Flat Back- Harrington Rods
Hi, I have been disabled since 92 and have tried every thing that has been suggested and have been to well over 15 different doctors. I had surgery for a ruptured disc and have been told that my disc in the lower part are all deteriorating. My fusion was in 75 at the age of 16 with a curve 62/32 with internal rotation and rib collapse. I was given 2 choices. #1-have the fusion and was told the possible problems or #2- stop wearing the Milwaukee brace, which wasn't working anyways, my spine would continue to rotate causing the lung to first get squeezed and them would fail and my heart would suffer. My ribs would collapse over my hip and I would be totally deformed. So, I had 2 weeks to clear up my pimples and had it on Halloween. I bleed out 3 times and spent a lot of time in ICU. I ended up with an infection in the lower incision and was flat in bed 3 months. Went home with an over 25lb body cast weighing less then 90lbs at 6ft. I recovered well, became a nurse and had 2 boys who also had fusions that where totally different in every way.
So here I sit and 2 days ago I stumble on the Flat Back and it stated everything I lived through. I tore my meniscus in my good leg, the other has severe sciatica and had favored it. I went to the doctors and told her what I had found. She stated that to have this surgical procedure would most likely end up in a totally poor outcome considering things I didn't think of. When I was fused they took a graft from the hip and mixed it with cadaver bone,which they still do, and packed it in between the vertebral body thus making my spine one large bone. The remaining spinal bones lose their original size and the disc themselves, well I have no idea what happens to them. So, in this new surgery it states they undo part of the rods possibly removing them and the they reshape th way the spine is. I just think the possibilities of breaking the actual vertebral bones would be high due to the fact that they have been fused and now normal bones have grown together so it's one piece What if they get in there and it falls apart. I would be in a lot worse shape and it would be likely they would have to fuse all of the remaining vertebrate. I could lose my ability to walk and although I have been told that I could lose bowel and bladder control i time, I may lose it then. Thinking hard about this I have come to the conclusion that this would be too dangerous for me to even consider it.
So I will stay on Lyrica and Methdone and hope it holds the pain. My doctor will not increase the Methadone because she doesn't feel comfortable and I would have to go to a pain Doctor. I have had the following done, epidurals, caudal blocks, facet joint injections, ablations, Ricci, manipulation, PT, water exercises, and I can't even remember everything. When I moved here I went to a specialist in Harrington Rods to find out if he had anything I could try. He looked at all of my paperwork, mri's and Cats and said he was sorry, that I had done everything he could or would suggest. I think I am like every other person who is in pain and see their body start to deform, that we go from one doctor to the next hoping and praying that this doctor will be the ONE! That he will have that magical treatment that will make me a productive person. That people will stop staring at me or feeling pity for me. I just want to stop being jealous when I see someone walk or run, someone whose body hasn't betrayed them. I will not stop trying to find anything that will help. I refuse to be sad. There are so many tiny ones who suffer and are so young that they don't understand why they have pain. I have been able to see my sons grow into happy healthy adults and I will continue to bug them about protecting their backs. I pray their future holds only great things and they will never have to go through this hell. Oh, I forgot, I use to sleep sitting up or in the recliner which shorted my leg ligaments so be careful about doing this. My parents bought me a sleep number bed and for the first tome in years I can sleep laying down and get 5 full hours of sleep. If you can, try to find a bed that will help you rest. It helps to tolerate the pain. I have also found meditation is so helpful!