grade 4 l5 s1 - still in agony after having fusion...
I am a 25 yr old single mother of 2 who was diagnosed with a grade 4 slip on my l5 s1 vertabre (spondylolisthesis) mid last year, i was in alot of pain and was unable to move with pain radiating down both legs so in september last yr i was sent in for surgery after being told i had no other option.
I had invasive surgery where they placed a rod and 6 screws into my spine in attempt to fuse it, as i had a grade 4 my vertabre was completely unattached and they could not move it back in line so it had to be fused in the postion it was in, they also cut bone out of my pelvis to place into my spine (not exactly sure why they did that or where it went) my spinal cord is now curved due to the slippagge too.
Recovery from this operation was hell i was bed ridden for four months and had to start from baby steps in attempts to walk again without falling over.
The pain that was radiating down my legs subsided alot after the operation, but it is now starting to come back.
It has now been 10 months since my surgery and im am in agony the rod that they placed in my spine is sticking out of my skin (has not ripped through the skin tho) it digs into my car seat when i drive and digs into my bed if i lay on my back, ive been on so much medication and tried every cream, lotion and rub possible but nothing gives me relief. have recently had a xray to see if the metal work in my spine has moved but after comparing this xray to the one done in september after the operation it seems to look like the metal has not moved so i do not understand how the rod can be sticking out the way it is even my surgeon is stressing about having to deal with this. I feel like im jus being hand balled around cos no one wants to deal with this as its too complex.
I dont sleep and spend every day in agony whilest trying to be a mum and study to be a teacher.
I have another MRI and a app with the surgeon who performed my surgery in a few weeks to discuss what he wants to do, the out come of our last meeting a few weeks ago was that he wants to cut me open possibly through 2 operations one through the back and one through the front like a c section and remove all the metal work that he put in there (if it has fused) and if the MRI shows that it has not fused he said he will have to reposition the screws and rod that he put in place as it is causing me so much discomfort and pain.
I was told when the fusion was done that it would be in there for life so to be told now that im going to have to under go surgery to have it all removed i am really very worried and scared.
My body did not cope well through the first operation i had a resp rate of 2 beats per min and was in screaming agony even though my GP had me on about 7 different types of opiods at one stage when i was discharged from hospital.
I was given no rehabilitation apart from a 6 week pain clinic course to help me cope basically i felt like i was doing it all on my own.
I took myself off all my medication because i felt like i was in a coma for 4 months as i spent every day in bed unable to move and i got really sick which has had me in and out of hospital for the better part of this year.
I would really appreciate any advice that anyone can give me as i feel i am at my breaking point and can not take much more of this pain or life style that i now have, i used to be very active with sports and playing with my children now i cannot do the every day things people take for granted i cannot even go food shooping with out ending up in tears from pain overlaod.
I have recently been put back on oxycontin after trying to bear the pain for the past few months just on 100mg durogesic pain patches (that i cannot use any more due to alot of side effects) it has jus got too much for me to handle.
I Have tried a whole list of medications that dont seem to help now im at a point where i dont want to put all this nasty medication into my system, surely there must be another option......
Am desperate and appreciative for any advice on this matter....Is there anything i can do for relief and should i under go this second surgery i dont think i can bare to go through all of that again but i cannot continue to live like this its too much pain for even me to deal with.
Thank you for your time ...........