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Vetebral Hemangiomas

From: tiffdaugherty - on 10/14/2010 4:50pm

I have been diagnosed with a vertebral hemangiomas which is same as spine tumor I think but anyhow, 3 years ago my MRI showed a hemangiomas at the T12 L1 and i recently got an MRI in August 2010 and now it shows i have several hemangiomas, all the Orthopedic, Neurosurgeons, Chiropractors, everyone is so sure that it does not cause pain, I have had physical therapy, acupunture, Active Release Techniques and Prolotherapy Injection, Epidural Steroid Injection and nothing has worked, I just don't think it is a cooincidence that my pain is exactly where the tumor is but yet everyone insist it does not cause pain, i can't sleep or concentrate anymore. i don't know what else to do. Any help or suggestions would be appreciated.

Thank you,
Tiffany
tiffdaugherty@yahoo.com

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on 10/15/2010 11:52am

I'm not sure what a hemangiomas is but I have a schmorls node at T4-T5 and all past research says people don't even know they are there. Mine is active and the pain is intense! I also have 7 bulging discs which are not suppose to hurt either! Would like to give some of the specialist my back for 1 day :O} Now I'm finding new information about them and many people are having severe pain from them. They are formed over a herniated disc. They would be similar to a tumor (jmho). It's natures way of fixing the herniation by building a calcified nodule around the injury. Hang in there because I was told mine shouldn't hurt either but now they are finding out different! Mine is inoperable so nothing can be done. I am lucky to have a good doctor who believes in me. He has me on pain management. I take long term pain medicine and have short acting too. Some days I still have intense pain but at least now I can live a somewhat normal life!

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on 10/15/2010 1:35pm

hi...
i just found this on the web....

"Pain
Tumors, whether benign as with the hemangioma, or malignant, generally can cause pain. For a tumor in the vertebra, the pain may extend through your entire back but may initially be confined to the area of the problem. The Mayo Clinic states that pain that originates in the back can radiate outward to other portions of your body. This pain may increase at night. The American Academy of Orthopaedic Surgeons reports that often patients with tumors inside bones can feel a dull pain in the area affected that could increase when they are active. This does not always happen, however."

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on 10/16/2010 12:08pm

Hi Tiffany,
I have one too but didn't even know it. Mine doesn't hurt and I believe is near the same level as yours. They typically do not hurt unless compressing on neural elements.

However, since you are having pain, may I suggest you have an MRI with a tesla 3.0 (not all places have them as they are relatively new and real expensive). They give clearer more detailed imagery.
There is one other test that will also look at the nerves which is bone scan. Then check around to see if any imaging place has the tesla 3.0. This plus the bone scan should be abe to tell exactly what is going on. You might have a nerve being pinched by the hemangiomas. But you need the power of the these 2 tests to be able see exactly.

Have a look at this link the very last at the bottom and bring to your doctor, b/c there are persons such as yourself who do present with pain. You are not crazy!

http://www.back.com/causes-tumors-benign.html

Hope this helps and good luck!

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on 12/16/2010 6:29pm

Thank you all for sharing and for the suggestions, I will look up the link, I'm at the point where I just want to find a Surgeon to remove the stupid hemangiomas but from what I've researched, there aren't any Doctor's out there who is willing to take the risk to perform surgeries to remove spine tumors because it is a complicated surgery, maybe that's why they all tell people it does not cause pain because they don't want to perform the surgery to remove it. . I'm just wondering why they don't find a different profession than if they are too chicken to perform these surgeries.

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on 02/03/2011 6:02pm

Hi, I have extreme lower back pain too.I've had 2 MRIs and have multiple hemangiomas.Doctors tell me that the hemangiomas are not painful.I take 3,700 mgs of nerve pain pills and they really don't help.The longer I'm on my feet, the worse it gets. So if u get any information,please let me know.From someone who needs help too. thank u

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on 04/09/2011 5:50pm

I just wanted to update and tell everyone thank you for all the suggestions. I finally found a surgeon who was able to help me with my vertebral hemangiomas in my T12 and L1 after seeing 7 different surgeons from San Diego to Fontana. I am finally pain free and able to have a normal life again. I found an excellent surgeon at Cedars Sinai in Los Angeles, his name is Dr. Hyun Bae he performed the Embolization and Vertebroplasty on me and it sure indeed worked, for the first time in 5 years, I am pain free.

Tiffany Daugherty

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on 04/09/2011 6:12pm

Hi Tiffany,

So glad to hear of your success- what is that drs specialty ?
Chris

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on 04/23/2011 7:48pm

Hi Chris P,

I just saw your comment, my surgeon is an Othopedic Spine Surgeon and his specialty is in minimally invasive surgeries, he was on Fox News and he gives talks all the time on procedures.
I don't know if maybe you need a good surgeon or you are asking because you know someone that needs a good surgeon but if you have any questions or want to know more about the procedure I have, feel free to contact me, I can be reached at a company called Custom Display Solutions in Santa Ana, I would be more than happy to hep. Tiffany

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on 04/23/2011 7:49pm

Hi Chris P,

I just saw your comment, my surgeon is an Othopedic Spine Surgeon and his specialty is in minimally invasive surgeries, he was on Fox News and he gives talks all the time on procedures.
I don't know if maybe you need a good surgeon or you are asking because you know someone that needs a good surgeon but if you have any questions or want to know more about the procedure I have, feel free to contact me, I can be reached at a company called Custom Display Solutions in Santa Ana, I would be more than happy to hep. Tiffany

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on 02/23/2012 1:59am

Tiffany,
I have a hemangioma at the same level and I can tell you it's excruciating, particularly when I move or twist. I'm hoping that physical therapy will prove that that is my problem as I also have disc degeneration in other areas. What have you found out?

Never mind! I just read the rest of your comments! that gives me hope! thank you!

Nancy

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