I started adjustments, and felt some relief, however within 2 moths i was having more pain. I enlisted the help of a dr friend who works with orthopedic patients. He looked at my x-rays and immediatly ordered an MRI, he said spondylolisthesis, hypoplastics, spina bifida occulta and osteo arthritis, and reccomended I see a spinal surgeon. I am now being sent for a CT scan, and the surgeon said we would likely try epidural steroids, and PT is there anyone out there who can tell me what to expect with this? I currently have trouble moving, I "waddle" when I walk, I have loss of sensation alternating with pain in my left and now my right leg, I have a hard time bending, sitting, and standing. Is there anyone out there who has any information on what to expect from any or all of the diagnosis, or what to expect out of therapy?

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I understand your pain, worry and confusion. I share the same waddle in walking and pain, sitting standing or even just lying down. I also understand how much it sucks when you reach out for help with a post and don't get any replies.
I think what you can expect from your diagnosis is the comfort in knowing "why you hurt". I am guessing you have insurance and enough money to seek medical attention. Trust me- that in it's self is a great comfort.
With therapy expect pain. Ask lot's of questions, and do exactly what they tell you. Once you understand what's happening in your body, you will feel less worry and confused. We fear the unknown. I wish you well and hope you get more replies that are helpful.

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Your right I have insurance, through my job, as a restaurant manager......... I am worried about how much longer I will be able to do my job, which is why I am in the worried stage. But I am also confused by the ever changing symtoms, i had the parasthesis in my legs, but now I have a burning sensation that feels as though my entire lower body has been submerged in ice water and left there. I also don't know how to explain the way i feel to my husband who just doesn't understand chronic pain. He is trying to be understanding and sympathetic, but he gets frustrated because lifting a laundry basket full of clothes up a flight of stairs is impossible for me, sweeping and mopping and loading the dishwasher are out of the question

Thanks for the info and I will follow the dr.s orders

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Oh Sam,
I do understand as do all of us here, how hard it can be to explain a pain that no one else can see.
I have had the same problems with a non understanding partner, in fact a couple of them.
I too feel a burning/stinging feeling, mine from under my right butt cheek down to my heel. I don't have insurance and a doctor is not an option. I am treating myself with the help of this site and I am so happy to have found a place where everyone knows I am not using the pain for an excuse, or just complaining in general.
When we hurt 24/7 and don't have a good support system we can get pretty depressed and cranky. That's why reaching out to a site like this is so important. maybe someone will have a condition like yours and respond to your post, but the most important thing I want you to know, is that everyone who reads these posts knows how hard it is to live with pain.
I have a couple of your conditions, I too saw a Chiro and a O.P.S. I had a few adjustments from the Chiro, but the pain increased. The O.P.S. wanted to give me the shot and therapy, but I refused.
I have the same waddle when I walk.
I am pleased to say that this site has help me a great deal and I have been free from the sciatic nerve pain for 3 days and nights, now yesterday was a stressful day for me, and I did experience the what I like to call a "shock wave" down the right leg again. I iced and told myself to take it down a notch. I worked the tightness out of my leg muscle slowly and I made myself a cocktail, I had two, and ate a healthy, lite dinner. It helped a great deal. Before I went to sleep I took 500 mgs of Ibuprofen.
This morning I feel pretty good, the burn/sting is still there, but no "shock waves" yet.
I know you are busy with work and family life, but take time to heal yourself, it does make a difference. When you need to talk, and you know your partner or friends are tired of hearing about it, post here and use this site to learn more about the body and living with pain.
Above all have a good holiday and keep icing your back. 20 on 20 off. Be good to yourself.
Stretch your muscles slow and easy after ice.
Best wishes,
WarriorX

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I'm sorry to hear you are in such a hard situation. I was glad to find that there were others out there who could help "guide me" through this diagnosis. I start PT soon, and will go through the steroid epidural injectionsi n a few weeks. I am getting a better grip on my aggitation and frustration. I know that i do not have a unique situation, nore am I alone in this. I would be more than happy to share any advice that i receive from the therapist with you so that you might find somthings that help you. I am not a doc, and i do not know your unique situation, so I don't want to mislead anyone who might see any future post.

Thank You for all of your info, hope you continue improving
Sam

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Hello, my name is Janice and I want to tell you of my condition and then you do your reserch and decide. I have been having severe low back pain for 20 years. The past 10 it got really bad. First off I had a cervical fushion with bone grafted from my hip. I was suffering with bad siatic nerve pain in my left side, butt & leg. After I had my neck brace removed I went right back and had surgery for a ruptured disc. After that my left leg went numb and also foot. still had bad back pain and then had my gall bladder removed. Then I started on the epidurls. I had 2 that didn't work, then when I went for the third one, I asked the doctor about another location for the shot. He pulled up my MRI and turned to me and said" I can't give you this shot, you have ARACHNOIDITIS". This is caused from back surgeries and epidurls. In my day when you had a baby, you got a SPINAL. I found out that this is also an epidurl. SO I had a total of 5. You in my opinion should be seeing a neurosurgion. not a orthopedic. If you have your MRI I have a site for you to look up that will define everything your MRI says, and you will no a lot of info. I had this for 2 years and my Dr. never said a word, just kept sending me back for those epidurls, knowing that anyone with my condition should NOT have them. Too bad the Dr. that did them never bothered to read my mri. I am concerned for you . The site I mentioned iswww.adriaanliebenberg mri terminology. Also look up arachnoiditis and see if you have any of those symptoms. I waddle and am in pain with some of the symptoms you do. I just want you to think twice about the epidurls untill you see you mri. I want you to be careful and know your true condition.You're getting to many different diognosis. Sorry for such a long post,and it my not pertain to you, but when I read about back and epidurls I get scared for that person. Please keep me posted on your care and what your final diognois is. Jan

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Janice, Thanks for the info. I am going to call the center on Monday and get a copy of my MRI report. Many of the symptoms that were listed sound familiar, so i want to see my report then present what I find to the Dr. and see what they can tell me.

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Hello, I haven't heard from you and wanted to know how you are doing. Did you get your MRI? I also wanted to tell you to go to COFWA and go to their links. You will learn about arachnoiditis and getting epidurls and spine surgeries etc... This is a must for anyone with horrific back pain, numbness in a leg and foot, siatic nerve pain, arm pain, bladder & bowell problems, etc... A MUST read for many many others also. Please do this before you have anything done. especially an epidural. I also feel you should be seeing a NEUROLOGIST. Especially if you find out by reading the site at COFWA and all the info there. Take care of yourself and let me know what's going on with you. JAN

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Now for me...

Regular ice packs didn't do squat for me. Take a large bottle of rubbing alcohol and put 1/3 of it into a freezer bag with 2/3 water. Seal it and put that bag upside down into another freezer bag and seal that. Then find a cheap pillowcase and use that as the cover. It will be the longest to freeze ice pack you have, but the coldest and quickest relief. Also, there is a skin creme called Voltaren Gel that is prescription that can help for pain/cramp relief. Sometimes it helps, others it doesn't.

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Wow, that sounds so familiar to my issues! I am a lifelong runner, and had recently started seriously running and working out again after about 8 months of not exercising. I had been working out a few months when I felt a twinge in my hip that quickly developed into horrible hip pain, which then started radiating down my leg. Pain was about 9 on a scale of 1 to 10 at its worst. Like you, couldn't bend, sit or stand without excruciating pain - only got relief lying down with affected leg elevated. My internist saw me first, prescribed PT, hydrocodone and muscle relaxant. I was told by PT I had piriformis syndrome. Went to PT a few times and got no relief so I quit. Pain meds did little to relieve pain, just made me sleepy and lightheaded. Went back to my doc, who sent me for MRI and to an orthopaedic surgeon. Found out I have spina bifida occulta, spondylolysis, spondylolisthesis, herniated disc at L4-L5, and some arthritic changes. Ortho doc advised me to try the steroid injection, so I had that done about a month ago. It worked really well for me, I have been almost pain free since the injection, and haven't needed the meds. I am supposed to be doing PT too though, and have been procrastinating on that. I hope you have been able to find some relief - the epidural steroids sure helped me, but my ortho doc saw me again yesterday and said I really need to do PT to strengthen the muscles that support the spine so the spondylolysthesis does not get worse. Good luck!

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Hello Friend
How are you apart from being overly concern. It seems I chose the first person to correspond with and we have a lot in common. This is your complaint (diagnosis)
" I have loss of sensation alternating with pain in my left and now my right leg, I have a hard time bending, sitting, and standing. Is there anyone out there who has any information on what to expect from any or all of the diagnosis, or what to expect out of therapy" I had many physical therapy, the last one I had which lasted a month twice a week. Most of the time the person (Doctor) who says do this and that and it will strengthened your whatever. THEY make matters worst, for us the sufferer. mean while the money is all they care about. I will not have spinal surgery my problem is L4/L5 our main Discs. these guys hold our body up, keep the body in motion, I find the Epidural Shots give me atleast threee days 80% pain free. I would always allow these shots. You can only have three shots a year. I am now without a Doctor, I have medication to last me to the tenth of August. At the present time I am in a great deal of pain, I don't know my way around the city I am in.
I will say a pray for both of us to get a Doctor who has human feelings. Understanding Pain and what it can do to a person mental grip to life.
Look try the shots I will not allow any one cut my back unless it was something I have suffered like today and surgery is tomorrow.
God bless! You

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Hello to you both, and I'm sorry that it hit so unexpectedly. L4L5, you need to do core exercises on an exercise ball as much as you can.. and try to reduce any weight if you are over. Check into spine injections that are nerve block. You can have more than 3 of those a year. Spine injections only work if they are hitting the right spot. If you stay sitting too long, or lying down, it makes it harder to move when you get up. I know its hard.

I have just been taken out of work pending surgery so I will see how it goes. Surgery should be mid August to early September. Wish me Luck!

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