2 cm! herniation L5S1-2 yrs ago
I have never in my life thought so many of us are dealing the same things and looking for the answers.
I have a long story and maybe someone can give me ideas. I had a severe herniated disc just about 2 years ago at the L5S1 level, it was a 2 cm Herniation. I had surgery to trim the disc and it started to get better and better just like the doctor said,(very slowly-very slowly) but I did not have immediate relief. I was also told I had weak link. I thought I understood that it was weak, but had not idea just how weak it was. I went about 15 months and then it got worse, went thru another MRI and a mylogram, and several docs, each telling me different remedies, one said to do a fusion, one said he would decompress with shaving of bone and trimming a slight protrusion from the disc. I did not feel that was the answer, due to reading so many things saying it may not relieve the pain. I was immobilized the first go around, my hip feeling like it burned a hole in the mattress, and crawling on the floor like a dog, so I felt like that surgery for the Herniation was the right thing. Since the flare up, (8 months)I have done the resting, the nerve blocks, the physical therapy and the pain pills, trying not to take many- just going on and getting used to it, but want so much for it to be better.
I have come to the conclusion that I will never really get rid of all the pain. I have a doctor now that started me on a seizure medication that is supposed to be effective for nerve pain and an antidepressant that is also supposed to help. I guess I am a bit more healthy in the brain, trying not to get depressed to the point where I am consumed by the pain and telling people around me all the time, except my hubby. I just look at him sometimes and say, my leg is killing me, my back is killing me, what is wrong with me, I wonder what I should do. My doc seems to think surgery would be iffy as to whether it would help me. I did pretty good after the phy therapy and got back to walking normal and feeling like I had better stamina on my feet, I started to resume more normal activities and then bam! I just felt like all that hard work to get better, came to an end and I don't know whether to rest or get up and get going. I know that inactivity can contribute to the pain as well. I just want to do normal everyday stuff, laundry and cooking and you guys out there know what I am talking about. I do get relieve when I lay down, thank god I can sleep most of the time. What does anyone think about my situation? I was told the Herniation was a severe one- I asked if they thought I should do a nerve test, and the doctors have asked me why- it probably is damaged. I wonder if the scar tissue is contributing to my problem, maybe there are free fragments floating around in there, maybe the disc is leaking? I have heard that a disco gram is very painful and not that helpful when it comes to figuring out a treatment. My doctor visit is next week, l think last visit he mentioned he may send me to the pain management center and possible checking into an electrical stimulator? I have to have my symptoms written down again and all my questions ready- so I don't feel like I left the office without finding out everything I need to know. Any ideas?