Had full fusion with the Harrinton rod 1984 now 41 and living in pain hell with herniated discs, chronic pain and feel so alone!!!
I just joined this site and I hope to meet up with others with similar issues so we can advise one another. I had a full fusion T8 to L4 with the lovely (not) stiff harrington rod. I am now 41 and am a professional teacher missing 30 or more days of work a year with all the vacations and holidays because below the rod my discs are smashed, and I have tons of other chronic pain problems. 41 going on 90.
Here is what I have:
~the rod is so stiff I cannot straighten up for a about 2 hours in the morning and sometimes like this weekend all day as well. Stooped over, was checked for flat back syndrome and a doc said I didn't have it!?) aka MORNINGS ARE HELL and I cry a lot
~Nerve pain going down both legs
~constant back spasms
~on a rollator a lot which is embarrassing and unbelievable as I "look" in great health
~Numb leg to ankle often
~started on oxys 3 15mg a day and its not making a dent other than making me a ditz
~sick and tired of being sick and tired and aching
~considering getting an xlif surgery on June 3rd.
~getting new catscans, mris, and xrays this friday and will see the surgeon on Sat April 15th., 2011
PLan A the surgery restores me to being able to work without a pain level of below 5 and I will continue working as a teacher
Plan B going on disability as a single mom of a 13 year old, you tell me how I am going to do that?????
Anyways I am freaking out AND would really appreciate knowing someone going through similar stuff so we can help one another. My family that decided to get this surgery for me when I was 14 have said "I love you but I cannot help you" so no family support. It feels as bad as the chronic pain.
What does work:
~massage, myofascial release anything relieves the pain, touch touch touch.....
~inversian table, I hear my spine unfold crack crack crack and then I am upright in the ams as long as ~I dont bend again for anything....my daughter loves that poor thing.
~more massage, ahhh relief, for a few hours
~my tempurpedic bed is good
~sometimes I can walk when i get straightened up
~ice my back every day
I hope to get connected to people who are living this private hell...........its so lonely and people just dont understand.....