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2 cm! herniation L5S1-2 yrs ago

Started by ilovecoffee on 06/11/2010 9:31am

I have never in my life thought so many of us are dealing the same things and looking for the answers.
I have a long story and maybe someone can give me ideas. I had a severe herniated disc just about 2 years ago at the L5S1 level, it was a 2 cm Herniation. I had surgery to trim the disc and it started to get better and better just like the doctor said,(very slowly-very slowly) but I did not have immediate relief. I was also told I had weak link. I thought I understood that it was weak, but had not idea just how weak it was. I went about 15 months and then it got worse, went thru another MRI and a mylogram, and several docs, each telling me different remedies, one said to do a fusion, one said he would decompress with shaving of bone and trimming a slight protrusion from the disc. I did not feel that was the answer, due to reading so many things saying it may not relieve the pain. I was immobilized the first go around, my hip feeling like it burned a hole in the mattress, and crawling on the floor like a dog, so I felt like that surgery for the Herniation was the right thing. Since the flare up, (8 months)I have done the resting, the nerve blocks, the physical therapy and the pain pills, trying not to take many- just going on and getting used to it, but want so much for it to be better.
I have come to the conclusion that I will never really get rid of all the pain. I have a doctor now that started me on a seizure medication that is supposed to be effective for nerve pain and an antidepressant that is also supposed to help. I guess I am a bit more healthy in the brain, trying not to get depressed to the point where I am consumed by the pain and telling people around me all the time, except my hubby. I just look at him sometimes and say, my leg is killing me, my back is killing me, what is wrong with me, I wonder what I should do. My doc seems to think surgery would be iffy as to whether it would help me. I did pretty good after the phy therapy and got back to walking normal and feeling like I had better stamina on my feet, I started to resume more normal activities and then bam! I just felt like all that hard work to get better, came to an end and I don't know whether to rest or get up and get going. I know that inactivity can contribute to the pain as well. I just want to do normal everyday stuff, laundry and cooking and you guys out there know what I am talking about. I do get relieve when I lay down, thank god I can sleep most of the time. What does anyone think about my situation? I was told the Herniation was a severe one- I asked if they thought I should do a nerve test, and the doctors have asked me why- it probably is damaged. I wonder if the scar tissue is contributing to my problem, maybe there are free fragments floating around in there, maybe the disc is leaking? I have heard that a disco gram is very painful and not that helpful when it comes to figuring out a treatment. My doctor visit is next week, l think last visit he mentioned he may send me to the pain management center and possible checking into an electrical stimulator? I have to have my symptoms written down again and all my questions ready- so I don't feel like I left the office without finding out everything I need to know. Any ideas?

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Hi ilovecoffee
Have a look at a new product on the market called Trekke Lumbar Lift, it offers mobile lumbar "unloading" in a soft, flexible and comfortable device. I have been involved with the development of the product for the past ten years and now of a person that wears it for ten or more hours a day allowing her to get back to doing vetenary work/surgery. Tell your doctor to have a look at it.

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I had a discogram before my spinal fusion. No one could have prepared me for the pain. It was litterally undescribable torture- but if you are concidering it, do it. It only lasts a few minutes and they know precisely what disk is the worst. I had my surgery, post-discogram, and felt assured they knew what they were in for because of it. Just bite down and do it.

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Mr. John Miller,

I see your posts in a lot of threads and wonder if you think it would be proper to tell everyone that the suggestions you are making are for your product, not just someone going to a site and getting free things that can help them.

Your $49 diagnostic service being a major one.

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I don't remember seeing the Lumbar lift post under a persons name and talk about how they are the cure.

I simply asked about disclosure.

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Mr Miller while I agree that fitness or lack there of is a big contributing factor to spine and health issues, I disagree that it is not being addressed here and in the doctors office. If you read through most accounts, you will see that many patients complain that they were sent to physical therapy without ever getting an MRI or being referred to a spine specialist. They complain that it takes on average 6 months to a year before they are ever seen by a surgeon. They complain about the aggravation of their pain and symptoms by the stretching and strengthening exercises they are being taught and frustrated that they are being forced to endure this in order to be taken seriously by their doctors.

The medical profession tries to do what it can to address the issue of fitness and strengthening, however when the patient does not want to hear about it or participate, what do you expect the doc to do? If they refuse to treat someone because that individual doesn't want to work on getting into better shape, then guess what, they get sued or the patient goes doctor shopping until they find someone who will treat them or refer them to a surgeon. Buying a book is not going to change the mentality of the masses and certainly not going to appeal to someone who is suddenly in pain and looking for relief. Someone who is in that much need of strengthening their body is not typically a person that will have an epiphany by reading a book or a website.

I would suggest writing some peer reviewed articles and have them published here and on other sites like this, then try advertising your book and site. Without something like that, you are just confusing and frustrating people as well as SPAMMING the forums.

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Hi everyone that is following this thread
fatgrageape and john millar, lets not loose the fact that we are all here in an attempt to assist those with chronic pain. I am sure that like myself, there are those that are involved with a product or are using a product that gives us relief and so want others to try it in the hope that it will help them as well. Providing we are not involved in a "snake oil" scam, I think getting a bonified product that does relief low back pain out there should be OK. Yes, I think you should be clear that you are involved in some way or the other, that is the right thing to do, but for someone that is truly suffering from chronic back pain, if you do end up being the person that points them to the product that relieves their back pain, I don't think they are going to care if or how you are involved with the product.

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I subscribed to my own discussion (which I am sure we all do) and was so enthused that I had several responses to my discussion. Then I opened my topic, only to find a number of entries that really don't have anything to do with what I originally posted. I suppose you have to be prepared for that, but what a let down. I have only been a member for a while, I hope it is not always this much of a bummer.

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ilovecoffee, unfortunately this is a typical occurrence on forums like this. Usually precipitated by someone with an agenda that is not in line with the intent of the original posting member. I apologize for contributing to your thread going off on a tangent, but Mr. Miller was SPAMMING the forum and unless someone called him on it, he would continue to do so. He disrupted numerous threads under the auspices of "wanting to help" when all he was doing was trying to promote his book and website.

As far as your questions, what type of doc are you being treated by? If it is just your primary care physician, I would hold off making any decisions about surgery, discograms and a stimulator until you've been evaluated by a spine specialist. Anti-seizure and anti-depressant medications are great for treating nerve related pain. If you have only recently started on them, just know, that it takes a while for them to build up to a therapeutic level where they really start helping in the fight. Surgery is always an iffy thing and something to avoid if at all possible unless there's a greater risk by letting things remain as they are. On the topic of a stimulator, if there's still a mechanical issue causing your pain, the stimulator won't be very effective if at all.

Best wishes

Bacaumi

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Good afternoon I Love Coffee! Sorry to hear about the discs - a very common occurrence particularly up to the age of 45 with decreasing rates of herniation as we age (thank goodness something gets better with age!).
I wanted to point you towards some of the good or gold standard literature so you are well informed about back injury; back pain etc. I am Jane Sleeth Physiotherapist in Toronto Canada.
Most if not all herniated discs heal themselves over a time period of 2 years
Most surgeons in Canada who are not driven by financial pressure will not operate on these as they get better over time and risks for infection, increased leg pain outweigh the benefits
I would suggest at this point in your recovery that you not worry about the pain and focus more on mobility and function. At this point your pain has become chronic in nature and is no longer a useful signal in your brain. Get a good active, exercise based physiotherapist to show you how to get started, have them monitor your progress and progress you thru a full program. Focus solely on function; strength, balance, mobility and how you are functioning at work and home. The pain may then modulate over time.
Best of luck JE Sleeth Physiotherapist and Ergonomist OPC Inc

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